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INVESTIGATION OF CAREGIVER BURDEN AND OCCUPATIONAL THERAPY INTERVENTION IN DISABLED INDIVIDUALS IN COVID 19 TERM

Yıl 2023, Cilt: 8 Sayı: 3, 11 - 26, 07.01.2024
https://doi.org/10.52881/gsbdergi.1236185

Öz

Objective It was conducted to determine the factors affecting the occupational therapy training and the care burden of parents in individuals who were to learn in the Covid 19.
Methods: The study sample consisted of individuals whose average age was 23.27 ±311.77 years in a private education institution in Ankara. Caregiver burden of parents was evaluated with Zarit Caregiver Scale (ZCS). Activity performance and satisfaction levels of the individuals were evaluated with the Canadian Activity Performance Measurement (COPM). The intervention was applied for 12 weeks.
Results It was determined that 44.4 % of the caregivers had a moderate care burden. A statistically significant difference was obtained when comparing the ZCB before and after COVID-19 (p=0.006). A statistically significant decrease was found in the number of activities during the COVID 19 period (p=0.000, t=4.89).
Conclusions: Occupational therapy intervention resulted in improvement in the activity performance of individuals. It is necessary to plan more studies that include evaluation and intervention approaches in the fields of activity performance and satisfaction in the field of occupational therapy.

Destekleyen Kurum

yok

Proje Numarası

yok

Teşekkür

--

Kaynakça

  • 1. Akoğlu G, & Karaaslan BT. Possible Psychosocial Effects of COVID-19 and the Isolation Process on Children, İzmir Katip Çelebi University Faculty of Health Sciences Journal. 2020;5(2), 99-103
  • 2. Duan L, Zhu G. Psychological interventi ons for people affected by the COVID-19 epidemic. Lancet Psychiatry. (2020);7(4): 300–2.
  • 3. Xiang Y-T, Yang Y, Li W, Zhang L, Zhang Q, Cheung T, et al. Timely mental health care for the 2019 novel coronavirus outbreak is urgently needed. The Lancet Psychiatry. 2020;7(3), 228-9.
  • 4. Willner P, Rose J, Kroese BS, Murphy GH, Langdon PE, Clifford C, Hutchings H, Watkins A, Hiles S, & Cooper V. Effect of the COVID-19 pandemic on the mental health of carers of people with intellectual disabilities. Journal of Applied Research in Intellectual disabilities. 2020;33(6), 1523-1533.https://doi.org/10.1111/jar.12811.
  • 5. Silverman A. People with intellectual disabilities may be denied lifesaving care under these plans as coronavirus spreads [Press release]. https://www.propublica. org/article/people-with-intellectual-disabi lities-may-be-denied-lifesaving-care-under-these-plans-as-coronavirus-spreads. Google Scholar. 2020
  • 6. Courtenay K, & Perera B. COVID-19 and people with intellectual disability: Impacts of pandemic. Irish Journal of psychological Medicine. 2020; 37(3), 231– 236.
  • 7. Asbury K, Fox L, Deniz E, Code A, & Toseeb U. How is COVID-19 affecting the mental health of children with special educational needs and disabilities and their families? Journal of Autism and Developmental Disorders 2020;51,1772–1780 8. Zarit SH, Reever KE. and Bach-Peterson J. Relatives of the Impaired Elderly: Correlates of Feelings of Burden. The Gerontologist.1980;20, 649-655.
  • 9. Emir A, Tarakcı D, Doğan S. Investigation of Caregiver Burden and Compassion Fatigue in Mothers of Children with Special Needs. Halic Uni J Health Sci. 2020; 3(3), 153-160.
  • 10. Homan KJ, Greenberg JS, Mailick MR. Generativity and Well-Being of Midlife and Aging Parents With Children With Developmental or Mental Health Problems. Res Aging. 2019;42(3-4), 95-104.
  • 11. Yıldırım S, Yalçıner N. & Güler C. Caregiver burden in chronic mental ıllness: A systematic review. Journal of Psychiatric Nursing. 2017; 8(3),165–171. 12. Coyne LW, Gould E R, Grimaldi M, Wilson K G, Baffuto G, & Biglan A. First things first: Parent psychological flexibility and self-compassion during COVID-19. Behavior Analysis in Practice. 2020; 14,1092–1098. 13. Karip E. COVID-19: School Closure and After. Accessed August 12, 2020, https://tedmem.org/vurus/covid-19-okullarin-kapatilmasi-ve-sonrasi-Ataman, A. Reasons for Needing Special Education. A. In Ataman, Children with Special Needs and Introduction to Special Education, Ankara: Gündüz Education. 2020. 14. Atila-Demir S, Keskin G. Difficulties Encountered by Mothers with an Intellectually Disabled Child- A Qualitative Study, The Journal of Academic Social Science Studies. 2018; 66, 357-372.
  • 15. Arlington VA. American Psychiatric Association. Diagnostic and statistical manual of mental disorders (5th ed.). American Psychiatric Publishing 2013.
  • 16. Balcı S, Kızıl H, Savaşer S, Dur Ş, Mutlu B. Determining the difficulties and family burden of families with mentally retarded children J Psychiatric Nurs. 2019; 10(2),124-130.
  • 17. Akı E, Tanrıverdi N, Şafak Y. The Effect of Individual-Centered Occupational Therapy Program on Participation in Activities of Daily Living in Individuals with Schizophrenia Journal of Occupational Therapy and Rehabilitation. 2014; 2(2), 83–90 18. Wijesinghe CJ, Cunningham N, Fonseka P. et.al. Factors Associated With Caregiver Burden Among Caregivers of Children With Cerebral Palsy in Sri Lanka. Asia Pac J Public Health. 2015; 27 (1), 85-95. 19. Barros ALO, de Gutierrez GM, Barros AO, Santos M. Quality of life and burden of caregivers of children and adolescents with disabilities. Spec Care Dentist. 2019;39, 380–388.
  • 20.American Occupational Therapy Association. Occupational therapy scope of practice. The American Journal of Occupational Therapy, 2021; 75 (Supplement_3) 7513420020.
  • 21.Romli, MH, Wan Yunus F, & Mackenzie L. Overview of reviews of standardised occupation‐based instruments for use in occupational therapy practice. Australian Occupational Therapy Journal. 2019; 66(4), 428-445.
  • 22. Pituch E, Rushton PW, Ngo M, Heales J & Arguin AP. Powerful or Powerless? Children’s, Parents’, and Therapists’ Perceptions of Powered Mobility. Physical & Occupational Therapy In Pediatrics. 2019; 276-291
  • 23.Pavão SL, Ferreira Rocha NAC. Sensory processing disorders in children with cerebral palsy Infant Behav Dev. 2017;46,1-6.
  • 24. Håkansson C, Lissner L, Bj€orkelund C, et al. Engagement in patterns of daily occupations and perceived health among women of working age. Scand J Occup Ther. 2009;16(2),110–117.
  • 25.Håkansson C, Bj€orkelund C, Eklund M.Associations between women’s subjective perceptions of daily occupations and life satisfaction, and the role of perceived control. Aust Occup Ther J. 2011;58(6), 397–404.
  • 26. Koçbeker Eid BN, Karamuklu ES. Investigation of Difficulties and Emotions of Mothers with Special Needs Children during the COVID-19 Epidemic Research Article. National Education.2022;51, 233, 419-442
  • 27. Yıldırım M, Düken ME, Dağ YS, Yayan EH. Comparison of Care Burden of Mother and Fathers of Children with Cerebral Palsy. Research Artıcle. CBU-SBED. 2020; 7(2),130 -135.
  • 28.Torpil B. Turkish Cultural Adaptation, Validity and Reliability of Canadian Activity Performance Measurement in Individuals with Multiple Sclerosis. Ankara: Hacettepe University. 2017.
  • 29. Werner S, Hochman Y, Holler R, Shpigelman CN. Burden and Growth during COVID-19: Comparing Parents of Children with and without Disabilities Journal of Child and Family Studies, J Child Fam Stud. 2022;31(6),1535-1546.
  • 30.Wijesinghe CJ, Cunningham N, Fonseka P. et. al. Factors Associated With Caregiver Burden Among Caregivers of Children With Cerebral Palsy in Sri Lanka. Asia Pac J Public Health. 2015; 27 (1), 85-95.
  • 31.Demiral B. Determining the Care Burden of the Mothers of Children with CP Before and After Orthopedic Intervention, Master Thesis, Bahçeşehir University, Istanbul. 2016.
  • 32.Turan Gürhopur, FD and İşler Dalgıç A. Family Burden Among Parents of Children With Intellectual Disability Journal of Psychiatric Nursing. 2017;8(1),9–16.
  • 33.Çalışır H, Karabudak SS, Karataş P, Meşealan İ, Tosun AF. Family Burden and Hopelessness Levels of Mothers with Children with Cerebral Palsy. 2018; 11(2), 147-156.
  • 34. Gündede E, Şenocak E, Yıldız Özer A. The Relationship Between Care Burden, Psychological Status, and Quality of Life in Parents Who Have a Child Diagnosed with Cerebral Palsy Ahı Evran Medıcal Journal Ahi Evran Med J. 2022; 6(3), 290-296 .
  • 35. Van Riper M. Living with Down Syndrome: The family experience, Down Syndrome Quarterly. 1999; 4(1), 1-7.
  • 36. Argyrakouli E, Zafiropoulou M. Self-esteem of Greek mothers of children with intellectual disabilities. International Journal of Disability, Development and Education. 2003; 50(2),181-195.
  • 37. Yellow HY. Family loading in families with mentally handicapped children C.Ü Hem High School Der. 2007; 11(2),1-7.
  • 38. Yıldız E, Yücel H, Yağcı F. Relationship Between Stress Coping Strategies and Activity-Role Balances of Families with Children Having Special Needs in the Quarantine Situation Because of Covid-19. Journal of Occupational Therapy and Rehabilitation. 2022; 10(2), 63-72.

COVID 19 DÖNEMİNDE ENGELLİ BİREYLERDE, BAKIM VEREN YÜKÜ VE ERGOTERAPİ MÜDAHALESİNİN İNCELENMESİ

Yıl 2023, Cilt: 8 Sayı: 3, 11 - 26, 07.01.2024
https://doi.org/10.52881/gsbdergi.1236185

Öz

Amaç: COVİD 19 dönemlerinde öğrenme güçlüğü olan bireylerde ergoterapi eğitimi ve ebeveynlerin bakım yükünü etkileyen faktörleri belirlemek amacıyla yapılmıştır.
Yöntem: Araştırmanın örneklemini Ankara'da özel bir eğitim kurumunda öğrenim gören yaş ortalaması 23,27±311,77 yıl olan bireyler oluşturdu. Ebeveynlerin bakım yükü Zarit Caregiver Scale (ZCS) ile değerlendirildi.
Bireylerin aktivite performans ve memnuniyet düzeyleri Kanada Aktivite Performans Ölçümü (KAPÖ) ile değerlendirildi. Müdahale 12 hafta boyunca uygulandı.
Bulgular: Bakım verenlerin % 44,4'ünün bakım yükünün orta düzeyde olduğu belirlendi. Ebeveynlerin COVID-19 öncesi ve sonrası ZCS karşılaştırıldığında istatistiksel olarak önemli bir fark elde edildi (p=0,008). COVID 19 döneminde aktivite sayısında istatistiksel olarak anlamlı azalma bulundu (p<0,000, t=4,89).
Sonuçlar: Ergoterapi müdahalesi, bireylerin aktivite performansında iyileşmeye neden oldu. Ergoterapi alanında aktivite performansı ve memnuniyet alanlarında değerlendirme ve müdahale yaklaşımlarını içeren daha fazla çalışma planlanması gerekmektedir.

Proje Numarası

yok

Kaynakça

  • 1. Akoğlu G, & Karaaslan BT. Possible Psychosocial Effects of COVID-19 and the Isolation Process on Children, İzmir Katip Çelebi University Faculty of Health Sciences Journal. 2020;5(2), 99-103
  • 2. Duan L, Zhu G. Psychological interventi ons for people affected by the COVID-19 epidemic. Lancet Psychiatry. (2020);7(4): 300–2.
  • 3. Xiang Y-T, Yang Y, Li W, Zhang L, Zhang Q, Cheung T, et al. Timely mental health care for the 2019 novel coronavirus outbreak is urgently needed. The Lancet Psychiatry. 2020;7(3), 228-9.
  • 4. Willner P, Rose J, Kroese BS, Murphy GH, Langdon PE, Clifford C, Hutchings H, Watkins A, Hiles S, & Cooper V. Effect of the COVID-19 pandemic on the mental health of carers of people with intellectual disabilities. Journal of Applied Research in Intellectual disabilities. 2020;33(6), 1523-1533.https://doi.org/10.1111/jar.12811.
  • 5. Silverman A. People with intellectual disabilities may be denied lifesaving care under these plans as coronavirus spreads [Press release]. https://www.propublica. org/article/people-with-intellectual-disabi lities-may-be-denied-lifesaving-care-under-these-plans-as-coronavirus-spreads. Google Scholar. 2020
  • 6. Courtenay K, & Perera B. COVID-19 and people with intellectual disability: Impacts of pandemic. Irish Journal of psychological Medicine. 2020; 37(3), 231– 236.
  • 7. Asbury K, Fox L, Deniz E, Code A, & Toseeb U. How is COVID-19 affecting the mental health of children with special educational needs and disabilities and their families? Journal of Autism and Developmental Disorders 2020;51,1772–1780 8. Zarit SH, Reever KE. and Bach-Peterson J. Relatives of the Impaired Elderly: Correlates of Feelings of Burden. The Gerontologist.1980;20, 649-655.
  • 9. Emir A, Tarakcı D, Doğan S. Investigation of Caregiver Burden and Compassion Fatigue in Mothers of Children with Special Needs. Halic Uni J Health Sci. 2020; 3(3), 153-160.
  • 10. Homan KJ, Greenberg JS, Mailick MR. Generativity and Well-Being of Midlife and Aging Parents With Children With Developmental or Mental Health Problems. Res Aging. 2019;42(3-4), 95-104.
  • 11. Yıldırım S, Yalçıner N. & Güler C. Caregiver burden in chronic mental ıllness: A systematic review. Journal of Psychiatric Nursing. 2017; 8(3),165–171. 12. Coyne LW, Gould E R, Grimaldi M, Wilson K G, Baffuto G, & Biglan A. First things first: Parent psychological flexibility and self-compassion during COVID-19. Behavior Analysis in Practice. 2020; 14,1092–1098. 13. Karip E. COVID-19: School Closure and After. Accessed August 12, 2020, https://tedmem.org/vurus/covid-19-okullarin-kapatilmasi-ve-sonrasi-Ataman, A. Reasons for Needing Special Education. A. In Ataman, Children with Special Needs and Introduction to Special Education, Ankara: Gündüz Education. 2020. 14. Atila-Demir S, Keskin G. Difficulties Encountered by Mothers with an Intellectually Disabled Child- A Qualitative Study, The Journal of Academic Social Science Studies. 2018; 66, 357-372.
  • 15. Arlington VA. American Psychiatric Association. Diagnostic and statistical manual of mental disorders (5th ed.). American Psychiatric Publishing 2013.
  • 16. Balcı S, Kızıl H, Savaşer S, Dur Ş, Mutlu B. Determining the difficulties and family burden of families with mentally retarded children J Psychiatric Nurs. 2019; 10(2),124-130.
  • 17. Akı E, Tanrıverdi N, Şafak Y. The Effect of Individual-Centered Occupational Therapy Program on Participation in Activities of Daily Living in Individuals with Schizophrenia Journal of Occupational Therapy and Rehabilitation. 2014; 2(2), 83–90 18. Wijesinghe CJ, Cunningham N, Fonseka P. et.al. Factors Associated With Caregiver Burden Among Caregivers of Children With Cerebral Palsy in Sri Lanka. Asia Pac J Public Health. 2015; 27 (1), 85-95. 19. Barros ALO, de Gutierrez GM, Barros AO, Santos M. Quality of life and burden of caregivers of children and adolescents with disabilities. Spec Care Dentist. 2019;39, 380–388.
  • 20.American Occupational Therapy Association. Occupational therapy scope of practice. The American Journal of Occupational Therapy, 2021; 75 (Supplement_3) 7513420020.
  • 21.Romli, MH, Wan Yunus F, & Mackenzie L. Overview of reviews of standardised occupation‐based instruments for use in occupational therapy practice. Australian Occupational Therapy Journal. 2019; 66(4), 428-445.
  • 22. Pituch E, Rushton PW, Ngo M, Heales J & Arguin AP. Powerful or Powerless? Children’s, Parents’, and Therapists’ Perceptions of Powered Mobility. Physical & Occupational Therapy In Pediatrics. 2019; 276-291
  • 23.Pavão SL, Ferreira Rocha NAC. Sensory processing disorders in children with cerebral palsy Infant Behav Dev. 2017;46,1-6.
  • 24. Håkansson C, Lissner L, Bj€orkelund C, et al. Engagement in patterns of daily occupations and perceived health among women of working age. Scand J Occup Ther. 2009;16(2),110–117.
  • 25.Håkansson C, Bj€orkelund C, Eklund M.Associations between women’s subjective perceptions of daily occupations and life satisfaction, and the role of perceived control. Aust Occup Ther J. 2011;58(6), 397–404.
  • 26. Koçbeker Eid BN, Karamuklu ES. Investigation of Difficulties and Emotions of Mothers with Special Needs Children during the COVID-19 Epidemic Research Article. National Education.2022;51, 233, 419-442
  • 27. Yıldırım M, Düken ME, Dağ YS, Yayan EH. Comparison of Care Burden of Mother and Fathers of Children with Cerebral Palsy. Research Artıcle. CBU-SBED. 2020; 7(2),130 -135.
  • 28.Torpil B. Turkish Cultural Adaptation, Validity and Reliability of Canadian Activity Performance Measurement in Individuals with Multiple Sclerosis. Ankara: Hacettepe University. 2017.
  • 29. Werner S, Hochman Y, Holler R, Shpigelman CN. Burden and Growth during COVID-19: Comparing Parents of Children with and without Disabilities Journal of Child and Family Studies, J Child Fam Stud. 2022;31(6),1535-1546.
  • 30.Wijesinghe CJ, Cunningham N, Fonseka P. et. al. Factors Associated With Caregiver Burden Among Caregivers of Children With Cerebral Palsy in Sri Lanka. Asia Pac J Public Health. 2015; 27 (1), 85-95.
  • 31.Demiral B. Determining the Care Burden of the Mothers of Children with CP Before and After Orthopedic Intervention, Master Thesis, Bahçeşehir University, Istanbul. 2016.
  • 32.Turan Gürhopur, FD and İşler Dalgıç A. Family Burden Among Parents of Children With Intellectual Disability Journal of Psychiatric Nursing. 2017;8(1),9–16.
  • 33.Çalışır H, Karabudak SS, Karataş P, Meşealan İ, Tosun AF. Family Burden and Hopelessness Levels of Mothers with Children with Cerebral Palsy. 2018; 11(2), 147-156.
  • 34. Gündede E, Şenocak E, Yıldız Özer A. The Relationship Between Care Burden, Psychological Status, and Quality of Life in Parents Who Have a Child Diagnosed with Cerebral Palsy Ahı Evran Medıcal Journal Ahi Evran Med J. 2022; 6(3), 290-296 .
  • 35. Van Riper M. Living with Down Syndrome: The family experience, Down Syndrome Quarterly. 1999; 4(1), 1-7.
  • 36. Argyrakouli E, Zafiropoulou M. Self-esteem of Greek mothers of children with intellectual disabilities. International Journal of Disability, Development and Education. 2003; 50(2),181-195.
  • 37. Yellow HY. Family loading in families with mentally handicapped children C.Ü Hem High School Der. 2007; 11(2),1-7.
  • 38. Yıldız E, Yücel H, Yağcı F. Relationship Between Stress Coping Strategies and Activity-Role Balances of Families with Children Having Special Needs in the Quarantine Situation Because of Covid-19. Journal of Occupational Therapy and Rehabilitation. 2022; 10(2), 63-72.
Toplam 32 adet kaynakça vardır.

Ayrıntılar

Birincil Dil İngilizce
Konular Sağlık Kurumları Yönetimi
Bölüm Makaleler
Yazarlar

Ayşe Göktaş 0000-0002-6008-5099

Demet Biçki

Proje Numarası yok
Erken Görünüm Tarihi 7 Ocak 2024
Yayımlanma Tarihi 7 Ocak 2024
Gönderilme Tarihi 17 Ocak 2023
Kabul Tarihi 18 Ekim 2023
Yayımlandığı Sayı Yıl 2023 Cilt: 8 Sayı: 3

Kaynak Göster

APA Göktaş, A., & Biçki, D. (2024). INVESTIGATION OF CAREGIVER BURDEN AND OCCUPATIONAL THERAPY INTERVENTION IN DISABLED INDIVIDUALS IN COVID 19 TERM. Gazi Sağlık Bilimleri Dergisi, 8(3), 11-26. https://doi.org/10.52881/gsbdergi.1236185
AMA Göktaş A, Biçki D. INVESTIGATION OF CAREGIVER BURDEN AND OCCUPATIONAL THERAPY INTERVENTION IN DISABLED INDIVIDUALS IN COVID 19 TERM. Gazi sağlık bilim. derg. Ocak 2024;8(3):11-26. doi:10.52881/gsbdergi.1236185
Chicago Göktaş, Ayşe, ve Demet Biçki. “INVESTIGATION OF CAREGIVER BURDEN AND OCCUPATIONAL THERAPY INTERVENTION IN DISABLED INDIVIDUALS IN COVID 19 TERM”. Gazi Sağlık Bilimleri Dergisi 8, sy. 3 (Ocak 2024): 11-26. https://doi.org/10.52881/gsbdergi.1236185.
EndNote Göktaş A, Biçki D (01 Ocak 2024) INVESTIGATION OF CAREGIVER BURDEN AND OCCUPATIONAL THERAPY INTERVENTION IN DISABLED INDIVIDUALS IN COVID 19 TERM. Gazi Sağlık Bilimleri Dergisi 8 3 11–26.
IEEE A. Göktaş ve D. Biçki, “INVESTIGATION OF CAREGIVER BURDEN AND OCCUPATIONAL THERAPY INTERVENTION IN DISABLED INDIVIDUALS IN COVID 19 TERM”, Gazi sağlık bilim. derg, c. 8, sy. 3, ss. 11–26, 2024, doi: 10.52881/gsbdergi.1236185.
ISNAD Göktaş, Ayşe - Biçki, Demet. “INVESTIGATION OF CAREGIVER BURDEN AND OCCUPATIONAL THERAPY INTERVENTION IN DISABLED INDIVIDUALS IN COVID 19 TERM”. Gazi Sağlık Bilimleri Dergisi 8/3 (Ocak 2024), 11-26. https://doi.org/10.52881/gsbdergi.1236185.
JAMA Göktaş A, Biçki D. INVESTIGATION OF CAREGIVER BURDEN AND OCCUPATIONAL THERAPY INTERVENTION IN DISABLED INDIVIDUALS IN COVID 19 TERM. Gazi sağlık bilim. derg. 2024;8:11–26.
MLA Göktaş, Ayşe ve Demet Biçki. “INVESTIGATION OF CAREGIVER BURDEN AND OCCUPATIONAL THERAPY INTERVENTION IN DISABLED INDIVIDUALS IN COVID 19 TERM”. Gazi Sağlık Bilimleri Dergisi, c. 8, sy. 3, 2024, ss. 11-26, doi:10.52881/gsbdergi.1236185.
Vancouver Göktaş A, Biçki D. INVESTIGATION OF CAREGIVER BURDEN AND OCCUPATIONAL THERAPY INTERVENTION IN DISABLED INDIVIDUALS IN COVID 19 TERM. Gazi sağlık bilim. derg. 2024;8(3):11-26.