Ortopedik Engelli Kadınlarda Üreme Sağlığını Geliştirme: Hemşirelik Destek Programı Örneği
Yıl 2023,
Sayı: 27, 110 - 119, 29.11.2023
Eda Yakıt Ak
,
Ergül Aslan
Öz
Engelli kadınların cinsiyete özgü ve engelliliğe ilişkin zorlukları üreme sağlığını olumsuz etkilemekte ve çoğu zaman engelli kadınların üreme sağlığı ihtiyaçları göz ardı edilmektedir. Literatürde engelli kadınların gebelik, doğum, kontrasepsiyon, jinekolojik infeksiyonlar ve kanserler ile ilgili danışmanlığa ihtiyaç duydukları belirtilmektedir. Hemşireler tarafından engelli kadınların üreme sağlığını geliştirmek üzere hazırlanan ve uygulanan destek programı, üreme sağlığı risklerini ortadan kaldıracaktır. Bu derlemenin amacı ortopedik engelli kadınların üreme sağlığını geliştirmede Sağlık İnanç Modeli’nin örnek kullanımının sunulmasıdır.
Destekleyen Kurum
bulunmamaktadır
Kaynakça
- Abraham, C., & Sheeran, P. (2005). The Health Belief Model. Conner, M., & Norman, P., (Eds.), Predicting health behaviour (pp.28-80). Berkshire: Open University Pres. google scholar
- Andrews, E.E., Powell, R., & Ayers, K.B. (2021). Experiences of breastfeeding among disabled women. Womens Health Issues, 31(1):82-9. google scholar
- Argov, Z., & Visser, M. (2009). What we do not know about pregnancy in hereditary neuromuscular disorders. Neuromuscul Disord, 19(10),675-69. google scholar
- Balakas, K., Gallaher, C.S., & Tilley, C. (2015). Optimizing perioper-ative care for children and adolescents with challenging behaviors. MCN, 40(3),153-9. google scholar
- BCM. Center for research on women with disabilities. (2018). Retrieved from https://www.bcm.edu/research/centers/research-on-women-with-disabilities Erişim Tarihi 20.07.2021 google scholar
- Braathen, S.H., Carew, M.T., Chiwaula, M., & Rohleder, P. (2021). Physical disability and sexuality, some history and some findings. Hunt, X., Braathen, S.H., Chiwaula, M., Carew, M.T., Rohleder, P., Swartz, L. (Ed.), Physical disability and sexuality (pp. 27-52). Palgrave Macmillan. google scholar
- Byrnes, L., & Hickey, M. (2016). Perinatal care for women with disabilities: clinical considerations. JNP, 12(8),503-509. google scholar
- Buz, S. ve Karabulut A. (2015). Ortopedik engelli kadınlar: toplumsal cinsiyet çerçevesinde bir çalışma. Iğdır Üniversitesi Sosyal Bilimler Dergisi, 7,25-45. google scholar
- Cameron, M., & Moran, P. (2009). Prenatal screening and diagnosis of neural tube defects. Prenat Diagn, 29,402-7. google scholar
- Cangol, E. ve Tokuc, B. (2013). Jinekoloji polikliniğine başvuran kadınlarda genital enfeksiyon sıklığı ve genital hijyen davranışları. Florence Nightingale Hemsirelik Dergisi, 21(2),85-91. google scholar
- Carmen Tong, C.M., & Tanaka, S.T. (2021). Let’s talk about sex: Special considerations in reproductive care and sexual education in young women with spina bifida. Urology, 151,79-8. google scholar
- CDC. (2020). Disability And Health Overview. Retrieved from https://www.cdc.gov/ncbddd/disabilityandhealth/disability.html#ref , Erişim Tarihi 15.07. 2021 google scholar
- CDC. (2018). Disability And Health İnformation For Women With Disabilities. Retrieved from https://www.cdc.gov/ncbddd/disabilityandhealth/women.html Erişim Tarihi 20.07.2021 google scholar
- Çenesiz, E. ve Atak, N. (2007). Türkiye’de Sağlık İnanç Modeli ile yapılmış araştırmaların değerlendirilmesi. TSK Koruyucu Hekimlik Bülteni, 6(6),427-34. google scholar
- Devcota, H.R., Murray, E., Ket, M., & Groce, N. (2017). Healthcare provider’s attitude towards disability and experience of women with disabilities in the use of maternal healthcare service in rural Nepal. Reprod Health. 14(79), 1-14. google scholar
- Darney, B.G., Biel, F.M., Quigley, B.P., Caughey, A.B., & Horner-Johnson, W. (2017). Primary cesarean delivery patterns among women with physical, sensory, or ıntellectual disabilities. WHI, 27(3),336-44. google scholar
- De Beaudrap, P., Moute, C., Pasquier, E., Mac-Seing, M., Mukangwije, P.U., & Beninguisse, G. (2019). Disability and access to sexual and reproductive health services in cameroon: a mediation analysis of the role of socioeconomic factors. Int J Environ Research Public Health, 16(3),417. google scholar
- Draths, R. (2022). Contraception in adolescents and women with disabilities. Ther Umsch, 79(10),527-34. google scholar
- Duman, M. (2018). Engelli bireylerin üreme sağlığı sorunları. Timur Taşan, S., Erci, B., (Ed.), Her yönüyle engellilik kitabı içinde. İstanbul: Nobel Tıp Kitapevleri. google scholar
- European Disabililty Forum. Ending forced sterilisation of women and girls with disabilities.(2017). Retrieved from http://www.edf-feph.org/sites/default/files/edf-force_sterilisation_easy_to_read.pdf Erişim Tarihi 02.01.2022 google scholar
- Green, E.C., Murphy, E.M., & Gryboski, K. (2020). The Health Belief Model. The Wiley Encyclopedia of Health Psychology, 2,211-4. google scholar
- Gözüm, S. ve Çapık, C. (2014). Sağlık davranışlarının geliştirilmesinde bir rehber: Sağlık İnanç Modeli. DEÜHYED, 7(3),230-7. google scholar
- Han, H.R., Lee, H., & Kim, M.T. (2019). Tailored lay health worker intervention improves breast cancer screening outcomes in non-adherent Korean-American women. Health Educ Res, 24(2),318-29. google scholar
- Hayward, K., Chen, A.Y., Forbes, E., Byrne, R., Greenberg, M.B., & Fowler, E.G. (2017). Reproductive healthcare experiences of women with cerebral palsy. Disabil Health J, 10(3),413-8. google scholar
- Horner-Johnson, W., Kulkarni-Rajasekhara, S., Darney, B., Dissanayake, M., & Caughey, A. (2017). Live birth, miscarriage, and abortion among U.S. women with and without disabilities. Disabil Health J, 10(3),382-6. google scholar
- Iezzoni, L.I., Yu, J., Wint, A.J., Smeltzer, S.C., & Ecker, J.L. (2013). Prevalence of current pregnancy among US women with and without chronic physical disabilities. Med Care, 51(6):555-62. google scholar
- Kalpakjian, C.Z., Kreschmer, J.M., Slavin, M.D., Kisala, P.A., Quint, E.H., Chiaravalloti, N.D., Jenkins, N., Bushnik, T., Amtmann, D., Tulsky, D.S., Madrid, R., Parten, R., Evitts, M., & Grawi, C.L. (2020). Reproductive health in women with physical disability: A conceptual framework for the development of new patient-reported outcome measures. Larchmt, 29(11),1427-36. google scholar
- Kokonalı, D., Karaca, M., Özel, Ş. ve Engin-Üstün, Y. (2018). Engelli kadınlarda üreme sağlığı. Jinekoloji - Obstetrik ve Neonatoloji Tıp Dergisi, 15(1),28-30. google scholar
- Mandal, I., Basu, I., & De, M. (2020). Role of nursing professionals in making hospital stay effective and less stressful for patients with ASD: A brief overview. IJALSR, 3(1),1-9. google scholar
- McCabe, J., & Holmes, D. (2014). Nursing, sexual health and youth with disabilities: a critical ethnography. JAN, 70(1),77-86. google scholar
- Mitra, M, Long-Bellil, L.M., Smeltzer, S.C., F.A.A.N, R.N., & Iezzoni, L.I. (2015).A perinatal health framework for women with physical disabilities. Disabil Health J., 8,499-506. google scholar
- Morton, C., Le, J.T., Shahbandar, L., Hammond, C., Murphy, E.A., & Kirschner, K.L. (2013). Pregnancy outcomes of women with physical disabilities: a matched cohort study. PM R, 5(2),90-8. google scholar
- Mosher, W., Hughes, R.B., & Bloom, T. (2018). Contraceptive use by disability status: new national estimates from the national survey of family growth. Contraception, 97,552-8. google scholar
- National Coordinating Agency for Population and Development. (2008). Kenya National Survey For Persons With Disabilities - Preliminary Report. Retrieved from http://www.ncapd-ke.org Erişim Tarihi 20.12.2022 google scholar
- Nies, M.A., & McEweni, M. (2018). Community/public health nursing: promoting the health of populations (pp.1-712) USA: Elsevier. google scholar
- Nguyena, T.V., King, J., Edwards, N., & Dunne, M.P. (2021). “Under great anxiety”: Pregnancy experiences of Vietnamese women with physical disabilities seen through an intersectional lens. Soc Sci Med, 284:114231. google scholar
- Signore, C., Spong, C.Y., Krotoski, D., Shinowara, N.L., & Blackwell, S.C. (2011). Pregnancy in women with physical disabilities. Obstet Gynecol, 117, 935-47. google scholar
- Sonalkar, S., Chavez, V., McClusky, J., Hunter, T.A., & Mollen, CJ. (2019). Gynecologic care for women with physical disabilities: A qualitative study of patients and providers. Womens Health Issues, 30(2),136-41. google scholar
- Streur, C.S., Schafer, C.L., Garcia, V.P., Quint, E.H., Sandberg, D.E. & Wittmann, D.A. (2019). “If everyone else is having this talk with their doctor, why am i not having this talk with mine?”: The experiences of sexuality and sexual health education of young women with spina bifida. J Sex Med, 16(6),853-9. google scholar
- Tarasoff, L.A. (2017). “We don’t know. We’ve never had anybody like you before”: Barriers to prenatal care for women with physical disabilities. Disabil Health J. 10(3),426-33. google scholar
- Tarasoff, L.A., Ravindran, S., Malik, H., Salaeva, D., & Brown, H.K. (2020). Maternal disability and risk for pregnancy, delivery, and postpartum complications: A systematic review and meta-analysis. Am J Obstet Gynecol, 222(1),27.e127.e32. google scholar
- Topaloglu Oren, E.D. (2018). Evli olan fiziksel engelli kadınların cinsellik ve cinsel saglık konusundaki yasam deneyimleri: bir gomulu kuram calısması (Doktora Tezi). T.C. Ege Universitesi, İzmir. google scholar
- Trani, J.F., Browne, J., Kett, M., Bah, O., Morlai, T., & Bailey, N. (2011). Access to health care, reproductive health and disability: a large scale survey in Sierra Leone. Soc Sci Med, 73,1477-89. google scholar
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- UN-Disability. Women and girls with disabilities. Retrieved from https://www.un.org/development/desa/disabilities/issues/women-and-girls-with-disabilities.html Erişim Tarihi 10.01. 2022 google scholar
- UNFPA. (2021). Healthcare Workers Trained To Address Sexual And Reproductive Health Needs of Women With Disabilities. Retrieved from https://kenya.unfpa.org/en/news/healthcare-workers-trained-address-sexual-and-reproductive-health-needs-women-disabilities Erişim Tarihi 20.12.2022 google scholar
- WHO. (2011). World Report On Disability. Retrieved from https://www.who.int/disabilities/world_report/2011/en/ Erişim Tarihi 15 Ocak 2020. google scholar
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- WHO (2017). The future of nursing and midwifery workforce in the context of the sustainable development goals and universal health coverage. google scholar
- Retrieved from https://www.who.int/publications/i/item/978-92-4-151191-9 Erişim Tarihi 02.01.2022 google scholar
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Improving the Reproductive Health of Women with Orthopedic Disabilities: The Case of a Nursing Support Program
Yıl 2023,
Sayı: 27, 110 - 119, 29.11.2023
Eda Yakıt Ak
,
Ergül Aslan
Öz
The drawbacks regarding women’s gender and disabilities have negative effects on the reproductive health of women with a disability. Most of the time, the reproductive health needs of women with disabilities are ignored. Disabled women have been reported to need counseling on pregnancy, birth, contraception, gynecologic infections, and cancers. The structured support programs for reproductive health will overcome the potential risks of reproductive health for women. The purpose of this review is to present the exemplary use of the health belief model[PE1] for improving the reproductive health of women with orthopedic disabilities.
Kaynakça
- Abraham, C., & Sheeran, P. (2005). The Health Belief Model. Conner, M., & Norman, P., (Eds.), Predicting health behaviour (pp.28-80). Berkshire: Open University Pres. google scholar
- Andrews, E.E., Powell, R., & Ayers, K.B. (2021). Experiences of breastfeeding among disabled women. Womens Health Issues, 31(1):82-9. google scholar
- Argov, Z., & Visser, M. (2009). What we do not know about pregnancy in hereditary neuromuscular disorders. Neuromuscul Disord, 19(10),675-69. google scholar
- Balakas, K., Gallaher, C.S., & Tilley, C. (2015). Optimizing perioper-ative care for children and adolescents with challenging behaviors. MCN, 40(3),153-9. google scholar
- BCM. Center for research on women with disabilities. (2018). Retrieved from https://www.bcm.edu/research/centers/research-on-women-with-disabilities Erişim Tarihi 20.07.2021 google scholar
- Braathen, S.H., Carew, M.T., Chiwaula, M., & Rohleder, P. (2021). Physical disability and sexuality, some history and some findings. Hunt, X., Braathen, S.H., Chiwaula, M., Carew, M.T., Rohleder, P., Swartz, L. (Ed.), Physical disability and sexuality (pp. 27-52). Palgrave Macmillan. google scholar
- Byrnes, L., & Hickey, M. (2016). Perinatal care for women with disabilities: clinical considerations. JNP, 12(8),503-509. google scholar
- Buz, S. ve Karabulut A. (2015). Ortopedik engelli kadınlar: toplumsal cinsiyet çerçevesinde bir çalışma. Iğdır Üniversitesi Sosyal Bilimler Dergisi, 7,25-45. google scholar
- Cameron, M., & Moran, P. (2009). Prenatal screening and diagnosis of neural tube defects. Prenat Diagn, 29,402-7. google scholar
- Cangol, E. ve Tokuc, B. (2013). Jinekoloji polikliniğine başvuran kadınlarda genital enfeksiyon sıklığı ve genital hijyen davranışları. Florence Nightingale Hemsirelik Dergisi, 21(2),85-91. google scholar
- Carmen Tong, C.M., & Tanaka, S.T. (2021). Let’s talk about sex: Special considerations in reproductive care and sexual education in young women with spina bifida. Urology, 151,79-8. google scholar
- CDC. (2020). Disability And Health Overview. Retrieved from https://www.cdc.gov/ncbddd/disabilityandhealth/disability.html#ref , Erişim Tarihi 15.07. 2021 google scholar
- CDC. (2018). Disability And Health İnformation For Women With Disabilities. Retrieved from https://www.cdc.gov/ncbddd/disabilityandhealth/women.html Erişim Tarihi 20.07.2021 google scholar
- Çenesiz, E. ve Atak, N. (2007). Türkiye’de Sağlık İnanç Modeli ile yapılmış araştırmaların değerlendirilmesi. TSK Koruyucu Hekimlik Bülteni, 6(6),427-34. google scholar
- Devcota, H.R., Murray, E., Ket, M., & Groce, N. (2017). Healthcare provider’s attitude towards disability and experience of women with disabilities in the use of maternal healthcare service in rural Nepal. Reprod Health. 14(79), 1-14. google scholar
- Darney, B.G., Biel, F.M., Quigley, B.P., Caughey, A.B., & Horner-Johnson, W. (2017). Primary cesarean delivery patterns among women with physical, sensory, or ıntellectual disabilities. WHI, 27(3),336-44. google scholar
- De Beaudrap, P., Moute, C., Pasquier, E., Mac-Seing, M., Mukangwije, P.U., & Beninguisse, G. (2019). Disability and access to sexual and reproductive health services in cameroon: a mediation analysis of the role of socioeconomic factors. Int J Environ Research Public Health, 16(3),417. google scholar
- Draths, R. (2022). Contraception in adolescents and women with disabilities. Ther Umsch, 79(10),527-34. google scholar
- Duman, M. (2018). Engelli bireylerin üreme sağlığı sorunları. Timur Taşan, S., Erci, B., (Ed.), Her yönüyle engellilik kitabı içinde. İstanbul: Nobel Tıp Kitapevleri. google scholar
- European Disabililty Forum. Ending forced sterilisation of women and girls with disabilities.(2017). Retrieved from http://www.edf-feph.org/sites/default/files/edf-force_sterilisation_easy_to_read.pdf Erişim Tarihi 02.01.2022 google scholar
- Green, E.C., Murphy, E.M., & Gryboski, K. (2020). The Health Belief Model. The Wiley Encyclopedia of Health Psychology, 2,211-4. google scholar
- Gözüm, S. ve Çapık, C. (2014). Sağlık davranışlarının geliştirilmesinde bir rehber: Sağlık İnanç Modeli. DEÜHYED, 7(3),230-7. google scholar
- Han, H.R., Lee, H., & Kim, M.T. (2019). Tailored lay health worker intervention improves breast cancer screening outcomes in non-adherent Korean-American women. Health Educ Res, 24(2),318-29. google scholar
- Hayward, K., Chen, A.Y., Forbes, E., Byrne, R., Greenberg, M.B., & Fowler, E.G. (2017). Reproductive healthcare experiences of women with cerebral palsy. Disabil Health J, 10(3),413-8. google scholar
- Horner-Johnson, W., Kulkarni-Rajasekhara, S., Darney, B., Dissanayake, M., & Caughey, A. (2017). Live birth, miscarriage, and abortion among U.S. women with and without disabilities. Disabil Health J, 10(3),382-6. google scholar
- Iezzoni, L.I., Yu, J., Wint, A.J., Smeltzer, S.C., & Ecker, J.L. (2013). Prevalence of current pregnancy among US women with and without chronic physical disabilities. Med Care, 51(6):555-62. google scholar
- Kalpakjian, C.Z., Kreschmer, J.M., Slavin, M.D., Kisala, P.A., Quint, E.H., Chiaravalloti, N.D., Jenkins, N., Bushnik, T., Amtmann, D., Tulsky, D.S., Madrid, R., Parten, R., Evitts, M., & Grawi, C.L. (2020). Reproductive health in women with physical disability: A conceptual framework for the development of new patient-reported outcome measures. Larchmt, 29(11),1427-36. google scholar
- Kokonalı, D., Karaca, M., Özel, Ş. ve Engin-Üstün, Y. (2018). Engelli kadınlarda üreme sağlığı. Jinekoloji - Obstetrik ve Neonatoloji Tıp Dergisi, 15(1),28-30. google scholar
- Mandal, I., Basu, I., & De, M. (2020). Role of nursing professionals in making hospital stay effective and less stressful for patients with ASD: A brief overview. IJALSR, 3(1),1-9. google scholar
- McCabe, J., & Holmes, D. (2014). Nursing, sexual health and youth with disabilities: a critical ethnography. JAN, 70(1),77-86. google scholar
- Mitra, M, Long-Bellil, L.M., Smeltzer, S.C., F.A.A.N, R.N., & Iezzoni, L.I. (2015).A perinatal health framework for women with physical disabilities. Disabil Health J., 8,499-506. google scholar
- Morton, C., Le, J.T., Shahbandar, L., Hammond, C., Murphy, E.A., & Kirschner, K.L. (2013). Pregnancy outcomes of women with physical disabilities: a matched cohort study. PM R, 5(2),90-8. google scholar
- Mosher, W., Hughes, R.B., & Bloom, T. (2018). Contraceptive use by disability status: new national estimates from the national survey of family growth. Contraception, 97,552-8. google scholar
- National Coordinating Agency for Population and Development. (2008). Kenya National Survey For Persons With Disabilities - Preliminary Report. Retrieved from http://www.ncapd-ke.org Erişim Tarihi 20.12.2022 google scholar
- Nies, M.A., & McEweni, M. (2018). Community/public health nursing: promoting the health of populations (pp.1-712) USA: Elsevier. google scholar
- Nguyena, T.V., King, J., Edwards, N., & Dunne, M.P. (2021). “Under great anxiety”: Pregnancy experiences of Vietnamese women with physical disabilities seen through an intersectional lens. Soc Sci Med, 284:114231. google scholar
- Signore, C., Spong, C.Y., Krotoski, D., Shinowara, N.L., & Blackwell, S.C. (2011). Pregnancy in women with physical disabilities. Obstet Gynecol, 117, 935-47. google scholar
- Sonalkar, S., Chavez, V., McClusky, J., Hunter, T.A., & Mollen, CJ. (2019). Gynecologic care for women with physical disabilities: A qualitative study of patients and providers. Womens Health Issues, 30(2),136-41. google scholar
- Streur, C.S., Schafer, C.L., Garcia, V.P., Quint, E.H., Sandberg, D.E. & Wittmann, D.A. (2019). “If everyone else is having this talk with their doctor, why am i not having this talk with mine?”: The experiences of sexuality and sexual health education of young women with spina bifida. J Sex Med, 16(6),853-9. google scholar
- Tarasoff, L.A. (2017). “We don’t know. We’ve never had anybody like you before”: Barriers to prenatal care for women with physical disabilities. Disabil Health J. 10(3),426-33. google scholar
- Tarasoff, L.A., Ravindran, S., Malik, H., Salaeva, D., & Brown, H.K. (2020). Maternal disability and risk for pregnancy, delivery, and postpartum complications: A systematic review and meta-analysis. Am J Obstet Gynecol, 222(1),27.e127.e32. google scholar
- Topaloglu Oren, E.D. (2018). Evli olan fiziksel engelli kadınların cinsellik ve cinsel saglık konusundaki yasam deneyimleri: bir gomulu kuram calısması (Doktora Tezi). T.C. Ege Universitesi, İzmir. google scholar
- Trani, J.F., Browne, J., Kett, M., Bah, O., Morlai, T., & Bailey, N. (2011). Access to health care, reproductive health and disability: a large scale survey in Sierra Leone. Soc Sci Med, 73,1477-89. google scholar
- Türkiye Aile Sağlığı ve Planlaması Vakfı (TAPV). (2020). Engelli Kadınlar Ve Kız Çocukları İçin Cinsel Sağlık, Üreme Sağlığı Ve Toplumsal Cinsiyete Dayalı Şiddetle Mücadele. Retrieved from https://www.tapv.org.tr/wp-content/uploads/2020/05/Engelli-kadinlar-ve-kiz-cocuklari-icin-cinsel..H.pdf Erişim Tarihi 02.01.2022 google scholar
- UN. (2020). Factsheet On Persons With Disabilities. Retrieved from https://www.un.org/development/desa/disabilities/resources/factsheet-on-persons-with-disabilities.html , Erişim Tarihi 15.01.2022 google scholar
- UN. (2017) Trends in Contraceptive Use Worldwide 2015. Retrieved from https://www.un.org/development/desa/pd/sites/www.un.org.development.desa.pd/fi /undesa_pd_report_2015_trends_contraceptive_use.pdf Erişim Tarihi 20.12.2022 google scholar
- UN-Disability. Women and girls with disabilities. Retrieved from https://www.un.org/development/desa/disabilities/issues/women-and-girls-with-disabilities.html Erişim Tarihi 10.01. 2022 google scholar
- UNFPA. (2021). Healthcare Workers Trained To Address Sexual And Reproductive Health Needs of Women With Disabilities. Retrieved from https://kenya.unfpa.org/en/news/healthcare-workers-trained-address-sexual-and-reproductive-health-needs-women-disabilities Erişim Tarihi 20.12.2022 google scholar
- WHO. (2011). World Report On Disability. Retrieved from https://www.who.int/disabilities/world_report/2011/en/ Erişim Tarihi 15 Ocak 2020. google scholar
- WHO. (2016). Action Plan For Sexual And Reproductive Health Towards Achieving The 2030 Agenda For Sustainable Development İn Europe google scholar
- - Leaving No One Behind. Retrieved from https://www.euro.who.int/__data/assets/pdf_file/0003/322275/Action-plan-sexual-reproductive-health.pdf Erişim Tarihi 05.05.2021 google scholar
- WHO (2018). World Report On Disability Summary 2018. Retrieved from https://apps.who.int/iris/bitstream/handle/10665/70670/WHO_NMH_VIP_11.01_ , Erişim Tarihi: 13.11.2021 google scholar
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