Pediatrik palyatif bakımda yaşam sonu bakım kavramı

Year 2022, , 394 - 398, 26.12.2022

Şanlıay Şahin , Fatma Zehra Öztek Çelebi , Ganime Ayar

https://doi.org/10.47582/jompac.1192764

Cited By: 1

Abstract

Bir çocuğun yaşam sonu bakımı sorunu çok önemlidir, çünkü bir ailenin ölümle ilgili sıkıntılarından ve kederinden kurtulması tamamen buna bağlıdır. Bu özellikli bakımın kalitesinin iyileştirilmesi için konjenital anomaliler, yaşamı tehdit eden hastalıklar ve yaşamı kısıtlayan durumlarda palyatif bakım birimlerinde beklenen yaşam süresinin ve mortalitenin belirlenmesi yararlı olacaktır. Sadece primer bakım verenler değil, aynı zamanda kardeşler, büyükanne/büyükbabalar, akrabalar ve sağlık profesyonelleri de çocuğun ölümünden etkilenmektedir ve onların ihtiyaçları da önemlidir. Ayrıca günümüzde ailelerin ‘güzel ölüm’ tabirini nasıl tanımladıkları ve bu kayıpla nasıl başa çıkılacağı konusunda daha fazla veriye ihtiyaç vardır. Gelişmekte olan ülkelerdeki pediatrik palyatif bakım personelinin, ölmekte olan çocuk ve ailelerine uygun bakımı verebilmek için yaşam sonu bakımı hakkında disiplinli bir eğitim almaya ihtiyacı vardır. Bir çocuğun hem yaşam hem de ölüm kalitesini artırırken, bununla birlikte konfor, anlam ve destek bulmalarına yardımcı olan aile merkezli bir yaşam sonu bakım sağlamak önemlidir. Pek çok hekim ve sağlık profeyoneli, ölmekte olan hasta ve aileleriyle iletişim kurarken, canlandırma işlemi ve çocuk palyatif bakıma geçiş noktasında deneyimsiz hissetmektedir. Bir çocuğun başına gelebilecek ‘güzel ölüm/saygın ölüm’, yaşam sonu bakımı iyileştirmek için ortaya çıkan bir kavramdır. Bu derlemenin amacı, sağlık bakım hizmetleri profesyonellerine ve hekimlere pediyatrik palyatif bakımda yaşam sonu bakım kavramıyla ilgili farkındalık oluşturmak ve daha geniş bir bakış açısı sağlamaktır.

Keywords

Bakım, çocuk, palyatif, pediatrik, yaşam sonu

End-of-life care in pediatric palliative care

Abstract

The problem of EOL care of a child is very important because the recovery of a family from grief over a child’s death depends on that manner. For improving the quality of this specific care, it would be useful to assess the life expectancy/survival of congenital anomalies, life-threatening diseases, conditions that may shorten a child’s life, and the outcomes of palliative care units regarding mortality. Besides, there is an urgent need for more data on what families define as ‘good death’ and how to cope with the loss. Not only caregivers but also siblings, grandparents, relatives, and healthcare professionals are impacted by a child’s death and their needs must be explored. Pediatric palliative care staff in low/middle-income countries need educational assistance for skills of multidisciplinary training about end-of-life care to improve appropriate care for dying children and their families. It is important to provide sensitive and empathetic end-of-life care to children in a family-centered manner helping them to find comfort, meaning, and support while enhancing the quality of a child’s life and death. Many attending physicians felt inexperienced when communicating with dying patients and their families while discussing the transition to palliative care and resuscitation status. Also, the good death of a child is an emerging concept in this research domain to improve end-of-life care for dying children and their families. The goal of this review was to provide pediatric healthcare professionals and physicians with an overview of palliative care regarding end-of-life issues.

Keywords

Care, child, end of life, palliative, pediatric

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