Research Article
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Access to Health Services by the Parents of Individuals with Intellectual Disability according to their Health Literacy Levels

Year 2021, Volume: 11 Issue: 4, 754 - 761, 26.10.2021
https://doi.org/10.33808/clinexphealthsci.881581

Abstract

Objective: Health literacy is designated as a “Social Barrier” to accessing health services. The aim of the study health literacy (HL) levels of the parents of intellectually disabled individuals are determinants of their access to health services.
Methods: The universe of this descriptive study consists of the parents of individuals with intellectual disability (N:118).Data collection instruments used in the study were the Health Literacy Scale for Turkey-32 and an Access to Health Services Assessment Questionnaire. Ethics Committee permission and approvals were obtained.
Results: A statistically significant difference was found between the caregivers’ HL levels and their knowing how to benefit from health services (HS), their ability to understand the information given to them by health personnel, their ability to correctly communicate their needs, their access to HS and to adequate information, their ability to understand the information gathered, to get an appointment from health institutions, their giving up due to the difficulties they faced in obtaining an appointment, and their physically being unable to reach health services (<.001).
Conclusion: The HL levels of many of the participants were limited and inadequate. Those with high levels of HL were better able to access health information resources, health facilities and services compared to those with low levels of HL.

References

  • 1. Palumbo R. Discussing the effects of poor health literacy on patients facing HIV: a narrative literature review. International journal of health policy and management. 2015;4(7):417.
  • 2. Brach C, Keller D, Hernandez LM, Baur C, Parker R, Dreyer B, et al. Ten attributes of health literate health care organizations. NAM Perspectives. 2012.
  • 3. Rudd RE. Health literacy skills of US adults. American Journal of Health Behavior. 2007;31(1):S8-S18.
  • 4. Rasu RS, Bawa WA, Suminski R, Snella K, Warady B. Health literacy impact on national healthcare utilization and expenditure. International journal of health policy and management. 2015;4(11):747.
  • 5. Berkman ND, Sheridan SL, Donahue KE, Halpern DJ, Crotty K. Low health literacy and health outcomes: an updated systematic review. Annals of internal medicine. 2011;155(2):97-107.
  • 6. Vos T, Flaxman AD, Naghavi M, Lozano R, Michaud C, Ezzati M, et al. Years lived with disability (YLDs) for 1160 sequelae of 289 diseases and injuries 1990–2010: a systematic analysis for the Global Burden of Disease Study 2010. The lancet. 2012;380(9859):2163-96.
  • 7. TUİK. Engelli ve Yaşlı İstatistiği In: Müdürlüğü EvYHG, editor. 2019.
  • 8. Car J, Lang B, Colledge A, Ung C, Majeed A. Interventions for enhancing consumers' online health literacy. Cochrane Database Syst Rev. 2011(6):Cd007092.
  • 9. Karatana Ö, Kamer G. Engelli Bireylerin Sağlık Hizmetlerine Erişimi ve Engelleri. Halk Sağlığı Hemşireliği Dergisi. 2019;1(1):43-53.
  • 10. Balçik P, Taskaya S, Sahin B. Health literacy. TAF Prev Med Bull. 2014;13:321-6.
  • 11. Emerson E, Hatton C. Health inequalities and people with intellectual disabilities: Cambridge University Press; 2014.
  • 12. Steele CB, Townsend JS, Courtney-Long EA, Young M. Prevalence of Cancer Screening Among Adults With Disabilities, United States, 2013. Prev Chronic Dis. 2017;14:E09.
  • 13. Chinn D. Critical health literacy health promotion and people with intellectual disabilities. Asia-Pacific Journal of Health, Sport and Physical Education. 2014;5(3):249-65.
  • 14. Kalichman S, Pellowski J, Chen Y. Requesting help to understand medical information among people living with HIV and poor health literacy. AIDS patient care and STDs. 2013;27(6):326-32.
  • 15. Brown I, Hatton C, Emerson E. Quality of life indicators for individuals with intellectual disabilities: Extending current practice. Intellectual and developmental disabilities. 2013;51(5):316-32.
  • 16. Alseraty WH. Parents' Socioeconomic Status and Health Literacy Domains among Shokrof Preparatory School Students, Shokrof Village, Algarbia Governorate, Egypt. Journal of Education and Practice. 2015;6(11):1-8.
  • 17. Chiang K-P, Jackson A. Health literacy and its outcomes: application and extension of elaboration likelihood model. International Journal of Healthcare Management. 2013;6(3):152-7.
  • 18. Geukes C, Bröder J, Latteck Ä-D. Health Literacy and People with Intellectual Disabilities: What We Know, What We Do Not Know, and What We Need: A Theoretical Discourse. International journal of environmental research and public health. 2019;16(3):463.
  • 19. Bruland D, Geukes C, Latteck Ä-D, editors. Menschen mit Lernschwierigkeiten sind im Nachteil. Erfahrungen zur Förderung der Gesundheitskompetenz in der Eingliederungshilfe. Forum sozialarbeit+ gesundheit; 2019.
  • 20. Haveman M, Perry J, Salvador-Carulla L, Walsh PN, Kerr M, van Schrojenstein Lantman-de Valk H, et al. Ageing and health status in adults with intellectual disabilities: results of the European POMONA II study. Journal of Intellectual and Developmental Disability. 2011;36(1):49-60.
  • 21. Schaeffer D, Hurrelmann K, Bauer U, Kolpatzik K. Nationaler Aktionsplan Gesundheitskompetenz. Die Gesundheitskompetenz in Deutschland stärken Berlin: KomPart. 2018.
  • 22. Okyay P, Abacıgil F. Türkiye sağlık okuryazarlığı ölçekleri güvenilirlik ve geçerlilik çalışması. Avrupa sağlık okuryazarlığı ölçeği Türkçe uyarlaması (ASOY-TR) Mayıs. 2016:24-41.
  • 23. Tanrıöver M, Yıldırım H, Ready F, Çakır B, Akalın H. Türkiye sağlık okuryazarlığı araştırması. Sağlık-Sen Yayınları. 2014.
  • 24. Koh HK, Berwick DM, Clancy CM, Baur C, Brach C, Harris LM, et al. New federal policy initiatives to boost health literacy can help the nation move beyond the cycle of costly ‘crisis care’. Health Affairs. 2012;31(2):434-43.
  • 25. Murphy DA, Lam P, Naar-King S, Harris DR, Parsons JT, Muenz LR, et al. Health literacy and antiretroviral adherence among HIV-infected adolescents. Patient education and counseling. 2010;79(1):25-9.
  • 26. Bynum SA, Wigfall LT, Brandt HM, Richter DL, Glover SH, Hébert JR. Assessing the influence of health literacy on HIV-positive women’s cervical cancer prevention knowledge and behaviors. Journal of Cancer Education. 2013;28(2):352-6.
  • 27. Kickbusch IS. Health literacy: addressing the health and education divide. Health promotion international. 2001;16(3):289-97.
  • 28. Schmidt CO, Fahland RA, Franze M, Splieth C, Thyrian JR, Plachta-Danielzik S, et al. Health-related behaviour, knowledge, attitudes, communication and social status in school children in Eastern Germany. Health Education Research. 2010;25(4):542-51.
  • 29. Robinson C, Graham J. Perceived Internet health literacy of HIV‐positive people through the provision of a computer and Internet health education intervention. Health Information & Libraries Journal. 2010;27(4):295-303.
  • 30. Peters E, Hibbard J, Slovic P, Dieckmann N. Numeracy skill and the communication, comprehension, and use of risk-benefit information. Health Affairs. 2007;26(3):741-8.
  • 31. Raynor DT. Health literacy. British Medical Journal Publishing Group; 2012.
  • 32. Ngoh LN. Health literacy: a barrier to pharmacist-patient communication and medication adherence. J Am Pharm Assoc (2003). 2009;49(5):e132-46; quiz e47-9.
  • 33. Howard LM, Tique JA, Gaveta S, Sidat M, Rothman RL, Vermund SH, et al. Health literacy predicts pediatric dosing accuracy for liquid zidovudine in Mozambique. AIDS (London, England). 2014;28(7):1041.
  • 34. Fransen MP, von Wagner C, Essink-Bot M-L. Diabetes self-management in patients with low health literacy: ordering findings from literature in a health literacy framework. Patient education and counseling. 2012;88(1):44-53.
  • 35. Loke YK, Hinz I, Wang X, Salter C. Systematic review of consistency between adherence to cardiovascular or diabetes medication and health literacy in older adults. Annals of Pharmacotherapy. 2012;46(6):863-72.
  • 36. McColl MA. Disability studies at the population level: Issues of health service utilization. American Journal of Occupational Therapy. 2005;59(5):516-26.
  • 37. Schultz ST, Shenkin J, Horowitz A. Parental perceptions of unmet dental need and cost barriers to care for developmentally disabled children. Pediatric dentistry. 2001;23(4):321-5.
Year 2021, Volume: 11 Issue: 4, 754 - 761, 26.10.2021
https://doi.org/10.33808/clinexphealthsci.881581

Abstract

Supporting Institution

YOK

References

  • 1. Palumbo R. Discussing the effects of poor health literacy on patients facing HIV: a narrative literature review. International journal of health policy and management. 2015;4(7):417.
  • 2. Brach C, Keller D, Hernandez LM, Baur C, Parker R, Dreyer B, et al. Ten attributes of health literate health care organizations. NAM Perspectives. 2012.
  • 3. Rudd RE. Health literacy skills of US adults. American Journal of Health Behavior. 2007;31(1):S8-S18.
  • 4. Rasu RS, Bawa WA, Suminski R, Snella K, Warady B. Health literacy impact on national healthcare utilization and expenditure. International journal of health policy and management. 2015;4(11):747.
  • 5. Berkman ND, Sheridan SL, Donahue KE, Halpern DJ, Crotty K. Low health literacy and health outcomes: an updated systematic review. Annals of internal medicine. 2011;155(2):97-107.
  • 6. Vos T, Flaxman AD, Naghavi M, Lozano R, Michaud C, Ezzati M, et al. Years lived with disability (YLDs) for 1160 sequelae of 289 diseases and injuries 1990–2010: a systematic analysis for the Global Burden of Disease Study 2010. The lancet. 2012;380(9859):2163-96.
  • 7. TUİK. Engelli ve Yaşlı İstatistiği In: Müdürlüğü EvYHG, editor. 2019.
  • 8. Car J, Lang B, Colledge A, Ung C, Majeed A. Interventions for enhancing consumers' online health literacy. Cochrane Database Syst Rev. 2011(6):Cd007092.
  • 9. Karatana Ö, Kamer G. Engelli Bireylerin Sağlık Hizmetlerine Erişimi ve Engelleri. Halk Sağlığı Hemşireliği Dergisi. 2019;1(1):43-53.
  • 10. Balçik P, Taskaya S, Sahin B. Health literacy. TAF Prev Med Bull. 2014;13:321-6.
  • 11. Emerson E, Hatton C. Health inequalities and people with intellectual disabilities: Cambridge University Press; 2014.
  • 12. Steele CB, Townsend JS, Courtney-Long EA, Young M. Prevalence of Cancer Screening Among Adults With Disabilities, United States, 2013. Prev Chronic Dis. 2017;14:E09.
  • 13. Chinn D. Critical health literacy health promotion and people with intellectual disabilities. Asia-Pacific Journal of Health, Sport and Physical Education. 2014;5(3):249-65.
  • 14. Kalichman S, Pellowski J, Chen Y. Requesting help to understand medical information among people living with HIV and poor health literacy. AIDS patient care and STDs. 2013;27(6):326-32.
  • 15. Brown I, Hatton C, Emerson E. Quality of life indicators for individuals with intellectual disabilities: Extending current practice. Intellectual and developmental disabilities. 2013;51(5):316-32.
  • 16. Alseraty WH. Parents' Socioeconomic Status and Health Literacy Domains among Shokrof Preparatory School Students, Shokrof Village, Algarbia Governorate, Egypt. Journal of Education and Practice. 2015;6(11):1-8.
  • 17. Chiang K-P, Jackson A. Health literacy and its outcomes: application and extension of elaboration likelihood model. International Journal of Healthcare Management. 2013;6(3):152-7.
  • 18. Geukes C, Bröder J, Latteck Ä-D. Health Literacy and People with Intellectual Disabilities: What We Know, What We Do Not Know, and What We Need: A Theoretical Discourse. International journal of environmental research and public health. 2019;16(3):463.
  • 19. Bruland D, Geukes C, Latteck Ä-D, editors. Menschen mit Lernschwierigkeiten sind im Nachteil. Erfahrungen zur Förderung der Gesundheitskompetenz in der Eingliederungshilfe. Forum sozialarbeit+ gesundheit; 2019.
  • 20. Haveman M, Perry J, Salvador-Carulla L, Walsh PN, Kerr M, van Schrojenstein Lantman-de Valk H, et al. Ageing and health status in adults with intellectual disabilities: results of the European POMONA II study. Journal of Intellectual and Developmental Disability. 2011;36(1):49-60.
  • 21. Schaeffer D, Hurrelmann K, Bauer U, Kolpatzik K. Nationaler Aktionsplan Gesundheitskompetenz. Die Gesundheitskompetenz in Deutschland stärken Berlin: KomPart. 2018.
  • 22. Okyay P, Abacıgil F. Türkiye sağlık okuryazarlığı ölçekleri güvenilirlik ve geçerlilik çalışması. Avrupa sağlık okuryazarlığı ölçeği Türkçe uyarlaması (ASOY-TR) Mayıs. 2016:24-41.
  • 23. Tanrıöver M, Yıldırım H, Ready F, Çakır B, Akalın H. Türkiye sağlık okuryazarlığı araştırması. Sağlık-Sen Yayınları. 2014.
  • 24. Koh HK, Berwick DM, Clancy CM, Baur C, Brach C, Harris LM, et al. New federal policy initiatives to boost health literacy can help the nation move beyond the cycle of costly ‘crisis care’. Health Affairs. 2012;31(2):434-43.
  • 25. Murphy DA, Lam P, Naar-King S, Harris DR, Parsons JT, Muenz LR, et al. Health literacy and antiretroviral adherence among HIV-infected adolescents. Patient education and counseling. 2010;79(1):25-9.
  • 26. Bynum SA, Wigfall LT, Brandt HM, Richter DL, Glover SH, Hébert JR. Assessing the influence of health literacy on HIV-positive women’s cervical cancer prevention knowledge and behaviors. Journal of Cancer Education. 2013;28(2):352-6.
  • 27. Kickbusch IS. Health literacy: addressing the health and education divide. Health promotion international. 2001;16(3):289-97.
  • 28. Schmidt CO, Fahland RA, Franze M, Splieth C, Thyrian JR, Plachta-Danielzik S, et al. Health-related behaviour, knowledge, attitudes, communication and social status in school children in Eastern Germany. Health Education Research. 2010;25(4):542-51.
  • 29. Robinson C, Graham J. Perceived Internet health literacy of HIV‐positive people through the provision of a computer and Internet health education intervention. Health Information & Libraries Journal. 2010;27(4):295-303.
  • 30. Peters E, Hibbard J, Slovic P, Dieckmann N. Numeracy skill and the communication, comprehension, and use of risk-benefit information. Health Affairs. 2007;26(3):741-8.
  • 31. Raynor DT. Health literacy. British Medical Journal Publishing Group; 2012.
  • 32. Ngoh LN. Health literacy: a barrier to pharmacist-patient communication and medication adherence. J Am Pharm Assoc (2003). 2009;49(5):e132-46; quiz e47-9.
  • 33. Howard LM, Tique JA, Gaveta S, Sidat M, Rothman RL, Vermund SH, et al. Health literacy predicts pediatric dosing accuracy for liquid zidovudine in Mozambique. AIDS (London, England). 2014;28(7):1041.
  • 34. Fransen MP, von Wagner C, Essink-Bot M-L. Diabetes self-management in patients with low health literacy: ordering findings from literature in a health literacy framework. Patient education and counseling. 2012;88(1):44-53.
  • 35. Loke YK, Hinz I, Wang X, Salter C. Systematic review of consistency between adherence to cardiovascular or diabetes medication and health literacy in older adults. Annals of Pharmacotherapy. 2012;46(6):863-72.
  • 36. McColl MA. Disability studies at the population level: Issues of health service utilization. American Journal of Occupational Therapy. 2005;59(5):516-26.
  • 37. Schultz ST, Shenkin J, Horowitz A. Parental perceptions of unmet dental need and cost barriers to care for developmentally disabled children. Pediatric dentistry. 2001;23(4):321-5.
There are 37 citations in total.

Details

Primary Language English
Subjects Health Care Administration
Journal Section Articles
Authors

Kamer Gür 0000-0002-2424-323X

Rıza Danış 0000-0002-3035-1261

Ali Can Derinsu This is me 0000-0003-4530-3876

Ahmet Turan This is me 0000-0003-3411-6805

Zahide Aksoy 0000-0002-5536-638X

Atila Tuncel This is me 0000-0002-0662-8689

Publication Date October 26, 2021
Submission Date February 16, 2021
Published in Issue Year 2021 Volume: 11 Issue: 4

Cite

APA Gür, K., Danış, R., Derinsu, A. C., Turan, A., et al. (2021). Access to Health Services by the Parents of Individuals with Intellectual Disability according to their Health Literacy Levels. Clinical and Experimental Health Sciences, 11(4), 754-761. https://doi.org/10.33808/clinexphealthsci.881581
AMA Gür K, Danış R, Derinsu AC, Turan A, Aksoy Z, Tuncel A. Access to Health Services by the Parents of Individuals with Intellectual Disability according to their Health Literacy Levels. Clinical and Experimental Health Sciences. October 2021;11(4):754-761. doi:10.33808/clinexphealthsci.881581
Chicago Gür, Kamer, Rıza Danış, Ali Can Derinsu, Ahmet Turan, Zahide Aksoy, and Atila Tuncel. “Access to Health Services by the Parents of Individuals With Intellectual Disability According to Their Health Literacy Levels”. Clinical and Experimental Health Sciences 11, no. 4 (October 2021): 754-61. https://doi.org/10.33808/clinexphealthsci.881581.
EndNote Gür K, Danış R, Derinsu AC, Turan A, Aksoy Z, Tuncel A (October 1, 2021) Access to Health Services by the Parents of Individuals with Intellectual Disability according to their Health Literacy Levels. Clinical and Experimental Health Sciences 11 4 754–761.
IEEE K. Gür, R. Danış, A. C. Derinsu, A. Turan, Z. Aksoy, and A. Tuncel, “Access to Health Services by the Parents of Individuals with Intellectual Disability according to their Health Literacy Levels”, Clinical and Experimental Health Sciences, vol. 11, no. 4, pp. 754–761, 2021, doi: 10.33808/clinexphealthsci.881581.
ISNAD Gür, Kamer et al. “Access to Health Services by the Parents of Individuals With Intellectual Disability According to Their Health Literacy Levels”. Clinical and Experimental Health Sciences 11/4 (October 2021), 754-761. https://doi.org/10.33808/clinexphealthsci.881581.
JAMA Gür K, Danış R, Derinsu AC, Turan A, Aksoy Z, Tuncel A. Access to Health Services by the Parents of Individuals with Intellectual Disability according to their Health Literacy Levels. Clinical and Experimental Health Sciences. 2021;11:754–761.
MLA Gür, Kamer et al. “Access to Health Services by the Parents of Individuals With Intellectual Disability According to Their Health Literacy Levels”. Clinical and Experimental Health Sciences, vol. 11, no. 4, 2021, pp. 754-61, doi:10.33808/clinexphealthsci.881581.
Vancouver Gür K, Danış R, Derinsu AC, Turan A, Aksoy Z, Tuncel A. Access to Health Services by the Parents of Individuals with Intellectual Disability according to their Health Literacy Levels. Clinical and Experimental Health Sciences. 2021;11(4):754-61.

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