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Year 2018, Volume: 35 Issue: 1, 93 - 100, 01.01.2018

Abstract

References

  • 1. Sheehan A, While A, Coyne I. The experiences and impact of transition from child to adult healthcare services for young people with Type 1 diabetes: a systematic review. Diabet Med 2015;32:440-58.
  • 2. Lotstein DS, Seid M, Klingensmith G, Case D, Lawrence JM, Pihoker C, et al. Transition from pediatric to adult care for youth diagnosed with type 1 diabetes in adolescence. Pediatrics 2013;131:e1062-70.
  • 3. Committee On Pediatric Aids. Transitioning HIV-infected youth into adult health care. Pediatrics 2013;132:192-7.
  • 4. Prior M, McManus M, White P, Davidson L. Measuring the "triple aim" in transition care: a systematic review. Pediatrics 2014;34:1648-61.
  • 5. DeBaun MR, Telfair J. Transition and sickle cell disease. Pediatrics 2012;130:926-35.
  • 6. Crowley R, Wolfe I, Lock K, McKee M. Improving the transition between paediatric and adult healthcare: a systematic review. Arch Dis Child 2011;6;548-53.
  • 7. Aldiss S, Ellis J, Cass H, Pettigrew T, Rose L, Gibson F. Transition From Child to Adult Care 'It's Not a One-Off Event': Development of Benchmarks to Improve the Experience. J Pediatr Nurs 2015;30:638-47.
  • 8. Ferris ME, Harward DH, Bickford K, Layton JB, Ferris MT, Hogan SL, et al. A clinical tool to measure the components of health-care transition from pediatric care to adult care: the UNC TR(x)ANSITION scale. Ren Fail 2012;34:744-53.
  • 9. Ferris ME, Mahan JD. Pediatric chronic kidney disease and the process of health care transition. Semin Nephrol 2009;29:435-44.
  • 10. Bryant R, Young A, Cesario S, Binder B. Transition of chronically ill youth to adult health care: experience of youth with hemoglobinopathy. J Pediatr Health Care 2011;25:275-83.
  • 11. Cadario F, Prodam F, Bellone S, Trada M, Binotti M, Allochis G, et al. Transition process of patients with type 1 diabetes (T1DM) from paediatric to the adult health care service: a hospital-based approach. Clin Endocrinol (Oxf) 2009;71:346-50.
  • 12. Wood DL, Sawicki GS, Miller MD, Smotherman C, Lukens-Bull K, Livingood WC, et al. The Transition Readiness Assessment Questionnaire (TRAQ): its factor structure, reliability, and validity. Acad Pediatr 2014;14:415-22.
  • 13. Blinder MA, Vekeman F, Sasane M, Trahey A, Paley C, Duh MS. Agerelated treatment patterns in sickle cell disease patients and the associated sickle cell complications and healthcare costs. Pediatr Blood Cancer 2013;60:828-35.
  • 14. Heery E, Sheehan AM, While AE, Coyne I. Experiences and Outcomes of Transition from Pediatric to Adult Health Care Services for Young People with Congenital Heart Disease: A Systematic Review. Congenit Heart Dis 2015;10:413-27.
  • 15. Wodrich DL, Hasan K, Parent KB. Type 1 diabetes mellitus and school: a review. Pediatr Diabetes 2011;12:63-70.
  • 16. Colver A, Longwell S. New understanding of adolescent brain development: relevance to transitional healthcare for young people with long term conditions. Arch Dis Child 2013;98:902-7.
  • 17. Sawicki GS, Lukens-Bull K, Yin X, Demars N, Huang IC, Livingood W, et al. Measuring the transition readiness of youth with special healthcare needs: validation of the TRAQ--Transition Readiness Assessment Questionnaire. J Pediatr Psychol 2011;36:160-71.
  • 18. Kapellen TM, Kiess W. Transition of adolescents and young adults with endocrine diseases to adult health care. Best Pract Res Clin Endocrinol Metab 2015;29:505-13.
  • 19. American Academy of Pediatrics; American Academy of Family Physicians; American College of Physicians; Transitions Clinical Report Authoring Group, Cooley WC, Sagerman PJ. Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics 2011;128:182-200.
  • 20. Hersh AO, Pang S, Curran ML, Milojevic DS, von Scheven E. The challenges of transferring chronic illness patients to adult care: reflections from pediatric and adult rheumatology at a US academic center. Pediatr Rheumatol Online J 2009;7:13.
  • 21. van Staa A, van der Stege HA, Jedeloo S, Moll HA, Hilberink SR. Readiness to transfer to adult care of adolescents with chronic conditions: exploration of associated factors. J Adolesc Health 2011;48:295-302.
  • 22. Tuchman LK, Schwartz LA, Sawicki GS, Britto MT. Cystic fibrosis and transition to adult medical care. Pediatrics 2010;125:566-73.
  • 23. Hayran M. Hayran M. Basic statistics for medical researches. 1st ed Ankara: Omega publication 2011.
  • 24. Prochaska JO, DiClemente CC. The transtheoretical approach. Handbook of psychotherapy integration. 2005;2:147-71.
  • 25. Nahcivan N, Tuncel N. Self care agency in healthy adolescents and effect of family. Florence Nightingale HD 1999;12:49-60.
  • 26. Nahcivan NO. A Turkish language equivalence of the Exercise of Self-Care Agency Scale. West J Nurs Res 2004;26:813-24.
  • 27. Byrne BM. Structural equation modeling with AMOS: Basic concepts, applications, and programming: Routledge; 2013.
  • 28. Meydan CH, Şeşen H. Structural equation modeling with AMOS: Detay publication; 2011.
  • 29. Şimşek ÖF. Structural equation modeling: Basic principles and LISREL practices. Ankara: Ekinoks. 2007.
  • 30. Kalaycı Ş. Multivariate statistical techniques: Asil publication; 2006. 31. Büyüköztürk Ş, Akgün ÖE, Kahveci Ö, Demirel F. The Validity and Reliability Study of the Turkish Version of the Motivated Strategies for Learning Questionnaire. KUYEB 2004;4:207-39.
  • 32. Akgül A. Statistical analysis in medical research: SPSS practices: Council of Higher Education Press; 2005.

Validation of Transition Readiness Assessment Questionaire in Turkish Adolescents with Diabetes

Year 2018, Volume: 35 Issue: 1, 93 - 100, 01.01.2018

Abstract

Background: Today, more than 90% of adolescents with chronic conditions survive into adulthood and move from pediatric care to adult care for the management of their chronic illness. It is important to grant autonomy and ensure that adolescents/young adults are ready to use the adult health care system prior to the transfer of care. However, the lack of a transition readiness assessment tool that is validated, patient-centered, and appropriate to developmental differences in pediatric care is a major obstacle for the transition of care from pediatric services to adult services. Aims: This study examined the validity and reliability of the Turkish version of the Transition Readiness Assessment Questionnaire, which assesses the readiness for transition from pediatric to adult health care for adolescents/young adults with diabetes mellitus. Study Design: Methodological study. Methods: Participants were 109 adolescents/young adults with type 1 diabetes mellitus aged 14-21 years. After permission was obtained to adapt the Transition Readiness Assessment Questionnaire, the Turkish Transition Readiness Assessment Questionnaire and self-care scale were administered to participants through face-to-face interviews at two pediatric endocrinology clinics. Validity was evaluated by exploratory and confirmatory factor analysis and content-scope validity assessment; reliability was evaluated by item-total score correlation and continuity methods. Internal reliability was assessed by Cronbach’s alpha coefficient and criterion validity assessment. Results: The item analysis, exploratory factor analysis, and confirmatory factor analysis identified five basic dimensions, with high internal consistency (0.89-0.75). The ratio χ2/df and other conformity indices were a good fit to the data. The correlation coefficient in the analyses of test-retest scores was 0.86 for the total scale (p<0.05), and the Cronbach’s alpha coefficient was 0.88 for overall scale. Conclusion: The Turkish Transition Readiness Assessment Questionnaire is a valid and reliable measure of the transition readiness of adolescents/young adults with diabetes mellitus in Turkey. The Transition Readiness Assessment Questionnaire assesses the self-management abilities and health care transition knowledge of adolescents/young adults with diabetes mellitus who need special health care. It can also serve as a guide for health care professionals in detecting the educational fields that are necessary for acquiring self-management and self-care abilities.

References

  • 1. Sheehan A, While A, Coyne I. The experiences and impact of transition from child to adult healthcare services for young people with Type 1 diabetes: a systematic review. Diabet Med 2015;32:440-58.
  • 2. Lotstein DS, Seid M, Klingensmith G, Case D, Lawrence JM, Pihoker C, et al. Transition from pediatric to adult care for youth diagnosed with type 1 diabetes in adolescence. Pediatrics 2013;131:e1062-70.
  • 3. Committee On Pediatric Aids. Transitioning HIV-infected youth into adult health care. Pediatrics 2013;132:192-7.
  • 4. Prior M, McManus M, White P, Davidson L. Measuring the "triple aim" in transition care: a systematic review. Pediatrics 2014;34:1648-61.
  • 5. DeBaun MR, Telfair J. Transition and sickle cell disease. Pediatrics 2012;130:926-35.
  • 6. Crowley R, Wolfe I, Lock K, McKee M. Improving the transition between paediatric and adult healthcare: a systematic review. Arch Dis Child 2011;6;548-53.
  • 7. Aldiss S, Ellis J, Cass H, Pettigrew T, Rose L, Gibson F. Transition From Child to Adult Care 'It's Not a One-Off Event': Development of Benchmarks to Improve the Experience. J Pediatr Nurs 2015;30:638-47.
  • 8. Ferris ME, Harward DH, Bickford K, Layton JB, Ferris MT, Hogan SL, et al. A clinical tool to measure the components of health-care transition from pediatric care to adult care: the UNC TR(x)ANSITION scale. Ren Fail 2012;34:744-53.
  • 9. Ferris ME, Mahan JD. Pediatric chronic kidney disease and the process of health care transition. Semin Nephrol 2009;29:435-44.
  • 10. Bryant R, Young A, Cesario S, Binder B. Transition of chronically ill youth to adult health care: experience of youth with hemoglobinopathy. J Pediatr Health Care 2011;25:275-83.
  • 11. Cadario F, Prodam F, Bellone S, Trada M, Binotti M, Allochis G, et al. Transition process of patients with type 1 diabetes (T1DM) from paediatric to the adult health care service: a hospital-based approach. Clin Endocrinol (Oxf) 2009;71:346-50.
  • 12. Wood DL, Sawicki GS, Miller MD, Smotherman C, Lukens-Bull K, Livingood WC, et al. The Transition Readiness Assessment Questionnaire (TRAQ): its factor structure, reliability, and validity. Acad Pediatr 2014;14:415-22.
  • 13. Blinder MA, Vekeman F, Sasane M, Trahey A, Paley C, Duh MS. Agerelated treatment patterns in sickle cell disease patients and the associated sickle cell complications and healthcare costs. Pediatr Blood Cancer 2013;60:828-35.
  • 14. Heery E, Sheehan AM, While AE, Coyne I. Experiences and Outcomes of Transition from Pediatric to Adult Health Care Services for Young People with Congenital Heart Disease: A Systematic Review. Congenit Heart Dis 2015;10:413-27.
  • 15. Wodrich DL, Hasan K, Parent KB. Type 1 diabetes mellitus and school: a review. Pediatr Diabetes 2011;12:63-70.
  • 16. Colver A, Longwell S. New understanding of adolescent brain development: relevance to transitional healthcare for young people with long term conditions. Arch Dis Child 2013;98:902-7.
  • 17. Sawicki GS, Lukens-Bull K, Yin X, Demars N, Huang IC, Livingood W, et al. Measuring the transition readiness of youth with special healthcare needs: validation of the TRAQ--Transition Readiness Assessment Questionnaire. J Pediatr Psychol 2011;36:160-71.
  • 18. Kapellen TM, Kiess W. Transition of adolescents and young adults with endocrine diseases to adult health care. Best Pract Res Clin Endocrinol Metab 2015;29:505-13.
  • 19. American Academy of Pediatrics; American Academy of Family Physicians; American College of Physicians; Transitions Clinical Report Authoring Group, Cooley WC, Sagerman PJ. Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics 2011;128:182-200.
  • 20. Hersh AO, Pang S, Curran ML, Milojevic DS, von Scheven E. The challenges of transferring chronic illness patients to adult care: reflections from pediatric and adult rheumatology at a US academic center. Pediatr Rheumatol Online J 2009;7:13.
  • 21. van Staa A, van der Stege HA, Jedeloo S, Moll HA, Hilberink SR. Readiness to transfer to adult care of adolescents with chronic conditions: exploration of associated factors. J Adolesc Health 2011;48:295-302.
  • 22. Tuchman LK, Schwartz LA, Sawicki GS, Britto MT. Cystic fibrosis and transition to adult medical care. Pediatrics 2010;125:566-73.
  • 23. Hayran M. Hayran M. Basic statistics for medical researches. 1st ed Ankara: Omega publication 2011.
  • 24. Prochaska JO, DiClemente CC. The transtheoretical approach. Handbook of psychotherapy integration. 2005;2:147-71.
  • 25. Nahcivan N, Tuncel N. Self care agency in healthy adolescents and effect of family. Florence Nightingale HD 1999;12:49-60.
  • 26. Nahcivan NO. A Turkish language equivalence of the Exercise of Self-Care Agency Scale. West J Nurs Res 2004;26:813-24.
  • 27. Byrne BM. Structural equation modeling with AMOS: Basic concepts, applications, and programming: Routledge; 2013.
  • 28. Meydan CH, Şeşen H. Structural equation modeling with AMOS: Detay publication; 2011.
  • 29. Şimşek ÖF. Structural equation modeling: Basic principles and LISREL practices. Ankara: Ekinoks. 2007.
  • 30. Kalaycı Ş. Multivariate statistical techniques: Asil publication; 2006. 31. Büyüköztürk Ş, Akgün ÖE, Kahveci Ö, Demirel F. The Validity and Reliability Study of the Turkish Version of the Motivated Strategies for Learning Questionnaire. KUYEB 2004;4:207-39.
  • 32. Akgül A. Statistical analysis in medical research: SPSS practices: Council of Higher Education Press; 2005.
There are 31 citations in total.

Details

Other ID JA99EK57SZ
Journal Section Research Article
Authors

Evrim Kızıler This is me

Dilek Yıldız This is me

Berna Eren Fidancı This is me

Publication Date January 1, 2018
Published in Issue Year 2018 Volume: 35 Issue: 1

Cite

APA Kızıler, E., Yıldız, D., & Fidancı, B. E. (2018). Validation of Transition Readiness Assessment Questionaire in Turkish Adolescents with Diabetes. Balkan Medical Journal, 35(1), 93-100.
AMA Kızıler E, Yıldız D, Fidancı BE. Validation of Transition Readiness Assessment Questionaire in Turkish Adolescents with Diabetes. Balkan Medical Journal. January 2018;35(1):93-100.
Chicago Kızıler, Evrim, Dilek Yıldız, and Berna Eren Fidancı. “Validation of Transition Readiness Assessment Questionaire in Turkish Adolescents With Diabetes”. Balkan Medical Journal 35, no. 1 (January 2018): 93-100.
EndNote Kızıler E, Yıldız D, Fidancı BE (January 1, 2018) Validation of Transition Readiness Assessment Questionaire in Turkish Adolescents with Diabetes. Balkan Medical Journal 35 1 93–100.
IEEE E. Kızıler, D. Yıldız, and B. E. Fidancı, “Validation of Transition Readiness Assessment Questionaire in Turkish Adolescents with Diabetes”, Balkan Medical Journal, vol. 35, no. 1, pp. 93–100, 2018.
ISNAD Kızıler, Evrim et al. “Validation of Transition Readiness Assessment Questionaire in Turkish Adolescents With Diabetes”. Balkan Medical Journal 35/1 (January 2018), 93-100.
JAMA Kızıler E, Yıldız D, Fidancı BE. Validation of Transition Readiness Assessment Questionaire in Turkish Adolescents with Diabetes. Balkan Medical Journal. 2018;35:93–100.
MLA Kızıler, Evrim et al. “Validation of Transition Readiness Assessment Questionaire in Turkish Adolescents With Diabetes”. Balkan Medical Journal, vol. 35, no. 1, 2018, pp. 93-100.
Vancouver Kızıler E, Yıldız D, Fidancı BE. Validation of Transition Readiness Assessment Questionaire in Turkish Adolescents with Diabetes. Balkan Medical Journal. 2018;35(1):93-100.