Pediatric Oncology Patients' Anxiety and Life Quality: Parent and Child Perspectives

Abstract

This study aims to examine the anxiety level of children with oncologic problems and their life quality from the perspective of children and parents and to evaluate the relationship. The study was conducted between March 2022 and April 2023 with children aged 7-12 years and their parents hospitalized in the Pediatric Hematology and Oncology Clinic and treated in the Outpatient Clinic of a university hospital. The study sample comprised 124 children and their parents who met the criteria. The data of the study were collected with the "Child and Parent Descriptive Form," "7-12 Years Pediatric Oncology Patients Life Quality Scale Child and Parent Form," and "Child Anxiety Sensitivity Index". In the study, 54% of the children were girls, the median age was 9.30±1.65 years, and 72.6% were diagnosed with ALL. Significance was found in the variables of the child's gender, schooling status, and family type with the Life Quality child form and in the duration of diagnosis, grade level, and parental spouse education status with the Life Quality parent form. Significance was found with the CASI in the variables of the duration of the child's diagnosis and the parental spouse's education status. There was a negative correlation between the age and grade of the child and quality of life (parent form) and CASI, and a positive correlation between quality of life (child form). There was a negative relationship between parental age and parental partner age and CASI. There was a negative relationship between quality of life (child form) and quality of life (parent form), a negative relationship between quality of life (parent form) and CASI, and a positive relationship between quality of life (child form) and CASI. Anxiety, child-parent perspective, and quality of life were effective for children with oncologic problems.

Keywords

• Anxiety
• nurse
• oncology
• pediatrics
• quality of life

Pediatrik Onkoloji Hastalarının Anksiyete ile Yaşam Kalitesi: Ebeveyn ve Çocuk Bakış Açısı

Abstract

Bu çalışmanın amacı, onkolojik sorunları olan çocukların anksiyete düzeylerini ve yaşam kalitelerini çocuk ve ebeveyn perspektifinden incelemek ve ilişkiyi değerlendirmektir. Çalışma, Mart 2022-Nisan 2023 tarihleri arasında bir üniversite hastanesinin Çocuk Hematoloji ve Onkoloji Kliniği'nde yatan ve poliklinikte tedavi gören 7-12 yaş arası çocuklar ve ebeveynleri ile yürütülmüştür. Çalışmanın örneklemini, kriterlere uyan 124 çocuk ve ebeveynleri oluşturmuştur. Çalışmanın verileri "Çocuk ve Ebeveyn Tanıtım Formu", "7-12 Yaş Çocuk Onkoloji Hastaları Yaşam Kalitesi Ölçeği Çocuk ve Ebeveyn Formu" ve "Çocuk Kaygı Duyarlılığı İndeksi" ile toplanmıştır. Çalışmada çocukların %54'ü kız, ortanca yaş 9,30±1,65 yıl olup, %72,6'sına ALL tanısı konmuştur. Yaşam Kalitesi Çocuk Formu'nda çocuğun cinsiyeti, eğitim durumu ve aile tipi değişkenlerinde, Yaşam Kalitesi Ebeveyn Formu'nda ise tanı süresi, sınıf düzeyi ve ebeveyn-eş eğitim durumu değişkenlerinde anlamlılık bulunmuştur. Çocuğun tanı süresi ve ebeveyn-eş eğitim durumu değişkenlerinde CASI'de anlamlılık bulunmuştur. Çocuğun yaşı ve sınıfı ile yaşam kalitesi (ebeveyn formu) ve CASI arasında negatif, yaşam kalitesi (çocuk formu) arasında pozitif korelasyon bulunmuştur. Ebeveyn yaşı ve ebeveyn-eş yaşı ile CASI arasında negatif, yaşam kalitesi (çocuk formu) arasında negatif, yaşam kalitesi (ebeveyn formu) ile CASI arasında pozitif ilişki bulunmuştur. Onkolojik sorunu olan çocuklar üzerinde anksiyetenin ve çocuk-ebeveyn bakış açısı ile yaşam kalitesinin etkili olduğu görüldü.

Keywords

• Anksiyete
• hemşire
• onkoloji
• pediatri
• yaşam kalitesi

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