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İnmeli Hastaya Bakım Veren Aile Bireylerinin Gereksinimleri: Sistematik İnceleme

Yıl 2016, Cilt: 3 Sayı: 3, 28 - 43, 23.12.2016

Öz

Amaç: Bu sistematik incelemenin amacı, inmeli hastaya bakım verenlerin gereksinimlerini inceleyen çalışmaları analiz etmektir. Gereç ve Yöntem: Bu çalışmanın evrenini, EBSCOhost, Medline, PubMed, CINAHL, Scopus, Web of Science, ULAKBİM Ulusal Veri Tabanı ve Türkiye Atıf Dizini veri tabanları taranarak ulaşılan 2359 makale oluşturmuştur. İncelemede; “inme” (stroke, cerebral stroke, cerebrovascular stroke), “bakım veren” (caregivers, family caregivers), “gereksinim” (need, needs) anahtar kelimeleri kullanılarak son on yılda yayınlanmış (Ocak 2004- Aralık 2014), yayın dili Türkçe ya da İngilizce olan ve tam metni bulunan makaleler seçilmiştir. Bu makalelerden, araştırmaya dahil etme ölçütlerine uyan 16 çalışma örneklemi oluşturmuştur. Bulgular: Bakım verenlerin yaşının ortalama 31-90 olduğu, %46.2-%92.5’inin kadın, %7.5%53.8’inin erkek olduğu ve bakım verenlerin %20-%83’ü hastanın eşi ya da partneri olduğu saptanmıştır. Yedi araştırma nitel, sekiz araştırma nicel, bir araştırma miks tiptedir. İnmeli hastaya bakım verenlerin gereksinimleri; eğitim, emosyonel, ekonomik, sosyal, enstrumental ve bakıma ilişkin gereksinimler olarak gruplandırılmıştır. Sonuç: İnmeli hastaya bakım verenlere yönelik girişimler planlanırken, öncelikli gereksinimlerin belirlenmesi ve bu gereksinimleri karşılamaya yönelik programların geliştirilmesi önerilebilir.

Kaynakça

  • 1. Kee Lee AC, WA Tang S, Kui YU GK, Fai Cheung RT. Incidence and predictors of depression after stroke (DAS). International Journal of Psychiatry in Clinical Practice 2007;11(3):200-206.
  • 2. Karakurt P, Kaşıkçı M. İnmeli bir olgunun yaşam modeline göre incelenmesi. Atatürk Üniversitesi Hemşirelik Yüksekokulu Dergisi 2008;11(1):76-84.
  • 3. Schure LM, Van Den Heuvel ETP, Stewart RE, Sanderman R, Witte De LP, Meyboom-De Jong B. Beyond stroke:description and evaluation of an effective intervention to support family caregivers of stroke patients. Patient Education and Counseling 2006;62(1):46-55.
  • 4. Greenwood N, Mackenzie A. Informal caring for stroke survivors:metaethnographic review of qualitative literature. Maturitas 2010;66(3):268-276.
  • 5. Visser-Meily A, Heughten CV, Post M, Schepers V. and Lindeman E. Intervention studies for caregivers of stroke survivors:a critical review. Patient Education and Counselling 2005;56:257-267.
  • 6. Hafsteinsdóttir TB, Vergunst M, Lindeman E, Schuurmans M. Educational needs of patients with a stroke and their caregivers:A systematic review of the literature. Patient education and counseling 2011;85(1):14-25.
  • 7. Pierce LL, Gordon M, Steiner V. Families dealing with stroke desire information about self-care needs. Rehabil Nurs 2004;29(1):14-17.
  • 8. Bakas T, Farran CJ, Austin JK, Given BA, Johnson EA, Williams LS. Stroke caregiver outcomes from the telephone assessment and skill-building kit (TASK). Top Stroke Rehabil 2009a;16:105-121.
  • 9. Bakas T, Farran CJ, Austin JK, Given BA, Johnson EA, Williams LS. Content validity and satisfaction with a stroke caregiver intervention program. J Nurs Scholarsh 2009b;41(4):368-375.
  • 10. Kalra L, Evans A, Perez I, Melbourn A, Patel A, Knapp M. and Donaldson N. Training carers of stroke patients:randomised controlled trial. British Medical Journal 2004;328:1099-1011.
  • 11. Von Elm E, Altman DG, Egger M, Pocock SJ, Gøtzsche PC, Vandenbroucke JP, et al. The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) Statement:guidelines for reporting observational studies. International journal of surgery 2014;12(12):1495-9.
  • 12. O’Brien BC, Harris IB, Beckman TJ, Reed DA, Cook DA. Standards for reporting qualitative research:a synthesis of recommendations. Academic medicine:journal of the Association of American Medical Colleges 2014;89(9):1245-51.
  • 13. Cameron JI, Naglie G, Silver FL, Gignac MA. Stroke family caregivers’ support needs change across the care continuum:a qualitative study using the timing it right framework. Disability and rehabilitation 2013;35(4):315-324.
  • 14. Creasy KR, Lutz BJ, Young ME, Ford A, Martz C. The impact of interactions with providers on stroke caregivers’ needs. Rehabilitation Nursing 2013;38(2):88-98.
  • 15. Hinojosa 2007
  • 16. Hinojosa MS, Rittman M. Association between health education needs and stroke caregiver injury. Journal Of Aging And Health 2009;21(7):1040-1058.
  • 17. Jullamate P, De Azeredo Z, Pául C, Subgranon R. Thai Stroke Patient Caregivers:Who They Are and What They Need. Cerebrovascular Diseases 2006;21(1/2):128-133.
  • 18. Kim JW, Moon SS. Needs of family caregivers caring for stroke patients:based on the rehabilitation treatment phase and the treatment setting. Social work in health care 2007;45(1):81-97.
  • 19. Lin SH. Exploratory analysis of Chinese‐American family caregivers’ needs and instructional video on dressing stroke survivors. International Journal of Consumer Studies 2010;34(5):581-586.
  • 20. Perry L, Middleton S. An investigation of family carers’ needs following stroke survivors’ discharge from acute hospital care in Australia. Disability and rehabilitation 2011;33(19-20):1890-1900.
  • 21. MacIsaac L, Harrison MB, Buchanan D, Hopman WM. Supportive care needs after an acute stroke:A descriptive enquiry of caregivers’ perspective. Journal of Neuroscience Nursing 2011;43(3):132-140.
  • 22. Mackenzie A, Perry L, Lockhar, E, Cottee M, Cloud G, Mann H. Family carers of stroke survivors:needs, knowledge, satisfaction and competence in caring. Disability Rehabilitation 2007;29(2):111-121.
  • 23. Mak AK, Mackenzie A, Lui MH. Changing needs of Chinese family caregivers of stroke survivors. Journal of Clinical Nursing 2007;16(5):971-979.
  • 24. El Masry Y, Mullan B, Hackett M. Psychosocial Experiences and Needs of Australian Caregivers of People with Stroke:Prognosis Messages, Caregiver Resilience, and Relationships. Topics in stroke rehabilitation 2013;20(4):356-368.
  • 25. Oliveira BC, Garanhani ML, Garanhani MR. Caregivers of people with stroke:needs, feelings and guidelines provided. Acta Paulista de Enfermagem 2011;24(1):43-49.
  • 26. Park YH. Day healthcare services for family caregivers of older people with stroke:needs and satisfaction. Journal of advanced nursing 2008;61(6):619-630.
  • 27. Smith SD, Gignac MA, Richardson D, Cameron JI. Differences in the experiences and support needs of family caregivers to stroke survivors:does age matter? Topics in stroke rehabilitation 2008;15(6):593-601.
  • 28. Yeung EH, Szeto A, Richardson D, Lai SH, Lim E, Cameron JI.. The experiences and needs of ChineseCanadian stroke survivors and family caregivers as they re-integrate into the community. Health social care in the community 2015;23(5):523-531.
  • 29. Epstein-Lubow GP, Beevers CG, Bishop DS, Miller IW. Family functioning is associated with depressive symptoms in caregivers of acute stroke survivors. Archives of physical medicine and rehabilitation 2009;90(6):947-955.
  • 30. McCullagh E, Brigstocke G, Donaldson N, Kalra L. Determinants of caregiving burden and quality of life in caregivers of stroke patients. Stroke 2005;36(10):2181-2186.
  • 31. Temizer H, Gozum S. Impact of nursing care initiatives on the knowledge level and perception of caregiving difficulties of family members providing home care to stroke patients. HealthMed 2012;6(8):2681-2688.
  • 32. Yu Y, Hu J, Efird JT, McCoy TP. Social support, coping strategies and health‐related quality of life among primary caregivers of stroke survivors in China. Journal of clinical nursing 2013; 22(15-16):2160-2171.
  • 33. Carod-Artal F, Ferreira CL, Trizotto DS, Menezes MC. Burden and perceived health status among caregivers of stroke patients. Cerebrovascular Diseases (Basel, Switzerland) 2008;28(5):472-480.
  • 34. Taşdelen P, Ateş M. Evde Bakım Gerektiren Hastaların Bakım Gereksinimleri ile Bakım Verenlerin Yükünün Değerlendirilmesi. Hemşirelikte Eğitim ve Araştırma Dergisi 2012;9(3):22-29.
  • 35. Tekin Önür H. Toplumsal cinsiyet ekseninde yaşlı bakımı. International Journal of Social Science 2015;37:185-202.
  • 36. Mantzoukas S. The research evidence published in high impact nursing journals between 2000 and 2006:A quantitative content analysis. International Journal of Nursing Studies 2009;46(4):479-489.
  • 37. Naylor M, Keating SA. Transitional care:Moving patients from one care setting to another. The American journal of nursing, 2008;108(9 Suppl):58-63.

Stroke Patient Family Caregiver’s Needs: Systematic Review

Yıl 2016, Cilt: 3 Sayı: 3, 28 - 43, 23.12.2016

Öz

Aims: The aim of this systematic review is to analyze the studies investigating the needs of stroke patients’ family caregivers. Material and Methods: The framework of this study is consisted of 2359 articles found by scanning of the databases including EBSCOhost, Medline, PubMed, CINAHL, Scopus, Web of Science, ULAKBİM and Turkey Citation Index. During the scanning, the articles that were published in last 10 years (January 2004-December 2014), in Turkish or English and in full text were chosen for the study by using the key words of “stroke”, “cerebral stroke”, “cerebrovascular stroke”, “caregivers”, “family caregivers”, “need”, “needs”. Of these articles, 16 articles meeting the inclusion criteria constituted the study sample. Results: The average age of the caregivers were 31-90, 46.2%-% 92.5% of them were female, 7.5%-53.8% of them were male and 20%-83% of them were found to be a spouse/partner of the patient. Seven studies were qualitative, eight studies were quantitative, one study was mixed type. Needs of the caregivers of stroke patients were grouped as educational, emotional, economic, social, instrumental and care-related. Conclusion It is advisable to determine the top priority needs and to develop programs towards meeting these needs.

Kaynakça

  • 1. Kee Lee AC, WA Tang S, Kui YU GK, Fai Cheung RT. Incidence and predictors of depression after stroke (DAS). International Journal of Psychiatry in Clinical Practice 2007;11(3):200-206.
  • 2. Karakurt P, Kaşıkçı M. İnmeli bir olgunun yaşam modeline göre incelenmesi. Atatürk Üniversitesi Hemşirelik Yüksekokulu Dergisi 2008;11(1):76-84.
  • 3. Schure LM, Van Den Heuvel ETP, Stewart RE, Sanderman R, Witte De LP, Meyboom-De Jong B. Beyond stroke:description and evaluation of an effective intervention to support family caregivers of stroke patients. Patient Education and Counseling 2006;62(1):46-55.
  • 4. Greenwood N, Mackenzie A. Informal caring for stroke survivors:metaethnographic review of qualitative literature. Maturitas 2010;66(3):268-276.
  • 5. Visser-Meily A, Heughten CV, Post M, Schepers V. and Lindeman E. Intervention studies for caregivers of stroke survivors:a critical review. Patient Education and Counselling 2005;56:257-267.
  • 6. Hafsteinsdóttir TB, Vergunst M, Lindeman E, Schuurmans M. Educational needs of patients with a stroke and their caregivers:A systematic review of the literature. Patient education and counseling 2011;85(1):14-25.
  • 7. Pierce LL, Gordon M, Steiner V. Families dealing with stroke desire information about self-care needs. Rehabil Nurs 2004;29(1):14-17.
  • 8. Bakas T, Farran CJ, Austin JK, Given BA, Johnson EA, Williams LS. Stroke caregiver outcomes from the telephone assessment and skill-building kit (TASK). Top Stroke Rehabil 2009a;16:105-121.
  • 9. Bakas T, Farran CJ, Austin JK, Given BA, Johnson EA, Williams LS. Content validity and satisfaction with a stroke caregiver intervention program. J Nurs Scholarsh 2009b;41(4):368-375.
  • 10. Kalra L, Evans A, Perez I, Melbourn A, Patel A, Knapp M. and Donaldson N. Training carers of stroke patients:randomised controlled trial. British Medical Journal 2004;328:1099-1011.
  • 11. Von Elm E, Altman DG, Egger M, Pocock SJ, Gøtzsche PC, Vandenbroucke JP, et al. The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) Statement:guidelines for reporting observational studies. International journal of surgery 2014;12(12):1495-9.
  • 12. O’Brien BC, Harris IB, Beckman TJ, Reed DA, Cook DA. Standards for reporting qualitative research:a synthesis of recommendations. Academic medicine:journal of the Association of American Medical Colleges 2014;89(9):1245-51.
  • 13. Cameron JI, Naglie G, Silver FL, Gignac MA. Stroke family caregivers’ support needs change across the care continuum:a qualitative study using the timing it right framework. Disability and rehabilitation 2013;35(4):315-324.
  • 14. Creasy KR, Lutz BJ, Young ME, Ford A, Martz C. The impact of interactions with providers on stroke caregivers’ needs. Rehabilitation Nursing 2013;38(2):88-98.
  • 15. Hinojosa 2007
  • 16. Hinojosa MS, Rittman M. Association between health education needs and stroke caregiver injury. Journal Of Aging And Health 2009;21(7):1040-1058.
  • 17. Jullamate P, De Azeredo Z, Pául C, Subgranon R. Thai Stroke Patient Caregivers:Who They Are and What They Need. Cerebrovascular Diseases 2006;21(1/2):128-133.
  • 18. Kim JW, Moon SS. Needs of family caregivers caring for stroke patients:based on the rehabilitation treatment phase and the treatment setting. Social work in health care 2007;45(1):81-97.
  • 19. Lin SH. Exploratory analysis of Chinese‐American family caregivers’ needs and instructional video on dressing stroke survivors. International Journal of Consumer Studies 2010;34(5):581-586.
  • 20. Perry L, Middleton S. An investigation of family carers’ needs following stroke survivors’ discharge from acute hospital care in Australia. Disability and rehabilitation 2011;33(19-20):1890-1900.
  • 21. MacIsaac L, Harrison MB, Buchanan D, Hopman WM. Supportive care needs after an acute stroke:A descriptive enquiry of caregivers’ perspective. Journal of Neuroscience Nursing 2011;43(3):132-140.
  • 22. Mackenzie A, Perry L, Lockhar, E, Cottee M, Cloud G, Mann H. Family carers of stroke survivors:needs, knowledge, satisfaction and competence in caring. Disability Rehabilitation 2007;29(2):111-121.
  • 23. Mak AK, Mackenzie A, Lui MH. Changing needs of Chinese family caregivers of stroke survivors. Journal of Clinical Nursing 2007;16(5):971-979.
  • 24. El Masry Y, Mullan B, Hackett M. Psychosocial Experiences and Needs of Australian Caregivers of People with Stroke:Prognosis Messages, Caregiver Resilience, and Relationships. Topics in stroke rehabilitation 2013;20(4):356-368.
  • 25. Oliveira BC, Garanhani ML, Garanhani MR. Caregivers of people with stroke:needs, feelings and guidelines provided. Acta Paulista de Enfermagem 2011;24(1):43-49.
  • 26. Park YH. Day healthcare services for family caregivers of older people with stroke:needs and satisfaction. Journal of advanced nursing 2008;61(6):619-630.
  • 27. Smith SD, Gignac MA, Richardson D, Cameron JI. Differences in the experiences and support needs of family caregivers to stroke survivors:does age matter? Topics in stroke rehabilitation 2008;15(6):593-601.
  • 28. Yeung EH, Szeto A, Richardson D, Lai SH, Lim E, Cameron JI.. The experiences and needs of ChineseCanadian stroke survivors and family caregivers as they re-integrate into the community. Health social care in the community 2015;23(5):523-531.
  • 29. Epstein-Lubow GP, Beevers CG, Bishop DS, Miller IW. Family functioning is associated with depressive symptoms in caregivers of acute stroke survivors. Archives of physical medicine and rehabilitation 2009;90(6):947-955.
  • 30. McCullagh E, Brigstocke G, Donaldson N, Kalra L. Determinants of caregiving burden and quality of life in caregivers of stroke patients. Stroke 2005;36(10):2181-2186.
  • 31. Temizer H, Gozum S. Impact of nursing care initiatives on the knowledge level and perception of caregiving difficulties of family members providing home care to stroke patients. HealthMed 2012;6(8):2681-2688.
  • 32. Yu Y, Hu J, Efird JT, McCoy TP. Social support, coping strategies and health‐related quality of life among primary caregivers of stroke survivors in China. Journal of clinical nursing 2013; 22(15-16):2160-2171.
  • 33. Carod-Artal F, Ferreira CL, Trizotto DS, Menezes MC. Burden and perceived health status among caregivers of stroke patients. Cerebrovascular Diseases (Basel, Switzerland) 2008;28(5):472-480.
  • 34. Taşdelen P, Ateş M. Evde Bakım Gerektiren Hastaların Bakım Gereksinimleri ile Bakım Verenlerin Yükünün Değerlendirilmesi. Hemşirelikte Eğitim ve Araştırma Dergisi 2012;9(3):22-29.
  • 35. Tekin Önür H. Toplumsal cinsiyet ekseninde yaşlı bakımı. International Journal of Social Science 2015;37:185-202.
  • 36. Mantzoukas S. The research evidence published in high impact nursing journals between 2000 and 2006:A quantitative content analysis. International Journal of Nursing Studies 2009;46(4):479-489.
  • 37. Naylor M, Keating SA. Transitional care:Moving patients from one care setting to another. The American journal of nursing, 2008;108(9 Suppl):58-63.
Toplam 37 adet kaynakça vardır.

Ayrıntılar

Bölüm Makaleler
Yazarlar

Fadime Hatice İnci

Ayla Bayık Temel

Yayımlanma Tarihi 23 Aralık 2016
Gönderilme Tarihi 31 Temmuz 2017
Yayımlandığı Sayı Yıl 2016 Cilt: 3 Sayı: 3

Kaynak Göster

Vancouver İnci FH, Bayık Temel A. İnmeli Hastaya Bakım Veren Aile Bireylerinin Gereksinimleri: Sistematik İnceleme. HUHEMFAD. 2016;3(3):28-43.