Research Article
BibTex RIS Cite

COVID-19 Pandemisinde Kronik Psikiyatri Hastasına Bakım Verenlerin Deneyimleri: Nitel Bir Çalışma

Year 2022, Volume: 24 Issue: 1,2,3, 18 - 30, 17.10.2023

Abstract

Amaç: Bu araştırmada COVID-19 pandemisinde kronik psikiyatri hastasına bakım verenlerin yaşadıkları zorluklarını, ihtiyaçlarını ve başetme deneyimlerini belirlemek amaçlandı.
Yöntem: Araştırmada nitel araştırma yöntemlerinden, durum çalışması kullanıldı. Toplum Ruh Sağlığı Merkezinden yararlanan 15 bakım verici ile bireysel görüşmeler yapıldı. Veri toplama aracı olarak “Kişisel Bilgi Formu” ve “Yarı Yapılandırılmış Görüşme Formu” kullanıldı. Verilerin analizinde betimsel analiz yöntemi kullanıldı.
Bulgular: Araştırmada katılımcıların yaş ortalaması 50.73±10.32 olup; 10/15’i kadın, 12/15’i evli, 14/15’i çekirdek aile yapısında, 7/15’i ilkokul mezunu, 7/15’i çalışmıyor, 5/15’u hastanın kardeşidir. Hastaların 6/15’i şizofreni tanısına sahip, hastalık süresi ortalama 17.07±9.95 ve Toplum Ruh Sağlığı Merkezi’nden destek alma süresi ortalama 3.33±1.54’dür. Toplum Ruh Sağlığı Merkezinin anlamı sorusunda 10/15’i “destek” ve 4/15’u “hastalığa yönelik farkındalık”; Pandemi döneminde hasta ile ilgili yaşanılan zorluklar sorusunda 7/15’u “ilaç tedavisini yönetememe” ve 7/15’u “hastalık nüksü”; Pandemi döneminde ihtiyaçlar sorusunda 11/15’i “hastanın tedavisi” ve 9/15’i “hasta ile iletişim”; sorunlarla nasıl başettiniz sorusunda 10/15’i “Toplum Ruh Sağlığı Merkezi’nden destek isteme” ve 5/15’i “başedememe” temaları öne çıkan temalar olarak belirtilmiştir.
Sonuç: Bakım verenlerin birçok zorlukla karşı karşıya kaldıkları görülmektedir. Bu durum, etkili toplum ruh sağlığı hizmetlerine ve telepsikiyatriye olan ihtiyacı ortaya koymaktadır.

References

  • Arguvanlı, S., Taşcı, S. (2013). The Problems Of Caregivers In Bipolar Disorder. Journal of Erciyes University Faculty of Health Sciences,1 (1), 21-30.
  • Arpaci, I., Karataş, K., Baloğlu, M. (2020). The development and initial tests for the psychometric properties of the COVID-19 Phobia Scale (C19P-S). Pers Individ Dif, 164,110108. doi:10.1016/j.paid.2020.110108
  • Arslan, M., Yazici, A., Yilmaz, T., Coskun, S., Kurt, E. (2015). Long-term effects of a rehabilitation program on the clinical outcomes, social functionality, and life quality of schizophrenic patients--a follow-up study. Anatolian Journal of Psychiatry, 16(4), 238.
  • Bag, B. (2020). Empowerment: A contemporary approach to community mental health nursing practice. Current Approaches in Psychiatry, 12(3), 368-381. doi:10.18863/pgy.634913
  • Bajraktarov, S., Kalpak, G., Jovanovic, N. (2020). Community mental healthcare: new developments and innovative strategies. Curr Opin Psychiatry, 33(5),491-500. doi:10.1097/YCO.0000000000000629.
  • Boldrini, T., Girardi, P., Clerici, M., Conca, A., Creati, C.,…. , The Italian Network for Research on Mental Health during COVID-19 Pandemic. (2021). Consequences of the COVID-19 pandemic on admissions to general hospital psychiatric wards in Italy: Reduced psychiatric hospitalizations and increased suicidality. Progress in Neuropsychopharmacology & Biological Psychiatry, 110 (2021), 110304. doi:10.1016/j.pnpbp.2021.110304
  • Brown, E., Gray, R., Lo Monaco, S., O'Donoghue, B., Nelson, B., Thompson, A., Francey, S., McGorry, P. (2020). The potential impact of COVID-19 on psychosis: a rapid review of contemporary epidemic and pandemic research. Schizophr. Res, 222,79-87. doi:10.1016/j.schres.2020.05.005
  • Carers UK (2020). Caring behind closed doors Forgotten families in the coronavirus outbreak. [Data set]. https://www.carersuk.org/for-professionals/policy/policy-library/caring-behind-closed-doors-report. Accessed date: 20.10.2021
  • Carpiniello, B., Tusconi, M., Zanalda, E., Di Sciascio, G., Di Giannantonio, M., The Executive Committee of The Italian Society of Psychiatry. (2020). Psychiatry during the COVID-19 pandemic: a survey on mental health departments in Italy. BMC Psychiatry, 20,593. doi:10.1186/s12888-020-02997-z
  • Çelik-İnce, S.Ç. (2020). The reflections of covid-19 pandemic to indıvıduals with severe mental illness. Journal of Cumhuriyet University Health Sciences Institute, 5(3), 201-220.
  • Druss, B.G. (2020). Addressing the COVID-19 Pandemic in populations with serious mental illness. JAMA Psychiatry, 3, 2019-2020. doi:10.1001/jamapsikiyatri.2020.0894
  • Dubey, S., Biswas, P., Ghosh, R., Chatterjee, S., Dubey, M.J., Chatterjee, S., Lahiri, D., Lavie, C.J. (2020). Psychosocial impact of COVID-19. Diabetes & Metabolic Syndrome: Clinical Research & Reviews, 14,779-788. doi:10.1016/j.dsx.2020.05.035
  • Ensari, H., Gültekin, B.K., Karaman, D., Koç, A., Beşkardeş, A.F. (2013). The effects of the service of community mental health center on the schizophrenia patients -evaluation of quality of life, disabilities, general and social functioning- a summary of one year follow-up. Anatolian Journal of Psychiatry, 14(2),108-114. doi:10.5455/apd.36380
  • Gallagher, S., Wetherell, M.A. (2020). Risk of depression in family caregivers: unintended consequence of COVID-19. BJPsych Open, 6, e119, 1–5. doi:10.1192/bjo.2020.99
  • Gillard, S., Dare, C.,Hardy, J., Nyikavaranda, P., Rowan Olive, R., Shah, P., Birken, M., Foye, U., Ocloo, J., Pearce, E., Stefanidou, T., Pitman, A., Simpson, A., Johnson, S., Lloyd Evans, B., NIHR Mental Health Policy Research Unit COVID coproduction research group. (2021). Experiences of living with mental health problems during the COVID 19 pandemic in the UK: a coproduced, participatory qualitative interview study. Social Psychiatry and Psychiatric Epidemiology, 56,1447–1457. doi:10.1007/s00127-021-02051-7
  • Graneheim, U.H., Lundman, B. (2004). Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Education Today 24(2),105–12.
  • Hamada, K., Fan, X. (2020). The impact of COVID-19 on individuals living with serious mental illness. Schizophr Res, 222, 3–5. doi:10.1016/j.schres.2020.05.054
  • Holmes, E.A., O'Connor, R.C., Perry, V.H. (2020). Multidisciplinary research priorities for the COVID-19 pandemic: a call for action for mental health science. Lancet Psychiatry,7(6),547-560. doi:10.1016/S2215-0366(20)30168-1.
  • Kopelovich, S.L., Monroe-DeVita, M., Buck, B.E., Brenner, C., Moser, L., Jarskog, L.F. et al. (2021). Community mental health care delivery during the COVID-19 pandemic: Practical strategies for improving care for people with serious mental illness. Community Ment. Health J 57(3),405-415.
  • Ministry of Health. (2020). Community Mental Health Centers Study Guide during the COVID-19 Pandemic Normalization Period. [Data set]. https://khgmsaglikhizmetleridb.saglik.gov.tr/TR-66036/COVID-19-pandemisi-normallesme-doneminde-toplum-ruh-sagligi-merkezleri-calisma-rehberi.html
  • Moutier, C. (2021). Suicide Prevention in the COVID-19 Era:Transforming threat into opportunity. JAMA Psychiatry, 78(4),433-438. doi:10.1001/jamapsychiatry.2020.3746
  • Murphy, L., Markey, K., O’ Donnell, C., Moloney, M., Doody, O. (2021). The impact of the COVID-19 pandemic and its related restrictions on people with pre-existent mental health conditions: A scoping review. Archives of Psychiatric Nursing, 25(4), 375-394. doi:10.1016/j.apnu.2021.05.002
  • Mutlu, E., Anıl-Yağcıoğlu, A.E. (2021) Relapse in patients with serious mental disorders during the COVID‑19 outbreak: a retrospective chart review from a community mental health center. European Archives of Psychiatry and Clinical Neuroscience, 271,381–383. doi:10.1007/s00406-020-01203-1
  • Özdemir, I., Şafak, Y., Örsel, S., Kahiloğullari, A. K ., Karadağ, H. (2017). Investigation of the efficacy of a psychiatric-social rehabilitation performed in patients with schizophrenia in a community mental health center: Controlled study. Anatolian Journal of Psychiatry, 18(5), 419. doi:10.5455/apd.254450
  • Phillips, D., Paul, G., Fahy, M., Dowling-Hetherington, L., Kroll, T., Moloney, B., … Lafferty, A. (2020). The invisible workforce during the COVID-19 pandemic: Family carers at the frontline. HRB Open Res, 3,24. doi:10.12688/hrbopenres.13059.1.
  • RTE (2020a). Caring for the carers during COVID-19 outbreak. [Data set]. https://www.rte.ie/news/2020/0426/1134890-caring-for-the-carers-during-covid-19/ Accessed date: 12.10.2021
  • Seminog, O.O., Goldacre, M.J. (2013). Risk of pneumonia and pneumococcal disease in people with severe mental illness: English record linkage studies. Thorax, 68:171–176. doi:10.1136/thoraxjnl-2012-202480
  • Shore, J.H., Schneck, C.D., Mishkind, M.C. (2020). Telepsychiatry and the coronavirus disease 2019 pandemic—Current and futureoutcomes of the rapid virtualization of psychiatric care. JAMA Psychiatry, 77 (12),1211-1212. doi:10.1001/jamapsychiatry.2020.1643
  • Söğütlü, L., Özen, Ş., Varlik, C., Güler, A. (2017). Psychosocial skill training applied to schizophrenia patients at community mental health center and the results. Anatolian Journal of Psychiatry, 18(2), 121-128. doi:10.5455/apd.226040
  • Turkish Psychiatric Association, (2020). Preventive, preventive and curative psychiatric services in the treatment of COVID-19. [Data set]. (https://psikiyatri.org.tr/TPDData/Uploads/files/COVID19_Pandemi_PsikiyatrikTedavilerTPDRTACB-05052020.pdf. Accessed date: 20.10.2021
  • World Health Organisation (2021a). World Health Organization Coronavirus disease 2019 (COVID-19). [Data set]. https://www.who.int/emergencies/diseases/novel-coronavirus-2019/situation-reports/ Accessed date: 11.10.2021
  • World Health Organisation (2021b) COVID-19 disrupting mental health services in most countries, WHO survey [Data set]. https://www.who.int/news/item/05-10-2020-covid-19-disrupting-mental-health-services-in-most-countries-who-survey.Accessed date: 11.10.2021
  • Yao, H., Chen, J.H., Xu, Y.F. (2020). Patients with mental health disorders in the COVID-19 epidemic. Lancet Psychiatry, 7(4),e21. doi:10.1016/S2215-0366(20)30090-0
  • Yönder-Ertem, M. (2020). Evaluation of Family Functions of Patients’ Served by The Community Mental Health Center. Journal of Cumhuriyet University Health Sciences Institute, (5)3,161- 171.

The Experiences of Caregivers of Chronic Psychiatric Patients in the COVID-19 Pandemic : Qualititative Study

Year 2022, Volume: 24 Issue: 1,2,3, 18 - 30, 17.10.2023

Abstract

Objective: In this study, it was aimed to determine the difficulties, needs and coping experiences of caregivers of chronic psychiatric patients during the COVID-19 pandemic.
Method: One of the qualitative research methods, was a case study. Individual interviews were conducted with 15 relatives of patients who benefited from the Community Mental Health Center. A Personal Information Form and A Semi-Structured Interview Form were used as data collection tools. Conventional content analysis was used to analyze the data.
Results: The average age of the participants in the study is 50.73 ± 10.32; 10/15 are female, 12/15 are married, 14/15 are in a nuclear family structure, 7/15 are primary school graduates, 7/15 of them do not work and 5/15 are siblings of the patient. 6/15 of the patients have a diagnosis of schizophrenia, the average duration of the disease is 17.07 ± 9.95 and the average time to receive support from the Community Mental Health Center is 3.33 ± 1.54. The difficulties experienced by the patient during the pandemic period, 7/15 is not being able to manage patients’ drug treatment and 7/15 experiencing disease recurrence. The caretakers during the pandemic period experienced 11/15 need for treatment for patients and 9/15 need for communication with the patients. In relation to how caretakers managed the pandemic, 10/15 were asking for support from the Community Mental Health Center and 5/15 were unable to cope.
Conclusion: It is seen that caregivers are faced with many difficulties. This reveals the need for effective community mental health services and telepsychiatry.

References

  • Arguvanlı, S., Taşcı, S. (2013). The Problems Of Caregivers In Bipolar Disorder. Journal of Erciyes University Faculty of Health Sciences,1 (1), 21-30.
  • Arpaci, I., Karataş, K., Baloğlu, M. (2020). The development and initial tests for the psychometric properties of the COVID-19 Phobia Scale (C19P-S). Pers Individ Dif, 164,110108. doi:10.1016/j.paid.2020.110108
  • Arslan, M., Yazici, A., Yilmaz, T., Coskun, S., Kurt, E. (2015). Long-term effects of a rehabilitation program on the clinical outcomes, social functionality, and life quality of schizophrenic patients--a follow-up study. Anatolian Journal of Psychiatry, 16(4), 238.
  • Bag, B. (2020). Empowerment: A contemporary approach to community mental health nursing practice. Current Approaches in Psychiatry, 12(3), 368-381. doi:10.18863/pgy.634913
  • Bajraktarov, S., Kalpak, G., Jovanovic, N. (2020). Community mental healthcare: new developments and innovative strategies. Curr Opin Psychiatry, 33(5),491-500. doi:10.1097/YCO.0000000000000629.
  • Boldrini, T., Girardi, P., Clerici, M., Conca, A., Creati, C.,…. , The Italian Network for Research on Mental Health during COVID-19 Pandemic. (2021). Consequences of the COVID-19 pandemic on admissions to general hospital psychiatric wards in Italy: Reduced psychiatric hospitalizations and increased suicidality. Progress in Neuropsychopharmacology & Biological Psychiatry, 110 (2021), 110304. doi:10.1016/j.pnpbp.2021.110304
  • Brown, E., Gray, R., Lo Monaco, S., O'Donoghue, B., Nelson, B., Thompson, A., Francey, S., McGorry, P. (2020). The potential impact of COVID-19 on psychosis: a rapid review of contemporary epidemic and pandemic research. Schizophr. Res, 222,79-87. doi:10.1016/j.schres.2020.05.005
  • Carers UK (2020). Caring behind closed doors Forgotten families in the coronavirus outbreak. [Data set]. https://www.carersuk.org/for-professionals/policy/policy-library/caring-behind-closed-doors-report. Accessed date: 20.10.2021
  • Carpiniello, B., Tusconi, M., Zanalda, E., Di Sciascio, G., Di Giannantonio, M., The Executive Committee of The Italian Society of Psychiatry. (2020). Psychiatry during the COVID-19 pandemic: a survey on mental health departments in Italy. BMC Psychiatry, 20,593. doi:10.1186/s12888-020-02997-z
  • Çelik-İnce, S.Ç. (2020). The reflections of covid-19 pandemic to indıvıduals with severe mental illness. Journal of Cumhuriyet University Health Sciences Institute, 5(3), 201-220.
  • Druss, B.G. (2020). Addressing the COVID-19 Pandemic in populations with serious mental illness. JAMA Psychiatry, 3, 2019-2020. doi:10.1001/jamapsikiyatri.2020.0894
  • Dubey, S., Biswas, P., Ghosh, R., Chatterjee, S., Dubey, M.J., Chatterjee, S., Lahiri, D., Lavie, C.J. (2020). Psychosocial impact of COVID-19. Diabetes & Metabolic Syndrome: Clinical Research & Reviews, 14,779-788. doi:10.1016/j.dsx.2020.05.035
  • Ensari, H., Gültekin, B.K., Karaman, D., Koç, A., Beşkardeş, A.F. (2013). The effects of the service of community mental health center on the schizophrenia patients -evaluation of quality of life, disabilities, general and social functioning- a summary of one year follow-up. Anatolian Journal of Psychiatry, 14(2),108-114. doi:10.5455/apd.36380
  • Gallagher, S., Wetherell, M.A. (2020). Risk of depression in family caregivers: unintended consequence of COVID-19. BJPsych Open, 6, e119, 1–5. doi:10.1192/bjo.2020.99
  • Gillard, S., Dare, C.,Hardy, J., Nyikavaranda, P., Rowan Olive, R., Shah, P., Birken, M., Foye, U., Ocloo, J., Pearce, E., Stefanidou, T., Pitman, A., Simpson, A., Johnson, S., Lloyd Evans, B., NIHR Mental Health Policy Research Unit COVID coproduction research group. (2021). Experiences of living with mental health problems during the COVID 19 pandemic in the UK: a coproduced, participatory qualitative interview study. Social Psychiatry and Psychiatric Epidemiology, 56,1447–1457. doi:10.1007/s00127-021-02051-7
  • Graneheim, U.H., Lundman, B. (2004). Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Education Today 24(2),105–12.
  • Hamada, K., Fan, X. (2020). The impact of COVID-19 on individuals living with serious mental illness. Schizophr Res, 222, 3–5. doi:10.1016/j.schres.2020.05.054
  • Holmes, E.A., O'Connor, R.C., Perry, V.H. (2020). Multidisciplinary research priorities for the COVID-19 pandemic: a call for action for mental health science. Lancet Psychiatry,7(6),547-560. doi:10.1016/S2215-0366(20)30168-1.
  • Kopelovich, S.L., Monroe-DeVita, M., Buck, B.E., Brenner, C., Moser, L., Jarskog, L.F. et al. (2021). Community mental health care delivery during the COVID-19 pandemic: Practical strategies for improving care for people with serious mental illness. Community Ment. Health J 57(3),405-415.
  • Ministry of Health. (2020). Community Mental Health Centers Study Guide during the COVID-19 Pandemic Normalization Period. [Data set]. https://khgmsaglikhizmetleridb.saglik.gov.tr/TR-66036/COVID-19-pandemisi-normallesme-doneminde-toplum-ruh-sagligi-merkezleri-calisma-rehberi.html
  • Moutier, C. (2021). Suicide Prevention in the COVID-19 Era:Transforming threat into opportunity. JAMA Psychiatry, 78(4),433-438. doi:10.1001/jamapsychiatry.2020.3746
  • Murphy, L., Markey, K., O’ Donnell, C., Moloney, M., Doody, O. (2021). The impact of the COVID-19 pandemic and its related restrictions on people with pre-existent mental health conditions: A scoping review. Archives of Psychiatric Nursing, 25(4), 375-394. doi:10.1016/j.apnu.2021.05.002
  • Mutlu, E., Anıl-Yağcıoğlu, A.E. (2021) Relapse in patients with serious mental disorders during the COVID‑19 outbreak: a retrospective chart review from a community mental health center. European Archives of Psychiatry and Clinical Neuroscience, 271,381–383. doi:10.1007/s00406-020-01203-1
  • Özdemir, I., Şafak, Y., Örsel, S., Kahiloğullari, A. K ., Karadağ, H. (2017). Investigation of the efficacy of a psychiatric-social rehabilitation performed in patients with schizophrenia in a community mental health center: Controlled study. Anatolian Journal of Psychiatry, 18(5), 419. doi:10.5455/apd.254450
  • Phillips, D., Paul, G., Fahy, M., Dowling-Hetherington, L., Kroll, T., Moloney, B., … Lafferty, A. (2020). The invisible workforce during the COVID-19 pandemic: Family carers at the frontline. HRB Open Res, 3,24. doi:10.12688/hrbopenres.13059.1.
  • RTE (2020a). Caring for the carers during COVID-19 outbreak. [Data set]. https://www.rte.ie/news/2020/0426/1134890-caring-for-the-carers-during-covid-19/ Accessed date: 12.10.2021
  • Seminog, O.O., Goldacre, M.J. (2013). Risk of pneumonia and pneumococcal disease in people with severe mental illness: English record linkage studies. Thorax, 68:171–176. doi:10.1136/thoraxjnl-2012-202480
  • Shore, J.H., Schneck, C.D., Mishkind, M.C. (2020). Telepsychiatry and the coronavirus disease 2019 pandemic—Current and futureoutcomes of the rapid virtualization of psychiatric care. JAMA Psychiatry, 77 (12),1211-1212. doi:10.1001/jamapsychiatry.2020.1643
  • Söğütlü, L., Özen, Ş., Varlik, C., Güler, A. (2017). Psychosocial skill training applied to schizophrenia patients at community mental health center and the results. Anatolian Journal of Psychiatry, 18(2), 121-128. doi:10.5455/apd.226040
  • Turkish Psychiatric Association, (2020). Preventive, preventive and curative psychiatric services in the treatment of COVID-19. [Data set]. (https://psikiyatri.org.tr/TPDData/Uploads/files/COVID19_Pandemi_PsikiyatrikTedavilerTPDRTACB-05052020.pdf. Accessed date: 20.10.2021
  • World Health Organisation (2021a). World Health Organization Coronavirus disease 2019 (COVID-19). [Data set]. https://www.who.int/emergencies/diseases/novel-coronavirus-2019/situation-reports/ Accessed date: 11.10.2021
  • World Health Organisation (2021b) COVID-19 disrupting mental health services in most countries, WHO survey [Data set]. https://www.who.int/news/item/05-10-2020-covid-19-disrupting-mental-health-services-in-most-countries-who-survey.Accessed date: 11.10.2021
  • Yao, H., Chen, J.H., Xu, Y.F. (2020). Patients with mental health disorders in the COVID-19 epidemic. Lancet Psychiatry, 7(4),e21. doi:10.1016/S2215-0366(20)30090-0
  • Yönder-Ertem, M. (2020). Evaluation of Family Functions of Patients’ Served by The Community Mental Health Center. Journal of Cumhuriyet University Health Sciences Institute, (5)3,161- 171.
There are 34 citations in total.

Details

Primary Language Turkish
Subjects Mental Health Nursing, Health Care Administration
Journal Section Research Articles
Authors

Burcu Ceylan 0000-0002-0795-6174

Selda Polat

Publication Date October 17, 2023
Published in Issue Year 2022 Volume: 24 Issue: 1,2,3

Cite

APA Ceylan, B., & Polat, S. (2023). COVID-19 Pandemisinde Kronik Psikiyatri Hastasına Bakım Verenlerin Deneyimleri: Nitel Bir Çalışma. Hemşirelikte Araştırma Geliştirme Dergisi, 24(1,2,3), 18-30.