Motivational Programs for Children with Cancer

Yıl 2021, Cilt: 3 Sayı: 1, 28 - 35, 30.04.2021

Zeynep Kisecik Şengül , Ebru Kılıçarslan Törüner

Öz

Childhood cancers are common health problems, the treatment of which involves motivational programs to maintain well-being. Some of those motivational programs are mind-body techniques, storytelling, video games, camping, cognitive-behavioral approaches, and family-centered care. This review examined some motivational programs for children with cancer. They are technology- and model-based programs tailored to the needs of children with cancer aged 3 to 18 years in treatment. Children who receive motivational programs are likely to experience less anxiety, present fewer symptoms, have a higher quality of life, and cope better with problems. Nurses should play an active role in developing motivational programs and integrating them care of children with cancer.

Anahtar Kelimeler

Child, Cancer, Motivation, Program

Kaynakça

• Ajzen, I.(1991).The theory of planned behavior. Organizational Behavior and Human Decision Processes, 50(2),179-211.doi:http://dx.doi.org/10.1016/0749-5978(91)90020-T
• Akel, B.S., Sahin, S., Huri, M., & Akyüz, C. (2019). Cognitive rehabilitation is advantageous in terms of fatigue and independence in pediatric cancer treatment: a randomized-controlled study. International Journal of Rehabilitation Research, 42(2), 145-151. doi: 10.1097/MRR.0000000000000340
• Amer, R.S.R.M., Hamad, M.M., & El-Sayed, R.E.S.H. (2020). The effect of applying a progressive muscle relaxation technique on nausea and vomiting induced by chemotherapy among leukemic children. American Journal of Nursing, 8(3), 331-343. doi: 10.12691/ajnr-8-3-3
• Arceci, R.J. (2016). Pediatric oncology: Psychosocial care in context. In: Abrams, A.N., Muriel, A.C., & Wiener, L. (Eds). Pediatric psychosocial oncology: Textbook for multidisciplinary care (1-6). Switzerland: Springer.
• Bailey, B. W., & McInnis, K. (2011). Energy cost of exergaming: a comparison of the energy cost of 6 forms of exergaming. Archives of Pediatrics & Adolescent Medicine, 165(7), 597-602. doi:10.1001/archpediatrics.2011.15
• Burns, G.W. (2017). 101 Healing stories for kids and teens: using metaphors in therapy (N. Cihanşümül Maral, Trans). İstanbul: Nobel Yaşam.
• COCA. (2017). Children's oncology camping assocation-international: annual survey of membership. Retrieved from https://www.cocai.org/2017-survey-of-camp-services
• Corralejo, S.M., & Rodríguez, M.M.D. (2018). Technology in parenting programs: a systematic review of existing interventions. Journal of Child and Family Studies, 27(9), 2717-2731. doi: https://doi.org/10.1007/s10826-018-1117-1
• Elkreem, M.A., Mohammed, A.R., & Mohammed, N.S. (2014). Effect of breathing exercise on respiratory efficiency and pain intensity among children receiving chemotherapy. Journal of Education and Practice, 5(6), 18-32.
• El Sayed, S.A.E.N., Ibrahim, H., Mohamed, N. T., & Ahmed, M.M. (2019). Effect of story-telling on reducing the intensity of nausea and vomiting among children undergoing chemotherapy. Assiut Scientific Nursing Journal, 7(17), 164-172.
• Fazelniya, Z., Najafi, M., Moafi, A., & Talakoub, S. (2017). The impact of an interactive computer game on the quality of life of children undergoing chemotherapy. Iranian Journal of Nursing and Midwifery Research, 22(6), 431-435. doi: 10.4103/ijnmr.IJNMR_215_15
• Gillard, A., & Watts, C. E. (2013). Program features and developmental experiences at a camp for youth with cancer. Children and Youth Services Review, 35(5), 890-898. doi: http://dx.doi.org/10.1016/j.childyouth.2013.02.017
• Haase, J. E., Kintner, E. K., Monahan, P. O., & Robb, S. L. (2014). The Resilience in Illness Model (RIM) Part 1: exploratory evaluation in adolescents and young adults with cancer. Cancer Nursing, 37(3), E1-E12. doi: 10.1097/NCC.0b013e31828941bb
• Harrison, T. M. (2010). Family-centered pediatric nursing care: state of the science. Journal of Pediatric Nursing, 25(5), 335-343. doi:10.1016/j.pedn.2009.01.006
• Ho, L.L.K., Li, W.H.C., Cheung, A.T., Ho, E.K.Y., Lam, K.K.W., Chiu, S.Y., ... & Chung, J. O.K. (2019). Relationships among hope, psychological well-being and health-related quality of life in childhood cancer survivors. Journal of Health Psychology, 1-10.
• Jones, J.K., Kamani, S.A., Bush, P.J., Hennessy, K.A., Marfatia, A., & Shad, A.T. (2010). Development and Evaluation of an educational interactive CD-ROM for teens with cancer. Pediatr Blood Cancer, 55, 512-519. doi: 10.1002/pbc.22608
• Kauhanen, L., Järvelä, L., Lähteenmäki, P. M., Arola, M., Heinonen, O. J., Axelin, A., ... & Salanterä, S. (2014). Active video games to promote physical activity in children with cancer: a randomized clinical trial with follow-up. BMC Pediatrics, 14(1), 1-10. doi:10.1186/1471-2431-14-94
• Kaushal, B.D., Narendra, D.B., & Smitha, D. (2013). A comparative study between relaxation technique and aerobic exercise in fatigue during chemotherapy in acute lymphoblastic leukemia in children. Indian Journal of Physiotherapy and Occupational Therapy, 7(3), 140-145. doi: 10.5958/j.0973-5674.7.3.081
• Kazdin, A.E. (2015). Technology-based interventions and reducing the burdens of mental illness: perspectives and comments on the special series. Cognitive and Behavioral Practice, 22(3), 359-366.
• Keats, M. R., & Culos-Reed, S. N. (2008). A community-based physical activity program for adolescents with cancer (project TREK): program feasibility and preliminary findings. Journal of Pediatric Hematology/Oncology, 30(4), 272-280.
• Kolb, D.A. (1984). Experiential learning: experience as the source of learning and development. New Jersey: Prentice Hall.
• Lam, K.K., Li, W.H., Chung, O.K., Ho, K.Y., Chiu, S.Y., Lam, H.S., & Chan, G.C. (2018). An integrated experiential training programme with coaching to promote physical activity, and reduce fatigue among children with cancer: A randomised controlled trial. Patient Education and Counseling, 101(2018), 1947-1956. doi: https://doi.org/10.1016/j.pec.2018.07.008
• Lazarus, R.S., & Folkman, S. (1984). Stress, appraisal and coping. New York: Springer Publisher.
• Liptak, C.C., Chow, C., Zhou, E.S., & Recklitis, C.J. (2016). Psychosocial care for pediatric cancer survivors. In: Abrams, A.N., Muriel, A.C., Wiener, L. (Eds). Pediatric psychosocial oncology: Textbook for multidisciplinary care (265-289). Switzerland: Springer.
• Lyon, M.E., Jacobs, S., Briggs, L., Cheng, Y.I., & Wang, J. (2014). A longitudinal, randomized, controlled trial of advance care planning for teens with cancer: Anxiety, depression, quality of life, advance directives, spirituality. J Adolesc Health, 54,710- 717. doi: http://dx.doi.org/10.1016/j.jadohealth.2013.10.206
• Lyon, M.E., Jacobs, S., Briggs, L., Cheng, Y.I., & Wang, J. (2013). Family-centered advance care planning for teens with cancer. JAMA Pediatrics, 167(5), 460-467. doi:10.1001 /jamapediatrics.2013.943
• MacDonell, K.W., & Prinz, R.J. (2017). A review of technology-based youth and family-focused interventions. Clinical Child And Family Psychology Review, 20(2), 185-200. doi: 10.1007/s10567-016-0218-x
• Martiniuk, A., Silva, M., Amylon, M., & Barr, R. (2014). Camp programs for children with cancer and their families: Review of research progress over the past decade. Pediatric Blood & Cancer, 61(5), 778-787.doi: 10.1002/pbc.24912
• Mehrara, M., Ghaffari, Z., Ghezelghabr, R.M., Ghavasi, F., & Fatemizadeh, M. (2019). The Effectiveness of Cognitive-Behavioral Play Therapy on Pain Tolerance and Trait-State Anxiety Among Children with leukemia cancer in Isfahan City. International Journal of Applied Behavioral Sciences, 5(2), 22-27.
• Muntean, C.H., Bogusevschi, D., & Muntean, G.M. (2019). Innovative technology-based solutions for primary, secondary and tertiary stem education. Paragon Publishing.
• Nani, S., Matsouka, O., Theodorakis, Y., & Antoniou, P. (2019). Exergames and implications on quality of life in pediatric oncology patients: A preliminary qualitative study. Journal of Physical Education and Sport, 19, 262-267. doi:10.7752/jpes.2019.s1039
• Oztürk, C., & Ayar, D. (2014). The Practice Of Art in Pediatric Nursing. E-Journal of Dokuz Eylül Üniversity Nursing Faculty, 7(4), 315-320.
• Piasai, K., Phumdoung, S., Wiroonpanich, W., & Chotsampancharoen, T. (2018). A randomized control trial of guided-imagination and drawing-storytelling in children with cancer. Pacific Rim International Journal of Nursing Research, 22(4), 386-400.
• Robb, S.L., Burns, D.S., Stegenga, K.A., Haut, P. R., Monahan, P.O., Meza, J., ... & Haase, J.E. (2014). Randomized clinical trial of therapeutic music video intervention for resilience outcomes in adolescents/young adults undergoing hematopoietic stem cell transplant: a report from the Children's Oncology Group. Cancer, 120(6), 909-917. doi: 10.1002/cncr.28355
• Rodgers, C., Withycombe, J., and Hockenberry, M. (2016). Physical Impact of Pediatric Cancer and Its Treatment. In: Abrams, A.N., Muriel, A.C., Wiener, L. (Eds). Pediatric psychosocial oncology: Textbook for multidisciplinary care (25-50). Switzerland: Springer.
• Sabel, M., Sjölund, A., Broeren, J., Arvidsson, D., Saury, J. M., Blomgren, K., ...& Emanuelson, I. (2016). Active video gaming improves body coordination in survivors of childhood brain tumours. Disability and Rehabilitation, 38(21),2073-2084. doi: http://dx.doi.org/10.3109/09638288.2015.1116619
• Sajjad, S., Hanan Abdullah, A., Sharif, M., & Mohsin, S. (2014). Psychotherapy through video game to target illness related problematic behaviors of children with brain tumor. Current Medical Imaging, 10(1), 62-72.
• Speyer, E., Herbinet, A., Vuillemin, A., Briançon, S., & Chastagner, P. (2010). Effect of adapted physical activity sessions in the hospital on health‐related quality of life for children with cancer: A cross‐over randomized trial. Pediatric Blood & Cancer, 55(6), 1160-1166. doi: 10.1002/pbc.22698
• Steliarova-Foucher, E., Colombet, M., Ries, L.A., Moreno, F., Dolya, A., Bray, F., ... & Stiller, C.A. (2017). International incidence of childhood cancer, 2001–10: A population-based registry study. The Lancet Oncology, 18(6), 719-731. doi: http://dx.doi.org/10.1016/S1470-2045(17)30186-9
• Sunrise Association (2021). Sunrise day camps. Retrieved from http://www.sunrisedaycamp-longisland.org/program/about-our-camp/
• Thygeson, M. V., Hooke, M. C., Clapsaddle, J., Robbins, A., & Moquist, K. (2010). Peaceful play yoga: serenity and balance for children with cancer and their parents. Journal of Pediatric Oncology Nursing, 27(5), 276-284. doi: 10.1177/1043454210363478
• van Dijk‐Lokkart, E. M., Braam, K. I., van Dulmen‐den Broeder, E., Kaspers, G. J., Takken, T., Grootenhuis, M. A., ... & Huisman, J. (2016). Effects of a combined physical and psychosocial intervention program for childhood cancer patients on quality of life and psychosocial functioning: results of the QLIM randomized clinical trial. Psycho‐Oncology, 25(7), 815-822. doi: 10.1002/pon.4016
• Walsh, K. E., Biggins, C., Blasko, D., Christiansen, S. M., Fischer, S. H., Keuker, C., ... & Mazor, K. M. (2014). Home medication support for childhood cancer: family-centered design and testing. Journal of Oncology Practice, 10(6), 373-376.
• Wiener, L. & Pao, M . (2012) . Comprehensive and family centered psychosocial care in pediatric oncology: Integration of clinical practice and research . In S. Kreitler , M.W. Ben-Arush & A. Martin(Eds), Pediatric psycho-oncology psychosocial aspects and clinical interventions (pp. 7 – 17). Oxford: Wiley-Blackwell.
• Wu, L. M., Chiou, S. S., Sheen, J. M., Lin, P. C., Liao, Y. M., Chen, H. M., & Hsiao, C. C. (2014). Evaluating the acceptability and efficacy of a psycho‐educational intervention for coping and symptom management by children with cancer: a randomized controlled study. Journal of Advanced Nursing, 70(7), 1653-1662. doi: 10.1111/jan.12328
• Wu, Y.P., Prout, K., Roberts, M. C., Parikshak, S., & Amylon, M.D. (2011). Assessing experiences of children who attended a camp for children with cancer and their siblings: A preliminary study. Child & Youth Care Forum, 40,121-133. https://doi.org/10.1007/s10566-010-9123-5
• Yu, L., Mo, L., Tang, Y., Huang, X., & Tan, J. (2014). Effects of nursing intervention models on social adaption capability development in preschool children with malignant tumors: a randomized control trial. Psycho‐Oncology, 23(6), 708-712. doi: 10.1002/pon.3572
• Zhang, P., Mo, L., Torres, J., & Huang, X. (2019). Effects of cognitive behavioral therapy on psychological adjustment in Chinese pediatric cancer patients receiving chemotherapy: A randomized trial. Medicine, 98, 27. doi: 10.1097/MD.0000000000016319
• Zupanec, S., Jones, H., McRae, L., Papaconstantinou, E., Weston, J., & Stremler, R. (2017). A sleep hygiene and relaxation intervention for children with acute lymphoblastic leukemia: a pilot randomized controlled trial. Cancer Nursing, 40(6), 488-496. doi: 10.1097/NCC.0000000000000457