The mediating role of social support in the relationship between care burden and sleep status of parents of children with cerebral palsy

Year 2024, Volume: 5 Issue: 2, 107 - 113, 31.08.2024

Mehmet Emin Düken , Kadriye Şahin , Hülya Karataş

https://doi.org/10.61534/anatoljhr.1415424

Abstract

Aim: This study was conducted to examine the mediating role of social support in the relationship between the care burden of parents of children with cerebral palsy (CP) and their sleep states.
Methods: This descriptive correlational study was conducted with the parents of children with CP who were hospitalized in the pediatric clinics of a university hospital and followed up in the pediatric outpatient clinics. The data were collected using the parent information form, Zarit Caregiver Burden Interview, Multidimensional Scale of Perceived Social Support, and Richards Campbell Sleep Scale.
Results: According to the results of the analysis, the care burden scores of the parents negatively predicted their sleep quality scores (β=-0.932; p<0.050). Parents' burden of care scores explained 86.8% of the sleep quality scores (R2=0.868). Parents' care burden scores negatively affect their perceived social support scores (β=-0.914; p<0.050). Parents' care burden scores explained 85.8% of their perceived social support scores (R2=0.858). Parents perceived social support scores positively affect sleep quality scores (β=0.130; p<0.050). As a result of the analysis conducted with the bootstrap technique, it was determined that the social support perceived by parents played a mediating role in the relationship between care burden and sleep quality (β=-0.127; 95% CI [-0.223; -0.023]).
Conclusion: The high care burden experienced by parents of children with CP affects their sleep quality and perceived social support. As the social support perceived by parents from the environment increases, their care burden decreases and their sleep quality increases.

Keywords

caregiver burden, cerebral palsy, child, parents, social support

Serebral palsili çocukların ebeveynlerinin bakım yükü ile uyku durumları arasındaki ilişkide sosyal desteğin aracı rolü

Abstract

Amaç: Bu araştırmada Serebral Palsi (SP) çocukların ebeveynlerinin bakım yükü ile uyku durumları arasındaki ilişkide sosyal desteğin aracı rolünü incelemek amacıyla yapılmıştır.
Yöntem: Tanımlayıcı ilişkisel tipte bir araştırma olarak yapılan araştırma bir üniversite hastanesinin çocuk sağlığı kliniklerinde yatan ve çocuk polikliniklerinde takip edilen SP çocukların ebeveynleriyle yürütülmüştür. Verilerin toplanmasında Ebeveyn Bilgi Formu, Zarit Bakım Yükü Ölçeği, Çok Boyutlu Sosyal Destek Ölçeği ve Richards Campbell Uyku Ölçeği kullanarak toplanılmıştır.
Bulgular: Analiz sonuçlarına göre, ebeveynlerin bakım yükü puanları uyku kalitesi puanlarını negatif yönde etkilemektedir (β=-0.932; p<0.050). Ebeveynlerin bakım yükü puanları uyku kalitesi puanlarının %86.8'ini açıklamaktadır (R2=0.868). Ebeveynlerin bakım yükü puanları algılanan sosyal destek puanlarını olumsuz etkilemektedir (β=-0.914; p<0.050). Ebeveynlerin bakım yükü puanları, algıladıkları sosyal destek puanlarının %85.8'ini açıklamaktadır (R2=0.858). Ebeveynlerin algıladıkları sosyal destek puanları uyku kalitesi puanlarını pozitif yönde etkilemektedir (β=0.130; p<0.050). Bootstrap tekniği ile yapılan analiz sonucunda ebeveynlerin algıladıkları sosyal desteğin bakım yükü ile uyku kalitesi arasındaki ilişkide aracı rol oynadığı tespit edilmiştir (β=-0.127; %95 CI [-0.223; -0.023]).
Sonuçlar: SP'li çocukların ebeveynlerinin yaşadığı yüksek bakım yükü uyku kalitelerini ve algıladıkları sosyal destek durumları etkilemektedir. Ebeveynlerin çevreden algıladıkları sosyal destekleri artıkça bakım yükleri azalmakta ve uyku kaliteleri artmaktadır.

Keywords

bakıcı yükü, çocuk, ebeveynler, serebral palsi, sosyal destek

Ethical Statement

Bu araştırma yazarlar arasında çıkar çatışması yoktur. Herhangi bir kurum ve şirketten destek alınmamıştır.

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