Factors Supporting Autonomy Development in Individuals with Spina Bifida: A Qualitative Study

Canan Aydoğan Tor; Nilgün Küçükkaraca

doi:10.26466/opusjsr.1536888

TR EN

Spina Bifidalı Bireylerde Özerklik Gelişimini Destekleyen Faktörler: Nitel Bir Çalışma

Abstract

Çalışmalar, engelli bireylerin psikolojik iyi oluşu ve sosyal katılımı için özerkliğin önemli bir belirleyici olduğunu göstermektedir. Ancak, spina bifidalı bireylerde özerklik gelişimini etkileyen faktörler henüz tam olarak aydınlatılamamıştır. Bu çalışma, spina bifidalı yetişkinlerin özerkliklerini inşa etmelerinde etkili olan yaşam deneyimlerini incelemeyi amaçlamaktadır. Nitel bir araştırma yaklaşımı olan fenomenolojik araştırma yöntemi kullanılarak spina bifida tanısı almış dokuz katılımcı ile derinlemesine, yarı yapılandırılmış görüşmeler gerçekleştirilmiştir. Bulgular, sorumluluk alma, özgüven ve yakın ilişkilerin özerklik gelişimine katkıda bulunduğunu ortaya koymuştur. Ayrıca, kadın katılımcıların özerkliklerini geliştirirken cinsiyetlerine bağlı olarak ek zorluklarla karşılaştığı tespit edilmiştir. Bu çalışmanın, spina bifidalı gençlerde özerklik gelişimini destekleyen faktörlerin daha iyi anlaşılmasına katkı sağlamasını umuyoruz. Aileler ve profesyoneller, çocukların yaşlarına uygun sorumluluklar almasına ve özgüvenlerini artırıcı faaliyetlere katılmalarına odaklanmalıdır. Aynı zamanda, güçlü aile ve akran ilişkilerini destekleyecek hizmetlerin geliştirilmesi önerilmektedir.

Keywords

özerklik, spina bifida, nitel araştırma, güçlendirme, iyi oluş

Factors Supporting Autonomy Development in Individuals with Spina Bifida: A Qualitative Study

Abstract

Studies have shown that autonomy is a strong determinant of psychological well-being and social participation for individuals with disabilities. However, the factors influencing the development of autonomy in individuals with spina bifida have not yet been elucidated. This study aimed to explore the life experiences of adults with spina bifida that influence them in building their autonomy. In-depth, semi-structured interviews were conducted with nine people diagnosed with spina bifida using the phenomenological research method, which is a qualitative research approach. As a result of the interviews, it was concluded that assuming responsibility, self-confidence and close relationships contributed to the participants’ autonomy development. It has also been found that female participants faced additional challenges related to their gender when developing their autonomy. We expect that this qualitative study will contribute to a better understanding of the factors supporting autonomy development in youth with spina bifida. In particular, families and professionals working in this field should focus on helping children and adolescents with spina bifida to assume more responsibility at an age-appropriate level and participate in activities to increase their self-confidence. Supportive services should be developed to ensure strong family and peer relationships.

Keywords

Autonomy, spina bifida, qualitative, empowerment, well-being

Ethical Statement

We confirm that neither the manuscript nor any parts of its content are currently under consideration for publication with or published in another journal. All authors have approved the manuscript and agree with its submission to OPUS Journal of Society Research.

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Details

Primary Language

English

Subjects

Clinical Social Work Practice, Social Work (Other)

Journal Section

Research Article

Authors

Canan Aydoğan Tor ^*
0000-0002-4009-7148
Türkiye

Nilgün Küçükkaraca
0000-0002-4344-1258
Türkiye

Early Pub Date

November 30, 2024

Publication Date

December 2, 2024

Submission Date

August 21, 2024

Acceptance Date

October 29, 2024

Published in Issue

Year 2024 Volume: 21 Number: 6

DOI

https://doi.org/10.26466/opusjsr.1536888

IZ

https://izlik.org/JA53DN23DA

APA

Aydoğan Tor, C., & Küçükkaraca, N. (2024). Factors Supporting Autonomy Development in Individuals with Spina Bifida: A Qualitative Study. OPUS Journal of Society Research, 21(6), 407-420. https://doi.org/10.26466/opusjsr.1536888

AMA

1.Aydoğan Tor C, Küçükkaraca N. Factors Supporting Autonomy Development in Individuals with Spina Bifida: A Qualitative Study. OPUS JSR. 2024;21(6):407-420. doi:10.26466/opusjsr.1536888

Chicago

Aydoğan Tor, Canan, and Nilgün Küçükkaraca. 2024. “Factors Supporting Autonomy Development in Individuals With Spina Bifida: A Qualitative Study”. OPUS Journal of Society Research 21 (6): 407-20. https://doi.org/10.26466/opusjsr.1536888.

EndNote

Aydoğan Tor C, Küçükkaraca N (December 1, 2024) Factors Supporting Autonomy Development in Individuals with Spina Bifida: A Qualitative Study. OPUS Journal of Society Research 21 6 407–420.

IEEE

[1]C. Aydoğan Tor and N. Küçükkaraca, “Factors Supporting Autonomy Development in Individuals with Spina Bifida: A Qualitative Study”, OPUS JSR, vol. 21, no. 6, pp. 407–420, Dec. 2024, doi: 10.26466/opusjsr.1536888.

ISNAD

Aydoğan Tor, Canan - Küçükkaraca, Nilgün. “Factors Supporting Autonomy Development in Individuals With Spina Bifida: A Qualitative Study”. OPUS Journal of Society Research 21/6 (December 1, 2024): 407-420. https://doi.org/10.26466/opusjsr.1536888.

JAMA

1.Aydoğan Tor C, Küçükkaraca N. Factors Supporting Autonomy Development in Individuals with Spina Bifida: A Qualitative Study. OPUS JSR. 2024;21:407–420.

MLA

Aydoğan Tor, Canan, and Nilgün Küçükkaraca. “Factors Supporting Autonomy Development in Individuals With Spina Bifida: A Qualitative Study”. OPUS Journal of Society Research, vol. 21, no. 6, Dec. 2024, pp. 407-20, doi:10.26466/opusjsr.1536888.

Vancouver

1.Canan Aydoğan Tor, Nilgün Küçükkaraca. Factors Supporting Autonomy Development in Individuals with Spina Bifida: A Qualitative Study. OPUS JSR. 2024 Dec. 1;21(6):407-20. doi:10.26466/opusjsr.1536888

Spina Bifidalı Bireylerde Özerklik Gelişimini Destekleyen Faktörler: Nitel Bir Çalışma

Abstract

Keywords

Factors Supporting Autonomy Development in Individuals with Spina Bifida: A Qualitative Study

Abstract

Keywords

Ethical Statement

References

Details

Primary Language

Subjects

Journal Section

Authors

Early Pub Date

Publication Date

Submission Date

Acceptance Date

Published in Issue

DOI

IZ

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