Pediatri servislerinde kronik hastalık tanısı ile yatan çocuklarına refakat eden annelerin bakım yükü ve psikolojik dayanıklılıkları

Abstract

Özet Giriş: Psikolojik dayanıklılık, kronik hastalığı olan hastanede yatan küçük çocukların annelerinin yaşadığı bakım yükünü yönetmede çok önemli bir rol oynar. Bu annelerin dayanıklılığı sadece kendi ruh sağlıkları için değil, aynı zamanda çocuğun iyilik hali ve gelişimi için de kritiktir. Amaç: Bu çalışmanın amacı, hastanede kronik hastalık nedeniyle yatan 0-2 yaş arasındaki çocuklarına refakat eden annelerin bakım yükü, psikolojik dayanıklılık durumları ve ilişkili faktörleri incelemektir. Gereç ve Yöntemler: Katılımcılar, hastanede yatmakta olan çocukların annesini (134 kişi) içermektedir. Veriler, kişisel bilgi formu, Zarit Bakım Yükü ve Kısa Dayanıklılık Ölçeği kullanılarak toplanmıştır. Bulgular: Çalışan ve lisans mezunu olan annelerin bakım yükü puan ortalamaları çalışmayan annelerden daha yüksek bulunmuştur. Epilepsi veya nörolojik hastalık tanısı ile izlenen çocukların annelerinin bakım yükü puan ortalamaları, çocukları diğer kronik hastalıklara sahip olan annelerden daha yüksek çıkmıştır. Araçsal ve manevi destek alan annelerin psikolojik dayanıklılıkları, bu desteği almayanlardan anlamlı olarak daha yüksek bulunmuştur. Tartışma: Kronik hastalık tanısı ile izlenen çocuklarına hastanede refakat eden anneler arasında özellikle; lisans mezunu, çalışan, epilepsi ve nörolojik hastalık tanısı ile izlenen çocuğa sahip anneler bakım yükü ve psikolojik dayanıklılık bakımından risk grubundadır. Sonuç: Hekimler ve özellikle de pediatri hemşireleri, bu çalışmanın sonucunda risk grubu olarak belirlenmiş annelere klinik ortamda araçsal ve manevi destek sağlayarak, annelerin psikolojik dayanıklılıklarını artırabilir ve bakım yükünü hafifletebilirler. Refakatçı annelere verilen bu destek çocuğun yaşam kalitesi ve bakımına daha fazla katkı sağlayabilirler.

Keywords

• Bakım yükü
• kronik hastalık
• dirençlilik
• pediatri
• anneler

Care Burden and Psychological Resilience of Mothers Accompanying Their Children with Chronic Illnesses Hospitalized in Pediatric Wards

Abstract

Abstract Background: Psychological resilience plays a pivotal role in managing the caregiving burden experienced by mothers of hospitalized young children with chronic illnesses. The resilience of these mothers is not only critical for their own mental health but also for the well-being and development of their child. Aim: This study aimed to assess the care burden, psychological resilience, and associated factors of mothers with hospitalized children aged 0-2 years who have chronic diseases. Materials and Methods: The participants included 134 mothers of hospitalized children. Data were gathered utilizing a personal information form, the Zarit Burden Interview, and the Brief Resilience Scale. Results: Working mothers with a bachelor’s degree had higher Zarit Burden Interview scores than non-working mothers. Mothers of children with epilepsy and neurological diseases had higher Zarit Burden Interview scores than those with other chronic diseases. Mothers receiving instrumental and spiritual support had significantly higher Brief Resilience Scale scores. Discussion: Among mothers who accompany their children with a chronic illness diagnosis in the hospital, those who are university graduates, employed, or have children diagnosed with epilepsy and neurological diseases are particularly at risk in terms of the burden of care and psychological resilience. Conclusion: Physicians and especially pediatric nurses can enhance the psychological resilience of these mothers identified as a risk group in this study and alleviate their care burden by providing instrumental and moral support in the clinical setting. The support given to these accompanying mothers can contribute more significantly to the child's quality of life and care.

Keywords

• Care burden
• Chronic diseases
• Resilience
• Pediarics
• Mothers

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