Research Article
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Year 2020, Volume: 10 Issue: 3, 430 - 438, 30.12.2020
https://doi.org/10.32448/entupdates.827544

Abstract

References

  • 1. American Psychiatric Association., American Psychiatric Association. DSM-5 Task Force. Diagnostic and statistical manual of mental disorders : DSM-5. 5th ed. Washington, D.C.: American Psychiatric Association; 2013. p. xliv, 947 p.
  • 2. Yairi E, Ambrose N. Early Childhood Stuttering for Clinicians by Clinicians. Austin, TX: PRO-ED; 2005. p. 521.
  • 3. Mansson H. Childhood stuttering: Incidence and development. Journal of Fluency Disorders 2000;25(1):47-57.
  • 4. McKinnon DH, McLeod S, Reilly S. The prevalence of stuttering, voice, and speech-sound disorders in primary school students in Australia. Lang Speech Hear Serv Sch 2007;38(1):5-15. doi: 10.1044/0161-1461(2007/002)
  • 5. Kefalianos E, Onslow M, Packman A, et al. The History of Stuttering by 7 Years of Age: Follow-Up of a Prospective Community Cohort. J Speech Lang Hear Res 2017;60(10):2828-39. doi: 10.1044/2017_JSLHR-S-16-0205
  • 6. Beilby JM, Byrnes ML, Meagher EL, Yaruss JS. The impact of stuttering on adults who stutter and their partners. J Fluency Disord 2013;38(1):14-29. doi: 10.1016/j.jfludis.2012.12.001
  • 7. Smith A, Weber C. How Stuttering Develops: The Multifactorial Dynamic Pathways Theory. J Speech Lang Hear Res 2017;60(9):2483-505. doi: 10.1044/2017_JSLHR-S-16-0343
  • 8. Ebrahim S. Clinical and public health perspectives and applications of health-related quality of life measurement. Soc Sci Med 1995;41(10):1383-94. doi: 10.1016/0277-9536(95)00116-o
  • 9. Hays RD, Reeve BB. Measurement and modeling of health-related quality of life. In: Killewo J, Heggenhougen HK, Quah SR, editors. Epidemiology and demography in public health. 1 ed. San Diego: Academic Press; 2010. p. 195-205.
  • 10. Craig A, Blumgart E, Tran Y. The impact of stuttering on the quality of life in adults who stutter. J Fluency Disord 2009;34(2):61-71. doi: 10.1016/j.jfludis.2009.05.002
  • 11. Hayhow R, Cray AM, Enderby P. Stammering and therapy views of people who stammer. J Fluency Disord 2002;27(1):1-16; quiz -7. doi: 10.1016/s0094-730x(01)00102-4
  • 12. Koedoot C, Bouwmans C, Franken MC, Stolk E. Quality of life in adults who stutter. J Commun Disord 2011;44(4):429-43. doi: 10.1016/j.jcomdis.2011.02.002
  • 13. Klein JF, Hood SB. The impact of stuttering on employment opportunities and job performance. J Fluency Disord 2004;29(4):255-73. doi: 10.1016/j.jfludis.2004.08.001
  • 14. Klompas M, Ross E. Life experiences of people who stutter, and the perceived impact of stuttering on quality of life: personal accounts of South African individuals. J Fluency Disord 2004;29(4):275-305. doi: 10.1016/j.jfludis.2004.10.001
  • 15. Reilly S, Onslow M, Packman A, et al. Natural history of stuttering to 4 years of age: a prospective community-based study. Pediatrics 2013;132(3):460-7. doi: 10.1542/peds.2012-3067
  • 16. de Sonneville-Koedoot C, Stolk EA, Raat H, Bouwmans-Frijters C, Franken MC. Health-related quality of life of preschool children who stutter. J Fluency Disord 2014;42:1-12. doi: 10.1016/j.jfludis.2014.09.001
  • 17. Chun RY, Mendes CD, Yaruss JS, Quesal RW. The impact of stuttering on quality of life of children and adolescents. Pro Fono 2010;22(4):567-9. doi: 10.1590/s0104-56872010000400035
  • 18. Doğan M, Nemli N, Bayram A, Kaya A, Yaşar M. Findings of quality of life in children with stuttering. Praxis of ORL 2016;4(2):64-9. doi: 10.5606/kbbu.2016.93063
  • 19. Petersson C, Simeonsson RJ, Enskar K, Huus K. Comparing children's self-report instruments for health-related quality of life using the International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY). Health Qual Life Outcomes 2013;11:75. doi: 10.1186/1477-7525-11-75
  • 20. Ravens-Sieberer U, Gosch A, Rajmil L, et al. KIDSCREEN-52 quality-of-life measure for children and adolescents. Expert Rev Pharmacoecon Outcomes Res 2005;5(3):353-64. doi: 10.1586/14737167.5.3.353
  • 21. Europe TKG. The KIDSCREEN Questionnaires – Quality of life questionnaires for children and adolescents. Handbook. Lengerich: Pabst Science Publishers; 2006. p.
  • 22. Baydur H, Ergin D, Gerçeklioğlu G, Eser E. Reliability and validity study of the KIDSCREEN Health-Related Quality of Life Questionnaire in a Turkish child/adolescent population. Anatolian Journal of Psychiatry 2016;17(6):496-505. doi: 0.5455/apd.214559
  • 23. Cohen J. Statistical power analysis for the behavioral sciences. 2nd ed. Hillsdale, N.J.: L. Erlbaum Associates; 1988. p. xxi, 567 p.
  • 24. Gürbüz-Özgür B, Özgür E. An Analysis of Sociodemographic and Clinical Characteristics in Children and Adolescents Diagnosed with Childhood Onset Speech Fluency Disorder. ENT Updates 2019;9(3):185-90. doi: 0.32448/entupdates.610265
  • 25. Baker BM, Blackwell PB. Identification and remediation of pediatric fluency and voice disorders. J Pediatr Health Care 2004;18(2):87-94. doi: 10.1016/j.pedhc.2003.09.008
  • 26. Kasbi F, Mokhlesin M, Maddah M, Noruzi R, Monshizadeh L, Khani M. Effects of Stuttering on Quality of Life in Adults Who Stutter. Middle East J Rehabil Health Stud 2015;2(1):e43352. doi: 10.17795/mejrh-25314
  • 27. Andrade CR, Sassi FC, Juste FS, Ercolin B. Quality of life of individuals with persistent developmental stuttering. Pro Fono 2008;20(4):219-24. doi: 10.1590/s0104-56872008000400003
  • 28. Yaruss JS. Assessing quality of life in stuttering treatment outcomes research. J Fluency Disord 2010;35(3):190-202. doi: 10.1016/j.jfludis.2010.05.010
  • 29. Tran Y, Blumgart E, Craig A. Subjective distress associated with chronic stuttering. J Fluency Disord 2011;36(1):17-26. doi: 10.1016/j.jfludis.2010.12.003
  • 30. Blumgart E, Tran Y, Craig A. Social anxiety disorder in adults who stutter. Depress Anxiety 2010;27(7):687-92. doi: 10.1002/da.20657
  • 31. Iverach L, O'Brian S, Jones M, et al. Prevalence of anxiety disorders among adults seeking speech therapy for stuttering. J Anxiety Disord 2009;23(7):928-34. doi: 10.1016/j.janxdis.2009.06.003
  • 32. Menzies RG, Onslow M, Packman A. Anxiety and Stuttering: Exploring a Complex Relationship. American Journal of Speech-Language Pathology 1999;8(1):3-10. doi: 10.1044/1058-0360.0801.03
  • 33. Yairi E, Ambrose NG. Early childhood stuttering I: persistency and recovery rates. J Speech Lang Hear Res 1999;42(5):1097-112. doi: 10.1044/jslhr.4205.1097
  • 34. Craig A, Hancock K. Anxiety in Children and Young Adolescents who Stutter. Australian Journal of Human Communication Disorders 1996;24(1):28-38. doi: 10.3109/asl2.1996.24.issue-1.04
  • 35. Messenger M, Packman A, Onslow M, Menzies R, O'Brian S. Children and adolescents who stutter: Further investigation of anxiety. J Fluency Disord 2015;46:15-23. doi: 10.1016/j.jfludis.2015.07.006
  • 36. Gunn A, Menzies RG, O'Brian S, et al. Axis I anxiety and mental health disorders among stuttering adolescents. J Fluency Disord 2014;40:58-68. doi: 10.1016/j.jfludis.2013.09.002
  • 37. Mulcahy K, Hennessey N, Beilby J, Byrnes M. Social anxiety and the severity and typography of stuttering in adolescents. J Fluency Disord 2008;33(4):306-19. doi: 10.1016/j.jfludis.2008.12.002
  • 38. Mooney S, Smith PK. Bullying and the Child who Stammers. BJSE 1995;22(1):24-7. doi: 10.1111/j.1467-8578.1995.tb00907.x
  • 39. Solberg ME, Olweus D. Prevalence estimation of school bullying with the Olweus Bully/Victim Questionnaire. Aggr Behav 2003;29(3):239-68. doi: https://doi.org/10.1002/ab.10047
  • 40. Bodur S, Tas-Torun Y, Gül H, et al. Parental attitudes in children with persistent developmental stuttering: a case-control study. Arch Clin Psychiatry 2019;46(4):103-6. doi: 10.1590/0101-60830000000204
  • 41. Adriaensens S, Beyers W, Struyf E. Impact of stuttering severity on adolescents' domain-specific and general self-esteem through cognitive and emotional mediating processes. J Commun Disord 2015;58:43-57. doi: 10.1016/j.jcomdis.2015.10.003
  • 42. Langevin M, Packman A, Onslow M. Parent perceptions of the impact of stuttering on their preschoolers and themselves. J Commun Disord 2010;43(5):407-23. doi: 10.1016/j.jcomdis.2010.05.003
  • 43. Robitail S, Simeoni MC, Ravens-Sieberer U, Bruil J, Auquier P, Group K. Children proxies' quality-of-life agreement depended on the country using the European KIDSCREEN-52 questionnaire. J Clin Epidemiol 2007;60(5):469-78. doi: 10.1016/j.jclinepi.2006.09.007
  • 44. Baydur H, Ergin D, Gerçeklioğlu G, Eser E. Comparison of the self and the proxy versions of the KIDSCREEN quality of life scale: To what extend can parents predict quality of life of their children? İzmir Dr Behçet Uz Çocuk Hast Dergisi 2016;6(1):15-24. doi: 10.5222/buchd.2016.015

Health-related quality of life based on KIDSCREEN-52 in stuttering children and adolescents

Year 2020, Volume: 10 Issue: 3, 430 - 438, 30.12.2020
https://doi.org/10.32448/entupdates.827544

Abstract

Objective: Stuttering is a communication disorder that can affect an individual’s life in many ways. This study aimed to evaluate the effects of stuttering on children and adolescents’ health-related quality of life (HRQoL).
Methods: This is a cross-sectional type of case-control study. Thirty-six children and adolescents diagnosed with stuttering according to DSM-5 and 37 age- and gender-matched healthy children and adolescents were included in the study. The child and adolescent’s HRQoL in both groups was evaluated using the KIDSCREEN-52 self and proxy reports.
Results: No significant difference was observed in the physical well-being, psychological well-being, moods and emotions, self-perception, autonomy, parental relationships and home life, financial resources, social support and peers, school environment, social acceptance-bullying dimensions in the KIDSCREEN-52 questionnaire between-group comparison of both report and proxy results. The parental score reports were found to be statistically significantly lower than the children with stuttering in social acceptance-bullying dimension. In contrast, the children’s scores in the dimensions of physical well-being, self-perception, parental relationships and home life, social support and peers and school environment were found to be statistically significantly lower than their parents.
Conclusion: According to the study results, it was observed that the HRQoL of children between the ages of
8-18 who stutter was not different from healthy children. Since factors affecting the HRQoL of children may be affected by developmental processes, the necessity of longitudinal assessment of the HRQoL of stuttering children should be considered.

References

  • 1. American Psychiatric Association., American Psychiatric Association. DSM-5 Task Force. Diagnostic and statistical manual of mental disorders : DSM-5. 5th ed. Washington, D.C.: American Psychiatric Association; 2013. p. xliv, 947 p.
  • 2. Yairi E, Ambrose N. Early Childhood Stuttering for Clinicians by Clinicians. Austin, TX: PRO-ED; 2005. p. 521.
  • 3. Mansson H. Childhood stuttering: Incidence and development. Journal of Fluency Disorders 2000;25(1):47-57.
  • 4. McKinnon DH, McLeod S, Reilly S. The prevalence of stuttering, voice, and speech-sound disorders in primary school students in Australia. Lang Speech Hear Serv Sch 2007;38(1):5-15. doi: 10.1044/0161-1461(2007/002)
  • 5. Kefalianos E, Onslow M, Packman A, et al. The History of Stuttering by 7 Years of Age: Follow-Up of a Prospective Community Cohort. J Speech Lang Hear Res 2017;60(10):2828-39. doi: 10.1044/2017_JSLHR-S-16-0205
  • 6. Beilby JM, Byrnes ML, Meagher EL, Yaruss JS. The impact of stuttering on adults who stutter and their partners. J Fluency Disord 2013;38(1):14-29. doi: 10.1016/j.jfludis.2012.12.001
  • 7. Smith A, Weber C. How Stuttering Develops: The Multifactorial Dynamic Pathways Theory. J Speech Lang Hear Res 2017;60(9):2483-505. doi: 10.1044/2017_JSLHR-S-16-0343
  • 8. Ebrahim S. Clinical and public health perspectives and applications of health-related quality of life measurement. Soc Sci Med 1995;41(10):1383-94. doi: 10.1016/0277-9536(95)00116-o
  • 9. Hays RD, Reeve BB. Measurement and modeling of health-related quality of life. In: Killewo J, Heggenhougen HK, Quah SR, editors. Epidemiology and demography in public health. 1 ed. San Diego: Academic Press; 2010. p. 195-205.
  • 10. Craig A, Blumgart E, Tran Y. The impact of stuttering on the quality of life in adults who stutter. J Fluency Disord 2009;34(2):61-71. doi: 10.1016/j.jfludis.2009.05.002
  • 11. Hayhow R, Cray AM, Enderby P. Stammering and therapy views of people who stammer. J Fluency Disord 2002;27(1):1-16; quiz -7. doi: 10.1016/s0094-730x(01)00102-4
  • 12. Koedoot C, Bouwmans C, Franken MC, Stolk E. Quality of life in adults who stutter. J Commun Disord 2011;44(4):429-43. doi: 10.1016/j.jcomdis.2011.02.002
  • 13. Klein JF, Hood SB. The impact of stuttering on employment opportunities and job performance. J Fluency Disord 2004;29(4):255-73. doi: 10.1016/j.jfludis.2004.08.001
  • 14. Klompas M, Ross E. Life experiences of people who stutter, and the perceived impact of stuttering on quality of life: personal accounts of South African individuals. J Fluency Disord 2004;29(4):275-305. doi: 10.1016/j.jfludis.2004.10.001
  • 15. Reilly S, Onslow M, Packman A, et al. Natural history of stuttering to 4 years of age: a prospective community-based study. Pediatrics 2013;132(3):460-7. doi: 10.1542/peds.2012-3067
  • 16. de Sonneville-Koedoot C, Stolk EA, Raat H, Bouwmans-Frijters C, Franken MC. Health-related quality of life of preschool children who stutter. J Fluency Disord 2014;42:1-12. doi: 10.1016/j.jfludis.2014.09.001
  • 17. Chun RY, Mendes CD, Yaruss JS, Quesal RW. The impact of stuttering on quality of life of children and adolescents. Pro Fono 2010;22(4):567-9. doi: 10.1590/s0104-56872010000400035
  • 18. Doğan M, Nemli N, Bayram A, Kaya A, Yaşar M. Findings of quality of life in children with stuttering. Praxis of ORL 2016;4(2):64-9. doi: 10.5606/kbbu.2016.93063
  • 19. Petersson C, Simeonsson RJ, Enskar K, Huus K. Comparing children's self-report instruments for health-related quality of life using the International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY). Health Qual Life Outcomes 2013;11:75. doi: 10.1186/1477-7525-11-75
  • 20. Ravens-Sieberer U, Gosch A, Rajmil L, et al. KIDSCREEN-52 quality-of-life measure for children and adolescents. Expert Rev Pharmacoecon Outcomes Res 2005;5(3):353-64. doi: 10.1586/14737167.5.3.353
  • 21. Europe TKG. The KIDSCREEN Questionnaires – Quality of life questionnaires for children and adolescents. Handbook. Lengerich: Pabst Science Publishers; 2006. p.
  • 22. Baydur H, Ergin D, Gerçeklioğlu G, Eser E. Reliability and validity study of the KIDSCREEN Health-Related Quality of Life Questionnaire in a Turkish child/adolescent population. Anatolian Journal of Psychiatry 2016;17(6):496-505. doi: 0.5455/apd.214559
  • 23. Cohen J. Statistical power analysis for the behavioral sciences. 2nd ed. Hillsdale, N.J.: L. Erlbaum Associates; 1988. p. xxi, 567 p.
  • 24. Gürbüz-Özgür B, Özgür E. An Analysis of Sociodemographic and Clinical Characteristics in Children and Adolescents Diagnosed with Childhood Onset Speech Fluency Disorder. ENT Updates 2019;9(3):185-90. doi: 0.32448/entupdates.610265
  • 25. Baker BM, Blackwell PB. Identification and remediation of pediatric fluency and voice disorders. J Pediatr Health Care 2004;18(2):87-94. doi: 10.1016/j.pedhc.2003.09.008
  • 26. Kasbi F, Mokhlesin M, Maddah M, Noruzi R, Monshizadeh L, Khani M. Effects of Stuttering on Quality of Life in Adults Who Stutter. Middle East J Rehabil Health Stud 2015;2(1):e43352. doi: 10.17795/mejrh-25314
  • 27. Andrade CR, Sassi FC, Juste FS, Ercolin B. Quality of life of individuals with persistent developmental stuttering. Pro Fono 2008;20(4):219-24. doi: 10.1590/s0104-56872008000400003
  • 28. Yaruss JS. Assessing quality of life in stuttering treatment outcomes research. J Fluency Disord 2010;35(3):190-202. doi: 10.1016/j.jfludis.2010.05.010
  • 29. Tran Y, Blumgart E, Craig A. Subjective distress associated with chronic stuttering. J Fluency Disord 2011;36(1):17-26. doi: 10.1016/j.jfludis.2010.12.003
  • 30. Blumgart E, Tran Y, Craig A. Social anxiety disorder in adults who stutter. Depress Anxiety 2010;27(7):687-92. doi: 10.1002/da.20657
  • 31. Iverach L, O'Brian S, Jones M, et al. Prevalence of anxiety disorders among adults seeking speech therapy for stuttering. J Anxiety Disord 2009;23(7):928-34. doi: 10.1016/j.janxdis.2009.06.003
  • 32. Menzies RG, Onslow M, Packman A. Anxiety and Stuttering: Exploring a Complex Relationship. American Journal of Speech-Language Pathology 1999;8(1):3-10. doi: 10.1044/1058-0360.0801.03
  • 33. Yairi E, Ambrose NG. Early childhood stuttering I: persistency and recovery rates. J Speech Lang Hear Res 1999;42(5):1097-112. doi: 10.1044/jslhr.4205.1097
  • 34. Craig A, Hancock K. Anxiety in Children and Young Adolescents who Stutter. Australian Journal of Human Communication Disorders 1996;24(1):28-38. doi: 10.3109/asl2.1996.24.issue-1.04
  • 35. Messenger M, Packman A, Onslow M, Menzies R, O'Brian S. Children and adolescents who stutter: Further investigation of anxiety. J Fluency Disord 2015;46:15-23. doi: 10.1016/j.jfludis.2015.07.006
  • 36. Gunn A, Menzies RG, O'Brian S, et al. Axis I anxiety and mental health disorders among stuttering adolescents. J Fluency Disord 2014;40:58-68. doi: 10.1016/j.jfludis.2013.09.002
  • 37. Mulcahy K, Hennessey N, Beilby J, Byrnes M. Social anxiety and the severity and typography of stuttering in adolescents. J Fluency Disord 2008;33(4):306-19. doi: 10.1016/j.jfludis.2008.12.002
  • 38. Mooney S, Smith PK. Bullying and the Child who Stammers. BJSE 1995;22(1):24-7. doi: 10.1111/j.1467-8578.1995.tb00907.x
  • 39. Solberg ME, Olweus D. Prevalence estimation of school bullying with the Olweus Bully/Victim Questionnaire. Aggr Behav 2003;29(3):239-68. doi: https://doi.org/10.1002/ab.10047
  • 40. Bodur S, Tas-Torun Y, Gül H, et al. Parental attitudes in children with persistent developmental stuttering: a case-control study. Arch Clin Psychiatry 2019;46(4):103-6. doi: 10.1590/0101-60830000000204
  • 41. Adriaensens S, Beyers W, Struyf E. Impact of stuttering severity on adolescents' domain-specific and general self-esteem through cognitive and emotional mediating processes. J Commun Disord 2015;58:43-57. doi: 10.1016/j.jcomdis.2015.10.003
  • 42. Langevin M, Packman A, Onslow M. Parent perceptions of the impact of stuttering on their preschoolers and themselves. J Commun Disord 2010;43(5):407-23. doi: 10.1016/j.jcomdis.2010.05.003
  • 43. Robitail S, Simeoni MC, Ravens-Sieberer U, Bruil J, Auquier P, Group K. Children proxies' quality-of-life agreement depended on the country using the European KIDSCREEN-52 questionnaire. J Clin Epidemiol 2007;60(5):469-78. doi: 10.1016/j.jclinepi.2006.09.007
  • 44. Baydur H, Ergin D, Gerçeklioğlu G, Eser E. Comparison of the self and the proxy versions of the KIDSCREEN quality of life scale: To what extend can parents predict quality of life of their children? İzmir Dr Behçet Uz Çocuk Hast Dergisi 2016;6(1):15-24. doi: 10.5222/buchd.2016.015
There are 44 citations in total.

Details

Primary Language English
Subjects Otorhinolaryngology
Journal Section Articles
Authors

Erdoğan Özgür 0000-0002-5182-8831

Börte Gürbüz Özgür 0000-0002-9176-7359

Publication Date December 30, 2020
Submission Date November 17, 2020
Acceptance Date December 20, 2020
Published in Issue Year 2020 Volume: 10 Issue: 3

Cite

APA Özgür, E., & Gürbüz Özgür, B. (2020). Health-related quality of life based on KIDSCREEN-52 in stuttering children and adolescents. ENT Updates, 10(3), 430-438. https://doi.org/10.32448/entupdates.827544
AMA Özgür E, Gürbüz Özgür B. Health-related quality of life based on KIDSCREEN-52 in stuttering children and adolescents. ENT Updates. December 2020;10(3):430-438. doi:10.32448/entupdates.827544
Chicago Özgür, Erdoğan, and Börte Gürbüz Özgür. “Health-Related Quality of Life Based on KIDSCREEN-52 in Stuttering Children and Adolescents”. ENT Updates 10, no. 3 (December 2020): 430-38. https://doi.org/10.32448/entupdates.827544.
EndNote Özgür E, Gürbüz Özgür B (December 1, 2020) Health-related quality of life based on KIDSCREEN-52 in stuttering children and adolescents. ENT Updates 10 3 430–438.
IEEE E. Özgür and B. Gürbüz Özgür, “Health-related quality of life based on KIDSCREEN-52 in stuttering children and adolescents”, ENT Updates, vol. 10, no. 3, pp. 430–438, 2020, doi: 10.32448/entupdates.827544.
ISNAD Özgür, Erdoğan - Gürbüz Özgür, Börte. “Health-Related Quality of Life Based on KIDSCREEN-52 in Stuttering Children and Adolescents”. ENT Updates 10/3 (December 2020), 430-438. https://doi.org/10.32448/entupdates.827544.
JAMA Özgür E, Gürbüz Özgür B. Health-related quality of life based on KIDSCREEN-52 in stuttering children and adolescents. ENT Updates. 2020;10:430–438.
MLA Özgür, Erdoğan and Börte Gürbüz Özgür. “Health-Related Quality of Life Based on KIDSCREEN-52 in Stuttering Children and Adolescents”. ENT Updates, vol. 10, no. 3, 2020, pp. 430-8, doi:10.32448/entupdates.827544.
Vancouver Özgür E, Gürbüz Özgür B. Health-related quality of life based on KIDSCREEN-52 in stuttering children and adolescents. ENT Updates. 2020;10(3):430-8.