Research Article
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Health Status of Disabled Children and Youth Receiving Public Home Care Services Between 2010 and 2015 in Diyarbakir, Turkey

Year 2016, Volume: 43 Issue: 4, 549 - 553, 25.12.2016
https://doi.org/10.5798/diclemedj.0921.2015.01.0521

Abstract


Objective: The aim of this study was to provide
information on utilization of home health care services provided by
government and determine health status of children and young people who
received this medical care.


Methods: Data for 576 patients who were followed and
recorded by the health staff of the Ministry of Health between 2010 and
2015 were used in this study. Of these patients 234 (40.63 %) were
female and 342 (59.37%) were male. The patients were divided into three
age groups: 0-6 years of age: 93(16.15%), 7–14 years of age:219
(38.02%), and 15–22 years of age: 264 (45.83%).


Results: There was no significant difference in gender
between the age groups (χ2=1.077, p>0.05). In 2015, there was an
increase in the prevalence of home care services across all age groups
(χ2=38.734, p<0.01). Diyarbakir Children Hospital was more efficient
than other hospitals (χ2=42.230, p<0.01) in providing this medical
care. The most common diseases seen among these young patients were
central nervous system diseases, neurodevelopmental diseases, and
acquired brain injuries. In addition, epilepsy, SSPE, and cerebral palsy
were also widely prevalent among this group of children and youth. The
prevalence of cerebral palsy was larger in the 0–6 and 15–22 age groups
(χ2=6.491, p<0.05). A prevalence of central nervous system diseases
was seen most in the 0–6 age group (χ2=11.937, p<0.01). Apart from
these, there were no other significance diseases observed by gender or
age groups.


Conclusion: After favorable adjustments to public home
care services, an increase was seen in the utilization of services in
recent years. As disabled patients need health care in their homes, this
service has to be a primary goal for governments in order to provide
them with a higher quality of life.

References

  • 1. United Nations , Convention on the Rights of the Child, G.A. Res. 44/25, U.N. GAOR, 44th Sess., Supp. No. 49, U.N. Doc.A/44/49, 1989 Available from:http://www.unicef.org/crc/
  • 2. World Health Organization, World Report on Disability. Geneva: WHO/World Bank, 2011, Available from: http://www.who.int disabilities/world_report/2011/en/index.html
  • 3. UNICEF, Children and Young people with disabilities:Fact Sheet, 2013 Available from: http://www.unicef.org/disabilities/filesFactsheet_A5__Web_NEW.pdf
  • 4. Cornelius LR, Van der Klink JJL., De Boer M, et al. High prevalence of early onset mental disorders among long-term disability laimants. Disabil Rehabil 2016;38:520-27.
  • 5. Etherington N, McDougall J, DeWitD, et al. Maternal factors and the emotional and behavioural functioning of adolescents with chronic health conditions. Disabil Rehabil 2015;37:1-11 .
  • 6. Maart S, Jelsma J. Disability and access to health care a community based descriptive study, Disabil Rehabil 2014;36:1489-93.
  • 7. Perrin JM, Bloom SR, Gortmaker SL. The increase of childhood chronic conditions in the United States. JAMA 2007;297:2755–59.
  • 8. Andrews J, Falkmer M, Girdler S. Community participation interventions for children and adolescents wit neurodevelopmental intellectual disability: a systematic review, Disabil Rehabil 2015;37:825-33.
  • 9. McDougall J, Wright V, DeWit D, et al. Based functional components and contextual factors as correlates of perceived quality of life for youth with chronic conditions, Disabil Rehabil 2014;36:2143-51.
  • 10. Sawyer SM, Drew, Yeo MS, et al. Adolescents with a chronic condition: Challenges living, challenges treating. Lancet 2007;369:1481–89.
  • 11. Lightfoot J, Sloper M. Having a Say in Health: Involving Young People with a Chronic Illness or Physical Disability in Local Health Services Development. Children & Society 2003;4:277-90.
  • 12. McColl MA, Shortt S, Gignac M, et al. Disentangling the effects of disability and age on health service utilisation, Disabil Rehabil 2011;33:1253-61.
  • 13. Ellenbecker CH, Samia L, Cushman MJ, Alster K. Patient Safety and Quality in Home Health Care. 2008 [Internet] Available
  • from: http://www.ncbi.nlm.nih.gov/books/NBK2631/ Accessed: 01.02.2006.
  • 14. Önder T, Anuk T, Kahramanca Ş, et al. Evde bakım hizmetinden yararlanan hastaların sosyodemografik özellikleri ve tıbbi durumlarının değerlendirilmesi, Dicle Tıp Dergisi 2015;42:342-45.
  • 15. Parkes J, McCullough N, Madden A. To What extent do children with cerebral palsy participate in everyday life situations? Health and Social Care in the Community 2010;18:304-15.
  • 16. Hayles E, Jones A, Harvey D, et al. Delivering healthcare services to children with cerebral palsy and their families: a narrative review, Health and Social Care in the Community 2015;23:242–51.
  • 17. General Directorate of Development of Legislation and Publication (2015) Implementation of Health Care Services at Home Official Journal No: 25751, Ankara. Available at: http://www.mevzuat.gov.tr/Metin.Aspx?MevzuatKod=7.5.7542&sourceXmlSearch=&MevzuatIliski=0 (accessed on 8 February 2016) .(In Turkish)
  • 18. The Ministry of Health, Directive on procedures and applications of home health care services , Ankara, February, 2010 [Internet] Available from:http://www.saglik.gov.tr/TR/dosya/1-72726/h/son-yonerge.doc , Accessed: 06.02.2016. (In Turkish)
  • 19. Anaby D, Hand C, Bradley L, et al The effect of the environment on participation of children and youth with disabilities: a scoping review, Disabil Rehabil 2013;35:1589-98.
  • 20.Alford V, Ewen S, Webb G J, et al. The use of the International Classification of Functioning, Disability and Health to understand the health and functioning experiences of people with chronic conditions from the person perspective: a systematic review, D
  • isabil Rehabil 2015;37:655-66.
  • 21. McDowell BC, Duffy C, Parkes J. Service use and family centred care in young people with severe cerebral palsy: a population based, cross sectional clinical survey, Disabil Rehabil 2015;37:2324-29.
  • 22. Giallo R, Gavidia Payne S. Child, parent and family factors as predictors of adjustment for siblings of children with a disability. Journal of Intellectual Disability Research 2006;50:937–48.
  • 23. Amiet C, Gourfinkel-An I, Bouzamondo A, et al. Epilepsy in Autism is Associated with Intellectual Disability and Gender: Evidence from a Meta-Analysis, Biol Psychiatry 2008;64:577-82.
  • 24. Sen E, Yurtsever S. Difficulties Experienced by Families With Disabled Children. Journal for Specialists in Pediatric Nursing 2007;12:238–52.
  • 25. Maher CA, Toohey M, Ferguson M. Physical activity predicts quality of life and happiness in children and adolescents with cerebral palsy, Disabil Rehabil 2016;38:865-69.
  • 26. Palisano RJ, Almarsi N, Chiarello F, et al. Family needs of parents of children and youth with cerebral palsy. Child: Care, Health and Development 2010;36:85–92.
  • 27. Brereton A, Tonge B, Einfeld S, Psychopathology in Children and Adolescents with Autism Compared to Young People with Intellectual Disability,j Autism Dev Disord 2006;36:863-70.
  • 28. Rezaee ME, Pollock M. Multiple Chronic Conditions Among Outpatient Pediatric Patients, Southeastern Michigan, 2008–2013. Prev Chronic Dis 2015;12:140-49.
  • 29. Oeseburg B, Dijkstra GJ, Groothoff JW, et al. Prevalence of Chronic Health Conditions in Children With Intellectual Disability: A Systematic Literature Review , Intellectual and Developmental Disabilities 2011;49:59-85.
Year 2016, Volume: 43 Issue: 4, 549 - 553, 25.12.2016
https://doi.org/10.5798/diclemedj.0921.2015.01.0521

Abstract

References

  • 1. United Nations , Convention on the Rights of the Child, G.A. Res. 44/25, U.N. GAOR, 44th Sess., Supp. No. 49, U.N. Doc.A/44/49, 1989 Available from:http://www.unicef.org/crc/
  • 2. World Health Organization, World Report on Disability. Geneva: WHO/World Bank, 2011, Available from: http://www.who.int disabilities/world_report/2011/en/index.html
  • 3. UNICEF, Children and Young people with disabilities:Fact Sheet, 2013 Available from: http://www.unicef.org/disabilities/filesFactsheet_A5__Web_NEW.pdf
  • 4. Cornelius LR, Van der Klink JJL., De Boer M, et al. High prevalence of early onset mental disorders among long-term disability laimants. Disabil Rehabil 2016;38:520-27.
  • 5. Etherington N, McDougall J, DeWitD, et al. Maternal factors and the emotional and behavioural functioning of adolescents with chronic health conditions. Disabil Rehabil 2015;37:1-11 .
  • 6. Maart S, Jelsma J. Disability and access to health care a community based descriptive study, Disabil Rehabil 2014;36:1489-93.
  • 7. Perrin JM, Bloom SR, Gortmaker SL. The increase of childhood chronic conditions in the United States. JAMA 2007;297:2755–59.
  • 8. Andrews J, Falkmer M, Girdler S. Community participation interventions for children and adolescents wit neurodevelopmental intellectual disability: a systematic review, Disabil Rehabil 2015;37:825-33.
  • 9. McDougall J, Wright V, DeWit D, et al. Based functional components and contextual factors as correlates of perceived quality of life for youth with chronic conditions, Disabil Rehabil 2014;36:2143-51.
  • 10. Sawyer SM, Drew, Yeo MS, et al. Adolescents with a chronic condition: Challenges living, challenges treating. Lancet 2007;369:1481–89.
  • 11. Lightfoot J, Sloper M. Having a Say in Health: Involving Young People with a Chronic Illness or Physical Disability in Local Health Services Development. Children & Society 2003;4:277-90.
  • 12. McColl MA, Shortt S, Gignac M, et al. Disentangling the effects of disability and age on health service utilisation, Disabil Rehabil 2011;33:1253-61.
  • 13. Ellenbecker CH, Samia L, Cushman MJ, Alster K. Patient Safety and Quality in Home Health Care. 2008 [Internet] Available
  • from: http://www.ncbi.nlm.nih.gov/books/NBK2631/ Accessed: 01.02.2006.
  • 14. Önder T, Anuk T, Kahramanca Ş, et al. Evde bakım hizmetinden yararlanan hastaların sosyodemografik özellikleri ve tıbbi durumlarının değerlendirilmesi, Dicle Tıp Dergisi 2015;42:342-45.
  • 15. Parkes J, McCullough N, Madden A. To What extent do children with cerebral palsy participate in everyday life situations? Health and Social Care in the Community 2010;18:304-15.
  • 16. Hayles E, Jones A, Harvey D, et al. Delivering healthcare services to children with cerebral palsy and their families: a narrative review, Health and Social Care in the Community 2015;23:242–51.
  • 17. General Directorate of Development of Legislation and Publication (2015) Implementation of Health Care Services at Home Official Journal No: 25751, Ankara. Available at: http://www.mevzuat.gov.tr/Metin.Aspx?MevzuatKod=7.5.7542&sourceXmlSearch=&MevzuatIliski=0 (accessed on 8 February 2016) .(In Turkish)
  • 18. The Ministry of Health, Directive on procedures and applications of home health care services , Ankara, February, 2010 [Internet] Available from:http://www.saglik.gov.tr/TR/dosya/1-72726/h/son-yonerge.doc , Accessed: 06.02.2016. (In Turkish)
  • 19. Anaby D, Hand C, Bradley L, et al The effect of the environment on participation of children and youth with disabilities: a scoping review, Disabil Rehabil 2013;35:1589-98.
  • 20.Alford V, Ewen S, Webb G J, et al. The use of the International Classification of Functioning, Disability and Health to understand the health and functioning experiences of people with chronic conditions from the person perspective: a systematic review, D
  • isabil Rehabil 2015;37:655-66.
  • 21. McDowell BC, Duffy C, Parkes J. Service use and family centred care in young people with severe cerebral palsy: a population based, cross sectional clinical survey, Disabil Rehabil 2015;37:2324-29.
  • 22. Giallo R, Gavidia Payne S. Child, parent and family factors as predictors of adjustment for siblings of children with a disability. Journal of Intellectual Disability Research 2006;50:937–48.
  • 23. Amiet C, Gourfinkel-An I, Bouzamondo A, et al. Epilepsy in Autism is Associated with Intellectual Disability and Gender: Evidence from a Meta-Analysis, Biol Psychiatry 2008;64:577-82.
  • 24. Sen E, Yurtsever S. Difficulties Experienced by Families With Disabled Children. Journal for Specialists in Pediatric Nursing 2007;12:238–52.
  • 25. Maher CA, Toohey M, Ferguson M. Physical activity predicts quality of life and happiness in children and adolescents with cerebral palsy, Disabil Rehabil 2016;38:865-69.
  • 26. Palisano RJ, Almarsi N, Chiarello F, et al. Family needs of parents of children and youth with cerebral palsy. Child: Care, Health and Development 2010;36:85–92.
  • 27. Brereton A, Tonge B, Einfeld S, Psychopathology in Children and Adolescents with Autism Compared to Young People with Intellectual Disability,j Autism Dev Disord 2006;36:863-70.
  • 28. Rezaee ME, Pollock M. Multiple Chronic Conditions Among Outpatient Pediatric Patients, Southeastern Michigan, 2008–2013. Prev Chronic Dis 2015;12:140-49.
  • 29. Oeseburg B, Dijkstra GJ, Groothoff JW, et al. Prevalence of Chronic Health Conditions in Children With Intellectual Disability: A Systematic Literature Review , Intellectual and Developmental Disabilities 2011;49:59-85.
There are 31 citations in total.

Details

Journal Section Research Articles
Authors

Rojan Gümüş This is me

Mehmet Ufuk Aluçlu This is me

Seyfettin Sarıbaş This is me

Publication Date December 25, 2016
Submission Date January 11, 2017
Published in Issue Year 2016 Volume: 43 Issue: 4

Cite

APA Gümüş, R., Aluçlu, M. U., & Sarıbaş, S. (2016). Health Status of Disabled Children and Youth Receiving Public Home Care Services Between 2010 and 2015 in Diyarbakir, Turkey. Dicle Medical Journal, 43(4), 549-553. https://doi.org/10.5798/diclemedj.0921.2015.01.0521
AMA Gümüş R, Aluçlu MU, Sarıbaş S. Health Status of Disabled Children and Youth Receiving Public Home Care Services Between 2010 and 2015 in Diyarbakir, Turkey. diclemedj. December 2016;43(4):549-553. doi:10.5798/diclemedj.0921.2015.01.0521
Chicago Gümüş, Rojan, Mehmet Ufuk Aluçlu, and Seyfettin Sarıbaş. “Health Status of Disabled Children and Youth Receiving Public Home Care Services Between 2010 and 2015 in Diyarbakir, Turkey”. Dicle Medical Journal 43, no. 4 (December 2016): 549-53. https://doi.org/10.5798/diclemedj.0921.2015.01.0521.
EndNote Gümüş R, Aluçlu MU, Sarıbaş S (December 1, 2016) Health Status of Disabled Children and Youth Receiving Public Home Care Services Between 2010 and 2015 in Diyarbakir, Turkey. Dicle Medical Journal 43 4 549–553.
IEEE R. Gümüş, M. U. Aluçlu, and S. Sarıbaş, “Health Status of Disabled Children and Youth Receiving Public Home Care Services Between 2010 and 2015 in Diyarbakir, Turkey”, diclemedj, vol. 43, no. 4, pp. 549–553, 2016, doi: 10.5798/diclemedj.0921.2015.01.0521.
ISNAD Gümüş, Rojan et al. “Health Status of Disabled Children and Youth Receiving Public Home Care Services Between 2010 and 2015 in Diyarbakir, Turkey”. Dicle Medical Journal 43/4 (December 2016), 549-553. https://doi.org/10.5798/diclemedj.0921.2015.01.0521.
JAMA Gümüş R, Aluçlu MU, Sarıbaş S. Health Status of Disabled Children and Youth Receiving Public Home Care Services Between 2010 and 2015 in Diyarbakir, Turkey. diclemedj. 2016;43:549–553.
MLA Gümüş, Rojan et al. “Health Status of Disabled Children and Youth Receiving Public Home Care Services Between 2010 and 2015 in Diyarbakir, Turkey”. Dicle Medical Journal, vol. 43, no. 4, 2016, pp. 549-53, doi:10.5798/diclemedj.0921.2015.01.0521.
Vancouver Gümüş R, Aluçlu MU, Sarıbaş S. Health Status of Disabled Children and Youth Receiving Public Home Care Services Between 2010 and 2015 in Diyarbakir, Turkey. diclemedj. 2016;43(4):549-53.