Engelli Çocuğa Sahip Ailelerin Aile İhtiyaçlarının Belirlenmesi

Öz

Giriş ve Amaç: Bu araştırmanın amacı engelli çocuğa sahip ailelerin ailesel ihtiyaçlarını tespit etmektir. Gereç ve Yöntemler: Tanımlayıcı tipte yapılan çalışmanın örneklemini bir engelli merkezine kayıtlı engelli bireylerin aileleri oluşturdu (n=57). Araştırma verileri Mart-Haziran 2024 tarihleri arasında sosyodemografik özellikler formu ve Aile İhtiyaçları Ölçeği aracılığıyla yüz yüze toplandı. Araştırma verilerinin değerlendirilmesinde tanımlayıcı ve betimsel analizlerden yararlanıldı. Bulgular: Çalışmada ebeveynlerin %86.0’ı kadın ve %66.7’si birden fazla çocuğa sahipti. Ailelerin en sık belirlenen hizmet gereksinimleri bilgi edinme (%86.0), toplumsal hizmetler (%82.6), ekonomik ihtiyaçlar (%78.9) ve aile ve sosyal destek ihtiyaçları (%68.4) olarak belirlendi. Ayrıca ailelerin en kritik sosyal ve maddi desteğin yanı sıra sağlık çalışanlarından profesyonel desteğe de ihtiyaç duydukları belirlendi. Sonuç: Özel ihtiyaçları olan çocukların aileleri, çocuklarının hastalıklarıyla ilgili bilgi, hizmet ve kaynaklara erişime ihtiyaç duymaktadır. Ayrıca engelli bir çocuğun bakımı konusunda kişisel ve toplumsal kaygılar taşımaya devam ediyorlar. Anahtar kelimeler: Aile İhtiyaçları, Ebeveynler, Özel Gereksinimli Çocuklar

Anahtar Kelimeler

• Aile İhtiyaçları
• Ebeveynler
• Özel Gereksinimli Çocuklar.

Assessing the Family Requirements of Families with Disabled Children

Öz

Aim; The objective of this investigation is to ascertain the familial requirements of families with disabled children. Method; The descriptive study's sample consisted of 57 families of disabled individuals who were registered at a disability centre. The Family Needs Scale and the sociodemographic characteristics form were employed to acquire research data in person between March and June 2024. The research data was assessed using descriptive and descriptive analyses. Results; In the study, 86.0% of the parents were female, and 66.7% of the parents had more than one child. The most frequently identified service requirements of families were as follows: obtaining information (86.0%), social services (82.6%), economic needs (78.9%), and family and social support needs (68.4%). Additionally, it was determined that families require the most critical social and financial support, as well as professional support from healthcare professionals Conclusion; Families of children with special needs require access to information, services, and resources that pertain to their children's maladies. Additionally, they continue to harbour personal and social apprehensions regarding the care of a disabled child. Keywords: Family Needs, Parents, Children with Special Needs.

Anahtar Kelimeler

• Family Needs
• Parents
• Children with Special Needs.

Kaynakça

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