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Year 2012, Issue: 27, 211 - 230, 12.09.2013

Yazar: Linda L.treloar Çev. Mehmet Bahçekapılı Linda L. Treloar

Abstract

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Keywords

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References

  • Baldacchino D. & Draper P. (2001) Spiritual coping strategies: a review of the nursing research literature. Journal of Advanced Nursing 34, 833–841.
  • Bennett T., Deluca D.A. & Allen R.W. (1995) Religion and children with disabilities. Journal of Religion and Health 34, 301–312.
  • Blair W.A. (1994) Ministry to persons with disabilities: can we do better? Journal of Religion in Disability and Rehabilitation 1, 1–9.
  • Blair W. & Davidson D. (1993) To the glory of God: Hesed, hospitality and disabilities. In And Show Steadfast Love (Merrick L.H. ed.), Presbyterian Church, Louisville, KY, pp. 17–28
  • Dobson J. (1993) When God Doesn’t Make Sense. Tyndale House, Wheaton, IL.
  • Eiesland N.L. (1994) The Disabled God: Toward a Liberatory Theology of Disability. Abingdon Press, Nashville, TN.
  • Evans R.L., Bishop D.S. & Ousley R.T. (1992) Providing care to persons with physical disability. American Journal of Physical Medicine and Rehabilitation 71, 140–144.
  • Featherstone H. (1980) A Difference in the Family: Life with a Disabled Child. Basic Books, New York.
  • Ferguson P.M., Gartner A. & Lipsky D.K. (2000) The experience ofdisability in families: A synthesis of research and parent narratives. In Prenatal Testing and Disability Rights (Parens E. & Asch A. eds), Washington: D.C. Georgetown University Press, pp. 72–94.
  • Glaser B.G. (1978) Theoretical Sensitivity. Sociology Press, Mill Valley, CA.
  • Glaser B.G. (1992) Basics of Grounded Theory Analysis: Emergence Versus Forcing. Sociology Press, Mill Valley, CA.
  • Gourgey C. (1993) Enlarge the site of your tent: making a place in the church for people with disabilities. In And Show Steadfast Love (Merrick L.H. ed.), Presbyterian Church, Louisville, KY, pp. 29–45.
  • Hanline M.F. (1991) Transitions and critical events in the family life cycle: implications for providing support to families of children with disabilities. Psychology in the Schools 28, 53–59.
  • Kearney P.M. & Griffn T. (2001) Between joy and sorrow: being a parent of a child with developmental disability. Journal of Advanced Nursing 34, 582–592.
  • Koenig H.G., McCullough M.E. & Larson D.B. (2001) Handbook of Religion and Health. Oxford University Press, Oxford, New York.
  • Krauss M.W. (1993) Child-related and parenting stress: similarities and differences between mothers and fathers of children with disabilities. American Journal on Mental Retardation 97, 393–404.
  • Lofand J. & Lofand L.H. (1984) Developing analysis. In A Guide to Qualitative Observation and Analysis, 2nd edn. Wadsworth, Belmont, CA, pp. 131–137.
  • Marinelli R.P. & Orto A.E.D. (eds) (1999) The Psychological and Social Impact of Disability, 4th edn. Springer, New York.
  • McCubbin H.I., Cauble A.E. & Patterson J.M. (eds) (1982) Family Stress, Coping, and Social Support. Charles C. Thomas, Springfeld, IL.
  • Moltmann J. (1983) The liberation and acceptance of the handicapped. In The Power of the Powerless. Harper & Row, San Francisco, pp. 136–154
  • Moustakas C. (1990) Heuristic Research: Design, Methodology, and Applications. Sage, Newbury Park, CA.
  • Mullins J.B. (1987) Authentic voices from parents of exceptional children. Family Relations 36, 30–33.
  • National Association of Evangelicals (2002) Statement of Faith. Available: http://www.juc.edu/html/secondary/faith.htm (9 July 2002).
  • National Council of Churches of Christ (1995) NCCC Policy Statement on Disabilities, the Body of Christ, and the Wholeness of Society. National Council of Churches of Christ Committee on Disabilities, New York.
  • National Organization on Disability (2002) Religion Division. Available: http://www.nod.org/cont/dsp_cont_loc_hme.cfm? locationId=14&locationNm=Religion (9 July 2002).
  • Northway R. (1997) Disability and oppression: some implications for nurses and nursing. Journal of Advanced Nursing 26, 736–743. Olkin R. (1999) What Psychotherapists Should Know About Disability. The Guilford Press, New York.
  • Olsen R. & Maslin-Prothero P. (2001) Dilemmas in the provision of own-home respite support for parents of young children with complex health care needs: evidence from an evaluation. Journal of Advanced Nursing 34, 603–610.
  • Paterson G.W. (1975a) Helping Your Handicapped Child. Augsberg Publishing House, Minneapolis, MN.
  • Paterson G.W. (1975b) Ministering to the family of the handicapped child. Journal of Religion and Health 14, 165–176.
  • Rehm R.S. (1999) Religious faith in Mexican-American families dealing with chronic childhood illness. Image: Journal of Nursing Scholarship 31, 33–38.
  • Richardson M. (1997) Addressing barriers: disabled rights and the implications for nursing of the social construct of disability. Journal of Advanced Nursing 25, 1269–1275.
  • Rogers-Dulan J. & Blacher J. (1995) African American families, religion, and disability: a conceptual framework. Mental Retardation 33, 226–238.
  • Scottsdale Bible Church. Statement of Faith (2002) Available: http://www.scottsdalebible.com/statementoffaith.html (9 July 2002).
  • Scullion P. A. (1999) Conceptualizing disability in nursing: some evidence from students and their teachers. Journal of Advanced Nursing 29, 648–657.
  • Seligman M. & Darling R.B. (1997) Ordinary Families, Special Children: A Systems Approach to Childhood Disability, 2nd edn. Guilford Press, New York.
  • Singer G.H.S. & Irvin L.K. (1989) Family caregiving, stress, and support. In Support for Caregiving Families: Enabling Positive Adaptation to Disability. Paul H. Brookes, Baltimore, pp. 3–25.
  • Summers J.A., Behr S.K. & Turnbull A.P. (1989) Positive adaptation and coping strengths of families who have children with disabilities. In Support for Caregiving Families: Enabling Positive Adaptation to Disability (Singer G.H.S. & Irvin L.K. eds), Paul H. Brooke, Baltimore, pp. 27–40.
  • Taanila A., Kokkonen J. & Jarvelin M.-R. (1996) The long-term effects of children’s early-onset disability on marital relationships. Developmental Medicine and Child Neurology 38, 567–577.
  • Treloar L.L. (1999) Perceptions of spiritual beliefs, response to disability, and the church. Unpublished Doctoral Dissertation (listed in Dissertation Abstracts International, Vol./Issue 60-02A, University Microflms International no. AAI9919753), The Union Institute and University, Cincinnati, OH.
  • Treloar L.L. (2000) Integration of spirituality into health care practice by nurse practitioners. Journal of the American Academy of Nurse Practitioners 12, 280–285.
  • Treloar L.L. & Artinian B. (2001) Chapter 19: Populations affected by disabilities. In Community Health Nursing: Promoting the Health of Aggregates, 3rd edn (Nies M.A. & McEwen M. eds), W.B. Saunders, Philadelphia, PA, pp. 496–525.
  • Trute B. & Hauch C. (1988) Building on family strength: a study of families with positive adjustment to the birth of a developmentally disabled child. Journal of Marital and Family Therapy 14, 185–193.
  • United States Bureau of the Census (1997) Census Brief 97–5: Disabilities Affect One-Fifth of All Americans [Online]. US Census Bureau. Available: http://www.census.gov:80/prod/3/97pubs/cenbr975.pdf (20 December 1999).
  • Van Riper M., Ryff C. & Pridham K. (1992) Parental and family well-being in families of children with Down syndrome: a comparative study. Research in Nursing and Health 15, 227–235.
  • Weisner T.S., Beizer L. & Stolze L. (1991) Religion and families of children with developmental delays. American Journal on Mental Retardation 95, 647–662.
  • Weiss R.S. (1994) Issues in interviewing, analysis of data. In Learning from Strangers: the Art and Method of Qualitative Interview Studies. Free Press, New York, pp. 121–182.
  • Wright N. & Wright J. (1993) I’ll Love You Forever: Accepting Your Child When Your Expectations Are Unfulflled. Focus on the Family Publishing, Colorado Springs, CO.
  • Wrigley M. & LaGory M. (1994) The role of religion and spirituality in rehabilitation: a sociological perspective. Journal of Religion in Disability and Rehabilitation 1, 27–40.
  • Zuk G.H., Miller R.L., Bartram J.B. & Kling F. (1961) Maternal acceptance of retarded children: a questionnaire study of attitudes and religious background. Child Development 32, 525–540.

Engellilik, Dini İnançlar ve Kilise: Engelli yetişkinlerin ve aile bireylerinin deneyimleri

Year 2012, Issue: 27, 211 - 230, 12.09.2013

Yazar: Linda L.treloar Çev. Mehmet Bahçekapılı Linda L. Treloar

Abstract

Amaçlar: Bu makale, engelli insanların ve aile bireylerinin
engellilik durumlarını anlamlandırmada dini inançlarını nasıl
kullandıklarını ve engelli olarak başlarından geçen zorluklara nasıl tepki
gösterdiklerini gün ışığına çıkaran nitelikli bir araştırmanın bulgularını
sunmaktadır. Katılımcılar, engellilikle ilgili ruhsal/manevi deneyimleri
üzerinde etkisi olan Protestan Hristiyan kilisesinin engelliler için ileri
düzey bir kaynaştırmayı sağlaması gerektiğini önermektedirler. Engelli
bireyler için çalışmada yer verdiğimiz uygulama örnekleri bütüncül bakım
yapan yardımcı profesyonellere (engelli bakım uzmanlarına ve
hemşirelere) ve dini liderlere (Papaz, Rahip vb. din adamlarına) katkı
sağlamak amacıyla verilmiştir.
Arka Plan/Gerekçe: Engelli bir çocuğa sahip olan ailelerin bu
durumla başa çıkma yöntemleriyle ilgili iyi yapılandırılmış araştırma
yazıları olsa da, insanların engelli bir yaşamı anlamlandırma ve bu türden
bir hayata tepki vermek için dini inançlarını nasıl kullandıklarına dair çok
az şey bilinmektedir. Hatta birtakım ortak dini inançlara sahip insanların,
bu inançları kullanarak bir engelli olarak başlarından geçenleri nasıl
anlamlandırdıkları hakkında daha da az şey bilinmektedir.
Dizayn/Yöntem: Yazar iki büyük gruptan oluşan 30 kişiyle röportaj
yapmıştır: Bunlar, farklı türden gelişim yetersizliği bulunan çocuklarına
bakan 13 aile ve fziksel engelli 9 kişidir. Bununla birlikte, 8 katılımcı da
çalışmamıza belli noktalarda katkı sağlamışlardır. Ayrıca araştırmamıza
katkı sağlayan katılımcıların önemli bir çoğunluğu beyaz olup, 1998
yılında Amerika Birleşik Devletlerinin güney batısında yer alan büyük bir
şehirde yaşamışlardır.
Bulgular: Kişilerin çektikleri çileler ve yaşadıkları zorluklar,
manevi mücadelelerinde, kişisel çöküşten kurtulmalarında, Tanrıya
duyulan güven ve Tanrıya güçlü bir inançla bağlanma noktasında katkı
sağlamıştır. Katılımcılar engellilik nedeniyle sıkça başlarına gelen
zorluklara rağmen minnettar ve mutlu bir hayat sürmeyi tercih
etmektedir. Katılımcıların dini inançları hayatlarına bir istikrar getirmiş,
engelli geçirdikleri hayatlarını anlamlandırmalarında, bu hayatla başa
çıkmalarında ve diğer faydalı etkenleri kazanma konusunda onların
yaşamına olumlu yönde katkı sağlamıştır. Katılımcılar, kilisenin engelliliği
ilahi açıdan anlamlandırma konusunda destek sağlaması gerektiğini ve
sürekli devam eden bir dini yardım modelini kullanmasını önermektedir.
Sonuç: Araştırmanın dizaynı, bulguların genelleştirilmesine tam
olarak imkan vermese de, çalışmada sunduğumuz uygulama örnekleri,
bütüncül bakım yapan yardımcı profesyonellere ve dini liderlere yardımcı
olabilir.

Keywords

Engellilik ruhsal dini Hristiyan kilise aile sağlık uzmanlığı bakım

References

  • Baldacchino D. & Draper P. (2001) Spiritual coping strategies: a review of the nursing research literature. Journal of Advanced Nursing 34, 833–841.
  • Bennett T., Deluca D.A. & Allen R.W. (1995) Religion and children with disabilities. Journal of Religion and Health 34, 301–312.
  • Blair W.A. (1994) Ministry to persons with disabilities: can we do better? Journal of Religion in Disability and Rehabilitation 1, 1–9.
  • Blair W. & Davidson D. (1993) To the glory of God: Hesed, hospitality and disabilities. In And Show Steadfast Love (Merrick L.H. ed.), Presbyterian Church, Louisville, KY, pp. 17–28
  • Dobson J. (1993) When God Doesn’t Make Sense. Tyndale House, Wheaton, IL.
  • Eiesland N.L. (1994) The Disabled God: Toward a Liberatory Theology of Disability. Abingdon Press, Nashville, TN.
  • Evans R.L., Bishop D.S. & Ousley R.T. (1992) Providing care to persons with physical disability. American Journal of Physical Medicine and Rehabilitation 71, 140–144.
  • Featherstone H. (1980) A Difference in the Family: Life with a Disabled Child. Basic Books, New York.
  • Ferguson P.M., Gartner A. & Lipsky D.K. (2000) The experience ofdisability in families: A synthesis of research and parent narratives. In Prenatal Testing and Disability Rights (Parens E. & Asch A. eds), Washington: D.C. Georgetown University Press, pp. 72–94.
  • Glaser B.G. (1978) Theoretical Sensitivity. Sociology Press, Mill Valley, CA.
  • Glaser B.G. (1992) Basics of Grounded Theory Analysis: Emergence Versus Forcing. Sociology Press, Mill Valley, CA.
  • Gourgey C. (1993) Enlarge the site of your tent: making a place in the church for people with disabilities. In And Show Steadfast Love (Merrick L.H. ed.), Presbyterian Church, Louisville, KY, pp. 29–45.
  • Hanline M.F. (1991) Transitions and critical events in the family life cycle: implications for providing support to families of children with disabilities. Psychology in the Schools 28, 53–59.
  • Kearney P.M. & Griffn T. (2001) Between joy and sorrow: being a parent of a child with developmental disability. Journal of Advanced Nursing 34, 582–592.
  • Koenig H.G., McCullough M.E. & Larson D.B. (2001) Handbook of Religion and Health. Oxford University Press, Oxford, New York.
  • Krauss M.W. (1993) Child-related and parenting stress: similarities and differences between mothers and fathers of children with disabilities. American Journal on Mental Retardation 97, 393–404.
  • Lofand J. & Lofand L.H. (1984) Developing analysis. In A Guide to Qualitative Observation and Analysis, 2nd edn. Wadsworth, Belmont, CA, pp. 131–137.
  • Marinelli R.P. & Orto A.E.D. (eds) (1999) The Psychological and Social Impact of Disability, 4th edn. Springer, New York.
  • McCubbin H.I., Cauble A.E. & Patterson J.M. (eds) (1982) Family Stress, Coping, and Social Support. Charles C. Thomas, Springfeld, IL.
  • Moltmann J. (1983) The liberation and acceptance of the handicapped. In The Power of the Powerless. Harper & Row, San Francisco, pp. 136–154
  • Moustakas C. (1990) Heuristic Research: Design, Methodology, and Applications. Sage, Newbury Park, CA.
  • Mullins J.B. (1987) Authentic voices from parents of exceptional children. Family Relations 36, 30–33.
  • National Association of Evangelicals (2002) Statement of Faith. Available: http://www.juc.edu/html/secondary/faith.htm (9 July 2002).
  • National Council of Churches of Christ (1995) NCCC Policy Statement on Disabilities, the Body of Christ, and the Wholeness of Society. National Council of Churches of Christ Committee on Disabilities, New York.
  • National Organization on Disability (2002) Religion Division. Available: http://www.nod.org/cont/dsp_cont_loc_hme.cfm? locationId=14&locationNm=Religion (9 July 2002).
  • Northway R. (1997) Disability and oppression: some implications for nurses and nursing. Journal of Advanced Nursing 26, 736–743. Olkin R. (1999) What Psychotherapists Should Know About Disability. The Guilford Press, New York.
  • Olsen R. & Maslin-Prothero P. (2001) Dilemmas in the provision of own-home respite support for parents of young children with complex health care needs: evidence from an evaluation. Journal of Advanced Nursing 34, 603–610.
  • Paterson G.W. (1975a) Helping Your Handicapped Child. Augsberg Publishing House, Minneapolis, MN.
  • Paterson G.W. (1975b) Ministering to the family of the handicapped child. Journal of Religion and Health 14, 165–176.
  • Rehm R.S. (1999) Religious faith in Mexican-American families dealing with chronic childhood illness. Image: Journal of Nursing Scholarship 31, 33–38.
  • Richardson M. (1997) Addressing barriers: disabled rights and the implications for nursing of the social construct of disability. Journal of Advanced Nursing 25, 1269–1275.
  • Rogers-Dulan J. & Blacher J. (1995) African American families, religion, and disability: a conceptual framework. Mental Retardation 33, 226–238.
  • Scottsdale Bible Church. Statement of Faith (2002) Available: http://www.scottsdalebible.com/statementoffaith.html (9 July 2002).
  • Scullion P. A. (1999) Conceptualizing disability in nursing: some evidence from students and their teachers. Journal of Advanced Nursing 29, 648–657.
  • Seligman M. & Darling R.B. (1997) Ordinary Families, Special Children: A Systems Approach to Childhood Disability, 2nd edn. Guilford Press, New York.
  • Singer G.H.S. & Irvin L.K. (1989) Family caregiving, stress, and support. In Support for Caregiving Families: Enabling Positive Adaptation to Disability. Paul H. Brookes, Baltimore, pp. 3–25.
  • Summers J.A., Behr S.K. & Turnbull A.P. (1989) Positive adaptation and coping strengths of families who have children with disabilities. In Support for Caregiving Families: Enabling Positive Adaptation to Disability (Singer G.H.S. & Irvin L.K. eds), Paul H. Brooke, Baltimore, pp. 27–40.
  • Taanila A., Kokkonen J. & Jarvelin M.-R. (1996) The long-term effects of children’s early-onset disability on marital relationships. Developmental Medicine and Child Neurology 38, 567–577.
  • Treloar L.L. (1999) Perceptions of spiritual beliefs, response to disability, and the church. Unpublished Doctoral Dissertation (listed in Dissertation Abstracts International, Vol./Issue 60-02A, University Microflms International no. AAI9919753), The Union Institute and University, Cincinnati, OH.
  • Treloar L.L. (2000) Integration of spirituality into health care practice by nurse practitioners. Journal of the American Academy of Nurse Practitioners 12, 280–285.
  • Treloar L.L. & Artinian B. (2001) Chapter 19: Populations affected by disabilities. In Community Health Nursing: Promoting the Health of Aggregates, 3rd edn (Nies M.A. & McEwen M. eds), W.B. Saunders, Philadelphia, PA, pp. 496–525.
  • Trute B. & Hauch C. (1988) Building on family strength: a study of families with positive adjustment to the birth of a developmentally disabled child. Journal of Marital and Family Therapy 14, 185–193.
  • United States Bureau of the Census (1997) Census Brief 97–5: Disabilities Affect One-Fifth of All Americans [Online]. US Census Bureau. Available: http://www.census.gov:80/prod/3/97pubs/cenbr975.pdf (20 December 1999).
  • Van Riper M., Ryff C. & Pridham K. (1992) Parental and family well-being in families of children with Down syndrome: a comparative study. Research in Nursing and Health 15, 227–235.
  • Weisner T.S., Beizer L. & Stolze L. (1991) Religion and families of children with developmental delays. American Journal on Mental Retardation 95, 647–662.
  • Weiss R.S. (1994) Issues in interviewing, analysis of data. In Learning from Strangers: the Art and Method of Qualitative Interview Studies. Free Press, New York, pp. 121–182.
  • Wright N. & Wright J. (1993) I’ll Love You Forever: Accepting Your Child When Your Expectations Are Unfulflled. Focus on the Family Publishing, Colorado Springs, CO.
  • Wrigley M. & LaGory M. (1994) The role of religion and spirituality in rehabilitation: a sociological perspective. Journal of Religion in Disability and Rehabilitation 1, 27–40.
  • Zuk G.H., Miller R.L., Bartram J.B. & Kling F. (1961) Maternal acceptance of retarded children: a questionnaire study of attitudes and religious background. Child Development 32, 525–540.
There are 49 citations in total.

Details

Primary Language Turkish
Journal Section Articles
Authors

Yazar: Linda L.treloar Çev. Mehmet Bahçekapılı This is me

Linda L. Treloar This is me

Publication Date September 12, 2013
Published in Issue Year 2012 Issue: 27

Cite

APA Çev. Mehmet Bahçekapılı, Y. L. L., & Treloar, L. L. (2013). Engellilik, Dini İnançlar ve Kilise: Engelli yetişkinlerin ve aile bireylerinin deneyimleri. Journal of Istanbul University Faculty of Theology(27), 211-230.
AMA Çev. Mehmet Bahçekapılı YLL, Treloar LL. Engellilik, Dini İnançlar ve Kilise: Engelli yetişkinlerin ve aile bireylerinin deneyimleri. Journal of Istanbul University Faculty of Theology. September 2013;(27):211-230.
Chicago Çev. Mehmet Bahçekapılı, Yazar: Linda L.treloar, and Linda L. Treloar. “Engellilik, Dini İnançlar Ve Kilise: Engelli yetişkinlerin Ve Aile Bireylerinin Deneyimleri”. Journal of Istanbul University Faculty of Theology, no. 27 (September 2013): 211-30.
EndNote Çev. Mehmet Bahçekapılı YLL, Treloar LL (September 1, 2013) Engellilik, Dini İnançlar ve Kilise: Engelli yetişkinlerin ve aile bireylerinin deneyimleri. Journal of Istanbul University Faculty of Theology 27 211–230.
IEEE Y. L. L. Çev. Mehmet Bahçekapılı and L. L. Treloar, “Engellilik, Dini İnançlar ve Kilise: Engelli yetişkinlerin ve aile bireylerinin deneyimleri”, Journal of Istanbul University Faculty of Theology, no. 27, pp. 211–230, September 2013.
ISNAD Çev. Mehmet Bahçekapılı, Yazar: Linda L.treloar - Treloar, Linda L. “Engellilik, Dini İnançlar Ve Kilise: Engelli yetişkinlerin Ve Aile Bireylerinin Deneyimleri”. Journal of Istanbul University Faculty of Theology 27 (September 2013), 211-230.
JAMA Çev. Mehmet Bahçekapılı YLL, Treloar LL. Engellilik, Dini İnançlar ve Kilise: Engelli yetişkinlerin ve aile bireylerinin deneyimleri. Journal of Istanbul University Faculty of Theology. 2013;:211–230.
MLA Çev. Mehmet Bahçekapılı, Yazar: Linda L.treloar and Linda L. Treloar. “Engellilik, Dini İnançlar Ve Kilise: Engelli yetişkinlerin Ve Aile Bireylerinin Deneyimleri”. Journal of Istanbul University Faculty of Theology, no. 27, 2013, pp. 211-30.
Vancouver Çev. Mehmet Bahçekapılı YLL, Treloar LL. Engellilik, Dini İnançlar ve Kilise: Engelli yetişkinlerin ve aile bireylerinin deneyimleri. Journal of Istanbul University Faculty of Theology. 2013(27):211-30.