Ankilozan Spondilitte Hastalık Algısının Yaşam Kalitesi Üzerine Etkisi

Year 2018, Volume: 18 Issue: 1, 94 - 112, 30.03.2018

Sinem Bozkurt , Lale Aktekin Berat Meryem Alkan Fatma Gülçin Ural Nebahat Sezer Selami Akkuş

https://doi.org/10.17098/amj.409013

Cited By: 1

Abstract

Amaç: Ankilozan Spondilit (AS), karakteristik olarak sakroiliak eklemleri,
omurga ve periferik eklemleri, bağırsakları ve gözleri etkileyebilen, kronik,
inflamatuvar romatizmal ilerleyici bir hastalıktır. AS'nin klinik bulguları iyi
bilinmekte ancak hastalığın, etkilenen kişinin subjektif sağlığı üzerindeki
etkileri yeterince bilinmemektedir. Bu çalışmanın amacı Ankilozan Sondilitli
(AS) hastalarda hastalık algısını, hastalık aktivitesini, fonksiyonel ve
emosyonel durumunu ve bunların hastalık aktivitesi ile ilişkisini
değerlendirmektir.
Materyal ve Metot: Altmışyedi AS’li
hasta çalışmaya katıldı. Hastalıkla ilgili yaşam kalitesi Ankilozan Spondilit
Yaşam Kalitesi İndeksi (ASQoL) ve hastalık algısı Kısa Hastalık Algı Ölçeği ile
değerlendirildi. Hastalık aktivitesi ve fonksiyonel kapasitesi, Bath Ankilozan
Spondilit Hastalık Aktivite İndeksi (BASDAI), Bath Ankilozan Spondilit
Fonksiyonel İndeksi (BASFI) ile değerlendirildi. Psikolojik durumun
değerlendirmesinde Beck Depresyon Ölçeği kullanıldı.

Bulgular: Sonuçlarımıza göre, hastalık algısı ile
yaşam kalitesi arasında anlamlı ilişki bulunmuştur. Bununla birlikte, yaşam
kalitesini en çok etkileyen faktörler fonksiyonel durum ve yaşam kalitesidir.
Sonuç: Rutin klinik uygulamada
hastalık algısının değerlendirilmesi, hastanın davranışlarında tedaviye uyuma
engel olabilecek sorunların daha iyi anlaşılmasına katkıda bulunabilir.
Konvansiyonel terapiyeek olarak psikoterapötik yaklaşımlar, AS'de hastaların
yaşam kalitesini iyileştirmede katkıda bulunabilir.

Keywords

Hastalık algısı, depresyon, yaşam kalitesi, seronegatif spondiloartropati

Effect of Illness Perception on the Quality of Life in Ankylosing Spondylitis

Abstract

Objectives:
The aim of the study was to assess the illness perception in patients with ankylosing
spondilitis (AS), to evaluate disease activity, functional ability, emotional
status and to investigate their association with quality of life (QoL).

Materials and Methods:
Sixty-seven patients with AS were included in this study. The Bath Ankylosing
Spondylitis Disease Activity Index (BASDAI) and Bath Ankylosing Spondylitis
Functional Index (BAS­FI) were used for the assessment of disease activity and of
physical functions, respectively. The Ankylosing Spondy­litis Quality of Life
(ASQoL) questionnaire was used for disease-related quality of life and The
Brief Illness Perception Questionnaire (B-IPQ) was used for the assessment of
illness perception in AS patients. Beck Depression Inventory (BDI) was used for
the assessment of psychological status.

Results:
Based on our results, significant association was found between QoL and illness
perceptions. However, QoL was most associated with functional status and
disease activity.

Conclusion:
Assessment of illness perception in routine clinical practice could contribute
to a better understanding of problems in patients’ behavior that may disturb
adherence to treatment. Psychotherapeutic approaches in addition to
conventional therapy might attempt to improve patient’s QoL in AS.

Keywords

Illness representations, depression, quality of life, seronegative spondyloarthropathy

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