Lower Limb Amputation Experience in Individuals with Peripheral Vascular Diseases - Systematic Review Protocol of Qualitative Data Amputation Experience in Individuals with Peripheral Vascular Diseases

Abstract

Objective: To synthesise evidence on the experiences of individuals with vascular pathology undergoing major lower limb amputation. Materials and Methods: A systematic literature review (SLR) of qualitatively focussed evidence. Qualitative, descriptive, exploratory case studies and surveys in English, Spanish, or Portuguese from 1983 to 2022 were included, reporting experiences. Results: Utilising Joanna Briggs Institute instruments and assumptions, 10 articles, 213 findings, 15 categories, and five synthesised discoveries resulted in an awareness of the need for amputation, change and difference, the meaning of mobility, facilitating conditions, and the level of preparation and knowledge of professionals. Conclusion: The disease narrative prepares individuals for amputation. The decision emerges as a last resort in the experience of pain and suffering. A complex event of constant interactions between chronic illness, anticipation of amputation, changes, strategies, and relationships beyond the fear of complications, giving rise to conflicting feelings and doubts about the future.

Keywords

• Peripheral arterial disease
• systematic review
• surgical amputation

Ethical Statement

No ethical approval required, review protocol

References

1. 1. Abouammoh N, Aldebeya W, Abuzaid, R. Experiences and needs of patients with lower limb amputation in Saudi Arabia: a qualitative study. Eastern Mediterranean Health Journal = La Revue de Sante de La Mediterranee Orientale = Al-Majallah Al-Sihhiyah Li-Sharq Al-Mutawassit 2021; 27(4): 407-13. https:// doi.org/10.26719/emhj.20.124 google scholar
2. 2. Aljarrah, Q, Allouh, MZ, Bakkar S, Aleshawi A, Obeidat H, Hijazi E, H. et al. Major lower extremity amputation: A contemporary analysis from an academic tertiary referral centre in a developing community. BMC Surgery 2019; 19(1): 1-10. https:// doi.org/10.1186/s12893- 019-0637-y google scholar
3. 3. Comissao Permanente de Protocolos de Aten^ao a Saude. Organiza^ao da Assistencia ao Portador de Doen^a Arterial Obstrutiva Periferica 2019; 1-14. google scholar
4. 4. Couture M, Desrosiers J, Caron CD. Cognitive appraisal and perceived benefits of dysvascular lower limb amputation: A longitudinal study. Archives of Gerontology and Geriatrics 2011; 52(1): 5-11. https://doi.org/10.1016/j. archger.2009.11.002 google scholar
5. 5. Couture M, Desrosiers J, Caron CD. Coping with a lower limb amputation due to vascular disease in the hospital, rehabilitation, and home setting. ISRN Rehabilitation 2012; 1-9. https://doi.org/10.5402/2012/179878 google scholar
6. 6. Columbo JA, Davies L, Kang R, Barnes JA, Leinweber KA, Suckow, BD. et al. Patient experience of recovery after major leg amputation for arterial disease. Vascular and Endovascular Surgery 2018; 52(4): 262-8. https://doi. org/10.1177/1538574418761984 google scholar
7. 7. Dunne S, Coffey L, Gallagher P, Desmond D. “If I can do it I will do it, if I can’t, I can’t”: A study of adaptive self-regulatory strategies following lower limb amputation. In Disability and Rehabilitation 2014; 36(23):1990-7. https://doi.org/10.3109/09 638288.2014.885993 google scholar
8. 8. JBI Manual for Evidence Synthesis (E. Aromataris and Z. Munn (eds.); Issue July). 2020; https://doi.org/https://doi. org/10.46658/JBIMES-20-01 google scholar

9. 9. Jerebtsov S, Prestes Z. O papel das vivencias da personalidade na instruyo. Educa^ao Em Foco 2019; 679-92. https://doi. org/10.34019/2447-5246.2019.v24.27867 google scholar
10. 10. Ligthelm EJ, Wright SCD. Lived experience of persons with an amputation of the upper limb. International Journal of Orthopaedic and Trauma Nursing 2014;18(2):99-106. https:// doi.org/10.1016/j.ijotn.2013.08.018 google scholar
11. 11. Lindheim R, Syme SL. Environments, people, and health. Ann. Rev. Public Health 1983; 4: 335-59. google scholar
12. 12. MacKay C, Cimino SR, Guilcher SJT, Mayo AL, Devlin M, Dilkas S. et al. A qualitative study exploring individuals’ experiences living with dysvascular lower limb amputation. Disability and Rehabilitation 2020: 1-9. https://doi.org/10.1080/09638288.2 020.1803999 google scholar
13. 13. Madsen UR, Hommel A, Baath C, Berthelsen CB. Pendulating-a grounded theory explaining patients’ behavior shortly after having a leg amputated due to vascular disease. International Journal of Qualitative Studies on Health and Well-Being 2016; 11: 1-10. https://doi.org/10.3402/qhw.v11.32739 google scholar
14. 14. Matos JP, Carolino E, Ramos R. Dados epidemiológicos sobre amputates realizadas em Portugal entre 2000 e 2015. IV Jornadas de Ortoprotesia, Instituto Politécnico de Lisboa, Escola Superior de Tecnologia da Saúde de Lisboa 2018; 1-43. google scholar
15. 15. Meleis AI. Transitions theory - middle-range and situationspecific theories in nursing research and practice. Springer Publishing Company, LLC. 2010. https://taskurun.files. wordpress.com/2011/10/transitions_theory__middle_range_ and_situation_specific_theories_in_nursing_research_and_ practice.pdf google scholar
16. 16. Normahani P, Khosravi S, Sounderajah V, Aslam M, Standfield NJ, Jaffer U. The effect of lower limb revascularization on flow, perfusion, and systemic endothelial function: a systematic review. Angiology 2021;72(3):210-20.https://doi. org/10.1177/0003319720969543 google scholar
17. 17. Pedlow H, Cormier A, Provost M, Bailey S, Balboul G, Coucill A. et al. Patient perspectives on information needs for amputation secondary to vascular surgery: What, when, why, and how much? Journal of Vascular Nursing 2014;32(3): 88-98. https:// doi.org/10.1016/j.jvn.2014.01.002 google scholar
18. 18. Pereira V. Doente Submetido a Amputaçao do Membro Inferiror - O Enfermeiro de Reabilitaçao no Processo de Transiçao 2012; 163. https://comum.rcaap.pt/bitstream/10400.26/9338/1/ Doente submetido a amputaçao do membro inferior - o enfermeiro de reabilitaçao no processo de tr.pdf google scholar
19. 19. Suckow BD, Goodney PP, Nolan BW, Veeraswamy RK, Gallagher P, Cronenwett, JL, et al. Domains that determine quality of life in vascular amputees. Annals of Vascular Surgery 2015; 29(4): 722-30. https://doi.org/10.1016/j. avsg.2014.12.005 google scholar
20. 20. Torbjornsson E, Ottosson C, Blomgren L, Bostrom L, Fagerdahl AM. The patient’s experience of amputation due to peripheral arterial disease. Journal of Vascular Nursing 2017; 35(2): 57-63. https://doi.org/10.1016/j. jvn.2016.11.002 google scholar
21. 21. Washington E, Williams A. An exploratory phenomenological study exploring the experiences of people with systemic disease who have undergone lower limb amputation and its impact on their well-being. Prosthet Orthot Int 2016; 40(1): 44-50. google scholar
22. 22. Varino J, Mendes C, Marinho A, Rodrigues R, Pereira B, Moreira M, et al. Mortalidade a curto e longo prazo após amputaçao major do membro inferior numa populaçao octagenaria. Angiologia e Cirurgia Vascular 2017; 13(2): 15-25 google scholar