hufhsj

Hacettepe University Faculty of Health Sciences Journal

2528-9918

Hacettepe University

10.21020/husbfd.1750210

Occupational Therapy

İş Terapisi

Otizmli Bireylerin Ergoterapi Programına Devamlılığı ile Ebeveynlerin Aile Yaşam Kalitesi, Psikolojik Dayanıklılık, Öz Yeterlilik ve Bakım Verme Yükünün İncelenmesi

Effects of Occupational Therapy Participation in Autism and Parental Family Quality of Life, Psychological Resilience, Self-Efficacy, and Caregiving Burden

https://orcid.org/0000-0002-1584-0980

Vardar

Elif

Pendik Belediyesi Engelsiz Yaşam Merkezi

https://orcid.org/0000-0002-2647-8876

Tatlı

İbrahim Yavuz

KÜTAHYA SAĞLIK BİLİMLERİ ÜNİVERSİTESİ, SAĞLIK BİLİMLERİ FAKÜLTESİ, ERGOTERAPİ BÖLÜMÜ

04 30 2026

13 1 16 33 07 25 2025 12 12 2025

2014

Hacettepe University Faculty of Health Sciences Journal

Amaç: Otizmli bireylerin ergoterapi programına devamlılığı, rehabilitasyon sürecinde yer tutar. Bu araştırma ergoterapi programında yer alan otizmli bireylerin devamlılığı ile ebeveynlerinin aile yaşam kalitesi, psikolojik dayanıklılık, öz yeterlilik ve bakım verme yükünü incelemeyi amaçlamaktadır. Gereç ve Yöntem: Araştırmanın örneklemini 3-10 yaş aralığındaki 60 otizmli bireyin bakım veren rolündeki ebeveynleri oluşturmuştur. Bireylerin ergoterapi programına devamlılığını sorgulamak için bakım verenlere Ergoterapi Programı Devam/Devamsızlığı Görüşme Formu; bakım verenlerin yaşam kalitesini sorgulamak için Beach Center Aile Yaşam Kalitesi Ölçeği, psikolojik dayanıklılığını sorgulamak için Yetişkinler için Psikolojik Dayanıklılık Ölçeği, öz yeterliliğini sorgulamak için Ebeveyn Öz Yeterlilik Ölçeği, bakım verme yükünü sorgulamak için Zarit Bakım Verme Yükü Ölçeği uygulanmıştır. İkili grup karşılaştırmalarında Mann Whitney U/ Bağımsız Örneklem t testi, ilişki analizlerinde Pearson/Spearman Korelasyon Analizleri kullanılmıştır. İstatistiksel anlamlılık p

Introduction: This study aims to examine the continuity of individuals with autism participating in occupational therapy programs and the relationship with their caregivers’ family quality of life, psychological resilience, parental self-efficacy, and caregiving burden. Materials and Methods: The sample of the study consisted of caregivers of 60 children with autism aged between 3 and 10 years. To assess participation in the occupational therapy program, caregivers were administered the Occupational Therapy Program Attendance/Non-attendance Interview Form. For evaluating caregivers’ family quality of life, the Beach Center Family Quality of Life Scale (BCQ) was used; psychological resilience was assessed via the Resilience Scale for Adults (RS); parental self-efficacy was measured with Parental Self-Efficacy Scale for Children with Disabilities; and caregiving burden was evaluated using the Zarit Parental Self-Efficacy Scale (Z-PSE). A p-value less than 0.05 was considered statistically significant. Results: The children's average age was 5.8 ± 1.6, with 58.3% (n=35) diagnosed with autism and 41.7% (n=25) with atypical autism. Statistically significant differences were observed between caregivers who selected “I experience time constraints” as a reason for non-attendance and those who did not, in the following scales: BCQ (p=0.003), RS (p=0.019), Z-PSE (p=0.01), CBS (p=0.003) Discussion and Conclusion: The findings reveal that time management difficulties among caregivers are significant determinants of family quality of life, psychological resilience, parental self-efficacy, and caregiving burden, compared to caregivers not experiencing such difficulties. Future studies should investigate the effects of time management training through follow-up periods to assess its impact comprehensively.

time management paternal behavior occupational therapy

zamanı yönetme ebeveyn davranışı ergoterapi

No financial support was received from any institution, organization, or individual for this study.

Ademoğlu, M. Ç., & Kutlu, İ. (2024). Evde bakım desteğinden faydalanan ailelerde bakım yükü. International Journal of Social Sciences (IJSS), 8(35), 397–418.

Alhazmi, A., & Alqahtani, M. (2024). Parenting stress and lifestyle challenges among families of children with autism spectrum disorder: A cross-sectional study. BMC Psychology, 12(1), 215. https://doi.org/10.1186/s40359-024-01215-7

Balcells-Balcells, A., Giné, C., Guàrdia-Olmos, J., Summers, J. A., & Mas, J. M. (2019). Impact of supports and partnership on family quality of life. Research in Developmental Disabilities, 85, 50–60. https://doi.org/10.1016/j.ridd.2019.01.004

Barlow, J., Powell, L., & Gilchrist, M. (2006). The influence of the training and support programme on the self-efficacy and psychological well-being of parents of children with disabilities: A controlled trial. Complementary Therapies in Clinical Practice, 12(1), 55–63. https://doi.org/10.1016/j.ctcp.2005.11.005

Basim, H. N., & Çetin, F. (2011). Yetişkinler için psikolojik dayanıklılık ölçeği’nin güvenilirlik ve geçerlilik çalışması. Türk Psikiyatri Dergisi, 22(2), 104–114.

Borilli, M. C., Germano, C. M. R., De Avó, L. R. D. S., Pilotto, R. F., & Melo, D. G. (2022). Family quality of life among families who have children with mild intellectual disability associated with mild autism spectrum disorder. Arquivos de Neuro-Psiquiatria, 80(4), 360–367. https://doi.org/10.1055/s-0042-1749020

Çandır, E. (2016). Otizm tanısı ile izlenen çocukların annelerinde bakım verme yükü ve etkileyen faktörlerin belirlenmesi [Yüksek lisans tezi]. İstanbul Üniversitesi.

Cavkaytar, A., Aksoy, V., & Ardıç, A. (2014). Ebeveyn öz yeterlik ölçeği geçerlik ve güvenirlik çalışmasının güncellenmesi. Anadolu Journal of Educational Sciences International, 4(1), 69–76.

Çorakcı Yazıcıoğlu, Z., & Bumin, G. (2025). Occupational therapy using sensory integration for enhancing occupational performance in children with autism: A randomized controlled trial. Journal of Autism and Developmental Disorders, 1–12. https://doi.org/10.1007/s10803-025-06970-1

Crasta, J. E., Martis, J., Kromalic, M., Jarrott, S., Wengerd, L., & Darragh, A. (2024). Characterizing occupational therapy intervention for children on the autism spectrum. American Journal of Occupational Therapy, 78(5), 7805205210. https://doi.org/10.5014/ajot.2024.050734

D’Arrigo, R., Copley, J. A., Poulsen, A. A., & Ziviani, J. (2020). Parent engagement and disengagement in paediatric settings: An occupational therapy perspective. Disability and Rehabilitation, 42(20), 2882–2893. https://doi.org/10.1080/09638288.2019.1572790

Davis, K., & Gavidia-Payne, S. (2009). The impact of child, family, and professional support characteristics on the quality of life in families of young children with disabilities. Journal of Intellectual and Developmental Disability, 34(2), 153–162. https://doi.org/10.1080/13668250902874608

Davy, G., Unwin, K. L., Barbaro, J., & Dissanayake, C. (2022). Leisure, employment, community participation and quality of life in caregivers of autistic children: A scoping review. Autism, 26(8), 1916–1930. https://doi.org/10.1177/13623613221082621

Dereli, F., & Okur, S. (2008). Engelli çocuğa sahip olan ailelerin depresyon durumunun belirlenmesi [Yüksek lisans tezi].

Dharanidharan, D., & Kuruveettissery, S. (2025). Parental perspectives on stress and challenges in raising autistic children: A meta-synthesis. Journal of Psychosocial Rehabilitation and Mental Health, 12(1), 125–141. https://doi.org/10.1007/s40737-024-00420-4

Dudová, I. (2022). Autism spectrum disorders. Cesko-Slovenska Pediatrie, 77(3), 143–147. World Health Organization. https://doi.org/10.55095/cspediatrie2022/017

Dur, Ş., & Mutlu, B. (2018). Otizm spektrum bozukluğu ve hemşirelik yaklaşımı. Hemşirelikte Eğitim ve Araştırma Dergisi, 15(1), 45–50.

Feng, Y., Zhou, X., Qin, X., Cai, G., Lin, Y., Pang, Y., Chen, B., Deng, T., & Zhang, L. (2022). Parental self-efficacy and family quality of life in parents of children with autism spectrum disorder in China: The possible mediating role of social support. Journal of Pediatric Nursing, 63, 159–167. https://doi.org/10.1016/j.pedn.2021.09.026

Friborg, O., Hjemdal, O., Rosenvinge, J. H., & Martinussen, M. (2003). A new rating scale for adult resilience: What are the central protective resources behind healthy adjustment? International Journal of Methods in Psychiatric Research, 12(2), 65–76. https://doi.org/10.1002/mpr.143

Guimond, A., Moore, H., Aier, D., Maxon, E., & Diken, I. H. (2005). Parental self-efficacy instrument for children with disabilities (PSICD) [Unpublished scale]. Arizona State University, Phoenix, AZ, USA.

Hoffman, L., Marquis, J., Poston, D., Summers, J. A., & Turnbull, A. (2006). Assessing family outcomes: Psychometric evaluation of the beach center family quality of life scale. Journal of Marriage and Family, 68(4), 1069–1083. https://doi.org/10.1111/j.1741-3737.2006.00314.x

İnci, F., & Erdem, M. (2006). Bakim verme yükü ölçeği’nin türkçe’ye uyarlanmasi geçerlilik ve güvenilirliği. Anadolu Hemşirelik ve Sağlık Bilimleri Dergisi, 11(4), 85–95.

Kasuya, R. T., Polgar-Bailey, P., & Takeuchi, R. (2000). Caregiver burden and burnout: A guide for primary care physicians. Postgraduate Medicine, 108(7), 119–123. https://doi.org/10.3810/pgm.2000.12.1332

Kayıhan, H., & Huri, M. (2016). Erken müdahale yaklaşımlarında ergoterapi’nin rolü. In Erken müdahalede ilk aşama: Tanılama kitabı içinde (pp. 125–136).

Kocakaya, R. (2017). Engelli üyeye sahip ailelerdeki bireylerin psikolojik dayanıklılığı ile algılanan aile işlevselliği arasındaki ilişki [Yayımlanmamış yüksek lisans tezi].

Kuhaneck, H. M., & Watling, R. (2015). Occupational therapy: Meeting the needs of families of people with autism spectrum disorder. American Journal of Occupational Therapy, 69(5), 6905170010p1–6905170010p5. https://doi.org/10.5014/ajot.2015.018093

Kumari, A., & Sekher, T. V. (2021). Elderly as family caregivers: Burden and challenges in India. In Gerontological concerns and responses in India (pp. 159–181). Springer. https://doi.org/10.1007/978-981-16-6460-2_9

Law, M. C., Baum, C. M., & Baptiste, S. (2002). Occupation-based practice: Fostering performance and participation. Canadian Journal of Occupational Therapy, 69(1), 11–23. https://doi.org/10.1177/000841740206900103

Mandak, K., & Light, J. (2018). Family-centered services for children with ASD and limited speech: The experiences of parents and speech-language pathologists. Journal of Autism and Developmental Disorders, 48(4), 1311–1324. https://doi.org/10.1007/s10803-017-3360-2

Martínez-Rico, G., García-Grau, P., Cañadas-Pérez, M., & González-García, R. J. (2025). Does family confidence bridge child functioning and caregiver burden in early intervention? PLoS ONE, 20(5), e0321997. https://doi.org/10.1371/journal.pone.0321997

Meral, B. F. (2013). Turkish adaptation, validity and reliability study of the Beach Center Family quality of life scale. Eğitim ve Bilim, 38(170), 346–356.

Murphy, A. N., Pinkerton, L. M., Morford, A. E., & Risser, H. J. (2024). Parent-therapist partnership survey: Parent feedback and psychometric properties. Journal of Autism and Developmental Disorders, 54(2), 532–543. https://doi.org/10.1007/s10803-023-05987-2

Patten, K. K., Murthi, K., Onwumere, D. D., Skaletski, E. C., Little, L. M., & Tomchek, S. D. (2024). Occupational therapy practice guidelines for autistic people across the lifespan. American Journal of Occupational Therapy, 78(3), 7803397010. https://doi.org/10.5014/ajot.2024.0780301

Steijn, V. (2013). The influence of parental and offspring ASD and ADHD symptoms on family functioning [Unpublished manuscript].

Şahin, S., Huri, M., Aran, O. T., & Uyanik, M. (2018). Cross-cultural adaptation, reliability, and validity of the Turkish version of the Cancer Fatigue Scale in patients with breast cancer. Turkish journal of medical sciences, 48(1), 124-130.

Tayaz, E., & Koç, A. (2018). Engelli bireye bakım verenlerde algılanan bakım yükü ve yaşam kalitesi arasındaki ilişkinin değerlendirilmesi. Medical Journal of Bakirkoy, 14(1), 44–52. https://doi.org/10.5222/BMJ.2018.044

Toonsiri, C., Sunsern, R., & Lawang, W. (2011). Development of the burden interview for caregivers of patients with chronic illness. Journal of Nursing Education, 4(1), 62–75.

Töret, G., Özdemir, S., Selimoğlu, Ö. G., & Özkubat, U. (2014). Otizmli çocuğa sahip olan ebeveynlerin görüşleri: Otizm tanımlamaları ve otizmin nedenleri. Ankara Üniversitesi Eğitim Bilimleri Fakültesi Özel Eğitim Dergisi, 15(1), 1–17.

Toseland, R. W., Smith, G., & McCallion, P. (2001). Family caregivers of the frail elderly. In Handbook of social work practice with vulnerable and resilient populations (pp. 99–109).

Türk, A. B., & Bumin, G. (2015). Engelli çocuğa sahip annelerde zaman yönetimi eğitiminin aktivite performansı, depresyon, yaşam kalitesi ve stresle başa çıkma üzerine etkisi: Pilot çalışma. Ergoterapi ve Rehabilitasyon Dergisi, 3(1), 13–20.

Vosough Matin, M. (2022). Otizm spektrum bozukluğu olan çocuğa sahip aileler için geliştirilen aile eğitim programının çocukların eğitiminde aile katılımının etkisi [Yayımlanmamış doktora tezi].

Westby, C. (2022). Narratives of children with autism spectrum disorder. Word of Mouth, 34(2), 1–4. https://doi.org/10.1177/10483950221120702

Williams, H. L., Cullen, L. A., & Barlow, J. H. (2005). The psychological well-being and self-efficacy of carers of children with disabilities following attendance on a simple massage training and support programme: A 12-month comparison study of adherers and non-adherers. Complementary Therapies in Medicine, 13(2), 107–114. https://doi.org/10.1016/j.ctim.2005.03.007

Yalçın, N., & Karadağ, G. (2025). Özel gereksinimli çocukların bakım verenlerine yönelik hazırlanan aile eğitimi programları ve hemşirelik: Geleneksel derleme. Akdeniz Hemşirelik Dergisi, 4(2), 71–76.

Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. The Gerontologist, 20(6), 649–655. https://doi.org/10.1093/geront/20.6.649

Zeng, S., Hu, X., Zhao, H., & Stone-MacDonald, A. K. (2020). Examining the relationships of parental stress, family support and family quality of life: A structural equation modeling approach. Research in Developmental Disabilities, 96, 103523. https://doi.org/10.1016/j.ridd.2019.103523

Zhou, Y., Yin, H., Wang, M., & Wang, J. (2019). The effect of family-focused psychoeducational therapy for autism spectrum disorder children’s parents on parenting self-efficacy and emotion. Archives of Psychiatric Nursing, 33(1), 17–22. https://doi.org/10.1016/j.apnu.2018.08.004