Quality of life among persons with intellectual and physical disability in northwestern Turkey
Yıl 2020,
Cilt: 45 Sayı: 4, 1482 - 1492, 27.12.2020
Yeliz Mercan
,
Kevser Tarı Selçuk
,
Sunbul Hulya Arıkan
Aylin Aydın Sayılan
,
Erhan Eser
Öz
Purpose: The aim of this study was to determine the factors that affect the quality of life (QoL) among persons with intellectual and physical disabilities.
Materials and Methods: This study is descriptive. The study involved 157 persons with intellectual or physical disabilities who were 18 years of age or over in Kirklareli, a province in northwestern Turkey. The study data were collected Turkish versions of World Health Organization (WHO) Quality of Life Brief Version (WHOQOL-BREF) and Turkish versions of WHO Quality of Life Disability Module (WHOQOL-DIS-TR).
Results: According to the results of the multivariate linear regression analysis, high education level, living in an urban area, living alone, good-moderate perceived income, good-moderate health level and presence of a physical disability led to an increase in the WHOQOL-BREF and WHOQOL-DIS module scores obtained by the people with disabilities whereas increasing age led to a decrease in their WHOQOL-BREF and WHOQOL-DIS module scores.
Conclusion: People with intellectual disabilities obtained lower scores from the psychological health and social relationships domains of the WHOQOL-BREF, and from the WHOQOL-DIS disability module and its independence module than did people with physical disabilities, and that low education level, living in a rural area, poor income and poor perceived health were among the changeable risk factors leading to poor QoL.
Anahtar Kelimeler
Quality of life
Destekleyen Kurum
Turkey Ministry of Family and Social Policies’ Support Program with Disabilities
Proje Numarası
Grant number: 2015-VLK39-001
Kaynakça
- 1. World Health Organization. International Classification of Functioning, Disability and Health: ICF. Switzerland: Geneva; 2001.
2. Murray CJ, Vos T, Lozano R, Naghavi M, Flaxman AD, Michaud C, et al. Disability-adjusted life years (DALYs) for 291 diseases and injuries in 21 regions, 1990-2010: a systematic analysis for the Global Burden of Disease Study 2010. Lancet. 2012;380(9859):2197-223. doi: 10.1016/S0140-6736(12)61689-4.
3. World Health Organization. WHO Global Disability Action Plan 2014-2021. Switzerland: Geneva; 2015.
4. World Health Organization. World Report on Disability. Switzerland: Geneva; 2011.
5. [No authors listed]. The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med. 1995;41(10):1403-9.
6. Almeida-Brasil CC, Silveira MR, Silva KR, Lima MG, Faria CDCM, Cardoso CL, et al. Quality of life and associated characteristics: of WHOQOL-BREEF in the context of Primary Health Care. Cien Saude Colet. 2017;22(5):1705-1716. doi: 10.1590/1413-81232017225.20362015.
7. Ramaprasad D, Rao NS, Kalyanasundaram S. Disability and quality of life among elderly persons with mental illness. Asian J Psychiatr. 2015;18:31-6. doi: 10.1016/j.ajp.2015.10.007.
8. Lucas-Carrasco R, Laidlaw K, Power MJ. Suitability of the WHOQOL-BREF and WHOQOL-OLD for Spanish older adults. Aging Ment Health. 2011;15(5):595-604. doi: 10.1080/13607863.2010.548054.
9. Bickenbach JE, Cieza A, Sabariego C. Disability and Public Health. Int J Environ Res Public Health. 2016; 13(1): 123.
10. Anderson LL, Humphries K, McDermott S, Marks B, Sisirak J, Larson S. The state of the science of health and wellness for adults with intellectual and developmental disabilities. Intellect Dev Disabil. 2013;51(5):385-98. doi: 10.1352/1934-9556-51.5.385.
11. Kanwal H, Mustafa N. Psychological Well-Being and Quality of Life among Physically Disabled and Normal Employees. PAFMJ, 2016;66(5):710-714.
12. Kuvalekar K, Kamath R, Ashok L, Shetty B, Mayya S, Chandrasekaran V. Quality of Life among Persons with Physical Disability in Udupi Taluk: A Cross Sectional Study. J Family Med Prim Care. 2015;4(1):69-73. doi: 10.4103/2249-4863.152258.
13. Rajati F, Ashtarian H, Salari N, Ghanbari M, Naghibifar Z, Hosseini SY. Quality of life predictors in physically disabled people. J Educ Health Promot. 2018;7:61. doi: 10.4103/jehp.jehp_115_17.
14. Akyurek G, Bumin G, Crowe TK. The factors associated with community participation: Employment and education of people with disabilities in Turkey. Scand J Occup Ther. 2020;27(1):28-38. doi: 10.1080/11038128.2019.1587502.
15. Power MJ, Green AM; WHOQOL-Dis Group. Development of the WHOQOL disabilities module. Qual Life Res. 2010;19(4):571-84. doi: 10.1007/s11136-010-9616-6.
16. Schmidt S, Power M, Green A, Lucas-Carrasco R, Eser E, Dragomirecka E, et al. Self and proxy rating of quality of life in adults with intellectual disabilities: Results from the DISQOL study. Res Dev Disabil. 2010;31(5):1015-26. doi: 10.1016/j.ridd.2010.04.013.
17. Eser E, Aydemir Ö, Cengiz Özyurt B, Akar A, Deveci S, Eser S, et al. Psychometric Properties of the Turkish Version of the World Health Organization Quality of Life Instrument for People with Intellectual and Physical Disabilities (WHOQOL-DIS-TR). Turk Psikiyatri Derg. 2018;29(1):36-46.
18. Lucas-Carrasco R, Pascual-Sedano B, Galán I, Kulisevsky J, Sastre-Garriga J, Gómez-Benito J. Using the WHOQOL-DIS to Measure Quality of Life in Persons with Physical Disabilities Caused by Neurodegenerative Disorders. Neurodegener Dis. 2011;8(4):178-86. doi: 10.1159/000321582.
19. Gomez-Olive FX, Schröders J, Aboderin I, Byass P, Chatterji S, Davies JI, et al. Variations in disability and quality of life with age and sex between eight lower income and middle-income countries: data from the INDEPTH WHO-SAGE collaboration. BMJ Glob Health. 2017;2(4):e000508. doi: 10.1136/bmjgh-2017-000508.
20. Bredemeier J, Wagner GP, Agranonik M, Perez TS, Fleck MP. The World Health Organization Quality of Life instrument for people with intellectual and physical disabilities (WHOQOL-Dis): evidence of validity of the Brazilian version. BMC Public Health. 2014;14:538. doi: 10.1186/1471-2458-14-538.
21. Joshi U, Subedi R, Poudel P, Ghimire PR, Panta S, Sigdel MR. Assessment of quality of life in patients undergoing hemodialysis using WHOQOL-BREF questionnaire: a multicenter study. Int J Nephrol Renovasc Dis. 2017;10:195-203. doi: 10.2147/IJNRD.S136522.
22. Vergunst R, Swartz L, Hem KG, Eide AH, Mannan H, MacLachlan M, et al. (2017). Access to health care for persons with disabilities in rural South Africa. BMC Health Serv Res. 2017;17(1):741. doi: 10.1186/s12913-017-2674-5.
23. Chang YC, Yao G, Hu SC, Wang JD. Depression Affects the Scores of All Facets of the WHOQOL-BREF and May Mediate the Effects of Physical Disability among Community-Dwelling Older Adults. PLoS One. 2015;10(5):e0128356. doi: 10.1371/journal.pone.0128356.
24. Palijan TŽ, Kovačević D, Vlastelica M, Dadić-Hero E, Sarilar M. Quality of Life of Persons Suffering from Schizophrenia, Psoriasis and Physical Disabilities. Psychiatr Danub. 2017;29(1):60-65.
25. Tang L, Fritzsche K, Leonhart R, Pang Y, Li J, Song L, et al. Emotional distress and dysfunctional illness perception are associated with low mental and physical quality of life in Chinese breast cancer patients. Health Qual Life Outcomes. 2017;15(1):231. doi: 10.1186/s12955-017-0803-9.
26. Zheng QL, Tian Q, Hao C, Gu J, Lucas-Carrasco R, Tao JT, et al. The role of quality of care and attitude towards disability in the relationship between severity of disability and quality of life: findings from a cross-sectional survey among people with physical disability in China. Health Qual Life Outcomes. 2014;12:25. doi: 10.1186/1477-7525-12-25.
27. Lim JH. Regional Disparity and Factors Influencing Unmet Medical Needs: A Study Based on the Sixth Korea National Health and Nutrition Examination Survey (2015). Osong Public Health Res Perspect. 2017;8(5):295-301. doi: 10.24171/j.phrp.2017.8.5.02.
28. Jovanović M, Lakićević M, Stevanović D, Milić-Rasić V, Slavnić S. Community-based study of health-related quality of life in spinal cord injury, muscular dystrophy, multiple sclerosis, and cerebral palsy. Disabil Rehabil. 2012;34(15):1284-90. doi: 10.3109/09638288.2011.641659.
29. Hofer A, Mizuno Y, Wartelsteiner F, Wolfgang Fleischhacker W, Frajo-Apor B, Kemmler G, et al. Quality of life in schizophrenia and bipolar disorder: The impact of symptomatic remission and resilience. Eur Psychiatry. 2017;46:42-47. doi: 10.1016/j.eurpsy.2017.08.005.
Türkiye'nin kuzeybatısında zihinsel ve bedensel engelli kişilerde yaşam kalitesi
Yıl 2020,
Cilt: 45 Sayı: 4, 1482 - 1492, 27.12.2020
Yeliz Mercan
,
Kevser Tarı Selçuk
,
Sunbul Hulya Arıkan
Aylin Aydın Sayılan
,
Erhan Eser
Öz
Amaç: Bu çalışmada zihinsel ve fiziksel engelli bireylerin yaşam kalitesini etkileyen faktörleri belirlemeyi amaçlanmıştır.
Gereç ve Yöntem: Tanımlayıcı tipteki bu çalışma Türkiye'nin kuzeybatısındaki Kırklareli'nde 18 yaş ve üstü zihinsel veya fiziksel engelli 157 kişiyi ile yürütülmüştür. Çalışma verileri Dünya Sağlık Örgütü Yaşam Kalitesi Kısa Versiyonu’nun (WHOQOL-BREF) engelliler için uyarlanmış sürümü ve DSÖ Engellilerde Yaşam Kalitesi Modülü (WHOQOL-DIS-TR) ile toplanmıştır.
Bulgular: Çok değişkenli lineer regresyon analizi sonuçlarına göre engellilerde WHOQOL-BREF ve WHOQOL-DIS modül skorlarındaki artışın yüksek eğitim düzeyi, kentsel alanda yaşama, yalnız yaşama, iyi-orta düzeyde algılanan gelir, iyi-orta düzeyde sağlık düzeyi ve fiziksel engele sahip olma ile, WHOQOL-BREF ve WHOQOL-DIS modül skorlarındaki azalışın ise artan yaşla ilişkili olduğu belirlenmiştir.
Sonuç: Zihinsel engellilerin WHOQOL-BREF psikolojik ve sosyal ilişkiler boyutu, WHOQOL-DIS engelli modülü ve bağımsızlık modül skorlarının fiziksel engelli bireylere göre düşük olduğu ve düşük eğitim düzeyi, kırsal alanda yaşama, kötü gelir ve sağlık algısının kötü yaşam kalitesi için değiştirilebilir risk faktörleri olduğu belirlenmiştir.
Proje Numarası
Grant number: 2015-VLK39-001
Kaynakça
- 1. World Health Organization. International Classification of Functioning, Disability and Health: ICF. Switzerland: Geneva; 2001.
2. Murray CJ, Vos T, Lozano R, Naghavi M, Flaxman AD, Michaud C, et al. Disability-adjusted life years (DALYs) for 291 diseases and injuries in 21 regions, 1990-2010: a systematic analysis for the Global Burden of Disease Study 2010. Lancet. 2012;380(9859):2197-223. doi: 10.1016/S0140-6736(12)61689-4.
3. World Health Organization. WHO Global Disability Action Plan 2014-2021. Switzerland: Geneva; 2015.
4. World Health Organization. World Report on Disability. Switzerland: Geneva; 2011.
5. [No authors listed]. The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med. 1995;41(10):1403-9.
6. Almeida-Brasil CC, Silveira MR, Silva KR, Lima MG, Faria CDCM, Cardoso CL, et al. Quality of life and associated characteristics: of WHOQOL-BREEF in the context of Primary Health Care. Cien Saude Colet. 2017;22(5):1705-1716. doi: 10.1590/1413-81232017225.20362015.
7. Ramaprasad D, Rao NS, Kalyanasundaram S. Disability and quality of life among elderly persons with mental illness. Asian J Psychiatr. 2015;18:31-6. doi: 10.1016/j.ajp.2015.10.007.
8. Lucas-Carrasco R, Laidlaw K, Power MJ. Suitability of the WHOQOL-BREF and WHOQOL-OLD for Spanish older adults. Aging Ment Health. 2011;15(5):595-604. doi: 10.1080/13607863.2010.548054.
9. Bickenbach JE, Cieza A, Sabariego C. Disability and Public Health. Int J Environ Res Public Health. 2016; 13(1): 123.
10. Anderson LL, Humphries K, McDermott S, Marks B, Sisirak J, Larson S. The state of the science of health and wellness for adults with intellectual and developmental disabilities. Intellect Dev Disabil. 2013;51(5):385-98. doi: 10.1352/1934-9556-51.5.385.
11. Kanwal H, Mustafa N. Psychological Well-Being and Quality of Life among Physically Disabled and Normal Employees. PAFMJ, 2016;66(5):710-714.
12. Kuvalekar K, Kamath R, Ashok L, Shetty B, Mayya S, Chandrasekaran V. Quality of Life among Persons with Physical Disability in Udupi Taluk: A Cross Sectional Study. J Family Med Prim Care. 2015;4(1):69-73. doi: 10.4103/2249-4863.152258.
13. Rajati F, Ashtarian H, Salari N, Ghanbari M, Naghibifar Z, Hosseini SY. Quality of life predictors in physically disabled people. J Educ Health Promot. 2018;7:61. doi: 10.4103/jehp.jehp_115_17.
14. Akyurek G, Bumin G, Crowe TK. The factors associated with community participation: Employment and education of people with disabilities in Turkey. Scand J Occup Ther. 2020;27(1):28-38. doi: 10.1080/11038128.2019.1587502.
15. Power MJ, Green AM; WHOQOL-Dis Group. Development of the WHOQOL disabilities module. Qual Life Res. 2010;19(4):571-84. doi: 10.1007/s11136-010-9616-6.
16. Schmidt S, Power M, Green A, Lucas-Carrasco R, Eser E, Dragomirecka E, et al. Self and proxy rating of quality of life in adults with intellectual disabilities: Results from the DISQOL study. Res Dev Disabil. 2010;31(5):1015-26. doi: 10.1016/j.ridd.2010.04.013.
17. Eser E, Aydemir Ö, Cengiz Özyurt B, Akar A, Deveci S, Eser S, et al. Psychometric Properties of the Turkish Version of the World Health Organization Quality of Life Instrument for People with Intellectual and Physical Disabilities (WHOQOL-DIS-TR). Turk Psikiyatri Derg. 2018;29(1):36-46.
18. Lucas-Carrasco R, Pascual-Sedano B, Galán I, Kulisevsky J, Sastre-Garriga J, Gómez-Benito J. Using the WHOQOL-DIS to Measure Quality of Life in Persons with Physical Disabilities Caused by Neurodegenerative Disorders. Neurodegener Dis. 2011;8(4):178-86. doi: 10.1159/000321582.
19. Gomez-Olive FX, Schröders J, Aboderin I, Byass P, Chatterji S, Davies JI, et al. Variations in disability and quality of life with age and sex between eight lower income and middle-income countries: data from the INDEPTH WHO-SAGE collaboration. BMJ Glob Health. 2017;2(4):e000508. doi: 10.1136/bmjgh-2017-000508.
20. Bredemeier J, Wagner GP, Agranonik M, Perez TS, Fleck MP. The World Health Organization Quality of Life instrument for people with intellectual and physical disabilities (WHOQOL-Dis): evidence of validity of the Brazilian version. BMC Public Health. 2014;14:538. doi: 10.1186/1471-2458-14-538.
21. Joshi U, Subedi R, Poudel P, Ghimire PR, Panta S, Sigdel MR. Assessment of quality of life in patients undergoing hemodialysis using WHOQOL-BREF questionnaire: a multicenter study. Int J Nephrol Renovasc Dis. 2017;10:195-203. doi: 10.2147/IJNRD.S136522.
22. Vergunst R, Swartz L, Hem KG, Eide AH, Mannan H, MacLachlan M, et al. (2017). Access to health care for persons with disabilities in rural South Africa. BMC Health Serv Res. 2017;17(1):741. doi: 10.1186/s12913-017-2674-5.
23. Chang YC, Yao G, Hu SC, Wang JD. Depression Affects the Scores of All Facets of the WHOQOL-BREF and May Mediate the Effects of Physical Disability among Community-Dwelling Older Adults. PLoS One. 2015;10(5):e0128356. doi: 10.1371/journal.pone.0128356.
24. Palijan TŽ, Kovačević D, Vlastelica M, Dadić-Hero E, Sarilar M. Quality of Life of Persons Suffering from Schizophrenia, Psoriasis and Physical Disabilities. Psychiatr Danub. 2017;29(1):60-65.
25. Tang L, Fritzsche K, Leonhart R, Pang Y, Li J, Song L, et al. Emotional distress and dysfunctional illness perception are associated with low mental and physical quality of life in Chinese breast cancer patients. Health Qual Life Outcomes. 2017;15(1):231. doi: 10.1186/s12955-017-0803-9.
26. Zheng QL, Tian Q, Hao C, Gu J, Lucas-Carrasco R, Tao JT, et al. The role of quality of care and attitude towards disability in the relationship between severity of disability and quality of life: findings from a cross-sectional survey among people with physical disability in China. Health Qual Life Outcomes. 2014;12:25. doi: 10.1186/1477-7525-12-25.
27. Lim JH. Regional Disparity and Factors Influencing Unmet Medical Needs: A Study Based on the Sixth Korea National Health and Nutrition Examination Survey (2015). Osong Public Health Res Perspect. 2017;8(5):295-301. doi: 10.24171/j.phrp.2017.8.5.02.
28. Jovanović M, Lakićević M, Stevanović D, Milić-Rasić V, Slavnić S. Community-based study of health-related quality of life in spinal cord injury, muscular dystrophy, multiple sclerosis, and cerebral palsy. Disabil Rehabil. 2012;34(15):1284-90. doi: 10.3109/09638288.2011.641659.
29. Hofer A, Mizuno Y, Wartelsteiner F, Wolfgang Fleischhacker W, Frajo-Apor B, Kemmler G, et al. Quality of life in schizophrenia and bipolar disorder: The impact of symptomatic remission and resilience. Eur Psychiatry. 2017;46:42-47. doi: 10.1016/j.eurpsy.2017.08.005.