Ankilozan Spondilitte Hastalık Algısının Yaşam Kalitesi Üzerine Etkisi

Öz

Amaç: Ankilozan Spondilit (AS), karakteristik olarak sakroiliak eklemleri, omurga ve periferik eklemleri, bağırsakları ve gözleri etkileyebilen, kronik, inflamatuvar romatizmal ilerleyici bir hastalıktır. AS'nin klinik bulguları iyi bilinmekte ancak hastalığın, etkilenen kişinin subjektif sağlığı üzerindeki etkileri yeterince bilinmemektedir. Bu çalışmanın amacı Ankilozan Sondilitli (AS) hastalarda hastalık algısını, hastalık aktivitesini, fonksiyonel ve emosyonel durumunu ve bunların hastalık aktivitesi ile ilişkisini değerlendirmektir.
Materyal ve Metot: Altmışyedi AS’li hasta çalışmaya katıldı. Hastalıkla ilgili yaşam kalitesi Ankilozan Spondilit Yaşam Kalitesi İndeksi (ASQoL) ve hastalık algısı Kısa Hastalık Algı Ölçeği ile değerlendirildi. Hastalık aktivitesi ve fonksiyonel kapasitesi, Bath Ankilozan Spondilit Hastalık Aktivite İndeksi (BASDAI), Bath Ankilozan Spondilit Fonksiyonel İndeksi (BASFI) ile değerlendirildi. Psikolojik durumun değerlendirmesinde Beck Depresyon Ölçeği kullanıldı.

Bulgular: Sonuçlarımıza göre, hastalık algısı ile yaşam kalitesi arasında anlamlı ilişki bulunmuştur. Bununla birlikte, yaşam kalitesini en çok etkileyen faktörler fonksiyonel durum ve yaşam kalitesidir.
Sonuç: Rutin klinik uygulamada hastalık algısının değerlendirilmesi, hastanın davranışlarında tedaviye uyuma engel olabilecek sorunların daha iyi anlaşılmasına katkıda bulunabilir. Konvansiyonel terapiyeek olarak psikoterapötik yaklaşımlar, AS'de hastaların yaşam kalitesini iyileştirmede katkıda bulunabilir.

Anahtar Kelimeler

• Hastalık algısı,depresyon,yaşam kalitesi,seronegatif spondiloartropati

Effect of Illness Perception on the Quality of Life in Ankylosing Spondylitis

Abstract

Objectives: The aim of the study was to assess the illness perception in patients with ankylosing spondilitis (AS), to evaluate disease activity, functional ability, emotional status and to investigate their association with quality of life (QoL).

Materials and Methods: Sixty-seven patients with AS were included in this study. The Bath Ankylosing Spondylitis Disease Activity Index (BASDAI) and Bath Ankylosing Spondylitis Functional Index (BAS­FI) were used for the assessment of disease activity and of physical functions, respectively. The Ankylosing Spondy­litis Quality of Life (ASQoL) questionnaire was used for disease-related quality of life and The Brief Illness Perception Questionnaire (B-IPQ) was used for the assessment of illness perception in AS patients. Beck Depression Inventory (BDI) was used for the assessment of psychological status.

Results: Based on our results, significant association was found between QoL and illness perceptions. However, QoL was most associated with functional status and disease activity.

Conclusion: Assessment of illness perception in routine clinical practice could contribute to a better understanding of problems in patients’ behavior that may disturb adherence to treatment. Psychotherapeutic approaches in addition to conventional therapy might attempt to improve patient’s QoL in AS.

Keywords

• Illness representations,depression,quality of life,seronegative spondyloarthropathy

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