Having Multiple Sclerosis from Childhood to Youth According to Uncertainty Theory: A Case Report

Öz

Multiple sclerosis is defined as a chronic and degenerative disease. Pediatric patients with multiple sclerosis are considered uncertain precursors of some of the sign and symptoms dominance of this group. Growing up with this uncertainty, without knowing what the outcome will be causes secondary health problems for children and some crises in their adulthood. In this case study, past experiences of a patient, from childhood to adulthood, who was diagnosed with sclerosis at the age of 14 and is now 21 years old, are revealed, and these experiences are explained according to the Uncertainty in Illness Theory. For this purpose, the individual interview done twice with the case and a semi-structured interview form were used. The phenomenological theoretical basis obtained as a result of the interviews was handled and analyzed through the Maxqda Plus v10 qualitative data analysis program. As a result, our case interpreted uncertainty as a danger for childhood, and used ineffective coping strategies such as anger, avoidance, introversion, and disharmony. To sum up, the case considered her current situation as an opportunity to grow up and started to lead a more meaningful life by accepting the disease and treatment.

Anahtar Kelimeler

• Child
• Multiple sclerosis
• Uncertainty theory in disease
• Phenomenological
• Qualitative study

Belirsizlik Kuramına Göre Çocukluktan Gençliğe Multiple Skleroz Hastası Olmak: Olgu Sunumu

Öz

Multiple skleroz, kronik ve dejeneratif bir hastalık olarak tanımlanmaktadır. Multiple skleroz tanılı çocuk hastalarda bazı belirti ve bulguların ortaya çıkması ve bu bulguların hastalığa özgü olmaması, belirsizliğin öncüleri olarak görülmektedir. Bu belirsizlikle büyümek çocuklarda ikincil sağlık problemlerine ve yetişkinlik döneminde bazı krizlerin ortaya çıkmasına neden olmaktadır. Bu olgu sunumunda, 14 yaşında multiple skleroz tanısı almış ve şu anda 21 yaşında olan hastanın, çocukluktan erişkinliğe yaşamış olduğu deneyimleri ortaya çıkartılması ve bu deneyimlerin Hastalıkta Belirsizlik Kuramına göre açıklanması amaçlanmıştır. Buna yönelik olarak, olgu ile iki kez derinlemesine bireysel görüşme yapılmış ve bu görüşmelerde yarı yapılandırılmış görüşme formu kullanılmıştır. Görüşmeler sonucu elde edilen veriler fenomenolojik kuramsal temelde ele alınmış ve Maxqda Plus v10 nitel veri analiz programı kullanılarak analiz edilmiştir. Sonuç olarak, olgunun, çocukluk döneminde yaşadığı belirsizliği tehlike olarak anlamlandırdığı ve öfke, kaçınma, içe kapanma, uyumsuzluk gibi etkisiz baş etme stratejilerini kullandığı belirlenmiştir. Erişkin dönemde ise, mevcut durumunu büyüme fırsatı olarak gördüğünü, hastalığı ve tedaviyi kabul ederek daha anlamlı bir yaşam sürmeye başladığını belirtmiştir.

Anahtar Kelimeler

• Çocuk
• Multiple skleroz
• Hastalıkta belirsizlik kuramı
• Fenomolojik
• Nitel çalışma

Kaynakça

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