TY - JOUR T1 - An Investigation of Caregiver Burden and Quality of Life Among Individuals Providing Care to Patients with Alzheimer’s Disease TT - Alzheimer Hastalarına Bakım Veren Bireylerde Bakım Yükü ve Yaşam Kalitesinin İncelenmesi AU - Dedeoğlu Demir, Burcu AU - Çakıroğlu, Ayşin PY - 2026 DA - April Y2 - 2026 DO - 10.38079/igusabder.1713465 JF - Istanbul Gelisim University Journal of Health Sciences JO - IGUSABDER PB - İstanbul Gelisim University WT - DergiPark SN - 2536-4499 SP - 129 EP - 140 IS - 28 LA - en AB - Aim: This study aimed to determine the levels of caregiver burden and quality of life among individuals providing care for patients with Alzheimer’s disease and to examine the relationship between these two variables.Method: This descriptive and correlational study was conducted between May 2024 and February 2025, starting at the neurology outpatient clinic of a private hospital located in the Black Sea Region and completed with 191 participants through snowball sampling. Participants were administered a sociodemographic information form, the Caregiver Burden Scale, and the Quality of Life in Alzheimer's Disease Scale. In addition to descriptive statistics, t-test, ANOVA, and Pearson correlation analysis were used for data analysis.Results: Most participants were women, employed, and university graduates. Caregiver burden levels were found to be moderate, whereas quality of life levels were found to be relatively low. Differences in caregiver burden and quality of life levels were identified according to age and income levels. In addition, a significant negative relationship between caregiver burden and quality of life was identified.Conclusion: The findings indicate that the quality of life of individuals caring for patients with Alzheimer’s disease is significantly affected by their perceived caregiver burden. It is essential that nurses holistically assess the needs of caregivers, develop individualized care strategies, and expand access to support services to improve caregiver well-being. KW - Alzheimer’s disease KW - caregiver burden KW - quality of life KW - nursing N2 - Amaç: Bu çalışma, Alzheimer hastalarına bakım sağlayan bireylerin bakım yükü ve yaşam kalitesi düzeylerini belirlemek ve aralarındaki ilişkiyi değerlendirmek amacıyla gerçekleştirilmiştir.Yöntem: Tanımlayıcı ve ilişki arayıcı türde planlanan bu araştırma, Mayıs 2024–Şubat 2025 tarihleri arasında Karadeniz Bölgesi’nde yer alan özel bir hastanenin nöroloji polikliniğinde başlayarak Kartopu örnekleme yöntemiyle 191 katılımcıya ulaşıldı. Katılımcılara, sosyo-demografik bilgi formu, Bakım Verme Yük Ölçeği ve Alzheimer Hastalığında Yaşam Kalitesi Ölçeği uygulanmıştır. Verilerin analizinde tanımlayıcı istatistiklere ek olarak t-testi, ANOVA ve Pearson korelasyon analizi kullanıldı.Bulgular: Katılımcıların çoğu kadın, çalışan ve üniversite mezunudur. Bakım veren yükü düzeylerinin orta düzeyde olduğu, yaşam kalitesi düzeylerinin ise görece düşük olduğu belirlendi. Bakım veren yükü ve yaşam kalitesi düzeylerinin yaş ve gelir düzeyine göre farklılık gösterdiği saptandı. Ayrıca, bakım veren yükü ile yaşam kalitesi arasında anlamlı ve negatif yönlü bir ilişki olduğu belirlendi.Sonuç: Araştırma bulguları, Alzheimer hastalarına bakım sunan bireylerin yaşam kalitelerinin, algıladıkları bakım yükünden önemli ölçüde etkilendiğini göstermektedir. Hemşirelerin bu bireyleri çok boyutlu değerlendirmesi, bireyselleştirilmiş müdahaleler planlaması ve destekleyici hizmetleri yaygınlaştırması önerilmektedir. CR - 1. Brodaty H, Donkin M. Family caregivers of people with dementia. Dialogues Clin Neurosci. 2009;11(2):217–228. CR - 2. Tiftik FN, Bayraktar N. Evaluation of quality of life in caregivers of Alzheimer’s patients. Gümüşhane Univ J Health Sci. 2012;1(1):24–33. CR - 3. Schulz R, Eden J. Families caring for an Aging America. Washington, DC: National Academies Press; 2016. CR - 4. Nguyen MH, Zhao Y, Patel S. Factors influencing quality of life among caregivers of Alzheimer’s patients: A cross-national study. Int J Geriatr Psychiatry. 2024;39(2):148–160. CR - 5. Tremont G, Davis JD, Bishop DS. Unique contribution of family functioning in caregivers of patients with mild to moderate dementia. Dement Geriatr Cogn Disord. 2006;21(3):170–174. CR - 6. Camacho-Conde JA, Galán-García L. Differences in caregiver burden according to gender: A systematic review. Int J Environ Res Public Health. 2023;20(2):945. CR - 7. Duangjina T, Jeamjitvibool T, Park C, Raszewski R, Gruss V, Fritschi C. Sex and gender differences in caregiver burden among family caregivers of persons with dementia: A systematic review and meta-analysis. Arch Gerontol Geriatr. 2025;105977. CR - 8. Soh XC, Lim WS, Chong MS, Yap P, Tan WS. Prevalence of depression, anxiety, and caregiver burden among caregivers of people with dementia: An umbrella review. Archives of Gerontology and Geriatrics Plus. 2025;2:100197. CR - 9. Abdelhalim DS, Abdelwahed WY, El-Gilany AH. Burden of care, depression, and anxiety among family caregivers of people with dementia. BMC Psychiatry. 2024;24:112. CR - 10. Akpınar Söylemez B, Küçükgüçlü Ö. Validity and reliability of the Turkish version of the Quality of Life in Alzheimer’s Disease Scale. J Neurol Sci Turk. 2012;29(3):554–562. CR - 11. Muñoz-Bermejo L, Alvarez-Nebreda ML, Torres-Sánchez I, et al. Technological interventions to support family caregivers of people with dementia: A systematic review. Front Public Health. 2025;13:1579239. CR - 12. Evans I, Hammarberg K, Fisher J. Educational interventions for family caregivers of people with dementia: A systematic review. Int J Nurs Stud. 2024;149:104667. CR - 13. Yuan S, Chen Z, Huang Y, et al. Social support interventions for caregivers of older adults with dementia: A review. BMC Geriatr. 2025;25:41. CR - 14. Chiao CY, Wu HS, Hsiao CY. Caregiver burden for informal caregivers of patients with dementia: A systematic review. Int Nurs Rev. 2015;62(3):340–350. CR - 15. Tulek Z, Baykal D, Erturk S, Bilgic B. Caregiver burden, quality of life and related factors in family caregivers of dementia patients in Turkey. Issues Ment Health Nurs. 2020;41(6):521–528. doi: 10.1080/01612840.2019.1708824 CR - 16. Uslu A, Yıldız H, Şahin E. Self-efficacy, quality of life and care burden in caregivers of patients with Alzheimer type dementia. J Gerontol Geriatr Health Sci. 2022;5(1):1–8. CR - 17. İnci FH, Erdem M. Turkish adaptation of the Caregiver Burden Scale: Validity and reliability. Atatürk Univ Sch Nurs J. 2008;11(4):85–95. CR - 18. Zarit SH. Caregiver’s burden. In: Andrieu S, Aquino JP, eds. Family and Professional Carers: Findings Lead to Action. Paris: Serdi Edition and Fondation Médéric Alzheimer; 2002:20–24. CR - 19. Gibbons LE, Teri L, Logsdon RG, et al. The quality of life in Alzheimer’s Disease (QOL-AD) Scale: Development and validation. Psychol Aging. 1993;8(4):604–612. CR - 20. de Vries D, Janssen A. Caregiver burden and quality of life across Alzheimer’s disease stages in the Netherlands. J Alzheimers Dis Rep. 2023;7(1):95–105. CR - 21. Liu W, Tey NP, Ng ST. Caregiving as a determinant of caregiver burden: A comparative study in selected Asian countries. BMC Geriatr. 2022;22(1):45. CR - 22. Lestari M. Economic burden and mental health of caregivers of Alzheimer’s patients in low-income settings. J Aging Soc Policy. 2021;33(1):17–30. CR - 23. Al-Aama T, Ahmed M, Anas M. Gender disparities in caregiver quality of life and social stress: A cross-sectional study. Arch Gerontol Geriatr. 2024;113:105045. CR - 24. García-Peña C, Pérez-Zepeda MU, Reyes-Beaman S. Effectiveness of technology-based interventions for caregivers of people with dementia: A systematic review. Geriatrics. 2025;10(2):44. CR - 25. Yusuf I, Nor Aini A, Zawawi R, et al. Social support and caregiver burden among dementia caregivers in Malaysia. BMC Geriatr. 2024;24:5221. UR - https://doi.org/10.38079/igusabder.1713465 L1 - https://dergipark.org.tr/en/download/article-file/4933030 ER -