BibTex RIS Kaynak Göster

Palliative Care for Newborn Infants

Yıl 2016, Cilt: 10 Sayı: 2, 149 - 155, 01.06.2016

Öz

Palliative care is referred to as ‘organization of end-of-life care’ and describes a holistic and active care approach for the patient and family with physical, emotional, social and spiritual aspects. Pediatric palliative care has entered the global agenda and its use has started in pediatric hospitals in the 1990s. Pediatric palliative care is now also being used in some children with chronic and life-limiting or threatening conditions in our country. The survival rate of children has increased thanks to medical and technological developments and pediatric palliative care is now used more frequently in practice. The number of neonates requiring palliative care has also increased with decreasing neonatal mortality rates in recent years. Palliative care of the neonate with a life-limiting condition begins at the time of diagnosis, and continues during the child’s life, at the moment of death and afterwards. Palliative care consists of the maintenance of an effective and comprehensive approach focusing on the newborn and his/her family. This article discusses the neonatal palliative care approach and the recommendations in practice

Kaynakça

  • National Consensus Project for Quality Palliative Care, 2009. Clinical practice guidelines for quality palliative care (2nd ed, 9-10). Available at: http:/www.nationalconsensusproject.org. Accessed December.2014.
  • Romesberg TL. Understanding grief: A component of neonatal palliative care. J Hosp Palliat Nurs 2004;6:161-70.
  • World Health Organization. WHO definition of palliative care. Available at: http://www.who.int/selection_medicines/committees/ expert/19/applications/PalliativeCare_8_A_R.pdf.Accessed January.2015.
  • Palliative care ACT. About palliative care. Available at: http://www. pallcareact.org.au/palliative-care/ Accessed February 2015.
  • Milstein JM. Detoxifying death in the neonate: In search of meaningfulness at the end of life. J Perinatol 2003;23:333-6.
  • Kabalak AA, Öztürk H, Çağıl H. Yaşam sonu bakım organizasyonu. Palyatif bakım. Yoğun Bakım Dergisi 2013;11:56-70.
  • American Academy of Hospice and Palliative Medicine; Center to Advance Palliative Care; Hospice and Palliative Nurses Association; Last Acts Partnership; National Hospice and Palliative Care Organization. National Consensus Project for Quality Palliative Care: Clinical Practice Guidelines for quality palliative care, executive summary. J Palliat Med 2004;7:611-27.
  • American Academy of Pediatrics, Committee on Bioethics and Committee on Hospital Care. Palliative care for children. Pediatrics 2000;106:351-7.
  • Borasio GD. Translating the World Health Organization definition of palliative care into scientific practice. Palliat Support Care 2011;9:1-2.
  • Carter BS. Providing palliative care for newborns. Pediatric Annals 2004;33:770–7.
  • Romesberg TL. Building a case for neonatal palliative care. Neonatal Network 2007;26:111–5.
  • Gale G, Brooks A. Implementing a palliative care program in a newborn intensive care unit. Adv Neonatal Care 2006;6:37–53.
  • Carter BS, Hubble C, Weise KL. Palliative medicine in neonatal and pediatric ıntensive care. Child Adolesc Psychiatr Clin N Am 2006;15:759–77.
  • Catlin A, Carter B. Creation of a neonatal end-of-life palliative care protocol. J Perinatol 2002;22:184–95.
  • National Association of Neonatal Nurses. Board of Directors. Position Statement. #3051. Palliative care for newborns and infants. September 2010. Avaliable at: http://www.nann.org/ uploads/files/Palliative_Care-final2-in_new_template_01-07-11. pdf. Accessed December 2014.
  • Mendes JCC, Silva LJ. Neonatal palliative care developing consensus among neonatologists using the Delphi Technique in Portugal. Adv Neonatal Care 2013;13: 408-14.
  • Summer LH, Kavanaugh K, Moro T. Extending palliative care into pregnancy and the immediate newborn period. J Perinat Neonatal Nurs 2006;20:113-6.
  • Carter BS. Comfort care principles for the high-risk newborn. Neo Reviews 2004;5:484–90.
  • Payot A. Prenatal palliative care: A challenge of consistency between prenatal and postnatal care. Arch Pediatr 2009;16:597–9.
  • Ball JW, Bindler RC, Cowen KJ. Child health nursing partnering with children and families. 3th ed. Nursing care of the hospitalized child. Pearson, 386-7.
  • Bhatia J. Palliative care in the fetus and newborn. J Perinatol 2006;1:S31-3.
  • Carter BS, Bhatia J. Comfort/palliative care guidelines for neonatal practice: Development and implementation in an academic medical center. J Perinatol 2001;21:279–83.
  • Williams C, Munson D, Zupancic J, Kirpalani H. Supporting bereaved parents: Practical steps in providing compassionate perinatal and neonatal end-of-life care A North American perspective. Semin Fetal Neonatal Med 2008;3:335–40.
  • Eden LM, Callister LC. Parent involvement in end-of-life care and decision making in the newborn intensive care unit: An integrative review. J Perinat Educ 2010;19:29–39.
  • Craig F, Goldman A. Home management of the dying NICU patient. Semin Neonatol 2003;8:177–83.
  • Rushton CH. Ethics and palliative care in pediatrics. AJN 2004;104:54-63.
  • Lorenz KA, Lynn J, Dy SM, Shugarman LR, Wilkinson A, Mularski RA, et al. Evidence for improving palliative care at the end of life: A systematic review. Ann Intern Med 2008;148:147-59.

Yenidoğanlarda Palyatif Bakım

Yıl 2016, Cilt: 10 Sayı: 2, 149 - 155, 01.06.2016

Öz

Palyatif bakım kısaca ‘yaşam sonu bakımın organizasyonu’ olarak adlandırılmakta, hasta ve ailesine yönelik fiziksel, duygusal, sosyal ve spiritüel yönleri olan aktif, bütüncül bir bakım yaklaşımını tanımlamaktadır. Dünyada pediatrik palyatif bakım 1990 sonlarında gündeme gelmiş ve çocuk hastanelerinde uygulanmaya başlamıştır. Ülkemizde ise pediatrik palyatif bakım kronik ve yaşamı sınırlayıcı ya da tehdit edici hastalığı olan çocuklar düşünülerek gündeme gelmiş, tıbbi ve teknolojik gelişmelerle yaşatılan çocuk oranlarının artmasıyla pratikte daha sık kullanılmaya başlamıştır. Son yıllarda yenidoğan mortalite hızlarındaki azalmayla birlikte palyatif bakım gereksinimi olan yenidoğanlarda da artış olmuştur. Yaşamı sınırlayıcı durumu olan yenidoğanın palyatif bakımı, tanı anından itibaren çocuğun yaşamı, ölüm anı ve sonrasındaki bakıma etkin ve kapsamlı bir yaklaşım olup çocuk ve aile odaklıdır ve ihtiyaç temellidir. Yazıda yenidoğanlarda palyatif bakım uygulamalarıyla ilgili yaklaşım ve öneriler yer almaktadır.

Kaynakça

  • National Consensus Project for Quality Palliative Care, 2009. Clinical practice guidelines for quality palliative care (2nd ed, 9-10). Available at: http:/www.nationalconsensusproject.org. Accessed December.2014.
  • Romesberg TL. Understanding grief: A component of neonatal palliative care. J Hosp Palliat Nurs 2004;6:161-70.
  • World Health Organization. WHO definition of palliative care. Available at: http://www.who.int/selection_medicines/committees/ expert/19/applications/PalliativeCare_8_A_R.pdf.Accessed January.2015.
  • Palliative care ACT. About palliative care. Available at: http://www. pallcareact.org.au/palliative-care/ Accessed February 2015.
  • Milstein JM. Detoxifying death in the neonate: In search of meaningfulness at the end of life. J Perinatol 2003;23:333-6.
  • Kabalak AA, Öztürk H, Çağıl H. Yaşam sonu bakım organizasyonu. Palyatif bakım. Yoğun Bakım Dergisi 2013;11:56-70.
  • American Academy of Hospice and Palliative Medicine; Center to Advance Palliative Care; Hospice and Palliative Nurses Association; Last Acts Partnership; National Hospice and Palliative Care Organization. National Consensus Project for Quality Palliative Care: Clinical Practice Guidelines for quality palliative care, executive summary. J Palliat Med 2004;7:611-27.
  • American Academy of Pediatrics, Committee on Bioethics and Committee on Hospital Care. Palliative care for children. Pediatrics 2000;106:351-7.
  • Borasio GD. Translating the World Health Organization definition of palliative care into scientific practice. Palliat Support Care 2011;9:1-2.
  • Carter BS. Providing palliative care for newborns. Pediatric Annals 2004;33:770–7.
  • Romesberg TL. Building a case for neonatal palliative care. Neonatal Network 2007;26:111–5.
  • Gale G, Brooks A. Implementing a palliative care program in a newborn intensive care unit. Adv Neonatal Care 2006;6:37–53.
  • Carter BS, Hubble C, Weise KL. Palliative medicine in neonatal and pediatric ıntensive care. Child Adolesc Psychiatr Clin N Am 2006;15:759–77.
  • Catlin A, Carter B. Creation of a neonatal end-of-life palliative care protocol. J Perinatol 2002;22:184–95.
  • National Association of Neonatal Nurses. Board of Directors. Position Statement. #3051. Palliative care for newborns and infants. September 2010. Avaliable at: http://www.nann.org/ uploads/files/Palliative_Care-final2-in_new_template_01-07-11. pdf. Accessed December 2014.
  • Mendes JCC, Silva LJ. Neonatal palliative care developing consensus among neonatologists using the Delphi Technique in Portugal. Adv Neonatal Care 2013;13: 408-14.
  • Summer LH, Kavanaugh K, Moro T. Extending palliative care into pregnancy and the immediate newborn period. J Perinat Neonatal Nurs 2006;20:113-6.
  • Carter BS. Comfort care principles for the high-risk newborn. Neo Reviews 2004;5:484–90.
  • Payot A. Prenatal palliative care: A challenge of consistency between prenatal and postnatal care. Arch Pediatr 2009;16:597–9.
  • Ball JW, Bindler RC, Cowen KJ. Child health nursing partnering with children and families. 3th ed. Nursing care of the hospitalized child. Pearson, 386-7.
  • Bhatia J. Palliative care in the fetus and newborn. J Perinatol 2006;1:S31-3.
  • Carter BS, Bhatia J. Comfort/palliative care guidelines for neonatal practice: Development and implementation in an academic medical center. J Perinatol 2001;21:279–83.
  • Williams C, Munson D, Zupancic J, Kirpalani H. Supporting bereaved parents: Practical steps in providing compassionate perinatal and neonatal end-of-life care A North American perspective. Semin Fetal Neonatal Med 2008;3:335–40.
  • Eden LM, Callister LC. Parent involvement in end-of-life care and decision making in the newborn intensive care unit: An integrative review. J Perinat Educ 2010;19:29–39.
  • Craig F, Goldman A. Home management of the dying NICU patient. Semin Neonatol 2003;8:177–83.
  • Rushton CH. Ethics and palliative care in pediatrics. AJN 2004;104:54-63.
  • Lorenz KA, Lynn J, Dy SM, Shugarman LR, Wilkinson A, Mularski RA, et al. Evidence for improving palliative care at the end of life: A systematic review. Ann Intern Med 2008;148:147-59.
Toplam 27 adet kaynakça vardır.

Ayrıntılar

Diğer ID JA32FU93BR
Bölüm Research Article
Yazarlar

Sevim Ünal Bu kişi benim

Ayşegül Zenciroğlu Bu kişi benim

Yayımlanma Tarihi 1 Haziran 2016
Gönderilme Tarihi 1 Haziran 2016
Yayımlandığı Sayı Yıl 2016 Cilt: 10 Sayı: 2

Kaynak Göster

Vancouver Ünal S, Zenciroğlu A. Palliative Care for Newborn Infants. Türkiye Çocuk Hast Derg. 2016;10(2):149-55.

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