The Impact of Childhood Chronic Diseases on Child and the Family

Abstract

This study aims to examine the effects of chronic childhood illnesses on children and their families. It addresses the physical, emotional, social, and educational challenges faced by children while also focusing on how families cope with these difficulties. Through a literature review, the study analyzes common chronic illnesses in childhood and their impacts on children and their families based on existing research. Additionally, it highlights the psychosocial challenges encountered during the treatment process and emphasizes family-centered care approaches. Chronic illnesses significantly affect children's lives, imposing physical, emotional, social, and academic limitations. In addition to health issues, these children may experience emotional difficulties such as social isolation, depression, anxiety, and academic failure. For families, their child's illness leads to significant changes in daily life, altering family roles and increasing psychosocial stress. Healthcare services for children with chronic illnesses should not be limited to medical management alone but should also adopt an approach that provides emotional and social support. Encouraging children's active participation in family-centered care and treatment processes is essential to improving their quality of life. Families should also be provided with appropriate support, and professional guidance should be available to reduce family stress and anxiety levels. A holistic approach to disease management is crucial for ensuring that these children can lead a healthy life in the long term.

Keywords

• Child
• Chronic Disease
• Family Centered Care
• Parents

Supporting Institution

None.

Ethical Statement

Since this is a review study, ethical approval has not been obtained.

Thanks

None.

Çocukluk Çağı Kronik Hastalıkların Çocuk ve Aile Üzerindeki Etkisi

Abstract

Bu çalışma, çocukluk dönemi kronik hastalıklarının çocuklar ve aileler üzerindeki etkilerini incelemeyi amaçlamaktadır. Çalışma, çocukların fiziksel, duygusal, sosyal ve eğitim alanlarındaki zorluklarını ele alırken, ailelerin bu zorluklarla başa çıkma süreçlerine de odaklanmaktadır. Çalışma, literatür taraması yoluyla, çocukluk çağında sık görülen kronik hastalıkları ve bu hastalıkların çocuklar ile aileleri üzerindeki etkilerini değerlendiren mevcut araştırmaları incelemiştir. Ayrıca, bu hastalıkların tedavi sürecinde karşılaşılan psikososyal sorunlar ve aile merkezli bakım yaklaşımları üzerinde durulmuştur. Kronik hastalıklar, çocukların yaşamlarını ciddi şekilde etkileyen ve onları fiziksel, duygusal, sosyal ve akademik açıdan sınırlayan durumlardır. Bu çocuklar, sağlık sorunlarının yanı sıra, sosyal izolasyon, depresyon, kaygı ve okul başarısızlığı gibi duygusal sorunlarla da karşılaşabilmektedirler. Aileler için ise, çocuklarının hastalıkları, günlük yaşamda önemli değişikliklere yol açmakta, aile içindeki rollerin değişmesine ve psikososyal stresin artmasına neden olmaktadır. Kronik hastalıklar yaşayan çocuklar için sağlık hizmetlerinin yalnızca tıbbi yönetimle sınırlı kalmaması, aynı zamanda duygusal ve sosyal destek sağlamaya yönelik bir yaklaşım benimsenmesi gerekmektedir. Aile merkezli bakım ve tedavi süreçlerine çocukların aktif katılımı teşvik edilerek, bu çocukların yaşam kalitesinin artırılması hedeflenmelidir. Aileler için de uygun destekler sağlanmalı, eğitimli profesyonel desteği ile aile içi stres ve kaygı düzeyleri azaltılmalıdır. Çocukların uzun vadede sağlıklı bir yaşam sürdürebilmeleri için, hastalık yönetiminde bütünsel bir yaklaşım önemlidir.

Keywords

• Çocuk
• Kronik hastalık
• Aile merkezli bakım
• Ebeveyn

Supporting Institution

Bulunmamaktadır.

Ethical Statement

Derleme çalışması olduğu için etik kurul alınmamıştır.

Thanks

Bulunmamaktadır.

References

1. Alves, C.A. (2015). Chronic health conditions in childhood and adolescence and the formation of care and support networks. In Pediatric Nursing, Psychiatric And Surgical Issues. Intechopen.
2. Engin, E.A., Yıldırım, F., & Purutcuoglu, E. (2021). Psychosocial problems of children with chronic diseases: A review focusing on pediatric social work interventions. The Journal of Current Pediatrics, 9(3), 385-392. https://doi.org/10.4274/jcp.2021.0033
3. Bakula, D.M., Sharkey, C.M., Perez, M.N., Espeleta, H.C., Hawkins, M., Chaney, J.M., & Mullins, L.L. (2019). The role of stigma in the relationship between illness intrusiveness and adjustment in adolescents and young adults: A path model. Journal of Pediatric Psychology, 44(5), 611-619. https://doi.org/10.1093/Jpepsy/Jsz004
4. Bell, J., Lingam, R., Wakefield, C.E., Fardell, J.E., Zeltzer, J., Hu, N., ... & Nassar, N. (2020). Prevalence, hospital admissions and costs of child chronic conditions: A population‐based study. Journal Of Paediatrics And Child Health, 56(9), 1365-1370. https://doi.org/10.1111/Jpc.14932
5. Bregnballe, V., Thastum, M., & Schiøtz, P. O. (2007). Psychosocial problems in children with cystic fibrosis. Acta Paediatrica, 96(1), 58-61. https://doi.org/10.1111/J.1651-2227.2006.00014.X
6. Cardoso Vaz, J., Marten Milbrath, V., Bärtschi Gabatz, R. I., Reis Krug, F., Hirschmann, B., & Morais De Oliveira, M. (2018). Care for families of children with chronic disease. Journal of Nursing UFPE/Revista De Enfermagem UFPE, 12(5). https://doi.org/10.5205/1981-8963-v12i5a230852p1397-1408-2018
7. Crump, C., Rivera, D., London, R., Landau, M., Erlendson, B., & Rodriguez, E. (2013). Chronic health conditions and school performance among children and youth. Annals Of Epidemiology, 23(4), 179-184. https://doi.org/10.1016/j.annepidem.2013.01.001
8. Compas, B.E., Jaser, S.S., Dunn, M.J., & Rodriguez, E.M. (2012). Coping with chronic illness in childhood and adolescence. Annual Review Of Clinical Psychology, 8(1), 455-480. https://doi.org/10.1146/Annurev-Clinpsy-032511-143108

9. Er, M. (2006). Children, illness, parents and siblings. Journal of Pediatrics, 49(2), 155-168. Available from: https://cshd.org.tr/article/view/470
10. Inal-Emiroglu, F.N., & Akay, A.P. (2008). Chronic illness, hospitalization and child. Dokuz Eylul University Medical Faculty Journal, 22(2), 99-105.
11. Golics, C. J., Basra, M. K. A., Finlay, A. Y., & Salek, S. (2013). The impact of disease on family members: A critical aspect of medical care. Journal Of The Royal Society Of Medicine, 106(10), 399-407. https://doi.org/10.1177/0141076812472616
12. Herzer, M., Godiwala, N., Hommel, K.A., Driscoll, K., Mitchell, M., Crosby, L.E., ... & Modi, A.C. (2010). Family functioning in the context of pediatric chronic conditions. Journal Of Developmental & Behavioral Pediatrics, 31(1), 26-34. https://doi.org/10.1097/DBP.0b013e3181c7226b.
13. Hu, N., Fardell, J., Wakefield, C.E., Marshall, G.M., Bell, J.C., Nassar, N., & Lingam, R. (2022). School academic performance of children hospitalised with a chronic condition. Archives Of Disease İn Childhood, 107(3), 289-296. https://doi.org/10.1136/Archdischild-2020-321285
14. Hunt, S. M. (2009). Patterns of psychosocial functioning and mental health service utilization in children and adolescents with chronic health conditions or physical disabilities. Utah State University.
15. Jin, M., An, Q., & Wang, L. (2017). Chronic conditions in adolescents. Experimental And Therapeutic Medicine, 14(1), 478-482. https://doi.org/10.3892/Etm.2017.4526
16. Kansra, S., Calvert, R., & Jones, S. (2021). Stigma from medication use: an under recognised burden of care. Breathe, 17(1). https://doi.org/10.1183/20734735.0002-2021
17. Kratz, L., Uding, N., Trahms, C. M., Villareale, N., & Kieckhefer, G. M. (2009). Managing childhood chronic illness: Parent perspectives and implications for parent-provider relationships. Families, Systems, & Health, 27(4), 303. https://doi.org/10.1037/A0018114
18. Kutluk, M.T., & Yesilipek, A. (2022). Pediatric cancer registry in Turkey 2009-2021. Journal of Clinical Oncology, 40(16), e22020-e22020. https://doi.org/10.1200/JCO.2022.40.16_suppl.e22020
19. Mokkink, L. B., Van der Lee, J. H., Grootenhuis, M. A., Offringa, M., Heymans, H. S., & Dutch National Consensus Committee. (2008). Defining chronic diseases and health conditions in childhood (0–18 years of age): National consensus in the Netherlands. European Journal of Pediatrics, 167(12), 1441-1447. https://doi.org/10.1007/s00431-008-0697-y
20. Morton, R. W., Everard, M. L., & Elphick, H. E. (2014). Adherence in childhood asthma: the elephant in the room. Archives Of Disease İn Childhood, 99(10), 949-953. https://doi.org/10.1136/Archdischild-2014-306243
21. Mitchell, A. E., Morawska, A., & Mihelic, M. (2020). A systematic review of parenting interventions for child chronic health conditions. Journal Of Child Health Care, 24(4), 603-628. https://doi.org/10.1177/1367493519882850
22. Ozbay, Y., & Ilhan, T. (2019). QUALITY of lıfe and copıng among chıldren wıth chronıc ılness: a quası experımental study. The Journal Of Academic Social Science Studies, 6(8), 945-962. http://dx.doi.org/10.9761/JASSS1900
23. Sawyer, S., Duncan, R., & Drew, S. (2007). Adolescents with chronic disease: The Double Whammy. Australian Family Physician, 36(8).
24. Suris, J. C., Michaud, P. A., & Viner, R. (2004). The adolescent with a chronic condition. part 1: Developmental issues. Archives Of Disease İn Childhood, 89(10), 938-942. https://doi.org/10.1136/Adc.2003.045369
25. Sekerel, B. E., Turktas, H., Bavbek, S., Oksuz, E., & Malhan, S. (2020). Economic burden of pediatric asthma in Turkey: A cost of illness study from payer perspective. Turkish Thoracic Journal, 21(4), 248. https://doi.org/10.5152/turkthoracj.2019.19025
26. Toledano-Toledano, F., & Luna, D. (2020). The psychosocial profile of family caregivers of children with chronic diseases: A cross-sectional study. Biopsychosocial Medicine, 14, 1-9. https://doi.org/10.1186/S13030-020-00201-Y
27. Yesilkaya, E., Cinaz, P., Andıran, N., Bideci, A., Hatun, S., Sarı, E., ... & Craig, M. E. (2017). First report on the nationwide incidence and prevalence of type 1 diabetes among children in Turkey. Diabetic Medicine, 34(3), 405-410. https://doi.org/10.1111/Dme.13063
28. Yeo, M., & Sawyer, S. (2005). Chronic illness and disability. Bmj, 330(7493), 721-723. https://doi.org/10.1136/Bmj.330.7493.721
29. Van Der Lee, J. H., Mokkink, L. B., Grootenhuis, M. A., Heymans, H. S., & Offringa, M. (2007). Definitions and measurement of chronic health conditions in childhood: A systematic review. Jama, 297(24), 2741-2751. https://doi.org/10.1001/Jama.297.24.2741.
30. World Health Organization (WHO). (2020). Cancer Country Profile. Available From: Https://Cdn.Who.İnt/Media/Docs/Default-Source/Country-Profiles/Cancer/Tur-2020.Pdf