Exploring the Reliability and Accessibility of Youtube for Cerebral Palsy Rehabilitation Information

Year 2024, Volume: 24 Issue: 1, 15 - 24, 07.05.2024

Erkan Özduran , Volkan Hancı

https://doi.org/10.26650/jchild.2024.1301406

Abstract

Objective: Our study aimed to evaluate the characteristics and medical content of YouTube videos pertaining to cerebral palsy (CP) rehabilitation.

Methods: Using the YouTube search engine on August 16, 2021, the term “CP rehabilitation” was searched without any filters. The initial 100 videos were categorized based on their characteristics. The quality, reliability, and accuracy of these videos were evaluated using the Suitability Assessment of Materials (SAM), Global Quality Score (GQS), Journal of American Medical Association (JAMA) benchmark criteria, and modified DISCERN questionnaire.

Results: The average view count of the videos was 38,099 (range: 125–811,777), with an average duration of 444.79 seconds. Most videos were of moderate quality (57%) and contained partially adequate information (86%). In the high-quality category, videos had higher view counts, dislikes, duration, and SAM, JAMA, and modified DISCERN scores compared to low-quality videos (p < 0.05). A positive correlation was observed between GQS and the number of views, likes, dislikes, and SAM, JAMA, and modified DISCERN questionnaire scores (p < 0.05).

Conclusions: Our findings indicate that the majority of videos were of moderate quality, with some providing adequate information. High-quality videos tended to attract more user engagement, including views, likes, comments, and longer duration, and exhibited better reliability and accuracy scores. YouTube can serve as an alternative resource for patients requiring pediatric rehabilitation, particularly during interruptions in healthcare services such as the COVID-19 pandemic. It is indicated that higher-quality videos produced by healthcare professionals will be more beneficial for patient education in the future.

Keywords

Medical knowledge, e-learning, YouTube, Rehabilitation, Cerebral palsy

Thanks

Thanks Enago.com for the excellent English Translation.

References

• Park JC, Kwon HE, Chung CW. Innovative digital tools for new trends in teaching and assessment methods in medical and dental education. J Educ Eval Health Prof. 2021;18:13. google scholar
• Raikos A, Waidyasekara P. How useful is YouTube in learning heart anatomy? Anat Sci Educ. 2014;7(1):12-8. google scholar
• Deal SB, Alseidi AA. Concerns of Quality and Safety in Public Domain Surgical Education Videos: An Assessment of the Critical View of Safety in Frequently Used Laparoscopic Cholecystectomy Videos. J Am Coll Surg. 2017;225(6):25-730. google scholar
• Stellefson M, Chaney B, Ochipa K, Chaney, D., Haider, Z., Hanik, B., et al. YouTube as a source of chronic obstructive pulmonary disease patient education: a social media content analysis. Chron Respir Dis. 2014;11(2):61-71. google scholar
• Drozd B, Couvillon E, Suarez A. Medical YouTube videos and methods of evaluation: Literature review. JMIR Med Educ 2018;4:e3. google scholar
• Fischer, J., Geurts, J., Valderrabano, V., Hügle, T. Educational quality of YouTube videos on knee arthrocentesis. Journal of clinical rheumatology : practical reports on rheumatic & musculoskeletal diseases, 2013;19(7), 373-376. google scholar
• Dogruoz Karatekin B, İcagasioglu A, Sahin SN, Kacar G, Bayram F. How Did the Lockdown Imposed Due to COVID-19 Affect Patients With Cerebral Palsy?. Pediatr Phys Ther. 2021;33(4):246-249. google scholar
• Yağcı İ, Sarıkaya S, Ayhan FF, Bahsi, A., Bilir Kaya, B., Erhan, B., et al. The effects of COVID-19 on Physical Medicine and Rehabilitation in Turkey in the first month of pandemic. Turk J Phys Med Rehabil. 2020;66(3):244-251. Published 2020 Jul 7. doi:10.5606/tftrd.2020.6800 google scholar
• Shukla A. COVID-19 pandemic: An analysis of popular YouTube videos as an alternative health information platform. Health informatics journal, 2021;27(2), 1460458221994878 google scholar
• Ganesan, B., Fong, K., Meena, S. K., Prasad, P., Tong, R. Impact of COVID-19 pandemic lockdown on occupational therapy practice and use of telerehabilitation - A cross sectional study. European review for medical and pharmacological sciences, 2021;25(9), 3614-3622. google scholar
• Nobakht, Z., Rassafiani, M., Hosseini, S. A., Hosseinzadeh, S. A web-based daily care training to improve the quality of life of mothers of children with cerebral palsy: A randomized controlled trial. Research in developmental disabilities, 2020;105, 103731. google scholar
• Huang, Q., Lin, P., Dang, J., Fu, L., Ding, L. Effect of internet-based self-management on pulmonary function rehabilitation and living quality in patients with chronic obstructive pulmonary disease. American journal of translational research, 2021;13(5), 5224-5231. google scholar
• Desai, T., Shariff, A., Dhingra, V., Minhas, D., Eure, M., Kats, M. Is content really king? An objective analysis of the public’s response to medical videos on YouTube. PloS one, 2013;8(12), e82469. google scholar
• Bernard, A., Langille, M., Hughes, S., Rose, C., Leddin, D., Veldhuyzen van Zanten, S. A systematic review of patient inflammatory bowel disease information resources on the World Wide Web. The American journal of gastroenterology, 2007;102(9), 2070-2077. google scholar
• Silberg, W. M., Lundberg, G. D., Musacchio, R. A. Assessing, controlling, and assuring the quality of medical information on the Internet: Caveant lector et viewor--Let the reader and viewer beware. JAMA, 1997;277(15), 1244-1245. google scholar
• Charnock, D., Shepperd, S., Needham, G., Gann, R. DISCERN: an instrument for judging the quality of written consumer health information on treatment choices. Journal of epidemiology and community health, 1999;53(2), 105-111. google scholar
• Yildiz, S., Toros, S. Z. The Quality, Reliability, and Popularity of YouTube Education Videos for Vestibular Rehabilitation: A Cross-sectional Study. Otology & neurotology : official publication of the American Otological Society, American Neurotology Society [and] European Academy of Otology and Neurotology, 2021;10.1097/ MAO.0000000000003197. google scholar
• Manasco, M. H., Barone, N., Brown, A. A Role for YouTube in Telerehabilitation. International journal of telerehabilitation, 2010;2(2), 15-18. google scholar
• Askin, A., Sengul, L., Tosun, A. YouTube as a Source of Information for Transcranial Magnetic Stimulation in Stroke: A Quality, Reliability and Accuracy Analysis. Journal of stroke and cerebrovascular diseases : the official journal of National Stroke Association, 2020;29(12), 105309. google scholar
• Tolu, S., Yurdakul, O. V., Basaran, B., Rezvani, A. English-language videos on YouTube as a source of information on self-administer subcutaneous anti-tumour necrosis factor agent injections. Rheumatology international, 2018;38(7), 1285-1292 google scholar
• Kocyigit, B. F., Nacitarhan, V., Koca, T. T., Berk, E. YouTube as a source of patient information for ankylosing spondylitis exercises. Clinical rheumatology, 2019;38(6), 1747-1751. google scholar
• Bahar-Ozdemir Y, Ozsoy-Unubol T, Akyuz G. Is YouTube a high-quality source of information on cancer rehabilitation? [published online ahead of print, 2021 Aug 4]. J Cancer Surviv. 2021;10.1007/ s11764-021-01093-9. google scholar
• Chen, H. M., Hu, Z. K., Zheng, X. L., Yuan, Z. S., Xu, Z. B., Yuan, L. Q., et al. Effectiveness of YouTube as a Source of Medical Information on Heart Transplantation. Interactive journal of medical research, 2013;2(2), e28. google scholar
• Gençpınar T, Bilen Ç, Bayrak S, Akkaya G, Hancı V, Büyükçoban S. Extra-corporeal Membrane Oxygenation Procedures on YouTube: What Practices Have Being Show. EJCM 2019;7(1):28-35. google scholar
• Chou WY, Hunt Y, Folkers A, Augustson E. Cancer survivorship in the age of YouTube and social media: a narrative analysis. J Med Internet Res. 2011;13(1):e7. Published 2011 Jan 17. google scholar
• Bertamino, M., Cornaglia, S., Zanetti, A., Di Rocco, A., Ronchetti, A., Signa, S., et al. Impact on rehabilitation programs during COVID-19 containment for children with pediatric and perinatal stroke. European journal of physical and rehabilitation medicine, 2020;56(5), 692-694. google scholar
• Asano, D., Kikuchi, N., Yamakawa, T., Morioka, S. Decline in Motor Function during the COVID-19 Pandemic Restrictions and Its Recovery in a Child with Cerebral Palsy: A Case Report. Children (Basel, Switzerland), 2021;8(6), 511. google scholar
• Cankurtaran D, Tezel N, Yildiz SY, Celik G, Unlu Akyuz E. Evaluation of the effects of the COVID-19 pandemic on children with cerebral palsy, caregivers’ quality of life, and caregivers’ fear of COVID-19 with telemedicine. Ir J Med Sci. 2021;190(4):1473-1480. google scholar
• da Silva TD, da Silva PL, Valenzuela EJ, Dias, E. D., Simcsik, A. O., de Carvalho, M. G., et al. Serious Game Platform as a Possibility for Home-Based Telerehabilitation for Individuals With Cerebral Palsy During COVID-19 Quarantine - A Cross-Sectional Pilot Study. Front Psychol. 2021;12:622678. Published 2021 Feb 2 google scholar
• Demers M, Martinie O, Winstein C, Robert MT. Active Video Games and Low-Cost Virtual Reality: An Ideal Therapeutic Modality for Children With Physical Disabilities During a Global Pandemic. Front Neurol. 2020;11:601898. Published 2020 Dec 14. google scholar
• Canty, M. J., Breitbart, S., Siegel, L., Fehlings, D., Milo-Manson, G., Alotaibi, N. M., et al. The role of social media in selective dorsal rhizotomy for children: information sharing and social support. Childs Nerv Syst. 2019;35(11):2179-2185. google scholar
• Oydanich M, Shah Y, Shah K, Khouri AS. 2022. An analysis of the quality, reliability, and popularity of YouTube videos on glaucoma. Ophthalmology Glaucoma 2022;5(3):306-312 google scholar
• Hartnett DA, Yang DS, Lama CJ, McDonald CL, Daniels AH, Blankenhorn BD. YouTube as a source of patient information for ankle arthroplasty: quantitative analysis of video reliability, quality, and content. Foot & Ankle Specialist 2022;16(3):233-242 google scholar
• Bakılan F, Sarıçimen G, Ortanca B, Mutlu F, Armagan O. A Quality Analysis of Cerebral Palsy Videos on YouTube. Fiziksel Tıp ve Rehabilitasyon Bilimleri Dergisi. 2023;26. 299-305 google scholar
• Baker, D. M., Marshall, J. H., Lee, M. J., Jones, G. L., Brown, S. R., Lobo, A. J. YouTube as a source of information for patients considering surgery for ulcerative colitis. The Journal of surgical research, 2017;220,133-138. google scholar