OTİZMLİ ÇOCUK AİLELERİNİN AİLE YAŞAM KALİTESİ ALGILARI

Yıl 2015, Cilt: 23 Sayı: 3, 1363 - 1380, 15.09.2015

Bekir Fatih Meral Atilla Cavkaytar

Öz

Araştırmanın amacı, otizmli çocuk ailelerinin “Aile Yaşam Kalitesi (AYK)” algılarının incelenmesidir. Araştırma grubu Türkiye’deki Otistik Çocuklar Eğitim Merkezlerine (OÇEM) devam eden 768 otizmli çocuk ailesinden (annesinden) oluşmaktadır. Otizmli çocuk ailelerinin AYK ve alt alan algılarının ortalamanın üzerinde olduğu, en yüksek algısının “aile etkileşimi” alt alanında, en düşük algının ise “duygusal yeterlik” alt alanında olduğu belirlenmiştir. Ailelerin AYK algılarının yordanmasında 5 regresyon modeli elde edilmiştir. Toplam varyansı en çok açıklayan değişkenin “aile sosyal desteği”, ikinci sırada “sosyo-ekonomik statü (SES)” olduğu gözlenmiştir. Gelir düzeyi, anne çalışma durumu ve yaşanılan yer değişkenlerinin, ailelerin AYK algısını yordama gücünün zayıf olduğu görülmüştür. Anne yaşı, çocuğun cinsiyeti ve yaşı değişkenlerinin ise AYK algısının önemli bir yordayıcısı olmadığı belirlenmiştir. Araştırma bulguları doğrultusunda aile sosyal desteğinin otizmli çocuk ailelerinin AYK algılarının yordanmasında en önemli değişken olduğu, sosyal destekteki artış ölçüsünde AYK algısının arttığı söylenebilir.

Anahtar Kelimeler

aile yaşam kalitesi, aile sosyal desteği, otizmli çocuk

THE PERCEPTIONS OF FAMILY QUALITY OF LIFE OF PARENTS OF CHILDREN WITH AUTISM

Öz

The purpose of this study is to examine family quality of life (FQOL) of parents who have children with autism. The research group is consist of 768 parents (mothers) who have children with autism in Autistic Children Education Centers in Turkey. It was determined that the FQOL and sub-domains perceptions of parents who have children with autism was higher than avarage while highest perception in “family interaction” sub-domain and lowest perception in “emotional well-being” sub-domain In the prediction of FQOL perceptions of parents, it was observed that the variable which mostly explained total variance was family social support, secondly explained total variance was socio-economic status (SES). It was seen that family income, labour situation of mother and living area (urban or rural) to prediction of FQOL perceptions of parents were weak. It was determined that the age of mother and the gender and age of children with autism were not important prediction in FQOL perceptions of parents. It can be said, according to results, family social support is the most important variable on improving FQOL of parents who have children with autism.

Anahtar Kelimeler

children with autism, family quality of life, family social support

Kaynakça

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