Engelli Çocuğu Olan Ailelerin Yaşam Kalitesi

Year 2015, Volume: 4 Issue: 2, 34 - 40, 01.10.2015

Rabia Sohbet Fatma Geçici

Abstract

Engellilik; engelli bireyi, ailesini, yakın çevresini ve ait olduğu toplumsal yapıyı ilgilendiren bir olgudur. Bu araştırma Muğla İli, Fethiye İlçesinde bulunan tüm Özel Eğitim ve Rehabilitasyon merkezlerinde eğitim alan engelli çocuğa sahip 160 ailenin yaşam kalitesini belirlemek üzere planlanmış, tanımlayıcı alan araştırmasıdır. Verilerin toplanmasında araştırmacı tarafından oluşturulan geliştirilen anket formu kullanılmıştır. Araştırmaya katılanların %85.6’sı anne, engelli çocuğun %51.9’u 7–12 yaş grubunda, %53.2’sinin erkek olduğu, çocukların %3’ünün işitme engeli%3.4’ünün ruhsal ve duyusal engeli, %36.6’sının zihinsel engeli %25.7’sinin ortopedik engeli, %25.7’sinin konuşma bozukluğu %5.6’sının öğrenme güçlüğü vardır. Aile eğitimleri ile çocukların geleceklerinden kaygılanma, çocukların ayak bağı olduklarını düşünme, çevrelerinin bakış açısından rahatsızlık duymaları arasında istatistiksel açıdan önemli fark bulunmuştur p

Keywords

Engellilik, Engelli çocuklar, Yaşam Kalitesi, Engelli Aileler

Life Quality of Families With Disabled Children

Abstract

Disability; individuals with disabilities, their family, immediate environment and the social structure of is a phenomenon of interest. This study was conducted as a descriptive research in order to determine the quality of life in a total of 160 families with disabled children receiving education at all Rehabilitation Centers of Fethiye, Mugla region. Survey forms developed by the researcher were used as the data collection tool. 85.6% of research participants are mothers, 51.9% of disabled children are within the 7-12 age group, 53.2% are male, 3% of the children have hearing disorders, 3.4% have mental and emotional disorders, 36.6% have intellectual disorders, 25.7% have orthopedic disorders, 25.7% have speech disorders, 5.6% have learning disorders. Statistically significant relation was found between the family levels of education and experiencing concerns about the future of their children, considering disabled children to be hindrance and feeling embarrassed of disabled children p < 0.05 . Statistically significant relation was found between the type of disability and experiencing concerns about the future of their children, considering disabled children to be hindrance and the ability to spend sufficient time for themselves and other members of their families p < 0.05 . Pre-marital legal tests need to be implemented in order to carry out programs intended for decreasing the rate of kin marriages in our country

Keywords

Disabled Children, Quality Of Life, Disability and their families

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