Evaluation of the Quality of Life of Patients Who Use Intermittant Self-Catheterization by Themselves and by Their Caregivers

Abstract

Objective: The clean intermittent catheterization is a device used by individuals with neurogenic bladder. The ISC can be used by the patient or by a caregiver. The aim of this study is to examine the relationship between ISC practice skills and quality of life of individuals using ISC. Material and Methods: Between June 2018 and May 2019,126 patients using Clean Intermittent Self Catheterization (ISC) in a city hospital urology clinic was included in the study. All patients completed the Turkish version of the ISC-Q(T-ISC-Q) and Qualiveen questionnaires. ISC users were divided into two groups: Self-administered and caregiver practitioners. Spearman’s correlation coefficients between ISC-Q and Qualiveen were used. Results: The mean age of the patients was 51.53±16.47 years, and the duration of ISC was 42.15 ± 12.56 months. A total of 72 patients reported that they performed the ISC, while the number of patients who underwent ISC by the caregiver was 54. ISC-Q scores were 70.98±15.41 for ease of use, 42.85±18.40 for convenience, 75.71±14.97 for privacy, and 56.34±14.57 for psychological well-being, respectively. The results of the Cronbach α was 0.782. ISC-Q total score was positively correlated with Qualiveen total score (r=0.567, p=0.04). Patients who used their own ISC had higher ISC-Q scores than patients who had ISC administered by the caregiver. Conclusion: As a result, while the ease of use of ISC is high, there is a decrease in the convenience and psychological well-being of the patients using ISC. This was lower in patients who had ISC administered by the caregiver.

Keywords

• Intermittent self-catheterization
• quality of life
• outcome measure
• caregiver

Temiz Aralıklı Kateterizasyon Uygulanan Hastaların Yaşam Kalitelerinin Kendileri Ve Bakım Verenleri Tarafından Değerlendirilmesi

Abstract

Amaç: Temiz aralıklı kateterizasyon (TAK) nörojenik mesanesi olan bireyler tarafından kullanılan bir cihazdır. TAK hasta veya bakıcı tarafından kullanılabilir. Bu çalışmanın amacı, TAK kullanan bireylerin TAK uygulama becerileri ile yaşam kaliteleri arasındaki ilişkiyi incelemektir. Gereç ve Yöntemler: Haziran 2018 ve Mayıs 2019 tarihleri arasında, bir şehir hastanesi üroloji kliniğinde Temiz Aralıklı Kendi Kendine Kateterizasyon (TAK) kullanan 126 hasta çalışmaya dahil edildi. Tüm hastalar ISC-Q(T-ISC-Q) ve Qualiveen anketlerinin Türkçe versiyonunu doldurdu. TAK kullanıcıları iki gruba ayrıldı: Kendi kendine uygulayanlar ve bakım vericilerin ISC-Q ve Qualiveen arasındaki Spearman korelasyon katsayısı belirlendi. Bulgular: Hastaların ortalama yaşı 51,53±16,47 yıl ve TAK kullanım süresi 42,15 ± 12,56 aydı. Toplam 72 hasta TAK uyguladığını bildirirken, bakıcı tarafından TAK uygulanan hasta sayısı 54 idi. ISC-Q puanları kullanım kolaylığı için 70,98±15,41, kolaylık için 42,85±18,40, mahremiyet için 75,71±14,97 ve psikolojik iyi oluş için 56,34±14,57 idi. Cronbach α sonuçları 0,782 idi. ISC-Q toplam puanı, Qualiveen toplam puanı ile pozitif korelasyon gösterdi (r=0,567, p=0,04). Kendi TAK kullanan hastalar, bakıcı tarafından TAK uygulanan hastalardan daha yüksek ISC-Q puanlarına sahipti. Sonuç: Sonuç olarak, TAK kullanım kolaylığı yüksek olmakla birlikte, TAK kullanan hastaların rahatlık ve psikolojik iyi oluşlarında azalma görülmektedir. Bu, bakıcı tarafından TAK uygulanan hastalarda daha düşüktü.

Keywords

• Aralıklı kendi kendine kateterizasyon
• yaşam kalitesi
• sonuç ölçüsü
• bakım verici

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