Factors affecting the burden on caregivers of stroke survivors in Turkey

Yıl 2016, Cilt: 3 Sayı: 4, 159 - 65, 15.04.2016

Umit Gorgulu Ulku Polat Burcu Kahraman Sukru Ozen Ersin Arslan

https://doi.org/10.17546/msd.18253

Cited By: 2

Öz

Purpose: Caring for stroke patients leads to caregiver strain. Caregiver burden following stroke is increasingly recognised as a significant health care concern.  This study was conducted to determine factors affecting the burden on caregivers of stroke survivors.

Design: This was a descriptive study.

Methods: Eighty caregivers of stroke patients hospitalized in the intensive and intermediate intensive care clinics of the Neurology Department of the Gazi University Health Research and Application Centre were included in the study. The Caregiver Introductory Form, the Barthel Index, the National Institutes of Health Stroke Scale, the Pittsburgh Sleep Quality Index and the Caregiver Burden Scale were used to collect the data.

Findings: In our study, a significant negative relationship (r=-0.854, p=0.000) was determined between the mean Barthel Index scores (24.55±7.69) and the mean Caregiver Burden Scale scores (57.52±14.35) and a significant positive relationship was determined between the mean Caregiver Burden Scale and the mean Pittsburgh Sleep Quality Index daytime dysfunction sub-component scores (1.30±1,42; r=0.223; p=0.046). 

Conclusions: Our study has demonstrated that caregiver burden increased as the level of independence of stroke patients decreased and the daytime dysfunction sleep disorder became more prevalent as the caregivers’ burden increased.

Clinical Relevance: The burden of care could become as excessive as to impact. Negatively on the caregivers' sleep quality. To reduce the negative impact of burden of care influential factors should determine.

 

Anahtar Kelimeler

burden of care, caregiver, functional independence, stroke, sleep quality

Medical Science and Discovery

Öz

Kaynakça

• Ulusoy EK, Albayrak T, Kasım İ, Yön Mİ. İntravenous thrombolytic treatment in acute ischemic stroke: The awareness patient selection and transfer. Turk J Med Sci. 2012;6:28-32.
• Gaziano TA. Cardiovascular disease in the developing world and its cost-effective management. Circulation. 2005;112:3547-3553.
• World Health Organisation (WHO). Chronic diseases and health promotion. STEP wise approach to stroke surveillance. http:// www.who.int/chp/ steps/stroke/en/ (Accessed 01.09.14).
• Bilgili N, Gözüm S. İnmeli hastaların evde bakımı: Bakım verenler için rehber. Dokuz Eylül Üniversitesi Hemşirelik Yüksekokulu Elektronik Dergisi. 2014;7:128-150.
• McCullagh E, Brigstocke G, Donaldson N, Kalra L. Determinants of caregiving burden and quality of life in caregivers of stroke patients. Stroke. 2005;36:2181-2186.
• Mollaoğlu M, Tuncay FÖ, Fertelli TK. İnmeli hasta bakım vericilerinde bakım yükü ve etkileyen faktörler. Dokuz Eylül Üniversitesi Hemşirelik Yüksekokulu Elektronik Dergisi. 2011;4:125-130.
• Aşiret GD, Kapucu S. İnmeli hastalara bakım veren hasta yakınlarının bakım yükü. Hemşirelikte Araştırma Geliştirme Dergisi. 2012;14:73-80.
• Opara JA, Jaracz K. Quality of life of post-stroke patients and their caregivers. J Med Life. 2010;3:216-220.
• Tuna M, Olgun N. İnmeli hastalara bakım veren hasta yakınlarında görülen tükenmişlik durumunda algılanan sosyal desteğin rolü. Hacettepe Üniversitesi Sağlık Bilimleri Fakültesi Hemşirelik Dergisi. 2010;17:41-52.
• Kasuya RT, Polgar-Bailey P, Takeuchi R. Caregiver burden and burnout: A guide for primary care physicians. Postgrad Med. 2000;108:119-123.
• Atagün Mİ, Balaban ÖD, Atagün Z, Elagöz M, Özpolat AY. Kronik hastalıklarda bakım veren yükü. Psikiyatride Güncel Yaklaşımlar. 2011;3:513-525.
• Chow SK, Wong FK, Poon CY. Coping and caring: support for family caregivers of stroke survivors. J Clin Nurs. 2007;16:133-143.
• van den Heuvel ET, de Witte LP, Schure LM, Sanderman R, Meyboomde Jong B. Risk factors for burn-out in caregivers of stroke patients, and possibilities for intervention. Clin rehabil. 2001;15:669-677.
• Morimoto T, Schreiner AS, Asano H. Caregiver burden and healthrelated quality of life among Japanese stroke caregivers. Age Ageing. 2003;32:218-223.
• Mahoney FI, Barthel DW. Functional evaluation: The Barthel Index. Md State Med J. 1965;14:61-65.
• Küçükdeveci AA, Yavuzer G, Tennant A, Süldür N, Sonel B, Arasil T. Adaptation of the modified Barthel Index for use in physical medicine and rehabilitation in Turkey. Scand J Rehabil Med. 2000;32:87-92.
• Zarit SH, Reever KE, Bach-Peterson J. Relatives of the impaired elderly: Correlates of feelings of burden. Gerontologist. 1980;20:649-655.
• İnci FH, Erdem M. Bakım verme yükü ölçeğinin Türkçe’ye uyarlanması, geçerlilik ve güvenilirliği. Atatürk Üniversitesi Hemşirelik Yüksekokulu Dergisi. 2008;11:85-94.
• Buysse DJ, Reynolds CF, Monk TH, Berman SR, Kupfer DJ. The pittsburgh Sleep Quality Index: A new ınstrument for psychiatric practice and research. Psychiatry Res. 1989;28:193-213.
• Ağargün MY, Kara H, Anlar O. Pittsburgh uyku kalitesi indeksinin geçerliği ve güvenirliği. Türk Psikiyatri Dergisi. 1996;7:107-115.
• Brott T, Adams HP Jr, Olinger CP, Marler JR, Barsan WG, Biller J, et al. Measurements of acute cerebral infarction: A clinical examination scale. Stroke. 1989;20:864-870.
• Hung JW, Huang YC, Chen JH, Liao LN, Lin CJ, Chuo CY, et al. Factors associated with strain in informal caregivers of stroke patients. Chang Gung Med J. 2012;35:392-401.
• Akosile CO, Okoye EC, Adegoke BOA, Mbada CE, Maruf FA, Okeke IA. Burden, health and quality of life of Nigerian stroke caregivers. Health Care Current Rewievs. 2013;1:1-5.
• Lu YF, Wykle M. Relationships between caregiver stress and self-care behaviors in response to symptoms. Clin Nurs Res. 2007;16:29-43.
• Merluzzi TV, Philip EJ, Vachon DO, Heitzmann CA. Assessment of self-efficacy for caregiving: The critical role of self-care in caregiver stress and burden. Palliat Support Care. 2011;9:15-24.
• Ilse IB, Feys H, de Wit L, Putman K, de Weerdt W. Stroke caregivers’ strain: Prevalence and determinants in the first six months after stroke. Disabil Rehabil. 2008;30:523-530.
• Saban KL, Sherwood PR, DeVon HA, Hynes DM. Measures of psychological stress and physical health in family caregivers of stroke survivors: A literature review. J Neurosci Nurs. 2010;42:128-138.
• Rombough RE, Howse EL, Bartfay WJ. Caregiver strain and caregiver of primary caregivers of stroke survivers with and without aphasia. Rehabil Nurs. 2006;31:199-209.
• Lai DWL. Effect of financial costs on caregiving burden of family caregivers of older adults. SAGE Open. 2012;2:1-14.
• Zaybak A, Güneş ÜY, İsmailoğlu EG, Ülker E. Yatağa bağımlı hastalara bakım veren bireylerin bakım yüklerinin belirlenmesi. Anadolu Hemşirelik ve Sağlık Bilimleri Dergisi. 2012;15:48-54.
• Malak AT, Dicle A. Beyin tümörlü hastalarda bakım verenlerin yükü ve etkileyen faktörler. Türk Nöroşirürji Dergisi. 2008;18:118-121.
• Gayomali C, Sutherland S, Finkelstein FO. The challenge for the caregiver of the patient with chronic kidney disease. Nephrology Dialysis Transplant. 2008;23:3749-3751.
• Greenwood N, Mackenzie A, Cloud GC, Wilson, N. Informal carers of stroke survivors-factors influencing carers: A systematic review of quantitative studies. Disability and Rehabilitation. 2008;30:1329-1349.
• Hinojosa MS, Rittman M, Hinojosa R, Rodriguez W. Racial/ethnic variation in recovery of motor function in stroke survivors: Role of informal caregivers. J Rehabil Res Dev. 2009;46:223-232.
• McCurry SM, Logsdon RG, Teri L, Vitiello MV. Sleep disturbances in caregivers of persons with dementia: Contributing factors and treatment implications. Sleep Med Rev. 2007;11:143-153.
• Yüksel G, Varlıbaş F, Karlıkaya G, Şıpka Y, Tireli H. Parkinson hastalığında bakıcı yükü. Parkinson Hastalıkları Hareket Bozukluğu Dergisi. 2007;10:26-34.
• Carod-Artal FJ, Ferreira Coral L, Trizotto DS, Menezes Moreira C. Burden and perceived health status among caregivers of stroke patients. Cerebrovasc Dis. 2009;28:472-480.
• Creese J, Bedard M, Brazil K, Chambers L. Sleep disturbances in spousal caregivers of individuals with Alzheimer’s disease. Int Psychogeriatr. 2008;20:149-161.
• Rausch SM, Baker K, Bounmee J. Sleep disturbances in caregivers of patients with end-stage congestive heart failure: Part I The problem. Prog Cardiovasc Nurs. 2007;22:38-40.
• Das S, Hazra A, Ray BK, Ghosal M, Banerjee TK, Roy T, et al. Burden among stroke caregivers: Results of a community-based study from Kolkata, India. Stroke. 2010;41:2965-2968.