The Experiences of Mothers With Bedbound Children: Care Burden

Semiha Dönmez; İskender Gün

doi:10.58241/ksbd.8

The Experiences of Mothers With Bedbound Children: Care Burden

Abstract

This study was carried out to evaluate the problems experienced by mothers with bedridden children and to determine the effects of care burdens on mothers.The study was carried out on mothers who had a bedridden child who was in the Neurology Service between November 2016 and May 2017. The data were collected through a 19-question introductory form and the caregiver burden scale developed by Zarit. The data were evaluatedusing a computer. In statistical analysis, t-test, analysis of variance and chi-square test were used in independent samples. A p-value less than 0.05 was considered statistically significant.The moderateage of 200 mothers participating in the study was found to be 30.8 ± 7.0 years, and themoderatecare burden score was found to be 35.1 ± 24.3, and it was evaluated as mild to moderate. It was found that the younger the mother's age and the age of the child cared for, the greater the burden of care, and the longer the duration of care, the higher theburden of care. Being widowed, having a job and not having social security are factors that increase the burden of care. The effect of all these variables on burden of care was not statistically significant. The main problems that mothers experience whileproviding care are psychological problems and musculoskeletal problems.In order to minimize the burden of care for mothers with bedridden children, other family members should be included in the care, and parents should be supported psychologically.

Keywords

Ethical Statement

The research was carried out in accordance with the Declaration of Helsinki. Ethics committee approval was obtained from Erciyes University clinical research ethics committee before starting the study. In addition, voluntary informed consent forms were filled out by mothers who agreed to participate in the study (Decision no: 20161600/ Date: 18.11.2016).

References

Akyar, I., Akdemir, N. (2009). Strains of Caregivers of Alzheimer Patients. Hacettepe University Faculty of Health Sciences Journal of Nursing, 16 (3), 32-49.
Alpteker, H. (2008). Determining the Difficulties Experienced by Home Caregivers for 65 Years and above. PhD thesis,Abant Izzet Baysal University, Turkey.Aşiret, G.D. (2011). Care Burden of Relatives Caring for Patients with Stroke. PhD thesis, Hacettepe University, Turkey.
Bahar, A., Parlar, S. (2007). Aging and Home Care. Fırat Journal of Health Services, 2(4), 33-37.
Brehaut, J. C., Kohen, D. E., Raina, P., Walter, S. D., Russell, D. J., Swinton, M., O’Donnel, M., Rosenbaum, P. (2004). The health of primary caregivers of children with cerebral palsy: how does it compare with that of other Canadian caregivers? Pediatrics,114(2), e182-e191.
Bugge, C., Alexander, H., & Hagen, S. (1999). Stroke patients’ informal caregivers: Patient, caregiver, and service factors that affect caregiver strain. Stroke,30(8), 1517-1523.
Demir Ö, Aysoy M. (2009). Turkey Disability Survey 2002. State Institute of Statistics Press, Ankara.
Fertelli, T. K., & Tuncay, F. Ö. (2019). Relationship between care burden, social support and quality of life in stroke caregivers. Journal of Academic Research in Nursing, 5(2), 107-115.İnci, F.H., Erdem, M. (2008). Validity and reliability of the Turkish version of the burden interview. Journal of Anatolia Nursing and Health Sciences, 11, 85-95.
Işık, K., Erci, B. (2018). Life Satisfaction and Care Burden of Caregivers Who Provide Care at Home to Elderly Patients and the Inflfluencing Factors,10(1),11-17.

Koçak, G. (2011). Caregiver Burden in Stroke Patients. PhD thesis,Istanbul University, Turkey.
Ma, H. P., Lu, H. J., Xiong, X. Y., Yao, J. Y., & Yang, Z. (2014). The investigation of care burden and coping style in caregivers of spinal cord injury patients. International Journal of Nursing Sciences,1(2), 185-190.
Mollaoglu, M., Tuncay, F., & Fertelli, T. (2011). Care burden of care givers of stroke patients and related factors. Dokuz Eylul University School of Nursing Electronic Journal,4(3), 125-30.
Özdemir, F.K., Şahin, Z.A., Küçük, D. (2009). The determining of the caregiver burden of the mothers with a child with cancer. New Journal of Medicine, 26, 153-158.
Pandey, R.N., Halder, S.K., Rath, P.K. Development and validation of “Caregiver Burden Scale-Indian population”. Int J Prev Med, 10, 31-35.
Reimer, W. S. O., De Haan, R. J., Pijnenborg, J. M. A., Limburg, M., & Van den Bos, G. A. M. (1998). Assessment of burden in partners of stroke patients with the sense of competence questionnaire. Stroke,29(2), 373-379.
Şahin, Z. A., Polat, H., & Ergüney, S. (2009). Determine burden care for caregivers of cancer patients receiving chemotherapy. Journal of Nursing and Health Sciences, 12(2), 1-9.
Tang, B., Harary, E., Kurzman, R., Mould-Quevedo, J. F., Pan, S., Yang, J., & Qiao, J. (2013). Clinical characterization and the caregiver burden of dementia in China. Value in health regional issues, 2(1), 118-126.
Tel, H., Demİrkol, D., Kara, S., & Aydın, D. (2012). Care burden and quality of life among the caregivers of patients with COPD. Türk Toraks Dergisi/Turkish Thoracic Journal,13(3), 87-92.
Tülüce D. (2012). Evaluation of the care burden of care givers in patients with heart failure. PhD thesis,Gaziantep University Institute of Health Sciences, Turkey.
Tuna, M., Olgun, N. (2010). The Role of Perceived Social Support on Stroke Patients’ Caregivers with Burnout Syndrome. Hacettepe University Faculty of Health Sciences Nursing Journal, 17, 41-52.
Yildiz, E., Dedeli, O., & Pakyuz, S. C. (2016). Evaluation of care burden and quality of life among family caregivers of patients with cancer/Kanser hastalarina bakim veren aile uyelerinin bakim yuku ve yasam kalitesinin incelenmesi. Journal of Education and Research in Nursing, 13(3), 216-226.
Yotani, N., Ishiguro, A., Sakai, H., Ohfuji, S., Fukushima, W., & Hirota, Y. (2014). Factor‐associated caregiver burden in medically complex patients with special health‐care needs. Pediatrics International, 56(5), 742-747.
Zaybak, A., Güneş, Ü., İsmailoğlu, E. G., & Ülker, E. (2012). The determination of burden care of caregivers for bedbound patients. Anatolian Journal of Nursing and Health Sciences,15(1), 48-54.

Details

Primary Language

English

Subjects

Public Health (Other)

Journal Section

Research Article

Authors

Semiha Dönmez This is me
0000-0001-5941-7685
Türkiye

İskender Gün
0000-0001-7333-662X
Türkiye

Publication Date

April 30, 2023

Submission Date

November 29, 2022

Acceptance Date

April 3, 2023

Published in Issue

Year 2023 Volume: 1 Number: 2

DOI

https://doi.org/10.58241/ksbd.8

IZ

https://izlik.org/JA57JT64AK

Cite

RIS / Bibtex

APA

Dönmez, S., & Gün, İ. (2023). The Experiences of Mothers With Bedbound Children: Care Burden. Kapadokya Sağlık Bilimleri Dergisi, 1(2), 73-84. https://doi.org/10.58241/ksbd.8

AMA

1.Dönmez S, Gün İ. The Experiences of Mothers With Bedbound Children: Care Burden. CJHS. 2023;1(2):73-84. doi:10.58241/ksbd.8

Chicago

Dönmez, Semiha, and İskender Gün. 2023. “The Experiences of Mothers With Bedbound Children: Care Burden”. Kapadokya Sağlık Bilimleri Dergisi 1 (2): 73-84. https://doi.org/10.58241/ksbd.8.

EndNote

Dönmez S, Gün İ (April 1, 2023) The Experiences of Mothers With Bedbound Children: Care Burden. Kapadokya Sağlık Bilimleri Dergisi 1 2 73–84.

IEEE

[1]S. Dönmez and İ. Gün, “The Experiences of Mothers With Bedbound Children: Care Burden”, CJHS, vol. 1, no. 2, pp. 73–84, Apr. 2023, doi: 10.58241/ksbd.8.

ISNAD

Dönmez, Semiha - Gün, İskender. “The Experiences of Mothers With Bedbound Children: Care Burden”. Kapadokya Sağlık Bilimleri Dergisi 1/2 (April 1, 2023): 73-84. https://doi.org/10.58241/ksbd.8.

JAMA

1.Dönmez S, Gün İ. The Experiences of Mothers With Bedbound Children: Care Burden. CJHS. 2023;1:73–84.

MLA

Dönmez, Semiha, and İskender Gün. “The Experiences of Mothers With Bedbound Children: Care Burden”. Kapadokya Sağlık Bilimleri Dergisi, vol. 1, no. 2, Apr. 2023, pp. 73-84, doi:10.58241/ksbd.8.

Vancouver

1.Semiha Dönmez, İskender Gün. The Experiences of Mothers With Bedbound Children: Care Burden. CJHS. 2023 Apr. 1;1(2):73-84. doi:10.58241/ksbd.8