Investigation of the Effect of Functional Levels of Children with Cerebral Palsy on Parents' Quality of Life in Northern Cyprus

Year 2022, Volume: 5 Issue: 1, 22 - 29, 20.06.2022

Melis Bağkur , Bilge Başakçı Çalık , Tuba Yerlikaya , Uğur Cavlak

https://doi.org/10.33438/ijdshs.1077248

Abstract

The aim this research, determine the level of influence of families with children with cerebral palsy in Northern Cyprus and to reveal the difference in being affected between parents. The study was carried out on 49 children with CP and 49 couples of parents. Pediatric Functional Independence Measure (WeeFIM) was used to evaluate the functional status of children, and the Impact of Family Scale (IFS) and the Quality of Life Scale (SF-36) were used to measure the influence of families. Those with WeeFIM total score between 18-90, the group requiring observation (CNO) (n = 34), and those between 91-126 were divided into independent group (IC) (n = 15). No relationship was found between IFS, SF-36 score of parents and functional level of their children. There was a positive correlation between mothers and fathers in IFS and SF-36 scores within groups (CNO IFS p: 0,021 r: 0,394; CNO SF-36 p: 0,001 r: 0,546; IC IFS p: 0,038 r: 0,602; IC SF-36 p: 0,001 r: 0,825). When the levels of influence and quality of life of the mothers and fathers within the groups were compared, it was observed that there was not a significant difference between the mothers and fathers in the group CNO and in the IC group (p>0.05). According to this study family influences of parents with children with cerebral palsy in Northern Cyprus are not affected by their functional levels. The fact that there was no difference between mothers and fathers in terms of quality of life and level of influence revealed the geographical cultural difference in favor of women.

Keywords

Family influence, functional level, cerebral palsy

References

• Akmeşe, P., Mutlu, A., Günel, M.K. (2007). Investigation of anxiety levels of mothers of children with cerebral palsy. Journal of Child Health and Diseases; 50 (4): 236–240.
• Albayrak, I., Biber, A., Çalışkan, A., Levendoğlu, F. (2019). Assessment of pain, care burden, depression level, sleep quality, fatigue and quality of life in the mothers of children with cerebral palsy. J Child Health Care; 23(3): 483-494.
• Al-Gamal, E., Long, T. (2013). Psychological distress and perceived support among Jordanian parents living with a child with cerebral palsy: a cross-sectional study. Scand J Caring Sci; 27(3): 624-31.
• Barreto, T.M., Bento, M.N., Barreto, T.M., Jagersbacher, J.G., Jones, N.S., Lucena, R., et al. (2020). Prevalence of depression, anxiety, and substance-related disorders in parents of children with cerebral palsy: a systematic review. Dev Med Child Neurol; 62(2): 163-168.
• Çetin, S.Y., Calık, B.B., Taşpınar, F., Aslan, U.B. (2017). The effect of functional independence level and age’s on the quality of life of mother’s with down syndrome children. Curr Pediatr Res; 21(4): 652-657.
• Davis, E., Shelly, A., Waters, E., Boyd, R., Cook, K., Davern, M., et al. (2010). The impact of caring for a child with cerebral palsy: quality of life for mothers and fathers. Child Care Health Dev; 36(1): 63-73.
• Dehghan, L., Dalvand, H., Feizi, A., Samadi, S.A., Hosseini. S.A. (2016). Quality of life in mothers of children with cerebral palsy: The role of children's gross motor function. J Child Health Care; 20(1): 17-26.
• Glinac, A., Matović, L., Delalić, A., Mešalić, L. (2017). Quality of Life in Mothers of Children with Cerebral Palsy. Acta Clin Croat; 56(2): 299-307.
• Lee, M.H., Matthews, A.K., Park, C. (2019). Determinants of Health-related Quality of Life Among Mothers of Children with Cerebral Palsy. J Pediatr Nurs; 44: 1-8.
• Manuel, J., Naughton, M.J., Balkrishnan, R., Paterson Smith, B., Koman, L.A. (2003). Stress and adaptation in mothers of children with cerebral palsy. J Pediatr Psychol; 28(3): 197-201.
• Msall, M.E., DiGaudio, K., Rogers, B.T., LaForest, S., Catanzaro, N.L., Campbell, J, et al. (1994). The Functional Independence Measure for Children (WeeFIM). Conceptual basis and pilot use in children with developmental disabilities. Clin Pediatr (Phila); 33(7): 421-30.
• Olawale, O.A., Deih, A.N., Yaadar, R.K. (2013). Psychological impact of cerebral palsy on families: The African perspective. J Neurosci Rural Pract; 4(2):159-63.
• Panteliadis, C.P. (2004). Serebral Palsi. Ankara: Pelikan Yayınları. ISBN: 978-605-64741-9-4
• Parisi, L., Ruberto, M., Precenzano, F., Di Filippo, T., Russotto, C., Maltese, A., et al. (2016). The quality of life in children with cerebral palsy. Acta Medica Mediterr; 32: 1665.
• Parkes, J., Caravale, B., Marcelli, M., Franco, F., Colver, A. (2011). Parenting stress and children with cerebral palsy: a European cross-sectional survey. Dev Med Child Neurol; 53(9): 815-821.
• Pelchat, D., Levert, M.J., Bourgeois-Guérin, V. (2009). How do mothers and fathers who have a child with a disability describe their adaptation/ transformation process? J Child Health Care; 13(3): 239-59.
• Raina, P., O'Donnell, M., Rosenbaum, P., Brehaut, J., Walter, S.D., Russell, D., et al. (2005). The health and well-being of caregivers of children with cerebral palsy. Pediatrics; 115(6): e626-36.
• Ramanandi, D., Parmar, D., Panchal, D., Prabhakar, D. (2019). Impact of Parenting a Child with Cerebral Palsy on the Quality of Life of Parents: A Systematic Review of Literature. Disability, CBR & Inclusive Development; 30(1), 57-93.
• Ribeiro, M.F., Sousa, A.L., Vandenberghe, L., Porto, C.C. (2014). Parental stress in mothers of children and adolescents with cerebral palsy. Rev Lat Am Enfermagem; 22(3): 440-7.
• Rodrigues dos Santos, M.T., Bianccardi, M., Celiberti, P., de Oliveira Guaré, R. (2009). Dental caries in cerebral palsied individuals and their caregivers' quality of life. Child Care Health Dev; 35(4): 475-81.
• Stein, R.E., Riessman, C.K. (1980). The development of an impact-on-family scale: preliminary findings. Med Care; 18(4): 465-72.
• Ware, J.E., Jr, Sherbourne, C.D. (1992). The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care; 30(6): 473-83.