Are YouTube videos a useful source of information on avoidant/restrictive food intake disorder?

Elif Akçay; Büşra Bahadır

doi:10.47482/acmr.1604900

TR EN

YouTube videoları kaçıngan/kısıtlayıcı gıda alım bozukluğu hakkında yararlı bir bilgi kaynağı mıdır?

Öz

Amaçlar: Sosyal medya platformları, videolar aracılığıyla sağlık bilgilerini paylaşmak için yaygın olarak kullanılmaktadır. Kaçıngan/kısıtlayıcı gıda alımı bozukluğu (KKGAB), çevrimiçi olarak en çok aranan konulardan biri olan yeni bir yeme bozukluğu terimidir. Bu çalışma, YouTube'da KKGAB ile ilgili videoların kalitesini ve içeriğini belirlemeyi amaçlamaktadır. Yöntemler: 6 Mayıs 2024'te YouTube'da "Kaçıngan/kısıtlayıcı gıda alımı bozukluğu ve/veya KKGAB" terimi arandı. Videoların kalitesi üç puanlama sistemi kullanılarak değerlendirildi: DISCERN, Global Kalite Puanı (GQS) ve Amerikan Tabipler Birliği Dergisi (JAMA). DISCERN puanları, videoların en iyi %25'ini en güvenilir ve en kaliteli (Q1) olarak tanımladı. Bulgular: Videolar (N = 295) değerlendirildi ve 192 video dahil etme kriterlerimizi karşıladı. En yaygın video konusu KKGAB'nin semptomları ve teşhisleriydi (%64,6). KKGAB ile ilişkili videolar DISCERN (%90,6) ve GQS (%79,7)'ye göre orta ila düşük kalitedeydi. Videoların %80,2'si hastaları hedef alıyordu ve sağlık hizmeti sağlayıcılarını hedef alan videolardan daha düşük kalite puanlarına sahipti. Sağlık hizmeti sağlayıcılarına yönelik videoların %68,42'si yüksek kalitedeydi (Q1), hastaları hedef alan videoların ise yalnızca %14,29'u Q1'di. GQS ve JAMA puanları, videoların izleyici etkileşim puanlarıyla negatif bir korelasyon gösterdi. Sonuç: Bulgularımız, KKGAB ile ilgili YouTube videolarının düşük kalitesini vurguluyor. Video kalitesi düştükçe izleyicilerin videolarla etkileşiminin arttığını bulmak endişe vericidir. Mevcut çalışma, özellikle hastalar olmak üzere YouTube videoları aracılığıyla halka düşük kaliteli bilgi yayma riskini vurgulamaktadır.

Anahtar Kelimeler

kaçıngan/kısıtlayıcı gıda alımı bozukluğu (KKGAB) , yeme bozuklukları , bilgi arama davranışı , internet

Are YouTube videos a useful source of information on avoidant/restrictive food intake disorder?

Abstract

Background: Social media platforms are widely used to share health information via videos. Avoidant/restrictive food intake disorder (ARFID) is a new eating disorder term that is one of the most searched topics online. This study aims to determine the quality and content of videos about ARFID on YouTube. Methods: On May 6, 2024, the term “Avoidant/restrictive food intake disorder and/or ARFID” was searched on YouTube. The videos’ quality was assessed using three scoring systems: DISCERN, Global Quality Score (GQS), and the Journal of the American Medical Association (JAMA). DISCERN scores defined the top 25% of videos as the most reliable and top-quality (Q1). Results: Videos (N = 295) were assessed, and 192 videos met our inclusion criteria. The most common video topic was the symptoms and diagnoses of ARFID (64.6%). Videos associated with ARFID were fair to poor quality according to DISCERN (90.6%) and GQS (79.7%). 80.2% of the videos targeted patients, and they had lower quality scores than those targeting healthcare providers. 68.42% of videos for healthcare providers were high-quality (Q1), while only 14.29% of videos targeting patients were Q1. The GQS and JAMA scores showed a negative correlation with the viewer interaction scores of the videos. Conclusions: Our findings underline the low quality of YouTube videos about ARFID. It is concerning to find that viewer interaction with the videos increases as video quality decreases. The present study highlights the risk of spreading poor-quality information via YouTube videos to the public, particularly patients.

Keywords

avoidant/restrictive food intake disorder (ARFID) , eating disorders , information seeking behavior , internet , health literacy

References

APA. American Psychiatric Association. Diagnostic and statistical manual of mental disorders (5th ed., text rev.) 2022.
APA. American Psychiatric Association. Diagnostic and statistical manual of mental disorders: DSM-5: Washington, DC: American Psychiatric Association; 2013.
Thomas JJ, Lawson EA, Micali N, Misra M, Deckersbach T, Eddy KT. Avoidant/Restrictive Food Intake Disorder: a Three-Dimensional Model of Neurobiology with Implications for Etiology and Treatment. Curr Psychiatry Rep 2017;19(8):54.
Archibald T, Bryant-Waugh R. Current evidence for avoidant restrictive food intake disorder: Implications for clinical practice and future directions. JCPP Advances. 2023;3(2):e12160.
Coelho JS, Norris ML, Tsai SCE, Wu YJ, Lam P-Y. Health professionals’ familiarity and experience with providing clinical care for pediatric avoidant/restrictive food intake disorder. Int J Eat Disord. 2021;54(4):587-94.
Zickgraf HF, Murray HB, Kratz HE, Franklin ME. Characteristics of outpatients diagnosed with the selective/neophobic presentation of avoidant/restrictive food intake disorder. Int J Eat Disord. 2019;52(4):367-77.
Kendal S, Kirk S, Elvey R, Catchpole R, Pryjmachuk S. How a moderated online discussion forum facilitates support for young people with eating disorders. Health Expect. 2017;20(1):98-111.
Elangovan S, Kwan YH, Fong W. The usefulness and validity of English-language videos on YouTube as an educational resource for spondyloarthritis. Clin Rheumatol. 2021;40(4):1567-73.
Li M, Yan S, Yang D, Li B, Cui W. YouTube™ as a source of information on food poisoning. BMC Public Health. 2019;19(1):952.
Ferrey A, Ashworth G, Cabling M, Rundblad G, Ismail K. A thematic analysis of YouTube comments on a television documentary titled ‘Diabulimia: The World’s most dangerous eating disorder’. Diabet Med. 2023;40(5):e15025.

Bakombo S, Ewalefo P, Konkle AT. The influence of social media on the perception of autism spectrum disorders: Content analysis of public discourse on YouTube videos. Int J Environ Res Public Health. 2023;20(4):3246.
Barlas T, Avci DE, Cinici B, Ozkilicaslan H, Yalcin MM, Altinova AE. The quality and reliability analysis of YouTube videos about insulin resistance. Int J Med Inform. 2023;170:104960.
Ergenç M, Uprak TK. YouTube as a source of information on Helicobacter pylori: content and quality analysis. Helicobacter. 2023;28(4):e12971.
Rudisill SS, Saleh NZ, Hornung AL, Zbeidi S, Ali RM, Siyaji ZK, et al. YouTube as a source of information on pediatric scoliosis: a reliability and educational quality analysis. Spine Deformity. 2023;11(1):3-9.
Silek H, Topcuoglu OB. Analysis of YouTube videos as a source of information for reliability and effectiveness of cannabidiol oil in treatment of epilepsy. Epilepsy Behav. 2023;138:109017.
Greene AK, Norling HN. “Follow to *actually* heal binge eating”: A mixed methods textual content analysis of #BEDrecovery on TikTok. Eat Behav. 2023;50:101793.
Suresh A, Pallempati LL, Saxena P, Ansari A, Bassi R, Bhandari A. Exploring YouTube Videos About Anorexia Nervosa on the Basis of Reliability, Popularity, and Contributions of Healthcare Professionals: A Cross-Sectional Study. Cureus. 2023;15(11):e48095.
Tarchi L, Buonocore TM, Selvi G, Ricca V, Castellini G. Online content on eating disorders: a natural language processing study. J Commun Healthc. 2024:1-10.
Erdem MN, Karaca S. Evaluating the Accuracy and Quality of the Information in Kyphosis Videos Shared on YouTube. Spine (Phila Pa 1976). 2018;43(22):E1334-e9.
Charnock D, Shepperd S, Needham G, Gann R. DISCERN: an instrument for judging the quality of written consumer health information on treatment choices. J Epidemiol Community Health. 1999;53(2):105-11.
Yeter HH, Akcay OF. YouTube as a platform for knowledge and awareness of peritoneal dialysis: A content analysis. Perit Dial Int. 2022;42(5):489-96.
Bernard A, Langille M, Hughes S, Rose C, Leddin D, van Zanten SV. A Systematic Review of Patient Inflammatory Bowel Disease Information Resources on the World Wide Web. Official journal of the American College of Gastroenterology | ACG. 2007;102(9):2070-7.
Joshi M, R N, Jagtap K, Gupta R, Agarwal V, Aggarwal R, et al. Assessment of quality and reliability of YouTube videos for patient and physician education on inflammatory myositis. Clin Rheumatol. 2023;42(5):1339-49.
Karagoz B, Bakir M, Kececi T. Evaluation of the Accuracy and Quality of Information in Videos About Lateral Epicondylitis Shared on Internet Video Sharing Services. Cureus. 2022;14(2):e22583.
Silberg WM, Lundberg GD, Musacchio RA. Assessing, Controlling, and Assuring the Quality of Medical Information on the Internet: Caveant Lector et Viewor—Let the Reader and Viewer Beware. JAMA. 1997;277(15):1244-5.
Landis JR, Koch GG. The measurement of observer agreement for categorical data. Biometrics. 1977;33(1):159-74.
Lau AY, Coiera EW. Impact of Web Searching and Social Feedback on Consumer Decision Making: A Prospective Online Experiment. J Med Internet Res. 2008;10(1):e2.
Lau AY, Gabarron E, Fernandez-Luque L, Armayones M. Social media in health--what are the safety concerns for health consumers? Health Inf Manag. 2012;41(2):30-5.
WHO (World Health Organization). ICD-10 Classification of mental and behavioural disorders 1992.
APA. Diagnostic and statistical manual of mental disorders (4th edn text revision) (DSM-IV-TR): American Psychiatric Association Washington, DC; 2000.
Norris ML, Spettigue WJ, Katzman DK. Update on eating disorders: current perspectives on avoidant/restrictive food intake disorder in children and youth. Neuropsychiatr Dis Treat. 2016;12:213-8.
Ali K, Fassnacht DB, Farrer L, Rieger E, Feldhege J, Moessner M, et al. What prevents young adults from seeking help? Barriers toward help-seeking for eating disorder symptomatology. Int J Eat Disord. 2020;53(6):894-906.
Nicula M, Pellegrini D, Grennan L, Bhatnagar N, McVey G, Couturier J. Help-seeking attitudes and behaviours among youth with eating disorders: a scoping review. J Eat Disord. 2022;10(1):21.
Teufel M, Hofer E, Junne F, Sauer H, Zipfel S, Giel KE. A comparative analysis of anorexia nervosa groups on Facebook. Eating and Weight Disorders - Studies on Anorexia, Bulimia and Obesity. 2013;18(4):413-20.
Lien Y-J, Chen L, Cai J, Wang Y-H, Liu Y-Y. The power of knowledge: How mental health literacy can overcome barriers to seeking help. Am J Orthopsychiatry. 2024;94(2):127-47.

Details

Primary Language

English

Subjects

Psychiatry

Journal Section

Research Article

Authors

Elif Akçay ^*
0000-0002-4673-6254
Türkiye

Büşra Bahadır
0000-0002-0175-5435
Türkiye

Publication Date

January 31, 2025

Submission Date

December 20, 2024

Acceptance Date

January 14, 2025

Published in Issue

Year 2025 Volume: 6 Number: 1

DOI

https://doi.org/10.47482/acmr.1604900

IZ

https://izlik.org/JA95PX26YF

APA

Akçay, E., & Bahadır, B. (2025). Are YouTube videos a useful source of information on avoidant/restrictive food intake disorder? Archives of Current Medical Research, 6(1), 51-60. https://doi.org/10.47482/acmr.1604900

Archives of Current Medical Research (ACMR) provides instant open access to all content, bearing in mind the fact that presenting research

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YouTube videoları kaçıngan/kısıtlayıcı gıda alım bozukluğu hakkında yararlı bir bilgi kaynağı mıdır?

Öz

Anahtar Kelimeler

Are YouTube videos a useful source of information on avoidant/restrictive food intake disorder?

Abstract

Keywords

References

Details

Primary Language

Subjects

Journal Section

Authors

Publication Date

Submission Date

Acceptance Date

Published in Issue

DOI

IZ

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