Serebral Palsili Çocularda Ayak-ayak Bileği Ortez Memnuniyeti; Ailesinin Bakış Açısından

Abstract

Serebral Palsili Çocularda Ayak-Ayak Bileği Ortez Memnuniyeti; Ailesinin Bakış Açısından

Abstract

Objectives: The aim of this study was to evaluate the compliance of ankle-foot orthosis in patients with cerebral palsy (CP) and the factors affecting compliance. Materials and Methods: The demographic data of the patients and the educational status of the parents were recorded. It was questioned whether patients had orthosis usage habits, how many hours a day they used, compliance with orthosis, reasons for not using orthoses and how many days they received physiotherapy per week. Results: Seventy-two (49.7%) of the patients included in the study were using the given orthosis. The reasons for not using the orthosis were frequently finding the orthosis ugly and being difficult to use. No significant difference was found between genders in terms of orthotic compliance (p>0.05). A positive correlation was found between the educational level of the parents and the satisfaction of the orthosis and the duration of physiotherapy. There was a negative correlation between Gross Motor Functional Classification System stage and duration of orthotic use and a positive correlation between physiotherapy time. Conclusion: The physician, physiotherapist, orthosis technician and the family should cooperate with the individual using the orthosis to increase the compliance. The common goal within the multidisciplinary team should be to try to create individuals with CP that are highly compliant with the use of orthoses.

Keywords

• Orthosis
• Cerebral Palsy
• Compliance

Ethical Statement

Çalışma için Sağlık Bilimleri Üniversitesi Dışkapı Yıldırım Beyazıt Eğitim ve Araştırma Hastanesi Etik Kurulu’ndan onay alınmıştır (onay tarihi: 07.01.2019 onay numarası: 58/10).

References

1. 1. Wimalasundera N, Stevenson VL. Cerebral palsy. Pract Neurol. 2016;16:184- 194.
2. 2. Bilgili F, Temelli Y, Akalın NE. Serebral palside cihazlama ve ortez kullanımı. TOTBİD Dergisi. 2018;17:437-445.
3. 3. Holtkamp FC, Wouters EJM, Van Hoof J, et al. Use of and Satisfaction with Ankle Foot Orthoses. Clin Res Foot Ankle. 2015:16.
4. 4. Palisano RJ, Rosenbaum P, Bartlett D, et al. Content validity of the expanded and revised Gross Motor Function Classification System. Dev Med Child Neurol. 2008;50:744-750.
5. 5. Erel S, Şimşek İE, Bek N, ve ark. Çocuk hastalarda plastik ayak-ayak bileği ortez görünümünün memnuniyet ve ortezi kabullenme üzerine etkisi. Fizyoterapi Rehabilitasyon. 2007;18:195-200.
6. 6. Cury VCR, Mancını MC, Melo AP, et al. Efeitos do uso de órtese na mobilidade funcional de crianças com paralisia cerebral. Revista Brasileira de Fisioterapia. 2006;10:67-74.
7. 7. Mattacola CG, Dwyer MK, Miller AK, et al. Effect of orthoses on postural stability in asymptomatic subjects with rearfoot malalignment during a 6-week acclimation period. Arch Phys Med Rehabil. 2007;88:653-660.
8. 8. Ireno JM, Chen N, Zafani MD, et al. O uso de órteses em crianças com paralisia cerebral: percepção dos cuidadores. Cad Bras Ter Ocup. 2019;27:35-44.

9. 9. Maas JC, Dallmeijer AJ, Oudshoorn BY, et al. Measuring wearing time of knee-ankle-foot orthoses in children with cerebral palsy: comparison of parent-report and objective measurement. Disabil Rehabil. 2018;40:398- 403.
10. 10. Wesdock KA, Edge AM. Effects of wedged shoes and ankle-foot orthoses on standing balance and knee extension in children with cerebral palsy who crouch. Pediatr Phys Ther. 2003;15:221-231.
11. 11. Tardieu C, Lespargot A, Tabary C, et al. For how long must the soleus muscle be stretched each day to prevent contracture? Dev Med Child Neurol. 1988;30:3-10.
12. 12. Garros DS, Gagliardi RJ, Guzzo RA. Evaluation of performance and personal satisfaction of the patient with spastic hand after using a volar dorsal orthosis. Arq Neuropsiquiatr. 2010;68:385-389
13. 13. Verza R, Carvalho ML, Battaglia MA, et al. An interdisciplinary approach to evaluating the need for assistive technology reduces equipment abandonment. Mult Scler. 2006;12:88-93.
14. 14. Dilek B, Gür G, Yakut Y. Serebral palsili çocuklarda ayak-ayak bileği ortezi kullanım süresini etkileyen faktörlerin incelenmesi: Pilot çalışma. Journal of Exercise Therapy and Rehabilitation. 2015;2:47-52.
15. 15. Brossard-Racine M, Hall N, Majnemer A, et al. Behavioural problems in school age children with cerebral palsy. Eur J Paediatr Neurol. 2012;16:35- 41.
16. 16. Wintels SC, Smits DW, Van Wesel F, et al. How do adolescents with cerebral palsy participate? Learning from their personal experiences. Heal Expect. 2018;21:1024-1034.
17. 17. Havey R, Gavin T, Patwardhan A, et al. A reliable and accurate method for measuring orthosis wearing time. Spine (Phila Pa 1976). 2002;27:211-214.
18. 18. Maas JC, Dallmeijer AJ, Oudshoorn BY, et al. Measuring wearing time of knee-ankle-foot orthoses in children with cerebral palsy: comparison of parent-report and objective measurement. Disabil Rehabil. 2018;40:398- 403.
19. 19. Bulley C, Shiels J, Wilkie K, et al. User experiences, preferences and choices relating to functional electrical stimulation and ankle foot orthoses for foot-drop after stroke. Physiotherapy. 2001;9:226-233.
20. 20. Polliack AA, Elliot S, Caves C, et al. Lower extremity orthoses for children with myelomeningocele: User and orthotist perspectives. J Prosthet Orthot. 2001;13:123-129.