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Reliability and validiyt of Turkish version of Pediatric Outcome Data Collection Instrument (PODCI) for people with cerebral palsy

Year 2013, Volume: 24 Issue: 1, 118 - 126, 01.04.2013

Abstract

Purpose: Assessment of functional health and health related quality of life (HRQL) of children with cerebral palsy (CP) are important for effective rehabilitation practices. Therefore, the present study was aimed to provide a Turkish version of PODCI which is one of the prevalently used HRQL scales in CP, to investigate reliability and validity of the scale for children with CP. Methods: Age range was between 2 and 18 years, 105 children with CP, 48 healthy children and their mothers were recruited for the study subjects were divided into three age groups, i.e. 2-7, 8-12, and 13-18. GMFCS levels, clinical types, demographical and socio-economical data of the cases with CP, PODCI scores and also PedsQL and CHQ PF-50 scores as a gold standard, of participants were recorded. Results: Findings of the reliability of PODCI showed that the internal consistency was acceptable and test-retest reliability was quite high (Alpha=0.93, ICC=0.992). Findings of the validity of the scale indicated that it was highly sensitive in separating children with CP from healthy children (p<0.001). The scale could differ age groups, clinical types and GMFCS groups only in the physical functioning domain (p<0.05). The correlations among subscales of three scales illustrated that the convergent validity was established while divergent validity was low. Conclusion: Turkish version of PODCI is reliable and valid for assessing functional health and HRQL of children with CP

References

  • Livingston MH, Rosenbaum PL, Palisano RJ. Quality of life among adolescents with cerebral palsy: what does the literature tell us. Dev Med Child Neurol. 2007;49:225-231.
  • Tüzün EH. Yetiyitimli Çocuklar ve Ailelerinde Sağlıkla İlgili Yaşam Kalitesi. Türkiye Klinikleri J PM&R-Special Topics. 2010;3:46-52.
  • Tüzün EH, Eker L, Daşkapan A. An assessment of the impact of cerebral palsy on children’s quality of life. Fizyoter Rehabil. 2004;15:3-8.
  • Higginson IJ, Carr AJ. Measuring quality of life: using quality of life measures in the clinical setting. BMJ. 2001; 322: 1297-1300.
  • Waters E, Davis E, Ronen GM. Quality of life instruments for children and adolescents with neurodisabilities: how to choose the appropriate instrument. Dev Med Child Neurol. 2009;51:660- 669.
  • Solans M, Pane S, Estrada MD. Health-related quality of life measurement in children and adolescents: a systematic review of generic and disease-specific 2008;11:742-764.
  • Barnes D, Linton JL, Sullivan E. Pediatric Outcomes
  • ınstruments. Value Health.
  • Davis E, Shelly A, Waters E. Measuring the quality of life of children with cerebral palsy: comparing the conceptual differences and psychometric properties of three instruments. Dev Med Child Neurol 2010; 52: 174-180.
  • II. Özürlüler Şurası, Erişim: 17.Aralık.2010 www.ozida.gov.tr/ sura/12.html
  • Serdaroğlu A, Cansu A, Özkan S. Prevalence of cerebral palsy in Turkish children between the ages of 2 and 16 years. Dev Med Child Neurol. 2006;48:413-416.
  • Daltroy LH, Liang MH, Fossel AH. The POSNA Pediatric Musculoskeletal Functional Health Questionnaire: report on reliability, validity, and sensitivity to change. J Pediatr Orthop. 1998;18:561- 571.
  • Kerem Günel M, Mutlu A, Livanelioğlu A, et al. Kaba Motor Fonksiyon Sınıflandırma Sistemi Genişletilmiş ve Yeniden Düzenlenmiş Şekli. http://motorgrowth.canchild.ca/en/gmfcs/resource s/turkishgmfcserfinal.pdf.
  • Oeffinger D. Outcome assessments in children with CP, part I: descriptive characteristics of GMFCS levels 1 to 3. Dev Med Child Neurol. 2007;52:324- 335
  • Gates P, Otsuka N, Sanders J. Functioning and health related quality of life of adolescents with cerebral palsy: self versus parent perspectives. Dev Med Child Neurol. 2010;52:843-849.
  • Eiser C, Morse R. Can parents rate their child’s health related quality of life? Results of a systematic review. Qual Life Res. 2001;10:347-357.
  • Koning MW, Arnaud C, Dickinson HO. Determinants of Child-Parent Agreement in Quality of Life Reports: A European Study of Children With Cerebral Palsy. Pediatrics. 2007;120:804-814.
  • Haynes RJ, Sullivan E. POSNA Pediatric Orthopaedic Functional Health Questionnaire: an analysis of normals. J Pediatr Orthop. 2001;21:619- 621.
  • Kerem Günel M, Mutlu A. Disability and its relation with functional independence in children with cerebral palsy: an ICF study of preliminary clinical experience from Turkey. Fizyoter Rehabil. 2007;18:171-178.
  • Gates P, Otsuka N, Sanders J. Functioning and health related quality of life of adolescents with cerebral palsy: self versus parent perspectives. Dev Med Child Neurol. 2010;52:843-849. Data Collection Instrument Scores in ambulatory children with cerebral palsy; an anlysis by age groups and severity level. J Pediatr Orthop. 2008;28:97-102.
  • Çakın Memik N, Ağaoğlu B, Coşkun A. Çocuklar İçin Yaşam Kalitesi Ölçeğinin 13-18 Yaş Ergen Formunun Geçerlik ve Güvenirlirliği. Türk Psikiyatri Dergisi. 2007;18:353-363.
  • Çakın Memik N, Ağaoğlu B, Coşkun A. Çocuklar İçin Yaşam Kalitesi Ölçeğinin 8-12 Yaş Ergen Formunun Geçerlik ve Güvenirlirliği. Çocuk ve Gençlik Ruh Sağlığı Dergisi. 2008;15:87-98.
  • Özdoğan H, Ruperto N, Kasapçopur O. The Turkish version of the Childhood Health Assessment Questionnaire (CHAQ) and The Child Health Questionnaire (CHQ). Clin Exp Rheumatol. 2001;19:158-162.
  • McCarthy ML, Silberstein CE, Atkins EA. Comparing reliability and validity of pediatric instruments for measuring health and well being of children with spastic cerebral palsy. Dev Med Child Neurol. 2002;44:468-476.

Pediatrik Veri Toplama Aracının (PVTA) Türkçe versiyonunun serebral palsili bireylerde geçerlik ve güvenirliği

Year 2013, Volume: 24 Issue: 1, 118 - 126, 01.04.2013

Abstract

Amaç: Serebral palsili (SP) çocukların fonksiyonel sağlık durumu ve sağlıkla ilgili yaşam kalitelerini (SİYK) değerlendirmek etkin rehabilitasyon uygulamaları için önem kazanmaktadır. Bu nedenle çalışmamızda, SP’li bireylerin fonksiyonel sağlık durumu ve SİYK’ni değerlendirmede yaygın olarak kullanılan Pediatrik Veri Toplama Aracı’nı (PVTA) Türkçe’ye kazandırmak, SP’li bireylerde geçerlik ve güvenilirliğini göstermek amaçlandı. Yöntem: Çalışmaya 2-18 yaş aralığında 105 SP’li, 48 sağlıklı birey ve anneleri katıldı. Bireyler yaşlarına göre 3 grupta incelendi. Bireylerin GMFCS seviyeleri, demografik ve sosyoekonomik bilgileri ile PVTA ve altın standart olarak kullanılan CHQ PF-50 ve PedsQL ölçek puanları kaydedildi. Sonuçlar: PVTA ölçeğinin güvenilirliği incelendiğinde iç tutarlılığı kabul edilebilir düzeyde ve test-tekrar test güvenilirliği oldukça yüksek bulundu (Alfa=0.93, ICC=0.992). Ölçeğin geçerliği incelendiğinde SP’li ve sağlıklı bireyleri ayırmada hassas olduğu (p<.001) ancak yaş grupları ve GMFCS seviyeleri arasında sadece fiziksel işlevsellik alanlarında farklılaşma gösterdikleri (p<0.05) bulundu. Üç ölçek arasında alt ölçeklerinin birleşme geçerliliği sağlandı ancak ayrışma geçerliliği düşük bulundu. Tartışma: SP’li çocukların, fonksiyonel sağlık durumu ve SİYK’ni ölçmede PVTA’nın Türkçe versiyonu geçerli ve güvenilirdir

References

  • Livingston MH, Rosenbaum PL, Palisano RJ. Quality of life among adolescents with cerebral palsy: what does the literature tell us. Dev Med Child Neurol. 2007;49:225-231.
  • Tüzün EH. Yetiyitimli Çocuklar ve Ailelerinde Sağlıkla İlgili Yaşam Kalitesi. Türkiye Klinikleri J PM&R-Special Topics. 2010;3:46-52.
  • Tüzün EH, Eker L, Daşkapan A. An assessment of the impact of cerebral palsy on children’s quality of life. Fizyoter Rehabil. 2004;15:3-8.
  • Higginson IJ, Carr AJ. Measuring quality of life: using quality of life measures in the clinical setting. BMJ. 2001; 322: 1297-1300.
  • Waters E, Davis E, Ronen GM. Quality of life instruments for children and adolescents with neurodisabilities: how to choose the appropriate instrument. Dev Med Child Neurol. 2009;51:660- 669.
  • Solans M, Pane S, Estrada MD. Health-related quality of life measurement in children and adolescents: a systematic review of generic and disease-specific 2008;11:742-764.
  • Barnes D, Linton JL, Sullivan E. Pediatric Outcomes
  • ınstruments. Value Health.
  • Davis E, Shelly A, Waters E. Measuring the quality of life of children with cerebral palsy: comparing the conceptual differences and psychometric properties of three instruments. Dev Med Child Neurol 2010; 52: 174-180.
  • II. Özürlüler Şurası, Erişim: 17.Aralık.2010 www.ozida.gov.tr/ sura/12.html
  • Serdaroğlu A, Cansu A, Özkan S. Prevalence of cerebral palsy in Turkish children between the ages of 2 and 16 years. Dev Med Child Neurol. 2006;48:413-416.
  • Daltroy LH, Liang MH, Fossel AH. The POSNA Pediatric Musculoskeletal Functional Health Questionnaire: report on reliability, validity, and sensitivity to change. J Pediatr Orthop. 1998;18:561- 571.
  • Kerem Günel M, Mutlu A, Livanelioğlu A, et al. Kaba Motor Fonksiyon Sınıflandırma Sistemi Genişletilmiş ve Yeniden Düzenlenmiş Şekli. http://motorgrowth.canchild.ca/en/gmfcs/resource s/turkishgmfcserfinal.pdf.
  • Oeffinger D. Outcome assessments in children with CP, part I: descriptive characteristics of GMFCS levels 1 to 3. Dev Med Child Neurol. 2007;52:324- 335
  • Gates P, Otsuka N, Sanders J. Functioning and health related quality of life of adolescents with cerebral palsy: self versus parent perspectives. Dev Med Child Neurol. 2010;52:843-849.
  • Eiser C, Morse R. Can parents rate their child’s health related quality of life? Results of a systematic review. Qual Life Res. 2001;10:347-357.
  • Koning MW, Arnaud C, Dickinson HO. Determinants of Child-Parent Agreement in Quality of Life Reports: A European Study of Children With Cerebral Palsy. Pediatrics. 2007;120:804-814.
  • Haynes RJ, Sullivan E. POSNA Pediatric Orthopaedic Functional Health Questionnaire: an analysis of normals. J Pediatr Orthop. 2001;21:619- 621.
  • Kerem Günel M, Mutlu A. Disability and its relation with functional independence in children with cerebral palsy: an ICF study of preliminary clinical experience from Turkey. Fizyoter Rehabil. 2007;18:171-178.
  • Gates P, Otsuka N, Sanders J. Functioning and health related quality of life of adolescents with cerebral palsy: self versus parent perspectives. Dev Med Child Neurol. 2010;52:843-849. Data Collection Instrument Scores in ambulatory children with cerebral palsy; an anlysis by age groups and severity level. J Pediatr Orthop. 2008;28:97-102.
  • Çakın Memik N, Ağaoğlu B, Coşkun A. Çocuklar İçin Yaşam Kalitesi Ölçeğinin 13-18 Yaş Ergen Formunun Geçerlik ve Güvenirlirliği. Türk Psikiyatri Dergisi. 2007;18:353-363.
  • Çakın Memik N, Ağaoğlu B, Coşkun A. Çocuklar İçin Yaşam Kalitesi Ölçeğinin 8-12 Yaş Ergen Formunun Geçerlik ve Güvenirlirliği. Çocuk ve Gençlik Ruh Sağlığı Dergisi. 2008;15:87-98.
  • Özdoğan H, Ruperto N, Kasapçopur O. The Turkish version of the Childhood Health Assessment Questionnaire (CHAQ) and The Child Health Questionnaire (CHQ). Clin Exp Rheumatol. 2001;19:158-162.
  • McCarthy ML, Silberstein CE, Atkins EA. Comparing reliability and validity of pediatric instruments for measuring health and well being of children with spastic cerebral palsy. Dev Med Child Neurol. 2002;44:468-476.
There are 24 citations in total.

Details

Primary Language Turkish
Authors

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Publication Date April 1, 2013
Published in Issue Year 2013 Volume: 24 Issue: 1