EVALUATION OF THE QUALITY OF LIFE OF CHILDREN WITH SPECIAL NEEDS FROM THE PERSPECTIVE OF MOTHERS: A DESCRIPTIVE CROSS-SECTIONAL ANALYSIS STUDY

Year 2024, Volume: 24 Issue: 63, 319 - 337, 28.06.2024

Zila Özlem Kırbaş

https://doi.org/10.21560/spcd.vi.1370864

Abstract

This study aimed to examine quality of life in children with special needs and affecting factors
from the perspective of mothers. A descriptive cross-sectional study was conducted with
mothers (n=99) of children with special needs between the ages of 5-18 living in a province in
the Eastern Black Sea Region of Türkiye. Personal Information Form and QI-Disability-Parent
Form were used to collect data. A significant difference was found between children’s QI-Disability-
Parent Form total scores and their diagnosis and verbal communication ability (p<0.05).
Multiple linear regression analysis showed that verbal communication ability was a statistically
significant negative predictor of QI-Disability-Parent Form scores, meeting personal needs of
positive emotions, verbal communication ability of social interaction, and verbal communication
ability and ability to use one’s hands of independence (p<0.01, p<0.05). Verbal communication
ability was a particularly important factor affecting quality of life.

Keywords

Child, special needs, quality of life

ÖZEL GEREKSİNİMLİ ÇOCUKLARIN YAŞAM KALİTESİNİN ANNE PERSPEKTİFİNDEN DEĞERLENDİRİLMESİ: TANIMLAYICI BİR KESİTSEL ANALİZ ÇALIŞMASI

Abstract

Bu çalışma annelerin bakış açısından özel gereksinimi olan çocukların yaşam kaliteleri ve
etkileyen faktörleri incelemeyi amaçlamıştır. Tanımlayıcı kesitsel tipteki çalışma, Türkiye’nin
Doğu Karadeniz Bölgesi’nde bulunan bir ilde yaşayan 5-18 yaş arasındaki özel gereksinimli
çocukların anneleri (n=99) ile yürütüldü. Veriler, Kişisel Bilgi Formu ve QI-Disability-Parent
Form ile toplandı. QI-Disability-Parent Form toplam puanları ile çocuğun tanısı, sözlü iletişim
durumu arasında anlamlı bir fark bulundu (p<0,05). Çoklu doğrusal regresyon analizi ile
çocuğun sözlü iletişim durumunun QI-Disability-Parent Form, çocuğun kişisel ihtiyaçlarının
karşılanması durumunun Pozitif duygular, çocuğun sözlü iletişim durumunun Sosyal etkileşim,
çocuğun sözlü iletişim ve ellerini kullanabilme durumunun Bağımsızlık alt boyutlarını
negatif yönde istatiksel olarak anlamlı yordadığı belirlendi (p<0,01, p<0,05). Özellikle
çocuğun sözlü iletişim durumu yaşam kalitesini etkileyen önemli faktörlerden biriydi.

Keywords

Çocuk, özel gereksinim, yaşam kalitesi

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