The Opinions of Mothers of Children Hospitalized and Diagnosed with Cancer and The Nurses Who Care For Them About The Educational Processes Of The Child

Year 2023, Volume: 1 Issue: 2, 30 - 34, 22.06.2023

Kerime Derya Beydağ Serkan Çiftçi Dilek Çiftci Baykal Kamuran Karaman

Abstract

The aim of this study is to determine the educational needs of children who are being treated in the pediatric hematology clinic and cannot continue their education, and the barriers to school success from the perspective of mothers and nurses. A case study was used in the research method of this study. Research data were collected with semi-structured interview forms and data analysis was carried out with descriptive analysis technique. As a result of the research, it was observed that the education of children with cancer who could not continue their education due to their treatment was disrupted. It has been determined that branch teachers and equipment that can be provided from outside are needed, and by eliminating these deficiencies, children's educational problems can be prevented and at the same time it will be a source of morale and motivation for children with cancer.

Keywords

Cancer, Child, Education

Hastanede Yatan Kanser Tanılı Çocukların Annelerinin ve Bakım Veren Hemşirelerin Çocuğun Eğitim Süreçlerine İlişkin Görüşleri

Abstract

Bu araştırmanın amacı çocuk hematoloji kliniğinde tedavi görmekte olup eğitimlerine devam edemeyen çocukların eğitimdeki ihtiyaçlarını, okul başarılarının karşısındaki engelleri anneler ve hemşireler gözüyle belirlemektir. Bu çalışmanın araştırma yönteminde durum çalışması kullanılmıştır. Yarı yapılandırılmış görüşme formları ile araştırma verileri toplanmış, betimsel analiz tekniği ile veri analizi yapılmıştır. Araştırmanın sonucunda tedavileri nedeniyle eğitimlerine devam edemeyen kanserli çocukların eğitimlerinin oldukça aksadığı görülmüştür. Dışarıdan sağlanabilecek branş öğretmenlerine, araç-gereçlere ihtiyaç duyulduğu, bu eksikliklerin giderilmesiyle de çocukların eğitim aksaklıklarının önüne geçilebileceği aynı zamanda kanserli çocuklara moral-motivasyon kaynağı olacağı belirlenmiştir.

Keywords

Kanser, Çocuk, Eğitim

References

• Filbin M, Monje M. Developmental origins and emerging therapeutic opportunities for childhood cancer. Nature medicine. 2019; 25(3):367–376. https://doi.org/10.1038/s41591-019-0383-9.
• Mullen C, Barr RD, Franco EL. Timeliness of diagnosis and treatment: the challenge of childhood cancers. British journal of cancer. 2021; 125(12):1612–1620. https://doi.org/10.1038/s41416-021-01533-4.
• Linder LA, Hooke MC. Symptoms in Children Receiving Treatment for Cancer-Part II: Pain, Sadness, and Symptom Clusters. Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses. 2019; 36(4):262–279. https://doi.org/10.1177/1043454219849578.
• French AE, Tsangaris E, Barrera M, et al. School attendance in childhood cancer survivors and their siblings. The Journal of pediatrics. 2013; 162(1):160–165. https://doi.org/10.1016/j.jpeds.2012.06.066.
• Patel SK, Johansen C, Gold AO, Delgado N, Xu S, Dennis J. Social-ecological predictors of school functioning in Hispanic children treated for cancer with central nervous system-directed therapies. Pediatric blood and cancer. 2020; 67(10), e28320. https://doi.org/10.1002/pbc.28320.
• Helms AS, Schmiegelow K, Brok J, et al. Facilitation of school re-entry and peer acceptance of children with cancer: a review and meta-analysis of intervention studies. European journal of cancer care. 2016; 25(1):170–179. https://doi.org/10.1111/ecc.12230.
• Thompson AL, Christiansen HL, Elam M, et al. Academic Continuity and School Reentry Support as a Standard of Care in Pediatric Oncology. Pediatric blood and cancer. 2015; 62 Suppl 5(Suppl 5):805–S817. https://doi.org/10.1002/pbc.25760.
• Prevatt FF, Heffer RW, Lowe PA. Journal of School Psychology. Journal of School Psychology. 2000; Pages 447-467, https://doi.org/10.1016/S0022-4405(00)00046-7.
• Gerhardt CA, Dixon M, Miller K. Educational and occupational outcomes among survivors of childhood cancer during the transition to emerging adulthood. Journal of developmental and behavioral pediatrics: JDBP. 2007; 28(6):448–455. https://doi.org/10.1097/DBP.0b013e31811ff8e1.
• Barrera M, Shaw AK, Speechley KN, Maunsell E, Pogany L. Educational and social late effects of childhood cancer and related clinical, personal, and familial characteristics. Cancer. 2005; 104(8): 1751–1760. https://doi.org/10.1002/cncr.21390.
• Bryan G, Kelly P, Chesters H, et al. Access to and experience of education for children and adolescents with cancer: a scoping review protocol. Systematic reviews. 2021; 10(1):167. https://doi.org/10.1186/s13643-021-01723-4.
• West AM, Denzer AQ, Wildman BG, Anhalt K. Teacher perception of burden and willingness to accommodate children with chronic health conditions. Advances in School Mental Health Promotion. 2013; 6(1):35-50.
• Association of Pediatric Hematology Oncology Educational Specialists. Practice Recommendations: Managing the Educational Needs of Pediatric Hematology & Oncology Patients. BookBaby.2014.
• Lehrnbecher T, Aplenc R, Rivas Pereira F, et al. Variations in non-pharmacological anti-infective measures in childhood leukemia--results of an international survey. Haematologica. 2012; 97(10): 1548–1552. https://doi.org/10.3324/haematol.2012.062885.
• Yıldırım A, Şimşek H. Sosyal bilimlerde nitel araştırma yöntemleri. Seçkin Yayıncılık. 2011.
• Büyüköztürk S, Çakmak E, Akgün ÖE, Karadeniz S, Demirel F. Bilimsel araştırma yöntemleri. Pegem Akademi Yayıncılık; 2016.
• Miles MB, Huberman AM. Qualitative data analysis. SAGE Publications. 1994.
• Ratnapalan S, Rayar MS, Crawley M. Educational services for hospitalized children. Pediatrics & child health. 2009; 14(7):433–436. https://doi.org/10.1093/pch/14.7.433.
• Gabbay MB, Cowie V, Kerr B, Purdy B. Too ill to learn: double jeopardy in education for sick children. Journal of the Royal Society of Medicine. 2000; 93(3):114–117. https://doi.org/10.1177/014107680009300303.
• Moody, K., Meyer, M., Mancuso, C. A., Charlson, M., & Robbins, L. (2006). Exploring concerns of children with cancer. Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 14(9):960–966. https://doi.org/10.1007/s00520-006-0024-y.
• af Sandeberg M, Johansson E, Björk O, Wettergren L. Health-related quality of life relates to school attendance in children on treatment for cancer. Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses. 2008; 25(5):265–274. https://doi.org/10.1177/1043454208321119.
• Katz ER, Varni JW, Rubenstein CL, Blew A, Hubert N. Teacher, parent, and child evaluative ratings of a school reintegration intervention for children with newly diagnosed cancer. Children's health care : journal of the Association for the Care of Children's Health. 1992; 21(2):69–75. https://doi.org/10.1207/s15326888chc2102_1.
• Galvez BLA, Kongsuwan W, Hatthakit, U. Aesthetic Expressions of the Life-World of Filipino School-Age Children with Advanced Cancer. Seminars in oncology nursing. 2021; 37(2):151143. https://doi.org/10.1016/j.soncn.2021.151143.
• Saatci D, Thomas A, Botting B, Sutcliffe AG. Educational attainment in childhood cancer survivors: a meta-analysis. Archives of disease in childhood. 2020; 105(4):339–346. https://doi.org/10.1136/archdischild-2019-317594.
• Hocking MC, Paltin I, Belasco C, Barakat LP. Parent perspectives on the educational barriers and unmet needs of children with cancer. Children's health care : journal of the Association for the Care of Children's Health. 2018; 47(3):261–274. https://doi.org/10.1080/02739615.2017.1337516.