YouTube as a Source of Information on Pulmonary Rehabilitation for COPD Patients

Abstract

Aim: YouTube is increasingly being used as a platform for accessing health-related information, including diseases and treatments. This study aimed to evaluate the reliability and quality of YouTube video content on pulmonary rehabilitation in chronic obstructive pulmonary disease (COPD) patients and determine whether YouTube is a reliable source of information. Material and Methods: A total of 60 videos were included in the study by searching on YouTube with the keywords "pulmonary rehabilitation", "COPD exercises", and "breathing exercises". The quality, reliability, and accuracy of the videos were assessed using the Global Quality Scale (GQS), the modified DISCERN (mDISCERN) score, and the Journal of the American Medical Association (JAMA) scoring system, respectively. Data such as video duration, view rate, uploader, and narrator were analyzed and used to compare quality and reliability. Results: None of the videos had a full JAMA score. A statistically significant relationship was found between view rate and low-to-moderate quality videos (p<0.001). A significant difference was observed in JAMA (p=0.003) and mDISCERN (p=0.005) scores, according to the GQS quality assessment. Additionally, GQS showed a positive correlation with the number of views, likes, and view rate (all p<0.001). Conclusion: The quality, reliability, and accuracy of Turkish-language videos on COPD and pulmonary rehabilitation were found to be low. Considering that rehabilitation is an individualized process, exercises performed without a physician’s recommendation or prescription may have limited benefits. Where access to healthcare professionals is limited, high-view-count videos may still offer relatively better information compared to others.

Keywords

• cronic obstructive pulmonary disease
• internet
• rehabilitation
• YouTube

KOAH Hastalarında Pulmoner Rehabilitasyon Hakkında Bilgi Kaynağı Olarak Youtube

Abstract

Amaç: YouTube, hastalıklar ve tedaviler de dahil olmak üzere sağlıkla ilgili bilgilere erişim için giderek daha fazla kullanılan bir platform haline gelmektedir. Bu çalışmanın amacı kronik obstrüktif akciğer hastalığı (KOAH) hastalarında pulmoner rehabilitasyona ilişkin YouTube video içeriklerinin güvenilirliğini ve kalitesini değerlendirmek ve YouTube'un güvenilir bir bilgi kaynağı olup olmadığını belirlemektir. Gereç ve Yöntemler: Çalışmaya YouTube’da "pulmoner rehabilitasyon", "KOAH egzersizleri" ve "nefes egzersizleri" anahtar sözcükleriyle arama yapılarak toplam 60 video dahil edildi. Videoların kalitesi, güvenilirliği ve doğruluğu sırasıyla küresel kalite ölçeği (global quality scale, GQS), modifiye DISCERN (mDISCERN) skoru ve Journal of the American Medical Association (JAMA) skorlama sistemi kullanılarak değerlendirildi. Video süresi, görüntülenme oranı, yükleyen ve anlatan gibi veriler kalite ve güvenilirliği karşılaştırmak için analiz edildi. Bulgular: JAMA puanlaması tam olan hiç video yoktu. Görüntülenme oranı ile düşük ve orta kalite videolar arasında istatistiksel olarak anlamlı bir ilişki bulundu (p<0,001). GQS kalite değerlendirmesine göre JAMA (p=0,003) ve mDISCERN (p=0,005) puanlarında anlamlı bir farklılık gözlemlendi. Ek olarak, GQS, görüntüleme sayısı, beğeniler ve görüntüleme oranı ile pozitif bir korelasyon gösterdi (tümü p<0,001). Sonuç: KOAH ve pulmoner rehabilitasyon ile ilgili Türkçe videoların kalitesi, güvenilirliği ve doğruluğunun düşük olduğu bulundu. Rehabilitasyonun bireysel bir süreç olduğu düşünüldüğünde, hekim önerisi veya reçetesi olmadan yapılacak egzersizlerin faydası sınırlı olabilir. Sağlık profesyonellerine erişiminin kısıtlı olduğu durumlarda, yüksek izlenme sayılarına sahip videolar, diğer videolara göre yine de nispeten daha iyi bilgi sağlayabilir.

Keywords

• Kronik obstrüktif akciğer hastalığı
• internet
• rehabilitasyon
• YouTube

References

1. Agustí A, Celli BR, Criner GJ, Halpin D, Anzueto A, Barnes P, et al. Global initiative for chronic obstructive lung disease 2023 report: GOLD executive summary. Eur Respir J. 2023;61(4):2300239.
2. Rochester CL, Vogiatzis I, Holland AE, Lareau SC, Marciniuk DD, Puhan MA, et al. An Official American Thoracic Society/European Respiratory Society policy statement: enhancing implementation, use, and delivery of pulmonary rehabilitation. Am J Respir Crit Care Med. 2015;192(11):1373-86.
3. Bhatt SP, Baugh D, Hitchcock J, Kim YI, Cutter G, Aban I, et al. Video telehealth pulmonary rehabilitation for chronic obstructive pulmonary disease is associated with clinical improvement similar to center-based pulmonary rehabilitation. Ann Am Thorac Soc. 2022;19(2):331-3.
4. Varol Y, Şahin H, Aktürk Ü, Kömürcüoğlu B. Effect of pulmonary rehabilitation on the value of the inspiratory capacity-to-total lung capacity (IC/TLC) ratio to determine response to pulmonary rehabilitation in patients with chronic obstructive pulmonary disease. Turk Thorac J. 2019;20(4):224-9.
5. Fernandez-Luque L, Karlsen R, Melton GB. HealthTrust: a social network approach for retrieving online health videos. J Med Internet Res. 2012;14(1):e22.
6. Madathil KC, Rivera-Rodriguez AJ, Greenstein JS, Gramopadhye AK. Healthcare information on YouTube: A systematic review. Health Informatics J. 2015;21(3):173-94.
7. Shaikh AR, Alhoori H, Sun M. YouTube and science: models for research impact. Scientometrics. 2023;128(2):933-55.
8. Lewis SP, Heath NL, Sornberger MJ, Arbuthnott AE. Helpful or harmful? An examination of viewers’ responses to nonsuicidal self-injury videos on YouTube. J Adolesc Health. 2012;51(4):380-5.

9. Erkoç Ataoğlu E, Batur Çağlayan H. Evaluation of YouTube videos as a source of information about dementia care. Duzce Med J. 2024;26(2):161-6.
10. Bernard A, Langille M, Hughes S, Rose C, Leddin D, Veldhuyzen Van Zanten S. A systematic review of patient inflammatory bowel disease information resources on the World Wide Web. Am J Gastroenterol. 2007;102(9):2070-7.
11. Uzun O. Assessment of reliability and quality of videos on medial epicondylitis shared on YouTube. Cureus. 2023;15(4):e37250.
12. Silberg WM, Lundberg GD, Musacchio RA. Assessing, controlling, and assuring the quality of medical information on the Internet: Caveant lector et viewor--Let the reader and viewer beware. JAMA. 1997;277(15):1244-5.
13. Hongler VNS, Navarini A, Brandt O, Goldust M, Mueller SM. Global trends in YouTube and Google search activity for psoriasis and atopic eczema: detecting geographic hot spots, blind spots and treatment strategies. Dermatol Ther. 2020;33(4):e13510.
14. Goobie GC, Guler SA, Johannson KA, Fisher JH, Ryerson CJ. YouTube videos as a source of misinformation on idiopathic pulmonary fibrosis. Ann Am Thorac Soc. 2019;16(5):572-9.
15. Skiba DJ. Nursing education 2.0: Games as pedagogical platforms. Nurs Educ Perspect. 2008;29(3):174-5.
16. Tuna M, Ağır H. Are Turkish videos about geriatric exercise program appropriate and does YouTube provide reliable and quality information? Turk J Osteoporos 2023;29(3):143-9. Turkish.
17. Duran MB, Kizilkan Y. Quality analysis of testicular cancer videos on YouTube. Andrologia. 2021;53(8):e14118.
18. Kocyigit BF, Akyol A. YouTube as a source of information on COVID-19 vaccination in rheumatic diseases. Rheumatol Int. 2021;41(12):2109-15.
19. Yoo M, Bang MH, Jang CW. Evaluation of YouTube videos as a source of information on pulmonary rehabilitation for COPD. Respir Care. 2022;67(5):534-42.