Changes in the Lives of Peritoneal Dialysis Patients and Coping with it: Qualitative Study

Year 2023, Volume: 4 Issue: 2, 108 - 118, 31.05.2023

Nurcan Uzdil Özlem Ceyhan Nuray Şimşek Oktay Bektas

https://doi.org/10.51972/tfsd.1238612

Abstract

Purpose: In this study, it was aimed to determine the life changes and coping ways of peritoneal dialysis patients after peritoneal dialysis (PD) treatment.
Material and Methods: Qualitative research method and phenomenology, which is a pattern of this method, were used in the study. The study group consisted of six peritoneal dialysis patients followed in the Adult Peritoneal Dialysis Unit Center. A semi-structured interview form was used as a data collection tool. During the research process, the interviews with the participants were audio-recorded with permission of the participants. After the audio recordings were written down, content analysis was made by creating code-category and themes. During the study, validity-reliability was tried to be ensured.
Results: The findings consist of two themes, thirteen categories and fifty codes. After the PD treatment, it was determined that the participants had problems in terms of nutritional status, sleep patterns, physical activity, social life, family relations, physical appearance, professional and sexual life, and adaptation to life. It was determined that they experienced the most financial difficulties the most in their lives after the PD treatment, and all the participants stated that they wanted to receive government financial support.
Conclusion: In line with these results, it is recommended to establish counseling centers that can provide psychosocial support to patients, establish psychoeducational programs, initiate necessary procedures to create financial support within the state, and initiate public awareness on kidney transplantation.
Keywords: End-stage renal disease, Peritoneal dialysis, Qualitative research.

Keywords

End-stage renal disease, Peritoneal dialysis, Qualitative research.

References

• Abdelaal, M. A., Abouelgreed, T. A., Ibrahim, A. H., et al. (2021). Erectile dysfunction pattern in patients with end stage renal disease on regular dialysis. Urologia Journal, 88(4), 321-325. https://doi.org/10.1177/03915603211007056
• Ahmadi, S. M., Jalali, A., Jalali, R. (2018). Factors associated with the choice of peritoneal dialysis in Iran: Qualitative study. Macedonian Journal of Medical Sciences, 6(7), 1253. https://doi.org/10.3889/oamjms.2018.255
• Baykan, H., Yargic, I. (2012). Depression, anxiety disorders, quality of life and stress coping strategies in hemodialysis and continuous ambulatory peritoneal dialysis patients. Klinik Psikofarmakoloji Bülteni, 22(2),167-76. https://doi.org/10.5455/bcp.20120412022430
• Chan, R., Brooks, R., Erlich, J., et al. (2011). Studying psychosocial adaptation to end-stage renal disease: The proximal–distal model of health-related outcomes as a base model. Journal of Psychosomatic Research,70, 455–464. https://doi.org/10.1016/j.jpsychores.2010.11.005
• Curtin, R.B., Walters, B.A.J., Penell, P.H., et al. (2008). Self Efficacy and self-managment behaviours in patients with chronic kidney disease. Advances in Chronic Kidney Disease, 15, 191–205. https://doi.org/10.1053/j.ackd.2008.01.006
• Çetinkaya, S., Nur, N., Ayvaz, A., et al. (2008). Bir üniversite hastanesinde hemodiyaliz ve sürekli ayaktan periton diyalizi hastalarında depresyon, anksiyete düzeyleri ve stresle başa çıkma tutumları. Nöropsikiyatri Arşivi, 45, 78-84.
• Davison, S.N. (2006). Facilitating advance care planning for patients with end-stage renal disease: the patient perspective. Clin J Am SocNephrol, 1(5), 1023-1028. https://doi.org/10.2215/CJN.01050306
• Duran, S., Güngör, E. (2015). Diyaliz hastalarının duygusal ve sosyal sorunlarının belirlenmesi. Uludağ Üniversitesi Tıp Fakültesi Dergisi, 41 (2), 59-63. Ekelund, M.L., Andersson, S.I. (2010). “I need to lead my own life in any case”—a study of patients in dialysis with or without a partner. Patient Educ Counsel, 81(1), 30-36. https://doi.org/10.1016/j.pec.2009.10.025
• Ekiz, D. (2015). Bilimsel Araştırma Yöntemleri. Ankara: Anı Yayıncılık. Fex, A., Flensner, G., Ek, A.C., et al. (2011). Health-illness transition among persons using advanced medical technology at home. Scand J Caring Sci, 25(2), 253-261. https://doi.org/10.1111/j.1471-6712.2010.00820.x
• Fox, D. E., Quinn, R. R., James, M. T., et al. (2020). Social support in the peritoneal dialysis experience: A qualitative descriptive study. Canadian Journal of Kidney Health and Disease, 7, 2054358120946572. https://doi.org/10.1177/2054358120946572
• Hiçdurmaz, D., Öz, F. (2009). Hemodiyaliz ve sürekli ayaktan periton diyalizi uygulanan hastaların stresle başa çıkma biçimleri. Hacettepe Üniversitesi Sağlık Bilimleri Fakültesi Hemşirelik Dergisi, 1–16.
• Kalantar-Zadeh, K., Li, P. K. T., Tantisattamo, E., et al. (2021). Living well with kidney disease by patient and care-partner empowerment: kidney health for everyone everywhere. American Journal of Hypertension, 34(2), 220-225.
• Karaca, S., Çınar, S., Bicik Bahçebaşı, Z. (2012). Hastaların perspektifinden: periton diyalizinin yaşama ve ruhsal belirtilere etkisi. Marmara Üniversitesi Sağlık Bilimleri Enstitüsü Dergisi, 2, 4.
• Martin-McDonald, K., Biernoff, D. (2002). Initiation into a dialysisdependent life: an examination of rites of passage. Nephrol Nurs J, 29(4), 347-352.
• Ören, B., Enç, N. (2013). Quality of life in chronic haemodialysis and peritoneal dialysis patients in Turkey and related factors. International Journal of Nursing Practice,19, 547–556. https://doi.org/10.1111/ijn.12098
• Peker, N. (2007). Periton diyalizi hastalarının ruhsal durumlarının tanılanması ve etkileyen faktörler. Master thesis: Marmara Üniversitesi, İstanbulTürkiye.
• Petersson, I., Lennerling, A. (2017). Experiences of living with assisted peritoneal dialysis–a qualitative study. Peritoneal Dialysis International, 37(6), 605-612. https://doi.org/https://doi.org/10.3747/pdi.2017.000 4
• Pyrgidis, N., Mykoniatis, I., Tishukov, M., et al. (2021). Sexual dysfunction in women with end-stage renal disease: A systematic review and meta-analysis. The Journal of Sexual Medicine, 18(5), 936-945. https://doi.org/10.1016/j.jsxm.2021.02.008
• Sadala, M.L.A., Miranda, M.G., Lorencon, M., et al. (2010). Nurse-patient communication while performing homedialysis: the patients’ perceptions. J Ren Care, 36(1):34-40. https://doi.org/10.1111/j.1755- 6686.2010.00135.x
• Seyahi, N., Ateş, K., Süleymanlar, G. (2018). Türkiye’de Renal Replasman Tedavilerinin Güncel Durumu: Türk Nefroloji Derneği Kayıt Sistemi 2016 Yılı Özet Raporu. Türk Nefroloji Diyaliz ve Transplantasyon Dergisi. 27 (2): 133-139.
• Süleymanlar, G., Ateş, K., Seyahi, N. (2021). T.C. Sağlık Bakanlığı ve Türk Nefroloji Derneği ortak raporu. Regıstry of the nephrology, dıalysıs and transplantatıon ın Turkey 2020. Türk Nefroloji Derneği Yayınları. Ankara.
• Tannor, E.K., Archer, E., Kapembwa, K., et al. (2017). Quality of life in patients on chronic dialysis in South Africa: a comparative mixed methods study. BMC Nephrology, 18, 4. https://doi.org/10.1186/s12882- 016-0425-1
• T.C Sağlık Bakanlığı. Türk Halk Sağlığı Kurumu. Türkiye Böbrek Hastalıkları Önleme ve Kontrol Programı. Eylem Planı (2014-2017). Ankara 2014. http://www.tsn.org.tr/pdf/Turkiye_Bobrek_Hastalikla ri_Onleme_ve_Kontrol_Programi.pdf
• T.C Sağlık Bakanlığı. Türk Halk Sağlığı Kurumu. TürkiyeBöbrek Hastalıkları Önleme ve Kontrol Programı. Eylem Planı (2018-2023). Ankara 2018.https://hsgm.saglik.gov.tr/tr/kronikhastaliklarhaberler/turkiye-bobrek-hastaliklari-onleme-ve-
• Theofilou, P. A. (2012). Sexual functioning in chronickidney disease: the association with depression and anxiety. Hemodialysis International, 16(1), 76-81.
• Tong, A., Lesmana, B., Johnson, D. W., et al. (2013). The perspectives of adults living with peritoneal dialysis: thematic synthesis of qualitative studies. American Journal of Kidney Diseases, 61(6), 873-888. https://doi.org/10.1053/j.ajkd.2012.08.045
• Yıldırım, A., Şimşek, H. (2018). Sosyal Bilimlerde Nitel Araştırma Yöntemleri. Seçkin Akademik ve Mesleki Yayınlar.
• Yılmaz, M., Özaltın, G. (2011). The sexual behaviors of patients receiving peritoneal dialysis treatment. Sex Disabil, 29(1), 21-32. https://doi.org/10.1007/s11195-011-9199-3
• Yngman-Uhlin, P., Friedrichsen, M., Gustavsson, M., et al. (2010). Circling around in tiredness: perspectives of patients on peritoneal dialysis. Nephrol Nurs J, 37(4),407-413.
• Wang, T., Lin, M., Liang, S., et al. (2014). Factors influencing peritoneal dialysis patients’ psychosocial adjustment. Journal of Clinical Nursing, 23, 82–90. https://doi.org/10.1111/jocn.12045
• White, Y., Grenyer, B.F. (1999). The biopsychosocial impact of endstage renal disease: the experience of dialysis patients and their partners. J Adv Nurs, 30(6),1312-1320. https://doi.org/10.1046/j.1365-2648.1999.01236.x