<?xml version="1.0" encoding="UTF-8"?>
<!DOCTYPE article PUBLIC "-//NLM//DTD JATS (Z39.96) Journal Publishing DTD v1.4 20241031//EN"
        "https://jats.nlm.nih.gov/publishing/1.4/JATS-journalpublishing1-4.dtd">
<article  article-type="research-article"        dtd-version="1.4">
            <front>

                <journal-meta>
                                                                <journal-id>cjhs</journal-id>
            <journal-title-group>
                                                                                    <journal-title>Kapadokya Sağlık Bilimleri Dergisi</journal-title>
            </journal-title-group>
                                        <issn pub-type="epub">2979-9880</issn>
                                                                                            <publisher>
                    <publisher-name>Cappadocia University Press</publisher-name>
                </publisher>
                    </journal-meta>
                <article-meta>
                                        <article-id pub-id-type="doi">10.58241/ksbd.8</article-id>
                                                                <article-categories>
                                            <subj-group  xml:lang="en">
                                                            <subject>Public Health (Other)</subject>
                                                    </subj-group>
                                            <subj-group  xml:lang="tr">
                                                            <subject>Halk Sağlığı (Diğer)</subject>
                                                    </subj-group>
                                    </article-categories>
                                                                                                                                                        <title-group>
                                                                                                                        <article-title>The Experiences of Mothers With Bedbound Children: Care Burden</article-title>
                                                                                                    </title-group>
            
                                                    <contrib-group content-type="authors">
                                                                        <contrib contrib-type="author">
                                                                    <contrib-id contrib-id-type="orcid">
                                        https://orcid.org/0000-0001-5941-7685</contrib-id>
                                                                <name>
                                    <surname>Dönmez</surname>
                                    <given-names>Semiha</given-names>
                                </name>
                                                                    <aff>ERCİYES ÜNİVERSİTESİ</aff>
                                                            </contrib>
                                                    <contrib contrib-type="author">
                                                                    <contrib-id contrib-id-type="orcid">
                                        https://orcid.org/0000-0001-7333-662X</contrib-id>
                                                                <name>
                                    <surname>Gün</surname>
                                    <given-names>İskender</given-names>
                                </name>
                                                                    <aff>ERCİYES ÜNİVERSİTESİ</aff>
                                                            </contrib>
                                                                                </contrib-group>
                        
                                        <pub-date pub-type="pub" iso-8601-date="20230430">
                    <day>04</day>
                    <month>30</month>
                    <year>2023</year>
                </pub-date>
                                        <volume>1</volume>
                                        <issue>2</issue>
                                        <fpage>73</fpage>
                                        <lpage>84</lpage>
                        
                        <history>
                                    <date date-type="received" iso-8601-date="20221129">
                        <day>11</day>
                        <month>29</month>
                        <year>2022</year>
                    </date>
                                                    <date date-type="accepted" iso-8601-date="20230403">
                        <day>04</day>
                        <month>03</month>
                        <year>2023</year>
                    </date>
                            </history>
                        
                                                                                                <abstract><p>This study was carried out to evaluate the problems experienced by mothers with bedridden children and to determine the effects of care burdens on mothers.The  study  was carried  out  on  mothers  who  had  a  bedridden  child  who  was  in  the  Neurology  Service between November 2016 and May 2017. The data were collected through a 19-question introductory form and the caregiver burden scale developed by Zarit. The data were evaluatedusing a computer. In statistical analysis, t-test, analysis of variance and chi-square test were used in independent samples. A p-value less than 0.05 was considered statistically significant.The moderateage of 200 mothers participating in the study was found to be 30.8 ± 7.0 years, and themoderatecare burden score was found to be 35.1 ± 24.3, and it was evaluated as mild to moderate. It was found that the younger the mother&#039;s age and the age of the child cared for, the greater the burden of care, and the longer the duration of care, the higher theburden of care. Being widowed, having a job and not having social security are factors that increase the burden of care. The effect of all these variables on burden of care was not statistically significant. The main problems that mothers experience whileproviding care are psychological problems and musculoskeletal problems.In order to minimize the burden of care for mothers with bedridden children, other family members should be included in the care, and parents should be supported psychologically.</p></abstract>
                                                            
            
                                                            <kwd-group>
                                                    <kwd>Bedbound</kwd>
                                                    <kwd>  Care Burden</kwd>
                                                    <kwd>  Care Burden Scale</kwd>
                                            </kwd-group>
                            
                                                                                                                        </article-meta>
    </front>
    <back>
                            <ref-list>
                                    <ref id="ref1">
                        <label>1</label>
                        <mixed-citation publication-type="journal">Akyar, I., Akdemir, N. (2009). Strains of Caregivers of Alzheimer Patients. Hacettepe University Faculty of Health Sciences Journal of Nursing, 16 (3), 32-49.</mixed-citation>
                    </ref>
                                    <ref id="ref2">
                        <label>2</label>
                        <mixed-citation publication-type="journal">Alpteker,  H.  (2008).  Determining  the  Difficulties  Experienced  by  Home  Caregivers  for  65  Years  and above. PhD thesis,Abant Izzet Baysal University, Turkey.Aşiret, G.D. (2011). Care  Burden  of  Relatives  Caring  for  Patients  with  Stroke. PhD  thesis,  Hacettepe University, Turkey.</mixed-citation>
                    </ref>
                                    <ref id="ref3">
                        <label>3</label>
                        <mixed-citation publication-type="journal">Bahar, A., Parlar, S. (2007). Aging and Home Care. Fırat Journal of Health Services, 2(4), 33-37.</mixed-citation>
                    </ref>
                                    <ref id="ref4">
                        <label>4</label>
                        <mixed-citation publication-type="journal">Brehaut,  J.  C.,  Kohen,  D.  E.,  Raina,  P.,  Walter,  S.  D.,  Russell,  D.  J.,  Swinton,  M., O’Donnel,  M., Rosenbaum, P. (2004). The health of primary caregivers of children with cerebral palsy: how does it compare with that of other Canadian caregivers? Pediatrics,114(2), e182-e191.</mixed-citation>
                    </ref>
                                    <ref id="ref5">
                        <label>5</label>
                        <mixed-citation publication-type="journal">Bugge, C., Alexander, H., &amp; Hagen, S. (1999). Stroke patients’ informal caregivers: Patient, caregiver, and service factors that affect caregiver strain. Stroke,30(8), 1517-1523.</mixed-citation>
                    </ref>
                                    <ref id="ref6">
                        <label>6</label>
                        <mixed-citation publication-type="journal">Demir Ö, Aysoy M. (2009). Turkey Disability Survey 2002. State Institute of Statistics Press, Ankara.</mixed-citation>
                    </ref>
                                    <ref id="ref7">
                        <label>7</label>
                        <mixed-citation publication-type="journal">Fertelli, T. K., &amp; Tuncay, F. Ö. (2019). Relationship between care burden, social support and quality of life in stroke caregivers. Journal of Academic Research in Nursing, 5(2), 107-115.İnci, F.H., Erdem, M. (2008). Validity and reliability of the Turkish version of the burden interview. Journal of Anatolia Nursing and Health Sciences, 11, 85-95.</mixed-citation>
                    </ref>
                                    <ref id="ref8">
                        <label>8</label>
                        <mixed-citation publication-type="journal">Işık, K., Erci, B. (2018). Life Satisfaction and Care Burden of Caregivers Who Provide Care at Home to Elderly Patients and the Inflfluencing Factors,10(1),11-17.</mixed-citation>
                    </ref>
                                    <ref id="ref9">
                        <label>9</label>
                        <mixed-citation publication-type="journal">Koçak, G. (2011). Caregiver Burden in Stroke Patients. PhD thesis,Istanbul University, Turkey.</mixed-citation>
                    </ref>
                                    <ref id="ref10">
                        <label>10</label>
                        <mixed-citation publication-type="journal">Ma, H. P., Lu, H. J., Xiong, X. Y., Yao, J. Y., &amp; Yang, Z. (2014). The investigation of care burden and coping style in caregivers of spinal cord injury patients. International Journal of Nursing Sciences,1(2), 185-190.</mixed-citation>
                    </ref>
                                    <ref id="ref11">
                        <label>11</label>
                        <mixed-citation publication-type="journal">Mollaoglu, M., Tuncay, F., &amp; Fertelli, T. (2011). Care burden of care givers of stroke patients and related factors. Dokuz Eylul University School of Nursing Electronic Journal,4(3), 125-30.</mixed-citation>
                    </ref>
                                    <ref id="ref12">
                        <label>12</label>
                        <mixed-citation publication-type="journal">Özdemir, F.K., Şahin, Z.A., Küçük, D. (2009). The  determining of the caregiver burden of the mothers with a child with cancer. New Journal of Medicine, 26, 153-158.</mixed-citation>
                    </ref>
                                    <ref id="ref13">
                        <label>13</label>
                        <mixed-citation publication-type="journal">Pandey, R.N., Halder, S.K., Rath, P.K. Development and validation of “Caregiver Burden Scale-Indian population”. Int J Prev Med, 10, 31-35.</mixed-citation>
                    </ref>
                                    <ref id="ref14">
                        <label>14</label>
                        <mixed-citation publication-type="journal">Reimer, W. S. O., De Haan, R. J., Pijnenborg, J. M. A., Limburg, M., &amp; Van den Bos, G. A. M. (1998). Assessment of burden in partners of stroke patients with the sense of competence questionnaire. Stroke,29(2), 373-379.</mixed-citation>
                    </ref>
                                    <ref id="ref15">
                        <label>15</label>
                        <mixed-citation publication-type="journal">Şahin, Z. A., Polat, H., &amp; Ergüney, S. (2009). Determine burden care for caregivers of cancer patients receiving chemotherapy. Journal of Nursing and Health Sciences, 12(2), 1-9.</mixed-citation>
                    </ref>
                                    <ref id="ref16">
                        <label>16</label>
                        <mixed-citation publication-type="journal">Tang, B., Harary, E., Kurzman, R., Mould-Quevedo, J. F., Pan, S., Yang, J., &amp; Qiao, J. (2013). Clinical characterization and the caregiver burden of dementia in China. Value in health regional issues, 2(1), 118-126.</mixed-citation>
                    </ref>
                                    <ref id="ref17">
                        <label>17</label>
                        <mixed-citation publication-type="journal">Tel, H., Demİrkol, D., Kara, S., &amp; Aydın, D. (2012). Care burden and quality of life among the caregivers of patients with COPD. Türk Toraks Dergisi/Turkish Thoracic Journal,13(3), 87-92.</mixed-citation>
                    </ref>
                                    <ref id="ref18">
                        <label>18</label>
                        <mixed-citation publication-type="journal">Tülüce D. (2012). Evaluation of the care burden of care givers in patients with heart failure. PhD thesis,Gaziantep University Institute of Health Sciences, Turkey.</mixed-citation>
                    </ref>
                                    <ref id="ref19">
                        <label>19</label>
                        <mixed-citation publication-type="journal">Tuna, M., Olgun, N. (2010). The Role of Perceived Social Support on Stroke Patients’ Caregivers with Burnout Syndrome. Hacettepe University Faculty of Health Sciences Nursing Journal, 17, 41-52.</mixed-citation>
                    </ref>
                                    <ref id="ref20">
                        <label>20</label>
                        <mixed-citation publication-type="journal">Yildiz, E., Dedeli, O., &amp; Pakyuz, S. C. (2016). Evaluation of care burden and quality of life among family caregivers of patients with cancer/Kanser hastalarina bakim veren aile uyelerinin bakim yuku ve yasam kalitesinin incelenmesi. Journal of Education and Research in Nursing, 13(3), 216-226.</mixed-citation>
                    </ref>
                                    <ref id="ref21">
                        <label>21</label>
                        <mixed-citation publication-type="journal">Yotani, N., Ishiguro, A., Sakai, H., Ohfuji, S., Fukushima, W., &amp; Hirota, Y. (2014). Factor‐associated caregiver burden in medically complex patients with special health‐care needs. Pediatrics International, 56(5), 742-747.</mixed-citation>
                    </ref>
                                    <ref id="ref22">
                        <label>22</label>
                        <mixed-citation publication-type="journal">Zaybak,  A.,  Güneş,  Ü.,  İsmailoğlu,  E.  G.,  &amp;  Ülker,  E.  (2012).  The  determination  of  burden  care  of caregivers for bedbound patients. Anatolian Journal of Nursing and Health Sciences,15(1), 48-54.</mixed-citation>
                    </ref>
                            </ref-list>
                    </back>
    </article>
