Evaluation of YouTube Videos as a Source of Information about Dementia Care

Abstract

Aim: Digital platforms such as YouTube are popular sources of health-related information. Although there are studies evaluating the quality of different online medical content, studies focusing on the quality of dementia-related content are limited. This study aimed to investigate the quality of YouTube videos related to dementia patient care. Material and Methods: Using the term "Dementia care" on the YouTube platform, 100 English videos that met the inclusion criteria were identified and analyzed. In addition to video popularity measurements, to evaluate content quality, the global quality scale (GQS), modified DISCERN scale, Journal of the American Medical Association (JAMA) quality scale, and the patient education materials assessment tool for audio/visual materials (PEMAT-A/V) are used. Results: It was observed that most of the videos were uploaded by non-academic health institutions (36%) and health professionals (23%). When the content of the videos was evaluated, it was determined that general care strategies were the most common content with 52%. Scores indicating high levels of reliability and accuracy were determined on all applied content quality scales. Videos sourced from academic healthcare institutions were found to have the highest scores on content quality scales. In correlation analyses, video metrics such as duration, view ratio, number of comments, and video power index values were positively correlated with content quality scores. Conclusion: Videos about dementia patient care on YouTube generally exhibit high popularity and content quality. Individuals seeking information about dementia care on online platforms should be directed to videos uploaded by healthcare institutions.

Keywords

• dementia
• dementia care
• YouTube

Demans Hastalarının Bakımı Konusunda Bilgi Kaynağı Olarak Youtube Videolarının Değerlendirilmesi

Abstract

Amaç: YouTube gibi dijital platformlar sağlıkla ilgili bilgiler için popüler kaynaklardır. Farklı çevrimiçi tıbbi içeriklerin kalitesinin değerlendirildiği çalışmalar yapılmış olsa da, demansla ilgili içeriklerin kalitesine odaklanan çalışmalar sınırlıdır. Bu çalışmanın amacı, demanslı hasta bakımıyla ilişkili YouTube videolarının kalitesini değerlendirmektir. Gereç ve Yöntemler: YouTube platformunda "Dementia care" terimi kullanılarak, dahil etme kriterlerini karşılayan 100 İngilizce video belirlendi ve analiz edildi. Video popülerlik ölçümlerinin yanı sıra, içerik kalitesini değerlendirmek için, küresel kalite ölçeği (global quality scale, GQS), modifiye DISCERN skalası, Journal of the American Medical Association (JAMA) kalite ölçeği ve işitsel/görsel materyaller için hasta eğitim materyalleri değerlendirme aracı (patient education materials evaluation tool for audio/visual, PEMAT-A/V) kullanılmıştır. Bulgular: Videoların büyük çoğunluğunun akademik olmayan sağlık kuruluşları (%36) ve sağlık profesyonelleri (%23) tarafından yüklendiği görülmüştür. Videoların içeriği değerlendirildiğinde, genel bakım stratejilerinin %52 ile en yaygın içerik olduğu tespit edilmiştir. Uygulanan içerik kalitesi ölçeklerinin tümünde yüksek güvenilirlik ve doğruluk düzeylerine işaret eden skorlar saptanmıştır. Akademik sağlık kurumları kaynaklı videoların, içerik kalitesi ölçeklerinde en yüksek puanlara sahip olduğu görülmüştür. Korelasyon analizlerinde, süre, görüntüleme oranı, yorum sayısı ve video güç indeksi değerleri gibi video metrikleri, içerik kalitesi skorlarıyla pozitif yönde korelasyon göstermiştir. Sonuç: YouTube platformunda yer alan demanslı hasta bakımıyla ilgili videolar, genel olarak yüksek popülerlik ve içerik kalitesi sergilemektedir. Çevrimiçi platformlarda demans bakımı hakkında bilgi arayan bireylerin, sağlık kuruluşları tarafından yüklenen videolara yönlendirilmeleri uygun olacaktır.

Keywords

• demans
• demans bakımı
• YouTube

References

1. Sharma S, A Halim NA, Maniam P. Caregiver experiences with dementia-related feeding/eating difficulties. Healthcare (Basel). 2024;12(2):133.
2. Livingston G, Sommerlad A, Orgeta V, Costafreda SG, Huntley J, Ames D, et al. Dementia prevention, intervention, and care. Lancet. 2017;390(10113):2673-734.
3. Bayer A. Next steps after diagnosing dementia: interventions to help patients and families. Pract Neurol. 2020;20(4):294-303.
4. Lukic S, Petrovic J. The quality of information provided by the most popular dementia videos on TikTok. Front Public Health. 2023;11:1266415.
5. Foxe D, D'Mello M, Cheung SC, Bowen J, Piguet O, Hwang YT. Dementia in Australia: Clinical recommendations post-diagnosis. Australas J Ageing. 2024;43(2):394-402.
6. Chiong W, Tsou AY, Simmons Z, Bonnie RJ, Russell JA; Ethics, Law, and Humanities Committee. Ethical considerations in dementia diagnosis and care: AAN position statement. Neurology. 2021;97(2):80-9.
7. Madathil KC, Rivera-Rodriguez AJ, Greenstein JS, Gramopadhye AK. Healthcare information on YouTube: A systematic review. Health Informatics J. 2015;21(3):173-94.
8. Osman W, Mohamed F, Elhassan M, Shoufan A. Is YouTube a reliable source of health-related information? A systematic review. BMC Med Educ. 2022;22(1):382.

9. Sui W, Sui A, Rhodes RE. What to watch: Practical considerations and strategies for using YouTube for research. Digit Health. 2022;8:20552076221123707.
10. Claflin SB, Klekociuk S, Fair H, Bostock E, Farrow M, Doherty K, et al. Assessing the impact of online health education interventions from 2010-2020: A systematic review of the evidence. Am J Health Promot. 2022;36(1):201-24.
11. Okagbue HI, Oguntunde PE, Bishop SA, Obasi ECM, Opanuga AA, Ogundile OP. Review on the reliability of medical contents on YouTube. Int J Online Biomed Eng. 2020;16(1):83-99.
12. Bizpinar Munis O, Aynal Olcucuoglu LC. Assessing the quality of YouTube videos as a source of information on mild cognitive impairment. Ann Med Res. 2023;30(10):1289-94.
13. Woo BKP. An evaluation of YouTube in disseminating dementia knowledge to older Chinese in Britain. Int Psychogeriatr. 2018;30(10):1575.
14. Zheng X, Woo BK. E-mental health in ethnic minority: A comparison of YouTube and talk-based educational workshops in dementia. Asian J Psychiatr. 2017;25:246-8.
15. Shu S, Woo BKP. The roles of YouTube and WhatsApp in dementia education for the older Chinese American population: longitudinal analysis. JMIR Aging. 2020;3(1):e18179.
16. Lam NHT, Woo BKP. YouTube as a new medium for dementia education among Chinese Americans. Community Ment Health J. 2020;56(3):435-9.
17. Godwin HT, Khan M, Yellowlees P. The educational potential of YouTube. Acad Psychiatry. 2017;41(6):823-7.
18. Bahar Ozdemir Y, Ozsoy Unubol T, Akyuz G. Is YouTube a high-quality source of information on cancer rehabilitation? J Cancer Surviv. 2022;16(5):1016-22.
19. Drozd B, Couvillon E, Suarez A. Medical YouTube videos and methods of evaluation: literature review. JMIR Med Educ. 2018;4(1):e3.
20. Kasikci MT, Yildirim S. Analysing YouTube videos as a source for Alzheimer's disease information. Medical Journal of Mugla Sitki Kocman University. 2021;8(3):215-9. Turkish.
21. Benajiba N, Alhomidi M, Alsunaid F, Alabdulkarim A, Dodge E, Chavarria EA, et al. Video clips of the Mediterranean diet on YouTube TM: A social media content analysis. Am J Health Promot. 2023;37(3):366-74.
22. Smailhodzic E, Hooijsma W, Boonstra A, Langley DJ. Social media use in healthcare: A systematic review of effects on patients and on their relationship with healthcare professionals. BMC Health Serv Res. 2016;16(1):442.
23. Charnock D, Shepperd S, Needham G, Gann R. DISCERN: an instrument for judging the quality of written consumer health information on treatment choices. J Epidemiol Community Health. 1999;53(2):105-11.
24. Gurler D, Buyukceran I. Assessment of the medical reliability of videos on social media: Detailed analysis of the quality and usability of four social media platforms (Facebook, Instagram, Twitter, and YouTube). Healthcare (Basel). 2022;10(10):1836.
25. Silberg WM, Lundberg GD, Musacchio RA. Assessing, controlling, and assuring the quality of medical information on the internet. JAMA. 1997;277(15):1244-5.
26. Shoemaker SJ, Wolf MS, Brach C. Development of the patient education materials assessment tool (PEMAT): a new measure of understandability and actionability for print and audiovisual patient information. Patient Educ Couns. 2014;96(3):395-403.
27. Tang W, Olscamp K, Choi SK, Friedman DB. Alzheimer's disease in social media: content analysis of YouTube videos. Interact J Med Res. 2017;6(2):e19.
28. Goobie GC, Guler SA, Johannson KA, Fisher JH, Ryerson CJ. YouTube videos as a source of misinformation on idiopathic pulmonary fibrosis. Ann Am Thorac Soc. 2019;16(5):572-9.
29. Etzel CM, Bokshan SL, Forster TA, Owens BD. A quality assessment of YouTube content on shoulder instability. Phys Sportsmed. 2022;50(4):289-94.
30. Erdem MN, Karaca S. Evaluating the accuracy and quality of the information in Kyphosis videos shared on YouTube. Spine (Phila Pa 1976). 2018;43(22):E1334-9.
31. Tang K, Azhar U, Babar M, Ahmed A, Oh A, Day W, et al. Assessing the quality of YouTube videos on adhesive capsulitis. Cureus. 2022;14(7):e27406.
32. Altun A, Askin A, Sengul I, Aghazada N, Aydin Y. Evaluation of YouTube videos as sources of information about complex regional pain syndrome. Korean J Pain. 2022;35(3):319-26.
33. Özcan F, Gürçay E. Is the information about lateral epicondylitis on the YouTube platform reliable and of good quality? Phys Sportsmed. 2023;51(5):458-62.
34. Desai T, Shariff A, Dhingra V, Minhas D, Eure M, Kats M. Is content really king? An objective analysis of the public's response to medical videos on YouTube. PLoS One. 2013;8(12):e82469.