Dinamik Ayak-Ayakbileği Ortezi Kullanan Spastik Serebral Palsili Çocukların Memnuniyet Düzeylerinin Araştırılması

Year 2023, , 14 - 25, 30.09.2023

Sabiha Bezgin , Kamile Uzun Akkaya , Bülent Elbasan

https://doi.org/10.53493/avrasyasbd.1205302

Abstract

Amaç: Serebral palsili çocuklarda rehabilitasyonda önemli bir yere sahip olan dinamik ayak-ayak bileği ortezlerinin kullanımı ile ilgili memnuniyetin araştırılması, eksiklerin giderilmesi ve kullanımın etkin şekilde yürütülmesi için oldukça önemlidir. Çalışmamızın amacı, spastik serebral palsili çocukların memnuniyet düzeyinin kendi görüşleri alınarak değerlendirilmesidir.
Gereç ve Yöntem: Çalışmaya 5-18 yaş aralığında, yürüyebilen, en az 6 aydır dinamik ayak-ayakbileği ortezi kullanan ve soruları cevaplayabilecek kognitif düzeye sahip olan spastik serebral palsili çocuklar dahil edildi. Ortez memnuniyeti konfor, görsellik ve fonksiyonellik başlıkları altında oluşturulan 12 soru aracılığıyla değerlendirildi ve yaş, cinsiyet ve kaba motor fonksiyonların ortez memnuniyeti üzerindeki etkileri araştırıldı.
Bulgular: Çalışmaya yaş ortalaması 10.8 ±4.2 yıl olan toplam 105 spastik SP’li çocuk katıldı. Çalışmanın sonucunda, tüm katılımcıların sonuçları incelendiğinde ortez ile ilgili memnuniyet orta düzeyde bulundu. Ortez memnuniyetini etkileyen faktörler değerlendirildiğinde, fonksiyonel seviyenin üç alanda da memnuniyeti etkileyen bir unsur olduğu, yaşın özellikle ortezin görselliği ile ilgili memnuniyeti etkileyen bir faktör olduğu ve cinsiyetin memnuniyet üzerinde etkisinin olmadığı sonucuna ulaşıldı.
Sonuç: Sonuçta, ortez kullanıcılarının görüşlerinin alınmasıyla, eksikliklerin giderilmesi, kullanım süresinin ve motivasyonun arttırılması açısından oldukça önemli bulgular elde edildi. Ayrıca çocuk temelli yaklaşımın vurgulanması sağlandı. Ortez memnuniyetinin yaş ve kaba motor fonksiyon seviyesi ile değiştiği, cinsiyetin ise sorulan sorular çerçevesinde etkisi olmadığı sonucuna ulaşıldı.

Keywords

memnuniyet, ortez, serebral palsi, yardımcı cihaz

Investigation of Satisfaction Levels of Children with Spastic Cerebral Palsy Using Dynamic Foot-Ankle Orthesis

Abstract

Aim: The investigation of satisfaction with using dynamic foot-ankle orthoses, which have an important place in rehabilitation in children with cerebral palsy (CP), is essential for eliminating deficiencies and effectively implementing the use. Our study aims to evaluate the satisfaction level of children with spastic CP by taking their own opinions.
Materials and Method: Children with spastic CP aged 5-18 years, who can walk, who have been using dynamic foot-ankle orthosis for at least six months, and who have a cognitive level that can answer questions were included in the study. Orthotic satisfaction was evaluated through 12 questions created under the headings of comfort, visuality, and functionality, and the effects of age, gender, and gross motor functions on orthotic satisfaction were investigated.
Results: 105 children with spastic CP with a mean age of 10.8±4.2 years participated in the study. At the end of the study, satisfaction with orthosis was found to be moderate. When the factors affecting orthosis satisfaction were evaluated, it was concluded that functional level affects satisfaction in all three areas. Age is a factor affecting satisfaction primarily related to the visual of the orthosis, and gender does not affect satisfaction.
Conclusion: As a result, by taking the opinions of orthosis users, significant findings were obtained in eliminating deficiencies and increasing the duration of use and motivation. In addition, the child-based approach was emphasized. It was concluded that orthotic satisfaction changed with age and gross motor function level, and gender had no effect within the framework of the questions asked.

Keywords

assistive device, cerebral palsy, orthosis, satisfaction, memnuniyet, ortez, serebral palsi, yardımcı cihaz

References

• Aboutorabi, A., Arazpour, M., Ahmadi Bani, M., Saeedi, H., & Head, J. S. (2017). Efficacy of ankle foot orthoses types on walking in children with cerebral palsy: A systematic review. Annals of physical and ehabilitation medicine, 60(6), 393–402.
• Aisen, M. L., Kerkovich, D., Mast, J., Mulroy, S., Wren, T. A., Kay, R. M., & Rethlefsen, S. A. (2011). Cerebral palsy: clinical care and neurological rehabilitation. The Lancet Neurology, 10(9), 844-852.
• Akkaya, K. U., S. Bezgin and B. Elbasan (2022). "The Assessment of Factors Related to Family Life in Children with Cerebral Palsy." Journal of Current Pediatrics/Guncel Pediatri 20(1).
• Bettoni, E., Ferriero, G., Bakhsh, H., Bravini, E., Massazza, G., & Franchignoni, F. (2016). A systematic review of questionnaires to assess patient satisfaction with limb orthoses. Prosthetics and orthotics international, 40(2), 158-169.
• Betancourt, J. P., Eleeh, P., Stark, S., & Jain, N. B. (2019). Impact of ankle-foot orthosis on gait efficiency in ambulatory children with cerebral palsy: a systematic review and meta-analysis. American journal of physical medicine & rehabilitation, 98(9), 759-770.
• Bulley, C., Shiels, J., Wilkie, K., & Salisbury, L. (2011). User experiences, preferences and choices relating to functional electrical stimulation and ankle foot orthoses for foot-drop after stroke. Physiotherapy, 97(3), 226-233. Bjornson, K. F., Fatone, S., Orendurff, M., Zhou, C., Hurvitz, P. M., & Shippen, G. (2023). Individualized orthotic alignment and footwear for balance and mobility in children with bilateral spastic cerebral palsy: A randomized trial. Developmental Medicine & Child Neurology.
• Carlberg, E. B. and M. Hadders-Algra (2008). "Postural control in sitting children with cerebral palsy." Clinics in Developmental Medicine 74(1): 74-96.
• Charlton, P., Ferguson, D., Peacock, C., & Stallard, J. (1999). Preliminary clinical experience of a contracture correction device. Prosthetics and Orthotics International, 23(2), 163- 168.
• Everaert, L., Papageorgiou, E., Van Campenhout, A., Labey, L., & Desloovere, K. (2023). The influence of ankle-foot orthoses on gait pathology in children with cerebral palsy: A retrospective study. Gait & posture, 100, 149–156.
• Graham, D., S. P. Paget and N. Wimalasundera (2019). "Current thinking in the health care management of children with cerebral palsy." Medical Journal of Australia 210(3): 129-35.
• Ghoseiri, K., & Bahramian, H. (2012). User satisfaction with orthotic and prosthetic devices and services of a single clinic. Disability and rehabilitation, 34(15), 1328-1332.
• Goihl, T., Ihlen, E. A. F., Bardal, E. M., Roeleveld, K., Ustad, A., & Brændvik, S. M. (2021). Effects of Ankle-Foot Orthoses on acceleration and energy cost of walking in children and adolescents with cerebral palsy. Prosthetics and Orthotics International, 45(6), 500-505.
• Kane, K., P. Manns, J. Lanovaz and K. Musselman (2019). "Clinician perspectives and experiences in the prescription of ankle-foot orthoses for children with cerebral palsy." Physiotherapy theory and practice 35(2): 148-56.
• King, G. A., Cathers, T., Polgar, J. M., MacKinnon, E., & Havens, L. (2000). Success in life for older adolescents with cerebral palsy. Qualitative health research, 10(6), 734-749.
• Lahoud, D., Teng, C. H., Nusem, E., Burns, J., Wrigley, C., & Cheng, T. L. (2020). Content analysis of child user and carer perspectives of ankle–foot orthoses. Prosthetics and orthotics international, 309364620952906.
• Livingston, M. H., P. L. Rosenbaum, D. J. Russell and R. J. Palisano (2007). Quality of life among adolescents with cerebral palsy: what does the literature tell us? Developmental Medicine & Child Neurology 49(3): 225-31.
• Malas, B. S. (2011). What variables influence the ability of an AFO to improve function and when are they indicated?. Clinical Orthopaedics and Related Research®, 469, 1308- 1314
• Magnusson, L., Ahlström, G., Ramstrand, N., & Fransson, E. (2013). Malawian prosthetic and orthotic users' mobility and satisfaction with their lower limb assistive device. Journal of rehabilitation medicine, 45(4), 385-391.
• Marcotte, D., Ferri, E., Xue, X., Katsolis, A., Rajotte, E., Cardiff, K., & Preuss, R. (2023). Barriers and facilitators to lower extremity orthotic compliance in the pediatric population: a scoping review of the literature. Prosthetics and Orthotics International, 47(2), 155-167.
• Morris, C. (2002). A review of the efficacy of lower-limb orthoses used for cerebral palsy. Developmental medicine and child neurology, 44(3), 205-211.
• Novak, I., S. Mcintyre, C. Morgan, L. Campbell, L. Dark, N. Morton, E. Stumbles, S. A. Wilson and S. Goldsmith (2013). "A systematic review of interventions for children with cerebral palsy: state of the evidence." Developmental medicine & child neurology 55(10): 885-10.
• Østensjø, S., Carlberg, E., & Vøllestad, N. (2004). Motor impairments in young children with cerebral palsy: Relationship to gross motor function and everyday activities. Developmental Medicine and Child Neurology, 46(9), 580-589.
• Palisano, R., P. Rosenbaum, S. Walter, D. Russell, E. Wood and B. Galuppi (1997). "Development and reliability of a system to classify gross motor function in children with cerebral palsy." Developmental medicine & child neurology 39(4): 214-23.
• Rethlefsen, S. A., Blumstein, G., Kay, R. M., Dorey, F., & Wren, T. A. (2017). Prevalence of specific gait abnormalities in children with cerebral palsy revisited: influence of age, prior surgery, and Gross Motor Function Classification System level. Developmental Medicine & Child Neurology, 59(1), 79-88.
• Ribeiro Volpini Lana, M., J. Pimenta Maia, A. A. Horta, S. Teixeira da Fonseca and M. Guimaraes Assis (2021). "‘What if it were like this?’Perception of mothers of children with cerebral palsy about the ankle-foot orthosis of their children: A qualitative study." Child: Care, Health and Development 47(2): 252-60.
• Ricardo, D., Raposo, M. R., Cruz, E. B., Oliveira, R., Carnide, F., Veloso, A. P., & João, F. (2021). Effects of ankle foot orthoses on the gait patterns in children with spastic bilateral cerebral palsy: a scoping review. Children, 8(10), 903.
• Swinnen, E., Lafosse, C., Van Nieuwenhoven, J., Ilsbroukx, S., Beckwée, D., & Kerckhofs, E. (2017). Neurological patients and their lower limb orthotics: an observational pilot study about acceptance and satisfaction. Prosthetics and orthotics international, 41(1), 41-50.
• Tezel, N., D. Cankurtaran, E. U. Akyuz and M. Akyuz (2020). "The satisfaction of Foot and Ankle Orthosis in Children with Cerebral Palsy; From the Family's Perspective/Serebral Palsili Cocularda Ayak-ayak Bilegi Ortez Memnuniyeti; Ailesinin Bakis Acisindan." Journal of Ankara University Faculty of Medicine 73(1): 31-6.
• van Swigchem, R., Vloothuis, J., Den Boer, J., Weerdesteyn, V., & Geurts, A. C. (2010). Is transcutaneous peroneal stimulation beneficial to patients with chronic stroke using an ankle-foot orthosis? A within-subjects study of patients' satisfaction, walking speed and physical activity level. Journal of Rehabilitation Medicine, 42(2), 117-121.
• Waterval, N. F., Nollet, F., Harlaar, J., & Brehm, M. A. (2017). Precision orthotics: optimising ankle foot orthoses to improve gait in patients with neuromuscular diseases; protocol of the PROOF-AFO study, a prospective intervention study. BMJ Open, 7(2), e013342.
• Wintels, S. C., Smits, D. W., van Wesel, F., Verheijden, J., Ketelaar, M., PERRIN PiP Study Group, ... & Gorter, J. W. (2018). How do adolescents with cerebral palsy participate? Learning from their personal experiences. Health Expectations, 21(6), 1024-1034.
• Wright, E., & DiBello, S. A. (2020). Principles of ankle-foot orthosis prescription in ambulatory bilateral cerebral palsy. Physical Medicine and Rehabilitation Clinics, 31(1), 69-89.
• Zaino, N. L., Yamagami, M., Gaebler-Spira, D. J., Steele, K. M., Bjornson, K. F., & Feldner, H. A. (2022). “That's frustrating”: Perceptions of ankle foot orthosis provision, use, and needs among people with cerebral palsy and caregivers. Prosthetics and Orthotics International, 10-1097.