PHYSICALLY DISABLED ADULTS IN TURKEY DURING THE COVID-19 OUTBREAK: A PHENOMENOLOGICAL RESEARCH ON THE EXPERIENCES OF PEOPLE WITH SPINAL CORD INJURY

Year 2021, Volume: 4 Issue: 1, 40 - 56, 29.06.2021

Gülcan Urhan , İnci Kayın İsmail Nalbantoğlu

Abstract

This study aims to explore the main problems that individuals with SCI encounter in daily life during the COVID-19 outbreak in Turkey based on their own experiences. A field study in phenomenological research design is planned for this purpose. In this article, in accordance with the themes determined for the research, the experiences of 19 adult individuals with SCI and 4 caregivers living in Istanbul are conveyed. The key findings were evaluated with thematic analysis within the framework of the main problematic of "The main problems that individuals with SCI face in daily life during the COVID-19 pandemic". The main themes of the research are determined as impact COVID-19 on daily life, access to health, rehabilitation and social services, and their participation in social life. When the findings obtained from the research are evaluated, the most significant problems that the participants encountered during the COVID-19 pandemic are found as: 1. Stress, fear, and anxiety about infection and transmission of the virus, 2. Deprivation from proper care and treatment for their secondary health conditions, 3. Economic difficulties caused by unemployment, loss of income and increasing costs, 4. Difficulties because of the interruption of rehabilitation and care services, 5. Changes in daily routine such as eating and sleeping patterns, leisure activities; communicational and psychological problems, 6. Difficulties in following current information about public health. The COVID pandemic has deepened the problems people with SCI that they encounter in social life and about social support, and increased their dependence on someone. Considering that the epidemic continue and can occur again, there is a need for new multidisciplinary studies on the social services and social support models that can be applied in the pandemic for people with SCI and their families.

Keywords

covid19, spinal cord injuries, disabled peoples, social services

Thanks

We would like to thank TOFD Association staff, individuals with SCI and their families who contributed to the field study of this research. We gratefully commemorate TOFD president Ramzan Baş, who recently passed away due to COVID-19.

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