Inclusive Library Services for Children: Perspectives of Librarians and Parents of Children with Autism Spectrum Disorders

Yıl 2024, Cilt: 38 Sayı: 1, 27 - 56, 30.03.2024

Nilay Kaptan Esin Pektaş Karabekir Arif Yilmaz Yasemin Ergenekon

https://doi.org/10.24146/tk.1317784

Öz

Purpose: For all people, the acquisition of knowledge is essential. Libraries serve as critical institutions that enable individuals to become informed. This study aims to gather insights and perspectives from library staff on the use of libraries by individuals with Autism Spectrum Disorder (ASD) and their families. It also seeks to understand the views and experiences of parents of children with ASD and their interactions with library staff.

Method: The study was conducted as a case study, a qualitative research method, and involved using multiple case analyses to achieve the abovementioned aim. Seven librarians and eight parents of children diagnosed with ASD volunteered to participate in the study. Data was collected through semi-structured interviews. The information collected was analyzed using thematic analysis.

Findings: The data obtained in the research, which are the seven fundamental principles of children’s libraries, are “mission and purposes of children’s libraries, human resources, competencies and knowledge, collection development, and management, programs, and community outreach activities. Design of the space and creating a welcoming place, marketing, promotion, evaluation, and impact” was evaluated. As a result of the analysis revealed the presence of ten themes and subthemes, which were identified as follows: “perception of the library,” “obstacles to the use of the library,” “expectations about the work of the libraries,” “perception of the staff,” “type and characteristics of the material,” “expectations about the programs and activities,” “services provided in the library,” “inclusive interior,” information and awareness,” “holistic and multiple evaluation.”

Implications: The perspectives of parents and library staff regarding the identified themes from the data were presented comparatively, and the findings concerning existing literature were discussed. Subsequently, considering the research findings, recommendations are provided regarding potential initiatives libraries can undertake to serve children with ASD and their parents better.

Originality: This study highlights potential library benefits for children with ASD and their parents. The findings of this research will likely make an original contribution to the field of library services. The study’s findings are anticipated to help improve library services so that children with ASD and their families can benefit from them. s. In addition, this study is predicted to pioneer and guide new studies on library use by children with ASD and their families.

Anahtar Kelimeler

Children with autism spectrum disorder, parents, library staff, inclusive children’s library, thematic analysis

Proje Numarası

Bulunmamaktadır.

Kapsayıcı Çocuk Kütüphanesi Hizmetleri: Otizm Tanılı Çocuğa Sahip Ebeveynlerin ve Kütüphane Personelinin Görüşleri

Öz

Amaç: Bilgi tüm insanlık için temel bir ihtiyaçtır. Bireylerin bilgiye erişebilmesini kolaylaştıracak önemli kurumlardan biri kütüphanelerdir. Bu araştırmada OSB tanılı çocuğa sahip ebeveynlerin ve kütüphane personelinin görüş ve deneyimlerine göre OSB olan çocukların ve ebeveynlerinin kütüphane kullanımının incelenmesi hedeflenmiştir.

Yöntem: Bu amaç doğrultusunda araştırma, nitel araştırma yaklaşımlarından durum çalışması olarak gerçekleştirilmiş ve çalışmada çoklu durum analizi kullanılmıştır. Araştırmaya yedi kütüphane personeli, sekiz OSB tanılı çocuğa sahip ebeveyn gönüllü olarak katılmıştır. Yarı-yapılandırılmış görüşmeler yoluyla toplanan veriler tematik analiz yoluyla analiz edilmiştir.

Bulgular: Araştırmada elde edilen verileri çocuk kütüphanelerinin yedi kriteri olan “kütüphanelerin misyonu ve amaçları, insan kaynakları, yeterlikler ve bilgi, derme geliştirme ve yönetimi, programlar ve sosyal yardım faaliyetleri, mekân tasarımı ve hoş bir mekânın oluşturulması, pazarlama ve tanıtım, değerlendirme ve etki” kapsamında değerlendirilmiştir. Söz konusu yedi kriter doğrultusunda yapılan analiz sonucunda “kütüphaneye ilişkin algı”, “kütüphane kullanımına yönelik engeller”, “kütüphanelerin yapacağı çalışmalara ilişkin beklentiler”, “personel algısı”, “materyal türü ve özellikleri”, “program ve etkinliklere ilişkin beklentiler”, “kütüphanede verilen hizmetler”, “kapsayıcı iç mekân”, “bilgilendirme ve farkındalık”, “bütüncül ve çoklu değerlendirme yapılması” olmak üzere 10 temaya ve alt-temalara ulaşılmıştır.

Sonuç: Bulgularda verilere dayalı olarak ulaşılan temalara ilişkin ebeveynlerin ve kütüphane personelinin görüşleri karşılaştırmalı olarak sunulmuş, bulgular alanyazına dayalı olarak tartışılmıştır. Sonrasında ise araştırmadan elde edilen bulgular dikkate alınarak OSB olan çocuklar ve ebeveynlerine hizmet sağlayan kütüphanelerin yeni rolleri için yapabileceği çalışmalara ilişkin öneriler sunulmuştur.

Özgünlük: Bu çalışmada OSB olan çocuklar ve ebeveynlerinin kütüphane hizmetlerinden yararlanabilecekleri vurgulanmıştır. Çalışmanın bulgularının alana özgün olarak katkı sağlayacağı düşünülmektedir. Çalışmanın bulguları aracılığıyla OSB olan çocukların ve ailelerinin kütüphane hizmetlerinden yararlanmaları için kütüphane hizmetlerini iyileştirme çalışmalarına katkı sağlanabileceği düşünülmektedir. Ayrıca bu çalışmanın OSB olan çocukların ve ailelerinin kütüphane kullanımına ilişkin yapılacak yeni çalışmalar için öncü ve yönlendirici olabileceği öngörülmektedir.

Anahtar Kelimeler

Otizm spektrum bozukluğu olan çocuklar, ebeveynler, kütüphane personeli, kapsayıcı çocuk kütüphanesi, tematik analiz

Destekleyen Kurum

Bulunmamaktadır.

Proje Numarası

Bulunmamaktadır.

Teşekkür

Bu çalışma kapsamında en büyük teşekkürümüz çalışmamıza gönüllü olarak katılan ve sorularımızı içtenlikle yanıtlayan değerli ebeveynlere ve kütüphane personelinedir. Onların katılımı olmasaydı bu çalışma gerçekleşmezdi. Uzman görüşü sunarak geçerli veriler elde etmemizi sağlayan değerli alan uzmanlarına çok teşekkür ederiz. Kütüphane personeline ulaşmamızı sağlayan değerli kütüphane yöneticilerine ve kütüphane personeline ebeveynlere ulaşmamızı sağlayan değerli öğretmenlerimiz Elfesiya Kalay, Zehra Kargın ve Ebru Kovaçi’ye minnettarız.

Kaynakça

• Adcock, E. P. (2011). Kütüphane malzemesinin bakım ve kullanımında IFLA ilkeleri (Ş. N. Somer, Çev.). https://www.ifla.org/files/assets/pac/ipi/ipi1-tr.pdf
• Adkins D. ve Bushman, B. (2015). A special needs approach: A study of how libraries can start programs for children with disabilities. Children and Libraries, 13(3), 28-33. https://doi.org/doi: 10.5860/cal.13n3.28
• Algozzine, B. ve Hancock, D. (2017). Doing case study research: A practical guide for beginning researchers. Teachers College Press.
• Alharbi, A., Alazemi, T. ve Alhouti, D. (2022). The present status of public libraries in the state of Kuwait: Librarians’ perspectives. Information and Knowledge Management, 12(2), 22-39. https://doi.org/10.7176/IKM/12-3-04
• American Library Association (ALSC). (2015). Library service to special population children and their caregivers: A toolkit for librarians and library workers. American Library Association. https://alair.ala.org/handle/11213/17559
• American Library Association. (2021). ALA policy manual. B. 3 diversity (old number 60). https://www.ala.org/aboutala/governance/policymanual/updatedpolicymanual/section2/3diversity
• American Psychological Association (APA). (2023). APA directory Psychology: Autism spectrum disorder (ASD). https://dictionary.apa.org/autism-spectrum-disorder?_ga=2.228860252.1585285114.1689760565-1264309737.1689760140&_gl=1*ufb8dv*_ga*MTI2NDMwOTczNy4xNjg5NzYwMTQw*_ga_SZXLGDJGNB*MTY4OTc2MDU2NS4xLjAuMTY4OTc2MDU5Mi4wLjAuMA
• Australian Library and Information Association (ALIA). (2019). Guidelines on library and information services for people with disabilities. guidelines_on_library_and_information_services_for_people_with_disabilities.pdf
• Baldassari-Hackstaff, L., Kerber, S., Krovontka, R. A. ve Olson, L. R. (2014). Sensory-enhanced storytime at Douglas County libraries. Public Libraries, 53(1), 36-42. https://publiclibrariesonline.org/2014/05/sensory-enhanced-storytime-at-douglas-county-libraries-an-inclusive-program/
• Banks, C. (2014). All kinds of flowers grow here: The child’s place for children with special needs at Brooklyn Public Library. Children and Libraries, 2(1), 5-10.
• Banks, C. S., Feinberg, S., Jordan, B. A., Deerr, K. ve Langa, M. (2014). Including families of children with special needs: A how-to-do-it manual for librarians. American Library Association. https://www.alastore.ala.org/content/including-families-children-special-needs-how-do-it-manual-librarians-revised-edition
• Barker, G. (2011). Kids with autism get their own story time. Salt Lake Tribune, https://archive.sltrib.com/article.php?id=51894568&itype=cmsid 51894568-78/rogers-library -kids-kearns.html.csp
• Bebek Kütüphaneleri Çalıştayı. (2020). Ş. Ceylan ve M. A. Akkaya (Yay. Hazl.). Kütüphaneler ve Yayımlar Genel Müdürlüğü.
• Beers, N., Kemeny, A., Sherritt, L., & Palfrey, J. (2003). Variations in state-level definitions: children with special health care needs. Public Health Reports, 118(5), 434-447. https://doi.org/10.1016/s0033-3549(04)50275-3
• Bogdan, R. C., ve Biklen, S. K. (2007). Qualitative research for education: An introduction to theories and methods. (5th edition). Pearson: Ally & Bacon.
• Braun, L. W., Hartman, M. L., Hughes-Hassell, S. ve Kumasi, K. (2013). The future of library services for and with teens: A call to action. YALSA & Institute of Museum and Library Services. https://www.ala.org/yaforum/sites/ala.org.yaforum/files/content/YALSA_ nationalforum_final.pdf
• Braun, V. ve Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77-101. https://doi.org/10.1191/1478088706qp063oa
• Broman, H. (2017). Public libraries: Serving children with autism spectrum disorder and their families. (Yüksek Lisans Tezi). University of North Carolina.
• Brooklyn Public Library. (2021. Inclusive services. Brooklyn Public Library. https://www.bklynlibrary.org/inclusive-services.
• Brooklyn Public Library. (2022). BKLYN BookMatch for a 4-year-old who has ASD. www.bklynlibrary.org/bookmatch
• Clark, L. K. (2017). Caregivers’ perceptions of emergent literacy programming in public libraries in relation to the National Research Councils’ guidelines on quality environments for children. Library & Information Science Research, 39(2), 107-115.
• College of Communication & Information at Florida State University. (2013). A course designed by experts in both the library and autism fields. About Pals. Project Pals – College Of Communication & Information (fsu.edu) https://pals.cci.fsu.edu/#:~:text=ABOUT%20PALS&text=This%20course%2C%20designed%20by%20experts,users%20on%20the%20autism%20spectrum.
• Connor, J. G. (1990). Children's library services handbook. ABC-CLIO.
• Cottrell, M. (2016). American Libraries. Storytime for the spectrum: Libraries and services for children with autism. https://americanlibrariesmagazine.org/2016/03/01/sensory-storytime-spectrum-libraries-add-services-for-children-with-autism/
• Çocuk Kütüphaneleri Çalıştayı. (2018) C. Polat, E. Yılmaz ve A. Kakırman Yıldız (Yay. Hazl.). Kütüphaneler ve Yayımlar Genel Müdürlüğü.
• DeMarrais, K. (2004). Qualitative interview studies: Learning through experience. Foundations for Research: Methods of Inquiry in Education and the Social Sciences, 1(1), 51-68.
• Ennis-Cole, D. ve Smith, D. (2011). Assistive technology and autism: Expanding the technology leadership role of the school librarian. School Libraries Worldwide, 86-98.
• Etikan, I., Musa, S. A., & Alkassim, R. S. (2016). Comparison of convenience sampling and purposive sampling. American journal of theoretical and applied statistics, 5(1), 1-4. https://doi.org/10.11648/j.ajtas.20160501.11
• Türkiye Engelsiz Bilişim Platformu (2021). Erişilebilir Kütüphaneler Çalıştayı Raporu. Aydın, Türkiye. https://www.engelsizbilisim.org/wp-content/uploads/Erisilebilir-Kutuphaneler-Calistayi-Sonuc-Raporu-v1.pdf
• Farmer, L. S. (2013). Library services for youth with autism spectrum disorders. American Library Association.
• Farmingdale Public Library. (2023). Calendar of events. https://www.eventkeeper.com/code/events.cfm?curOrg=FARMINGD
• Ghuloum, H. F. ve Alyacoub, W. M. (2017). Activating the role of the public library towards Autism Spectrum Disorder (ASD) in Kuwait. Information Development, 33(4), 406-417. https://doi.org/10.1177/0266666916665436
• Gill, P. (2001). The public library service: IFLA/UNESCO guidelines for development (Vol. 97). NBD Biblion Publishers.
• Grassi, R. (2013). What does “inclusion” mean to you? https://www.alsc.ala.org/blog/2013/10/what-does-inclusion-mean-to-you/
• Humphrey, C. ve Lee, B. H. (Eds.). (2004). The real life guide to accounting research: A behind-the-scenes view of using qualitative research methods. Elsevier.
• International Federation of Library Associations and Institutions [IFLA]. (2001). The Public Library Service: IFLA/UNESCO Guidelines for Development. https://www.ifla.org/wp-content/uploads/2019/05/assets/hq/publications/archive/the-public-library-service/publ97.pdf
• International Federation of Library Associations and Institutions [IFLA]. (2002). The IFLA/UNESCO School Library Guidelines. http://archive.ifla.org/VII/s11/pubs/sguide02.pdf
• International Federation of Library Associations and Institutions [IFLA]. (2009). Çok-kültürlü topluluklar: Kütüphane hizmetleri kılavuzu. (G. Demir, Çev.) https://www.ifla.org/files/assets/library-services-to-multicultural populations/publications/multicultural-communities-tr.pdf
• International Federation of Library Associations and Institutions [IFLA]. (2015). IFLA okul kütüphaneleri rehberi (S. Arıoğlu ve A. Yüksel Durukan, Çev.). https://www.ifla.org/files/assets/school-libraries-resource-centers/publications/ifla-schoollibrary-guidelines-tr.pdf
• International Federation of Library Associations and Institutions [IFLA]. (2018). IFLA 0-18 yaş grubundaki çocuklar için kütüphane hizmetleri rehberi (C. Polat, E. B. Eroğlu, S. Çuhadar, A. Kavak ve B. Tan, Çev.). https://www.ifla.org/files/assets/libraries-for-children-andya/publications/ifla-guidelines-for-library-services-to-children_aged-0-18-tr.pdf
• Kaeding, J. (2014). Increasing access to public libraries for children with special needs and their families. The Australian Library Journal, 63(4), 320-324. doi: https://doi.org/10.1080/00049670.2014.951167
• Kaeding, J. (2015). Opening access to public libraries for children with special needs and their families. Government of South Australia. https://apo.org.au/sites/default/files/resource-files/2015-10/apo-nid60694.pdf
• Kaeding, J., Velasquez, D. L. ve Price, D. (2017). Public libraries and access for children with disabilities and their families: A proposed inclusive library model. Journal of the Australian Library and Information Association, 66(2), 97-115. doi: https://doi.org/10.1080/24750158.2017.1298399 Kakırman Yıldız, A., Yalçınkaya, B. ve Saydam, V. (2018). İstanbul’daki halk kütüphanelerinin okul öncesi dönem çocuklara uygunluğunun değerlendirilmesi. DTCF Dergisi, 58(2), 1811-1836.
• Khoir, S., Du, J. T., Davison, R. M. ve Koronios, A. (2017). Contributing to social capital: An investigation of Asian immigrants’ use of public library services. Library & Information Science Research, 39(1), 34-45.
• Kochhar-Bryant, C. A. (2009). Introduction to transition. In C. A. Kochhar-Bryant, & G. Greene (Eds.), Pathways to successful transition for youth with disabilities: A developmental process (pp. 2-27). Upper Saddle River, New Jersey: Merrill Pearson.
• Kvale, S. (1996). Interviews: An introduction to qualitative research interviewing. California: Sage Publishing.
• Miles, M. B., Huberman A., M., ve Saldana, J. (2014). Qualitative data analysis: A methods sourcebook (3th edition). SAGE Publication.
• Onyishi, C. N. (2021). Children Librarians’ knowledge and attitude towards children with neuro-developmental disorders: Implications for inclusive library services. Library Philosophy and Practice (e-journal), 5947. https://digitalcommons.unl.edu/libphilprac/5947/
• Owens, J. S. (2006). Accessible information for people with complex communication needs. Augmentative and Alternative Communication, 22(3), 196-208. https://doi.org/10.1080/07434610600649971
• Patton. M. Q. (2002). Qualitative research and evaluation methods (3rd ed.). Sage Publications.
• Paynter, J., Simpson, K., O’Leary, K., Hurley, A., Wicks, R. ve Westerveld, M. (2020). Development of an online training program for public library staff to deliver autism friendly story time sessions. Journal of the Australian Library and Information Association, 69(4), 496-522.
• Prendergast, T. (2016). Seeking early literacy for all: An investigation of children’s librarians and parents of young children with disabilities’ experiences at the public library. Library Trends, 65(1), 65-91. https://doi.org/10.1353/lib.2016.0023
• Project Enable. (2006). Expanding non-discriminatory access by librarians everywhere. Project ENABLE- professional online development for teachers, librarians (syr.edu)
• Quinn, S. ve McCallum, I. (2012). Beyond a quality service: Strengthening the social fabric - standards and guidelines for Australian Public Libraries. Australian Library and Information Association.
• Riley, C. (2009). Training for library patrons who are hard of hearing. Journal of Access Services, 6(1-2), 72-97.
• Rubin, H. J. ve Rubin, I. S. (2005). Qualitative interviewing the art of hearing data (2th Edition). SAGE Publications.
• Shea, G. ve Derry, S. (2019). Academic libraries and autism spectrum disorder: What do we know? The Journal of Academic Librarianship, 45(4), 326-331. https://doi.org/10.1016/j.acalib.2019.04.007
• Small, R. V., Myhill, W. N. ve Herring-Harrington, L. (2015). Developing accessible libraries and inclusive librarians in the 21st century: Examples from practice. In Brian Wentz, P. T. Jaeger ve J. C. Bertot (Eds.), Accessibility for persons with disabilities and the inclusive future of libraries (pp. 73-89). Emerald Group Publishing Limited.
• Soylu, D. ve Kanık, L. (2022). Kapsayıcı kütüphane olgusu ve özel gereksinimli bireylere yönelik oyunlaştırılmış hizmet tasarımı. P. Bezirci, L. Kanık, E. Alaca, G. Polo, & D. Soylu (Eds.), Özel gereksinimli bireylerin bilgiye erişimi: Disiplinlerarası çalışmalar ve güncel yaklaşımlar (s. 642-676). Hiperyayın.
• Stake, R. E. (2013). Multiple case study analysis. Guilford.
• Sucuoğlu, B. (2009). Zihin engelinin tarihçesi. B. Sucuoğlu (Ed.), Zihin engelliler ve eğitimleri içinde (s. 18-48). Kök Yayıncılık.
• Terras, M. M. ve Jarrett, D. (2021). Accessible information isn’t easy: Shifting practice and production perspectives of information accessibility. Global Journal of Intellectual and Developmental Disabilities, 9(3), 1-4. https://doi.org/10.19080/GJIDD.2021.09.555763
• Terras, M. M., Jarrett, D. ve McGregor, S. A. (2021). The importance of accessible information in promoting the inclusion of people with an intellectual disability. Disabilities, 1(3), 132-150. https://doi.org/10.3390/disabilities1030011
• The Seattle Public Library. (2021). Library equal access program. The Seattle Public Library. https://www.spl.org/using-the-library/accessibility/library-equal-access-program-(leap)
• Townsley, R., Rodgers, J. ve Folkes, L. (2003). Getting informed: Researching the production of accessible information for people with learning disabilities. Journal of Integrated Care, 11(3), 39-43. https://doi.org/10.1108/14769018200300034
• United Nations Children’s Fund (UNICEF). (2009). It’s about ability: an explanation of the convention on the rights of persons with a disability. https://www.unicef.org/media/85751/file/Its_About_Ability_Learning_Guide_EN.pdf
• U.S. Department of Education, Office of Special Education and Rehabilitative Services Resmi Web Sitesi. https://www2.ed.gov/about/offices/list/osers/policy.html Weiss, D. ve Kolaya, M. (2008). Libraries and autism: We are connected. http://www.librariesandautism.org/
• West, J. E., McLaughlin, V. L., Shepherd, K. G., & Cokley, R. (2022). The americans with disabilities act and the individuals with disabilities education act: Intersection, divergence, and the path forward. Journal of Disability Policy Studies, 104420732211141. https://doi.org/10.1177/10442073221114113
• Westlake Porter Public Library. (2021). Children with special needs. Westlake Porter Public Library. https://www.westlakelibrary.org/special-needs-4102
• Yıldırım, A. ve Şimşek, H. (2016). Sosyal bilimlerde nitel araştırma yöntemleri. Seçkin Yayıncılık.
• Yılmaz, B. (2019). Çocuk kütüphanesi hizmetleri kılavuzu. Hiperlink.
• Yin, R. K. (2009). Case study research: Design and methods (4th ed.). Sage Publications.