Araştırma Makalesi
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INVASTIGATION OF PATIENT AND HOSPITAL PERCEPTIONS OF CHILDREN PARTICIPATING IN EDUCATION AT THE HOUSE OF COMPASSION

Yıl 2024, Cilt: 13 Sayı: 3, 200 - 221, 30.09.2024
https://doi.org/10.55020/iojpe.1489205

Öz

This study was conducted to determine the perceptions of children, one of whose relatives was undergoing chemotherapy treatment and who participated in education at the House of Compassion, about the patient and hospital perceptions and their views on the House of Compassion. Case study design, one of the qualitative research designs, was used. Criterion sampling, one of the purposeful sampling types, was used to determine the study group. The study group consisted of 20 children who participated in the training at the House of Compassion in a hospital in Ankara and one of whose relatives was undergoing chemotherapy treatment. In the study, "Demographic Information Form" was used to collect information about children and parents, "Child Interview Form" and "Children's Pictures" were used to determine children's perceptions of patients, hospital and House of Compassion. The data obtained were analyzed using the descriptive analysis technique. As a result of the research, it was observed that children knew the definition of the hospital, the personnel working in the hospital, and the practices carried out, and emphasized the healing and therapeutic aspects of the hospital. Children reported coming to the House of Compassion to play games, have fun, and have a good time. It was determined that children felt happy and sound in the House of Compassion and that they liked the House of Compassion. As a result, it can be said that the House of Compassion has positive effects on children's perceptions of the patient and the hospital.

Etik Beyan

This research has an ethics committee permit issued by the Inonu University Ethics Committee on 01.08.2022 with the decision numbered 15/10. All rules specified in the “Higher Education Institutions Scientific Research and Publication Ethics Directive” were followed throughout the entire process from the planning to implementation of this research, from the collection of data to the analysis of the data. None of the actions specified in the second section of the directive, titled “Actions Contrary to Scientific Research and Publication Ethics”, were carried out. Scientific, ethical and citation rules were followed during the writing process of this research; no falsification was made on the collected data. This study has not been sent for evaluation to any other academic publication environment. There is no conflict of interest among the authors of the research. In addition, the authors declare that they do not have any conflict of interest with other persons, institutions or organizations.

Kaynakça

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  • Büyüköztürk, Ş., Kılıç Çakmak, E., Akgün, Ö. E., Karadeniz, Ş., & Demirel, F. (2020). Eğitimde bilimsel araştırma yöntemleri [Scientific research methods in education]. Ankara: Pegem.
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Yıl 2024, Cilt: 13 Sayı: 3, 200 - 221, 30.09.2024
https://doi.org/10.55020/iojpe.1489205

Öz

Kaynakça

  • Alexander, E. S., O’Connor, M., & Halkett, G. K. B. (2023). The psychosocial effect of parental cancer: qualitative interviews with patients’ dependent children. Children, 10(1), 171. https://doi.org/10.3390/children10010171
  • Amzat, J., & Razum, O. (2014). Health, disease, and illness as conceptual tools. Medical Sociology in Africa, 21–37. https://doi.org/10.1007/978-3-319-03986-2_2
  • Asiedu, C., McKinney, N. S., Willis, A. I., Lewis, F. M., Virtue, S., & Davey, A. (2024). Cancer and the family: Variations by sex and race/ethnicity. Cancer medicine, 13(2), e6969. https://doi.org/10.1002/cam4.6969
  • Babore, A., Trumello, C., Brandão, T., Cavallo, A., & Bramanti, S. M. (2023). Maternal cancer and perception of child psychological adjustment: The role of mother's anxiety, depression, and parenting stress. Cancers, 15(3), 910. https://doi.org/10.3390/cancers15030910
  • Boztepe, H., Çınar, S., Ay, A. (2017). School-age children’s perception of the hospital experiences. Journal of Child Health Care, 21(2), 162-170. https://doi.org/10.1177/1367493517690454
  • Bugge, K.E., Helseth, S., & Darbyshire, P. (2008). Children’s experiences of participation in a family support program when their parent has incurable cancer. Cancer Nursing, 31, 426–43. https://dx.doi.org/10.1097/01.NCC.0000339250.83571.b0
  • Büyüköztürk, Ş., Kılıç Çakmak, E., Akgün, Ö. E., Karadeniz, Ş., & Demirel, F. (2020). Eğitimde bilimsel araştırma yöntemleri [Scientific research methods in education]. Ankara: Pegem.
  • Canteen (ty.). My parent or carer has canser. https://www.canteen.org.au/young-people/parent-carer-cancer
  • Cockerham, W. C. (2004). Medical sociology, (9th Edition). New Jersey: Pearson Prentice Hall.
  • Dieperink, K. B., & Semple, C. (2023, August). Parental cancer in young families-a unique opportunity for family-centered care. In Seminars in oncology nursing (p.151485).
  • Ellis, S. J., Wakefield, C. E., Antill, G., Burns, M., & Patterson, P. (2017). Supporting children facing a parent's cancer diagnosis: a systematic review of children's psychosocial needs and existing interventions. European journal of cancer care, 26(1), e12432.
  • Erçin, E., Çetinkaya, Ş. (2019). Resim çizdirme çocuğun hastane deneyimlerini ve onu nasıl etkilediğini anlamanın yolu mudur? [Is drawing a way to understand the child’s hospital experience and how they affect them?]. SAUHSD, 2(1), 61-75.
  • Faccio, F., Ferrari, F., & Pravettoni, G. (2018). When a parent has cancer: How does it impact on children's psychosocial functioning? A systematic review. European journal of cancer care, 27(6), e12895. https://doi.org/10.1111/ecc.12895
  • Faulkner, R. A. & Davey, M. (2002) children and adolescents of cancer patients: The impact of cancer on the family, The American Journal of Family Therapy, 30(1), 63-72, DOI: 10.1080/019261802753455651
  • Götze, H., Ernst, J., Brähler, E., Romer, G., & Von Klitzing, K. (2015). Predictors of quality of life of cancer patients, their children, and partners. Psycho-Oncology, 24(7), 787–795. https://doi.org/10.1002/pon.3725
  • Grant, L., Sangha, A., Lister, S., & Wiseman, T. (2016) Cancer and the family: assessment, communication and brief interventions-the development of an educational programme for healthcare profes- sionals when a parent has cancer. BMJ Support Palliat Care 6(4), 493–499. https://doi.org/10.1136/bmjspcare-2015-001006
  • Gürbüz S. ve Şahin F. (2018) Sosyal bilimlerde araştırma yöntemleri [Research methods in social sciences]. İstanbul: Seçkin.
  • Heiney, S. P., Bryant, L. H., Walker, S., Parrish, R. S., Provenzano, F. J., & Kelly, K. E. (1997). Impact of parental anxiety on child emotional adjustment when a parent has cancer. Oncol Nurs Forum, 24, 655- 661.
  • Høeg, B. L., Christensen, J., Banko, L., Frederiksen, K., Appel, C. W., Dalton, S. O., Dyregrov, A., Guldin, M. B., Jørgenson, S. E., Lytje, M., Bøge, P., & Bidstrup, P. E. (2023). Psychotropic medication among children who experience parental death to cancer. European Child & Adolescent Psychiatry, 32(1), 155-165. https://doi.org/10.1007/s00787-021-01846-y
  • Huizinga, G. A., Visser, A., Van der Graaf, W. T., Hoekstra, H. J., Stewart, R. E., & Hoekstra-Weebers, J. E. (2011). Family-oriented multilevel study on the psychological functioning of adolescent children having a mother with cancer. Psycho-oncology, 20(7), 730–737. https://doi.org/10.1002/pon.1779
  • Huizinga, G. A. (2006). The impact of parental cancer on children (Unpublished Doctorate Dissertation). University of Groningen, Netherlands.
  • Karayağmurlu, A., Naldan, M.E., Temelli, O., & Coşkun, M. (2021). The evaluation of depression, anxiety and quality of life in children living with parental cancer: A case-control study [The evalution of depression, anxiety and quality of life in children living with Parental cancer: A case- control study]. Turkish J Clinical Psychiatry, 24, 5-14. https://dx.doi.org/10.5505/kpd.2020.87699
  • Kırışoğlu, O. T. (2005), Sanatta eğitim görmek öğrenmek yaratmak [To study art, to learn, to create]. Ankara: Pegem.
  • Kızılay (2018). Tedavi gören annelerin çocuklarına “Şefkat Evi” [“Compassion Hause” for children of mothers in treatment]. https://www.kizilay.org.tr/Haber/HaberDetay/4407
  • Kleinman, A. (1988). The Illness narratives - suffering, healing and the human condition. USA: Basic Books.
  • Korkmaz, B. C. (2024). Aile odaklı yas terapisinin kanser hastası olan ailelerde aile işlevselliğine etkisi [The effect of family- oriented grief therapy on family functioning in families with cancer patients]. Turkey Journal of Integrative Psychotherapy, 7(13), 7-14. https://doi.org/10.56955/bpd.1337695
  • Köçkar, Ç., & Gürol, A. (2013). Anxiety, aggression and self-esteem analysis through pictures in children with cancer. Florence Nightingale Journal of Nursing, 21(1), 33-39 . https://dergipark.org.tr/tr/pub/fnjn/issue/9009/112228
  • Kravdal, O., Wörn, J., Hart, R., & Reme, B. A. (2024). The influence of parental cancer on the mental health of children and young adults: Evidence from Norwegian register data on healthcare consultations. Demographic Research, 50(27), 763-796. https://doi.org/10.4054/DemRes.2024.50.27
  • Küçük, S., Demir, K., & Uludaşdemir, D. (2017). Hastanede yatan yedi-on yedi yaş grubundaki çocuk ve ergenlerin hemşire algısına ilişkin metaforların belirlenmesi [Determination of metaphors related to the perception of nurses by hospilatized children and adolescents aged seven to seventeen]. HEAD, 17(1), 40-45. https://doi.org/10.5222/HEAD.2020.040
  • Küçükoğlu, S. (2007). Kanserli ebeveynlerin çocuklarında görülen psikolojik belirtiler yaşanan güçlükler ve etkileyen faktörlerin belirlenmesi [Psychological symptoms and difficulties in children of parents with cancer and Determination of the factors affecting them], (Unpublished master dissertation). Atatürk University, Erzurum, Türkiye.
  • Landi, G., Pakenham, K. I., Cattivelli, R., Golfieri, L.,Grandi S., & Tossani, E. (2024). Parental cancer: mediating and moderating roles of psychological inflexibility in the links between illness severity and parental quality of life and family outcomes. Current Psychology, 43, 22978–22988. https://doi.org/10.1007/s12144-024-06008-2
  • Lewandowska, A., Rudzki, G., Lewandowski, T., Próchnicki, M., Rudzki, S., Laskowska, B., & Brudniak, J. (2020). Quality of life of cancer patients treated with chemotherapy. International journal of environmental research and public health, 17(19), 6938. https://doi.org/10.3390/ijerph17196938
  • Lewis, F. M., Brandt, P. A., Cochrane, B. B., Griffith, K. A., Grant, M., Haase, J. E., ... & Shands, M. E. (2015). The Enhancing Connections Program: a six-state randomized clinical trial of a cancer parenting program. Journal of consulting and clinical psychology, 83(1), 12.
  • Lewis, F. M., Loggers, E. T., Phillips, F., Palacios, R., Tercyak, K. P., Griffith, K. A., Shands, M. E., Zahlis, E. H., Alzawad, Z., & Almulla, H. A. (2020). Enhancing connections-palliative care: A quasi-experimental pilot feasibility study of a cancer parenting program. Journal of palliative medicine, 23(2), 211–219. https://doi.org/10.1089/jpm.2019.0163
  • Manav, G. (2013). Kanserli çocuklarda oyun temelli hemşirelik modeli [Play- based nursing model in children with cancer], (Unpublished doctoral dissertation). Marmara University, İstanbul, Türkiye.
  • Marin- Chollum, A., & Revenson, T. A. (2022). Cultural values as a resilience resource for Latino/a adolescents and young adults coping with Parental cancer. Journal of Psychosocial Oncology, 40, 1, 26-44. https://doi.org/10.1080/07347332.2021.1881197
  • Martini, A., Morris, J. N., Jackson, H. M., & Ohan, J. L. (2019). The impact of parental cancer on preadolescent children (0-11 years) in Western Australia: a longitudinal population study. Supportive care in cancer, 27(4), 1229–1236. https://doi.org/10.1007/s00520-018-4480-y Morris, J. N., Zajac, I., Turnbull, D., Preen, D., Patterson, P., & Martini, A. (2019). A longitudinal investigation of Western Australian families impacted by parental cancer with adolescent and young adult offspring. Australian and New Zealand journal of public health, 43(3), 261–266. https://doi.org/10.1111/1753-6405.12885
  • Morris, J., Turnbull, D., Preen, D., Zajac, I., & Martini, A. (2018). The psychological, social, and behavioural impact of a parent’s cancer on adolescent and young adult offspring aged 10–24 at time of diagnosis. A systematic review. J. Adolesc. 65, 61–71.
  • Neolife (2015). Kanserde aile içi iletişim programı: Bağları kuvvetlendiriyoruz [in Turkish]. https://www.neolife.com.tr/baglari-kuvvetlendiriyoruz
  • Onan, N., & Taşdelen, Y. (2024). Kanser hastalığı olan ebeveynlerin çocukları: Etkiler ve yaklaşımlar [Children pf parents with cancer: Impacts and approaches]. Journal of Samsun Health Sciences, 9(1), 01-14. https://doi.org/10.47115/jshs.1133495
  • O'Neill, C., O'Neill, C. S., & Semple, C. (2020). Children Navigating Parental Cancer: Outcomes of a Psychosocial Intervention. Comprehensive Child and Adolescent Nursing, 43(2), 111–127. https://doi.org/10.1080/24694193.2019.1582727
  • Osborn T. (2007). The psychosocial impact of parental cancer on children and adolescents: A systematic review. Psychooncology, 16(2), 101–126. [PubMed: 17273987]
  • Östman, M. (2009). Interviews with children of persons with a severe mental illness ınvestigating their everyday situation. Nordic Journal of Psychiatry, 62(5), 354-359. https://doi.org/10.1080/08039480801960065
  • Pekyiğit, A., Yıldız, D., Eren Fidancı B., & Çalık Bağrıyanık, B. (2021). Hastanede yatan çocuklarda yaratıcı oyun yöntemi ile hastalık ve hastane kavramı: Niteliksel bir çalışma [The concept of illness and hospital with creative play method in hospitalized children: A qualitative study]. Journal of Child, 21(2), 175-182. https://doi.org/10.26650/jchild.2021.2.897005
  • Perak, K., Mcdonald, F. E. J., Conti, J., Yao, Y. S., & Ross, X. S. (2024). Family adjustment and resilience after a parental cancer diagnosis. Supportive Care in Cancer, 32(7), 1-9. https://doi.org/10.1007/s00520-024-08608-x
  • Perktaş, E., Özmert, E. (2017). Çocukların hastane kaygılarının azaltılması üzerine bir değerlendirme: Hastane palyaço projesi [An evalution on reducing children’s hospital anxiety: Hospital clown project]. Çocuk Sağlığı ve Hastalıkları Dergisi, 60, 83-87.
  • Phillips, F., & Prezio, E. A. (2017). Phillips, F., & Prezio, E. A. (2017). Wonders & Worries: evaluation of a child centered psychosocial intervention for families who have a parent/primary caregiver with cancer. Psycho-oncology, 26(7), 1006–1012. https://doi.org/10.1002/pon.4120
  • Phillips, F., Prezio, E.A., Currin-McCulloch, J., Jones, B.L. (2022). Wonders & Worries: a randomized clinical trial of a psychosocial intervention for children who have a parent with cancer. Psychooncology, 31(8), 1399-1411. https://doi.org/10.1002/pon.5943
  • Purc-Stephenson, R., & Lyseng, A. (2016). How are the kids holding up? A systematic review and meta-analysis on the psychosocial impact of maternal breast cancer on children. Cancer treatment reviews, 49, 45–56. https://doi.org/10.1016/j.ctrv.2016.07.005
  • Romer, G., Barkmann, C., Schulte-Markwort, M., Thomalla, G., Riedesser, P. (2002). Children of somatically ıll parents: a methodological review. Clinical Child Psychology and Psychiatry, 7(1), 1359–1045. https://doi.org/10.1177/1359104502007001003
  • Semple, C.J., McCance T. (2010) Parents’ experience of cancer who have young children: a literature review. Cancer Nurs 33(2), 110–118. https://doi.org/10.1097/NCC.0b013e3181c024
  • Shah, B.K., Armaly, J. & Swieter, E. (2017). Impact of parental cancer on children. Anticancer Research, 37(8), 4025-4028. https://dx.doi.org/10.21873/anticanres.11787
  • Strandh, M. R., Hoven, E., Sorensdotter, R., Stalberg, K., Enebrink, P., Ljungman, L., & Wikman, A. (2023). The complexity of being a parent in the hospital and a patient at Home. Cancer Nursing, 1-10. https://doi.org/10.1097/NCC.0000000000001276
  • Şahinöz, A. (2019). Yatarak tedavi gören çocukların hastanede yaşadıkları sorunların ve gereksinimlerinin belirlenmesi [Identifying the problems and needs of inpatient children in the hospital] (Unpublished master thesis). Ankara University, Ankara, Türkiye.
  • Taş, Y., Aslan, D., Sayek, İ. (2006). Doktorluk mesleğini çocuklar resimlerine nasıl yansıtıyorlar? 7-12 yaş grubu çocuklar arasında yapılmış bir örnek [How do children reflect in their drawings? A sample of 7-12 year old children]. Journal of Continuing Medical Education, 15(11), 184-191.
  • Taşdemir Akkavak, D., & Sarıkaya Karabudak, S. (2019). Hastanede yatan okul çağı çocukların hemşireyi ve hastaneyi algılama durumlarının incelenmesi [Investigation of hospitalized school-age children’s perception of nurses and hospital]. DEUHFED, 12(1), 46-56.
  • Uysal, G., Sönmez Düzkaya, D., Bozkurt, G., & Çöplü, Y. (2018). Hastanede yatan çocukların hemşire algısının resim çizme yöntemi ile incelenmesi: Projektif araştırma [Investigation of hospitalized children’s perception of nurses by drawing pictures: A projective research]. Mersin University Journal of Health Sciences,11(1), 62-74.
  • Visser, A., Huizinga G. A., Van der Graaf W. T., Hoekstra H. J., & Hoekstra-Weebers, J. E. (2004). The impact of parental cancer on children and the family: a review of the literature. Cancer Treat Rev., 30(8), 683–694. [PubMed: 15541578].
  • Visser, A., Huizinga, G. A., Hoekstra, H. J., Van der Graaf, W. T. A., Hoekstra- Weebers, J. E. H. M. (2006). Parental cancer characteristics of parents as predictors for child functioning. Cancer, 106(5), 1178-1187. https://doi.org/10.1002/cncr.21691
  • Visser, A., Huizinga, G. A., Hoekstra, H. J., Van der Graaf, W. T. A.., Gazendam-Donofrio, S. M., & Ehm Hoekstra-Weebers, J. (2007). Emotional and behavioral problems in children of parents recently diagnosed with cancer: a longitudinal study. Acta Oncologica, 46(1), 67-76. https://doi.org/10.1080/02841860600949560.
  • Walczak, A., McDonald, F., Patterson, P., Dobinson, K., & Allison, K. (2018). How does parental cancer affect adolescent and young adult offspring? A systematic review. International journal of nursing studies, 77, 54–80. https://doi.org/10.1016/j.ijnurstu.2017.08.017
  • Watson, M, James-Roberts I, & Ashley S. (2006). Factors associated with emotional and behavioural problems among school age children of breast cancer patients. Br J Cancer, 94, 43- 50.
  • Weaver, K. E., Rowland, J. H., Alfano, C. M., & McNeel, T. S. (2010). Parental cancer and the family: a population-based estimate of the number of US cancer survivors residing with their minor children. Cancer, 116(18), 4395–4401. https://doi.org/10.1002/cncr.25368.
  • Welch, A. S., Wadsworth, M. E., & Compas, B. E. (1996). Adjustment of children and adolescents to parental cancer: Parents' and children's perspectives. Cancer: Interdisciplinary International Journal of the American Cancer Society, 77(7), 1409-1418.
  • Wilson, M. E., Megel, M. E., Enenbach, L., & Carlson, K. L. (2010). The voices of children: Stories about hospitalization. J Pediatr Health Care, 24, 95-102. https://doi.org/10.1016/j.pedhc.2009.02.008
  • Yadigâroğlu, H. (2019) Kanser hastası bulunan ailelerde hastalık deneyimi ve fertlerin yaşam bütünlüğünün bozulmasına etkisi [Illness experience in families with cancer patients and its effect on disruption of life integrity of individuals]. Journal of History Culture and Art Research, 8(2), 404-415.
  • Yavuzer, H. (1995). Resimleriyle çocuk: Resimleriyle çocuğu tanıma [in Turkish]. İstanbul: Remzi Kitabevi.
Toplam 67 adet kaynakça vardır.

Ayrıntılar

Birincil Dil İngilizce
Konular İlköğretim
Bölüm Research Articles
Yazarlar

Zeynep Nur Aydın Kılıç 0000-0001-9182-5152

Fatma Tezel Şahin 0000-0003-2098-2411

Şeyma Sultan Bozkurt 0000-0002-4579-1542

Yayımlanma Tarihi 30 Eylül 2024
Gönderilme Tarihi 24 Mayıs 2024
Kabul Tarihi 29 Eylül 2024
Yayımlandığı Sayı Yıl 2024 Cilt: 13 Sayı: 3

Kaynak Göster

APA Aydın Kılıç, Z. N., Tezel Şahin, F., & Bozkurt, Ş. S. (2024). INVASTIGATION OF PATIENT AND HOSPITAL PERCEPTIONS OF CHILDREN PARTICIPATING IN EDUCATION AT THE HOUSE OF COMPASSION. International Online Journal of Primary Education, 13(3), 200-221. https://doi.org/10.55020/iojpe.1489205

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