Comparison of depression, anxiety, and health related quality of life levels of parents of children with neuromuscular diseases

Year 2013, Volume: 24 Issue: 1, 54 - 63, 01.04.2013

Abstract

Purpose: In this study, the differences in psychological status of the parents of children with moderate disability, associated with neuromuscular diseases (ND), were determined. Methods: The parents of 35 children, who had ND, were included in the study. The mother was the primary caregiver in all cases. The Wee-Functional Independence Measurement (Wee-FIM) was used to evaluate the dependence of children. Parents’ anxiety, depression and Health Related Quality of Life (HRQOL) levels were assessed using the Beck Depression Inventory (BDI), the State-Trait Anxiety Inventory (STAI) and the Nottingham Health Profile (NHP). Results: Mothers’ trait anxiety levels were higher than fathers. State anxiety levels were similar between two groups (p>0.05). Mothers’ had worse HRQOL, and they were more depressive (p<0.05). Mothers’ HRQOL was correlated with the time spent with the child, BDI and trait anxiety scores of mothers, age and education status of mothers and the FIM score of the children (p<0.05). Fathers’ HRQOL was correlated with time spent with the child, BDI and state anxiety scores of fathers (p<0.05). Fathers of sons had worse HRQOL, than fathers of daughters (p<0.05). Conclusion: Mothers and fathers of children with ND presented several differences with respect to the impact of their caregiving role on psychological status. The vulnerable fathers as well as mothers should be identified, and psychological support should be provided in time. Fathers’ active participation in the care may favorably affect the mothers’ HRQOL

Keywords

Disabled children , Parents , Neuromuscular disease , Quality of life

Nöromusküler hastalığı olan çocukların ebeveynlerinin depresyon, anksiyete

Abstract

Amaç: Bu çalışma nöromüsküler hastalığa (NH) bağlı orta düzeyde yetiyitimi olan çocukların, ebeveynlerinin psikolojik durumlarını karşılaştırmak amacıyla yapıldı. Yöntem: Bu çalışmaya, NH’ı olan 35 çocuğun ebeveyni alındı. Anne tüm olgularda birincil bakımverendi. Çocukların bağımlılık düzeylerini değerlendirmek amacıyla Wee-Fonksiyonel Bağımsızlık Ölçeği (Wee-FIM) kullanıldı. Ebeveynlerin depresyon, anksiyete ve sağlıkla ilgili yaşam kalitesi (SİYK) düzeyleri, Beck Depresyon Ölçeği (BDÖ), Durumluk/Sürekli Kaygı Envanteri (DSKE) ve Nottingham Sağlık Profili (NSP) kullanılarak değerlendirildi. Sonuçlar: Annelerin sürekli kaygı düzeyleri babalardan yüksekti. İki grubun durumluk kaygı düzeyleri ise benzer bulundu (p>0.05). SİYK annelerde daha kötüydü ve annelerin depresyon düzeyleri babalardan daha yüksekti (p<0.05). Annelerin SİYK’si, Wee-FIM puanı, çocuk ile harcanan zaman, anne yaşı ve eğitim durumu, BDÖ ve sürekli kaygı puanı ile ilişki gösterdi (p<0.05). Babaların SİYK’si ile çocukla beraber olunan süre, BDÖ ve durumluk kaygı puanı arasında ilişki saptandı (p<0.05). Oğulları olan babalarda SİYK, kızları olan babalara göre daha kötüydü (p<0.05). Tartışma: Anne ve babalar, NH olan çocuklarına bakım vermenin psikolojik durumlarına etkisi açısından çeşitli farklılıklar göstermektedir. Çeşitli duyarlılıkları olan anneler ve özellikle de babalar belirlenmeli ve gecikmeden gerekli psikolojik destek almaları sağlanmalıdır. Babaların çocukların bakımına aktif olarak katılması, annenin SİYK’sini olumlu etkileyebilir

Keywords

Yeti yitimi olan çocuklar , Ebeveyn , Nöromusküler hastalık , Yaşam kalitesi

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