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Fiziksel engelli çocukların bağımsızlık düzeyleri ile ebeveynlerinin fiziksel sağlık, yaşam kalitesi ve aldıkları sosyal destek arasındaki ilişki

Year 2020, Volume: 7 Issue: 2, 177 - 185, 31.08.2020

Abstract

Amaç: Araştırma, fiziksel engelli çocukların ebeveynlerinin fiziksel sağlık, yaşam kalitesi ve aldıkları sosyal destek ile çocukların bağımsızlık düzeyleri arasındaki ilişkiyi incelemek amacıyla yapılmıştır.
Yöntem: Çalışmaya yaşları 18 ile 50 arasında değişen 61 engelli çocuk annesi dahil edildi. Olguların kas kuvveti ve dayanıklılığı, kas-iskelet sistemi ağrısı, yaşam kalitesi ve aldıkları sosyal destek değerlendirildi. Kas kuvveti ve kas enduransı, sırasıyla dinamometre ve McGill protokolü kullanılarak değerlendirildi. Yaşam kalitesini değerlendirmek için Kısa Form-36 anketi, kas iskelet sistemi ağrısını değerlendirmek için Cornell Kas İskelet Sistemi Rahatsızlığı Ölçeği, algılanan sosyal desteği değerlendirmek için ise Çok Boyutlu Algılanan Sosyal Destek Ölçeği kullanıldı. Engelli çocukların fonksiyonel bağımsızlık düzeyini belirlemek için Çocuklar için Fonksiyonel Bağımsızlık Anketi kullanıldı.
Bulgular: Çocukların Fonksiyonel Bağımsızlık Ölçeği puanları ile annelerin Kısa Form-36 ölçeğinin sosyal fonksiyon alt ölçeği puanları arasında istatistiksel olarak anlamlı ve pozitif korelasyon bulundu (p <0,05). Çocukların Fonksiyonel Bağımsızlık Ölçeği skorları ile annelerin değerlendirilen 33 kas gurubunun 21’inin kas kuvveti arasında anlamlı ve negatif ilişki vardı (p
<0,05).
Sonuç: Engelli çocuklar günlük yaşamlarında daha bağımsız olmaları annelerin fiziksel ve sosyal durumlarını etkilemektedir. Fizyoterapi ve rehabilitasyon programlarında çocukların bağımsızlığına artırmaya odaklanmak önemlidir.

References

  • 1. Aykanat B, Balcı S. Fiziksel engelli çocuk ve ailesinin evde bakım gereksinimi. Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi. 2015;4: 1-3.
  • 2. Akandere M, Acar M, Baştuğ G. Zihinsel ve fiziksel engelli çocuğa sahip anne ve babaların yaşam doyumu ve umutsuzluk düzeylerinin incelenmesi. Selçuk Üniversitesi Sosyal Bilimler Enstitüsü Dergisi. 2009;22: 4-6.
  • 3. Canarslan H, Ahmetoğlu E. Engelli çocuğa sahip ailelerin yaşam kalitesinin incelenmesi. Trakya Üniversitesi Sosyal Bilimler Dergisi. 2015;17: 13-31.
  • 4. Kaya K, Unsal-Deliaglioglu S, Ordu-Gokkaya NK, et al. Musculoskeletal pain, quality of life and depression in mothers of children with cerebral palsy. Disabil Rehabil 2010;32: 1666-1672.
  • 5. Garip Y, Ozel S, Tuncer O, et al. Fatigue in the mothers of children with cerebral palsy. Disabil Rehabil. 2016;
  • 6. Guyard A, Michelsen S.I, Arnaud C, et al. Measuring the concept of impact of childhood disability on parents: Validation of a multidimensional measurement in a cerebral palsy population. Res Dev Disabil 2012;33:1594-1604.
  • 7. Ansari NJR, Dhongade KR, Lad P, et al. Study of parental perceptions on health social needs of children with neurodevelopmental disability and it's impact on the family. J Clin Diagn Res. 2016;10:16.
  • 8. Terzi R, Tan, G. Musculoskeletal system pain and related factors in mothers of children with cerebral palsy. Ağrı. 2016; 28:1.
  • 9. Sharan D, Ajeesh P.S, Rameshkumar R, Manjula M. Musculoskeletal disorders in caregivers of children with cerebral palsy following a multilevel surgery. Work. 2012; 41:1891-1895.
  • 10. Bumin G, Günal A, Tükel Ş. Anxiety, depression and quality of life in mothers of disabled children. S.D.Ü. Tıp Fak Derg. 2015;15: 6-11.
  • 11. Ketelaar M, Volman M.J.M, Gorter J.W, Vermeer A. Stress in parents of children with cerebral palsy: what sources of stress are we talking about? Child Care Health Dev. 2008;doi:10.1111/j.1365-2214.2008.00876.
  • 12. Erdoğanoğlu Y, Kerem Günel M. Serebral paralizili çocukların ailelerinin sağlıkla ilgili yaşam kalitelerinin araştırılması. Toplum Hekimliği Bülteni. 2007; 26.
  • 13. Çelik EM, Daşkapan A, Topcu ZG. Physical fitness, physical activity, psychosocial status and quality of life of adolescent siblings of neurologically disabled children. Baltic Journal of Health and Physical Activity. 2018; 10.3: 27-37.
  • 14. Cuzzocrea F, Murdaca A.M, Costa S, et al. Parental Stress, Coping Strategies and Social Support in Families of Children with a Disability. Child Care Pract. 2016; 22: 3-19.
  • 15. Gugala B, Penar-Zadarko B, Pięciak-Kotlarz D, et al. Assessment of Anxiety and Depression in Polish Primary Parental Caregivers of Children with Cerebral Palsy Compared to a Control Group, as well as Identification of Selected Predictors. International journal of environmental research and public health. 2019; 16.21; 4173.
  • 16. Ahmetoğlu E, Canarslan H, Kutlu K, et al. Zihin ve hareket engelli çocukların özel eğitim ve rehabilitayon programlarına devam etme nedenlerinin incelenmesi. Abant İzzet Baysal Üniversitesi Eğitim Fakültesi Dergisi. 2005;5.
  • 17. Aybay C, Erkin G, Elhan AH, et al. ADL assessment of nondisabled Turkish children with the WeeFIM instrument. American journal of physical medicine & rehabilitation. 2007; 86.3: 176-182.
  • 18. Ware Jr JE, Sherbourne CD. The MOS 36-item short-form health survey (SF-36): I. Conceptual framework and item selection. Medical care, 1992; 473-483.
  • 19. Koçyiğit H, Aydemir O, Olmez N. Reliability and validity of SF-36 for Turkish. J Aegean Phys Ther Rehabil. 1999;12: 102-106.
  • 20. Hedge A, Morimoto S, Mccrobie D. Effects of keyboard tray geometry on upper body posture and comfort. Ergonomics, 1999; 42.10: 1333-1349.
  • 21. Erdinç O, Hot K, Ozkaya M. Turkish version of Cornell Musculoskeletal Discomfort Questionnaire cross-cultural adaptation and validation. Work. 2011;39:251-60
  • 22. Zimet GD, Dahlem NW, Zimet SG, et al. The multidimensional scale of perceived social support. J Pers Assess.1988;52:30-41.
  • 23. Eker D, Arkar H, Yaldız H. Generality of support sources and psychometric properties of a scale of perceived social support in Turkey. Soc Psychiatry Psychiatr Epidemiol. 2000;35:228-33.
  • 24. Thorborg K, Petersen J, Magnusson S, et al. Clinical assessment of hip strength using a hand‐held dynamometer is reliable. Scandinavian journal of medicine & science in sports. 2010;20.3:493-501.
  • 25. Le-Ngoc Lan, J. Validity and reliability of a handheld dynamometer for dynamic muscle strength assessment. Rehabil Med. 2012;4: 53-66.
  • 26. Van OL. Cram session in goniometry and manual muscle testing: a handbook for students & clinicians. Thorofare: Slack; 2013.
  • 27. Moreland J, Finch E, Stratfort P, et al. Interrater reliability of six tests of trunk muscle function and endurance. J Orthop Sports Phys Ther 1997;26: 200-208.
  • 28. Doğru SY, Arslan E. Engelli çocuğu oln annelerin sürekli kaygı düzeyi ile durumluk kaygı düzeylerinin karşılaştırılması. SÜ. Sosyal Bil. Ens. D. 2008: 19.
  • 29. Arslan SA, Erbahçeci F. Bel ağrısında farklı fizyoterapi programlarının ağrı, endurans ve yaşam kalitesi üzerine etkisi. Fırat Med J 2016;21: 84-90.
  • 30. Telci EA, Yarar F, Cavlak U, Atalay OT. Comparison of musculoskeletal pain distribution, quality of life and hopelessness level in mothers with disabled children in differen ambulation levels. J Back Musculoskeletal. 2018;31; 305-313.
  • 31. Gowen JW, Martin JN, Goldman BD, et al. Feelings of depression and parenting competence of mothers of handicapped and nonhandicapped infants: A longitudinal study. Am J Ment Retard 1989;94: 259-271.
  • 32. Aybar SŞS. Özel Eğitim merkezinde tedavi edilen çocukların anne ve babalarında depresyon ve yaşam kalitesi analizi. Yüksek Lisans Tezi. İstanbul. İstanbul Üniversitesi Sağlık Bilimleri Enstitüsü. 2014.
  • 33. Ramita S, Yadav SL, Singh U, et al. Physical and mental health among caregivers of children with cerebral palsy. Astrocyte. 2016: doi: 10.4103/2349-0977.191038.
  • 34. Sahida K, Allenidekania A. The relationship between characteristics of parent-child and level fatigue of parents with autism spectrum disorder, UI Proc on Health Med. 2017; 1.
  • 35. Lee MH, Park C, Matthews AK, et al. Differences in physical health, and health behaviours between family caregivers of children with and without disabilities. Disabil Health J 2017;10: 565-570.
  • 36. Jones J, Passey J. Family adaptation, coping and resources: parents of children with developmental disabilities and behaviour problems, J Dev Disabil.2005;11:31-46.
  • 37. Ayyıldız T, Şener DK, Kulakçı H, et al. Zihinsel engelli çocuğa sahip annelerin stresle baş etme yöntemlerinin değerlendirilmesi. Ankara Sağlık Hizmetleri Dergisi. 2013;11: 1-12.
  • 38. Karadağ G. Engelli çocuğa sahip annelerin yaşadıkları güçlükler ile aileden algıladıkları sosyal destek ve umutsuzluk düzeyleri. TAF Prev Med. 2009; 8:315-322.
  • 39. Uchino BN, Cacioppo JT, Kiecolt-Glaser JK. The relationship between social support and physiological processes: a review with emphasis on underlying mechanisms and implications for health. Psychol Bull. 1996;119: 489-531.
  • 40. Christenfeld N, Gern W, Linden W, et al. Social support effects on cardiovascular reactivity: Is a stranger as effective as a friend? Psychosom Med. 1997; 59:388-398.

Relationship between the independence level of children with physical disabilities and physical health, quality of life and social support of their parents

Year 2020, Volume: 7 Issue: 2, 177 - 185, 31.08.2020

Abstract

Purpose: The study was conducted to examine the relationship between physical health, quality of life and social support of the parents of children with physical disabilities and the independence level of these children.
Methods: Sixty-one mothers of disabled children aged between 18 and 50 years were included in the study. Their muscular strength and endurance, musculoskeletal pain, quality of life and received social support were evaluated. A hand-held dynamometer and McGill protocol were used to assess muscle strength and endurance, respectively. The Short Form-36 questionnaire was used to assess the quality of life, Cornell Musculoskeletal Discomfort Questionnaire was used to assess musculoskeletal pain and Multidimensional Perceived Social Support Scale was used to assess social support perceived. Wee Functional Independence Measure questionnaire was used to determine the functional independence of children with disabilities.
Results: There were statistically significant and positive correlations between Wee Functional Independence Measure scores of children and scores of mothers' social function subscale of Short Form-36 scale (p <0.05). There was a significant and negative relationship between Wee Functional Independence Measure scores of children and in 21 out of 33 of muscle group muscular strength of mothers (p <0.05).
Conclusion: Children who are functionally more independent in their daily lives influencing physical and social well-being of their mothers. Physiotherapy and rehabilitation programs should focus on increasing the independence level of children with disabilities.

References

  • 1. Aykanat B, Balcı S. Fiziksel engelli çocuk ve ailesinin evde bakım gereksinimi. Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi. 2015;4: 1-3.
  • 2. Akandere M, Acar M, Baştuğ G. Zihinsel ve fiziksel engelli çocuğa sahip anne ve babaların yaşam doyumu ve umutsuzluk düzeylerinin incelenmesi. Selçuk Üniversitesi Sosyal Bilimler Enstitüsü Dergisi. 2009;22: 4-6.
  • 3. Canarslan H, Ahmetoğlu E. Engelli çocuğa sahip ailelerin yaşam kalitesinin incelenmesi. Trakya Üniversitesi Sosyal Bilimler Dergisi. 2015;17: 13-31.
  • 4. Kaya K, Unsal-Deliaglioglu S, Ordu-Gokkaya NK, et al. Musculoskeletal pain, quality of life and depression in mothers of children with cerebral palsy. Disabil Rehabil 2010;32: 1666-1672.
  • 5. Garip Y, Ozel S, Tuncer O, et al. Fatigue in the mothers of children with cerebral palsy. Disabil Rehabil. 2016;
  • 6. Guyard A, Michelsen S.I, Arnaud C, et al. Measuring the concept of impact of childhood disability on parents: Validation of a multidimensional measurement in a cerebral palsy population. Res Dev Disabil 2012;33:1594-1604.
  • 7. Ansari NJR, Dhongade KR, Lad P, et al. Study of parental perceptions on health social needs of children with neurodevelopmental disability and it's impact on the family. J Clin Diagn Res. 2016;10:16.
  • 8. Terzi R, Tan, G. Musculoskeletal system pain and related factors in mothers of children with cerebral palsy. Ağrı. 2016; 28:1.
  • 9. Sharan D, Ajeesh P.S, Rameshkumar R, Manjula M. Musculoskeletal disorders in caregivers of children with cerebral palsy following a multilevel surgery. Work. 2012; 41:1891-1895.
  • 10. Bumin G, Günal A, Tükel Ş. Anxiety, depression and quality of life in mothers of disabled children. S.D.Ü. Tıp Fak Derg. 2015;15: 6-11.
  • 11. Ketelaar M, Volman M.J.M, Gorter J.W, Vermeer A. Stress in parents of children with cerebral palsy: what sources of stress are we talking about? Child Care Health Dev. 2008;doi:10.1111/j.1365-2214.2008.00876.
  • 12. Erdoğanoğlu Y, Kerem Günel M. Serebral paralizili çocukların ailelerinin sağlıkla ilgili yaşam kalitelerinin araştırılması. Toplum Hekimliği Bülteni. 2007; 26.
  • 13. Çelik EM, Daşkapan A, Topcu ZG. Physical fitness, physical activity, psychosocial status and quality of life of adolescent siblings of neurologically disabled children. Baltic Journal of Health and Physical Activity. 2018; 10.3: 27-37.
  • 14. Cuzzocrea F, Murdaca A.M, Costa S, et al. Parental Stress, Coping Strategies and Social Support in Families of Children with a Disability. Child Care Pract. 2016; 22: 3-19.
  • 15. Gugala B, Penar-Zadarko B, Pięciak-Kotlarz D, et al. Assessment of Anxiety and Depression in Polish Primary Parental Caregivers of Children with Cerebral Palsy Compared to a Control Group, as well as Identification of Selected Predictors. International journal of environmental research and public health. 2019; 16.21; 4173.
  • 16. Ahmetoğlu E, Canarslan H, Kutlu K, et al. Zihin ve hareket engelli çocukların özel eğitim ve rehabilitayon programlarına devam etme nedenlerinin incelenmesi. Abant İzzet Baysal Üniversitesi Eğitim Fakültesi Dergisi. 2005;5.
  • 17. Aybay C, Erkin G, Elhan AH, et al. ADL assessment of nondisabled Turkish children with the WeeFIM instrument. American journal of physical medicine & rehabilitation. 2007; 86.3: 176-182.
  • 18. Ware Jr JE, Sherbourne CD. The MOS 36-item short-form health survey (SF-36): I. Conceptual framework and item selection. Medical care, 1992; 473-483.
  • 19. Koçyiğit H, Aydemir O, Olmez N. Reliability and validity of SF-36 for Turkish. J Aegean Phys Ther Rehabil. 1999;12: 102-106.
  • 20. Hedge A, Morimoto S, Mccrobie D. Effects of keyboard tray geometry on upper body posture and comfort. Ergonomics, 1999; 42.10: 1333-1349.
  • 21. Erdinç O, Hot K, Ozkaya M. Turkish version of Cornell Musculoskeletal Discomfort Questionnaire cross-cultural adaptation and validation. Work. 2011;39:251-60
  • 22. Zimet GD, Dahlem NW, Zimet SG, et al. The multidimensional scale of perceived social support. J Pers Assess.1988;52:30-41.
  • 23. Eker D, Arkar H, Yaldız H. Generality of support sources and psychometric properties of a scale of perceived social support in Turkey. Soc Psychiatry Psychiatr Epidemiol. 2000;35:228-33.
  • 24. Thorborg K, Petersen J, Magnusson S, et al. Clinical assessment of hip strength using a hand‐held dynamometer is reliable. Scandinavian journal of medicine & science in sports. 2010;20.3:493-501.
  • 25. Le-Ngoc Lan, J. Validity and reliability of a handheld dynamometer for dynamic muscle strength assessment. Rehabil Med. 2012;4: 53-66.
  • 26. Van OL. Cram session in goniometry and manual muscle testing: a handbook for students & clinicians. Thorofare: Slack; 2013.
  • 27. Moreland J, Finch E, Stratfort P, et al. Interrater reliability of six tests of trunk muscle function and endurance. J Orthop Sports Phys Ther 1997;26: 200-208.
  • 28. Doğru SY, Arslan E. Engelli çocuğu oln annelerin sürekli kaygı düzeyi ile durumluk kaygı düzeylerinin karşılaştırılması. SÜ. Sosyal Bil. Ens. D. 2008: 19.
  • 29. Arslan SA, Erbahçeci F. Bel ağrısında farklı fizyoterapi programlarının ağrı, endurans ve yaşam kalitesi üzerine etkisi. Fırat Med J 2016;21: 84-90.
  • 30. Telci EA, Yarar F, Cavlak U, Atalay OT. Comparison of musculoskeletal pain distribution, quality of life and hopelessness level in mothers with disabled children in differen ambulation levels. J Back Musculoskeletal. 2018;31; 305-313.
  • 31. Gowen JW, Martin JN, Goldman BD, et al. Feelings of depression and parenting competence of mothers of handicapped and nonhandicapped infants: A longitudinal study. Am J Ment Retard 1989;94: 259-271.
  • 32. Aybar SŞS. Özel Eğitim merkezinde tedavi edilen çocukların anne ve babalarında depresyon ve yaşam kalitesi analizi. Yüksek Lisans Tezi. İstanbul. İstanbul Üniversitesi Sağlık Bilimleri Enstitüsü. 2014.
  • 33. Ramita S, Yadav SL, Singh U, et al. Physical and mental health among caregivers of children with cerebral palsy. Astrocyte. 2016: doi: 10.4103/2349-0977.191038.
  • 34. Sahida K, Allenidekania A. The relationship between characteristics of parent-child and level fatigue of parents with autism spectrum disorder, UI Proc on Health Med. 2017; 1.
  • 35. Lee MH, Park C, Matthews AK, et al. Differences in physical health, and health behaviours between family caregivers of children with and without disabilities. Disabil Health J 2017;10: 565-570.
  • 36. Jones J, Passey J. Family adaptation, coping and resources: parents of children with developmental disabilities and behaviour problems, J Dev Disabil.2005;11:31-46.
  • 37. Ayyıldız T, Şener DK, Kulakçı H, et al. Zihinsel engelli çocuğa sahip annelerin stresle baş etme yöntemlerinin değerlendirilmesi. Ankara Sağlık Hizmetleri Dergisi. 2013;11: 1-12.
  • 38. Karadağ G. Engelli çocuğa sahip annelerin yaşadıkları güçlükler ile aileden algıladıkları sosyal destek ve umutsuzluk düzeyleri. TAF Prev Med. 2009; 8:315-322.
  • 39. Uchino BN, Cacioppo JT, Kiecolt-Glaser JK. The relationship between social support and physiological processes: a review with emphasis on underlying mechanisms and implications for health. Psychol Bull. 1996;119: 489-531.
  • 40. Christenfeld N, Gern W, Linden W, et al. Social support effects on cardiovascular reactivity: Is a stranger as effective as a friend? Psychosom Med. 1997; 59:388-398.
There are 40 citations in total.

Details

Primary Language English
Subjects Health Care Administration
Journal Section Articles
Authors

Nesrin Dökmen This is me

Beliz Belgen Kaygisiz 0000-0003-4801-0884

Zehra Güçhan Topçu This is me

Publication Date August 31, 2020
Submission Date August 27, 2019
Published in Issue Year 2020 Volume: 7 Issue: 2

Cite

Vancouver Dökmen N, Belgen Kaygisiz B, Güçhan Topçu Z. Relationship between the independence level of children with physical disabilities and physical health, quality of life and social support of their parents. JETR. 2020;7(2):177-85.