Research Article
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Investigation of Caregiver Burdens of Family Members Who Looks After Patients With Dementia

Year 2019, Volume: 20 Issue: 1, 145 - 161, 31.07.2019
https://doi.org/10.12984/egeefd.561901

Abstract

This study was carried out to determine the
relationship between caregiver
burden, coping levels,
self-efficacy and psychological resilience of family caregivers of persons with
dementia. The research was carried out on 134 family caregivers of persons with
dementia who received health care from university hospitals in Izmir and
members of İzmir Branch of Alzheimer Solidarity Association. In the study,
family caregivers of dementia patients’ caregiver burden, ways of coping with
stress, self efficacy and psychological resilience were measured by
Caregiver Burden Inventory, Ways of Coping Inventory, Generalized Perceived Self Efficacy Scale,
and
Resilience Scale for Adults respectively.
Relevant demographic information about caregivers and patients was collected by
using
Demographic Information Form which
was developed by the researchers. According to the results of correlational
analysis, the relationship of caregiver burden with coping skills and resilience
and the relationship of self efficacy with time dependence burden and social
burden were found statistically significant. The multiple regression analysis indicated
that the
Caregiver Burden Inventory
Sub Scales was estimated by at least one of the independent variables. It is
recommended that these factors are considered in support programs developed for
caregiving family members.

References

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  • Borhaninejad, V., Shati, M., Bhalla, D., Iranpour, A., & Fadayevatan, R. (2017). A population-based survey to determine association of perceived social support and self- efficacy with self-Care among elderly with Diabetes Mellitus (Kerman City, Iran). The International Journal of Aging and Human Development, 85(4), 504–517 doi:10.1177/0091415016689474
  • Chun, M., Knight, B.G., & Youn, G. (2007). Differences in stress and coping models of emotianal distress among Korean, Korean-American and White American caregivers. Aging and Mental Health, 11(1), 20-29 doi:10.1080/13607860600736232
  • Compas, B. E. (1987). Coping with stress during childhood stress and adolescence. Psychological Bulletin, 101(3), 393-403
  • Connell, C. M., Janevic, M. J., & Gallant, M. P. (2001). The costs of caring: impact of dementia on family caregivers. Journal of Geriatric Psychiatry and Neurology, 14, 179-187 doi:10.1177/089198870101400403
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  • Etters, L., Goodall D., & Harrison, B. (2008), Caregiver burden among dementia patient caregivers: a rewiev of the literatüre. Journal of The American Association of Nurse Practitioners, 20(8), 423-428. doi:10.1111/j.1745-7599.2008.00342.x.
  • Friborg, O., Barlaug, D., Martinussen, M., Rosenvinge, J. H., & Odin, H. (2005). Resilience in relation to persononality and intellengence. International Journal of Methods Psychiatri Research, 14(1), 29-42
  • Gallagher, D., Mhaloin, A. N, Crosby L:, Ryan, D., Lacey, L., Coen, R.F., Walsh, C., Coakley, D., Walsh, J. B., Cunningham, C., & Lawlor A. B. (2011). Self-efficacy for managing dementia may protect against burden and depression in Alzheimer's caregivers. Aging & Mental Health, 15(6), 663-670. doi:10.1080/13607863.2011.562179
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  • Geiger, J. R., Wilks, S. E., Lovelace, L. L., & Spivey, C. A. (2015). Burden among male Alzheimer’s caregivers: effects of distinct coping strategies. American Journal of Alzheimer’s Disease and Other Dementias, 30(3), 238-246 doi:10.1177/1533317514552666
  • Gonyea, J. G., O’Connor, M., Carruth, A., & Boyle, P. A. (2005). Subjective appraisal of Alzheimer’s disease caregiving: the role of self-efficacy and depressive symptoms in the experience of burden. American Journal of Alzheimer’s Disease and Other Dementias, 20(5), 273-280 doi:10.1177/153331750502000505
  • Grotberg, E. (1995). A Guide to Promoting Resilience in Children: Strengthening the Human Spirit. Early Childhood Development: Practice and Reflections, v. 8. The Hague-NO: Bernard Van Leer Foundation.
  • Haines, J., & Williams, C. L. (1997). Coping and Problem solving of self- mutilators. Journal of Clinical psychology, 53(2), 177-186 doi:10.1002/(SICI)1097-4679(199702)53:2<177:AID-JCLP11>3.0.CO;2-H
  • Hernandez, S. H. A., Morgan, B. J., & Parshall, M. B. (2006). Resilience, stress, stigma, and barriers to mental healthcare in U.S. Air Force nursing personnel. Nursing Research, 65(6), 481–486 doi:10.1097/NNR.0000000000000182
  • Ho B., Friedland J., Rappolt S., & Noh S (2003). Caregiving for relatives with Alzheimer disease: Feelings of Chinese-Canadian Women. Journal of Aging Studies, 17, 301-321 doi:10.1016/S0890-4065(03)00028-8
  • Hohenfeld, C., Nellessen, N., Dogan, I., Kuhn, H., Müller, C., Papa, F., Ketteler, S., Goebel, R., & Heinecke, A. (2017). Cognitive improvement and brain changes after real-time functional MRI neurofeedback training in healthy elderly and prodromal Alzheimer’s Disease. Frontiers in Neurology, 1-15. doi:10.3389/fneur.2017.00384
  • Huang, M.F., Huang, W. H., Su, Y. C., Hou, S. Y., Chen, H. M., Yeh, Y. C., & Chen, C. S. (2013). Coping strategy and caregiver burden among caregivers of patients with dementia. American Journal of Alzheimer’s Disease and Other Dementias, 30(7), 694-698. doi:10.1177/1533317513494446
  • Hullman, G. E, Planisek, A., McNally, J. S., & Rubin, R. B. (2010). Competence, Personality, and Self-Efficacy: Relationships in an Undergraduate Interpersonal Course. Atlantic Journal of Communication, 18, 36–49 doi:10.1080/15456870903340506
  • Jeffries, E. R., McLeish, A. C., Kraemer, K. M., Avallone, K. M., & Fleming, J. B. (2016). The role of distress tolerance in the use of specific emotion regulation strategies. Behavior Modification, 40(3), 439– 451 doi:10.1177/0145445515619596.
  • Jerusalem, M., & Schwarzer, R. (1992). Self-efficacy as a resource factor in stress appraisal processes. In R. Schwarzer (Ed.), Self-efficacy: Thought control of action. (pp. 195-213). Washington, DC: Hemisphere
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Demanslı Hastalarla İlgilenen Aile Üyelerinin Bakım Veren Yükünün İncelenmesi

Year 2019, Volume: 20 Issue: 1, 145 - 161, 31.07.2019
https://doi.org/10.12984/egeefd.561901

Abstract

Bu araştırma demans hastası bireylere bakım
veren aile üyelerinin stresle başa çıkma düzeylerinin, özyeterliklerinin ve
psikolojik dayanıklılıklarının bakım veren yükü ile gösterdikleri ilişkiyi
ortaya koymak amacıyla yapılmıştır. Araştırma İzmir ilinde sağlık hizmeti veren
üniversite hastanelerinde tedavi gören demans hastalarının yakınları ve
Alzheimer Derneği üyesi olan hasta yakınlarından oluşan 134 kişi üzerinden
yürütülmüştür. Araştırmada demans hastasına bakım veren aile üyelerinin bakım
veren yükleri
Bakım Veren Yükü Envanteri,
stresle başa çıkma tarzları
Stresle Başa
Çıkma Tarzları Ölçeği
, psikolojik dayanıklılıkları Yetişkinler için Psikolojik Dayanıklılık Ölçeği, özyeterlikleri ise
Genelleştirilmiş Algılanan Özyeterlik
Ölçeği
ile belirlenmiştir. Bakım veren ve hasta arası yakınlığın düzeyi ve
bakım verene yönelik demografik bilgiler araştırmacılar tarafından geliştirilen
Kişisel Bilgi Formu ile elde
edilmiştir. Korelasyon analizi sonuçlarına göre baş etme becerisi ve psikolojik
dayanıklılığın bakım veren yükü ile negatif ilişkisi olduğu, öz yeterliliğin stresle
baş etme ve psikolojik dayanıklılık ile pozitif ilişkisi istatistiksel olarak
anlamlı bulunmuştur. Çoklu regresyon analiz sonuçlarına göre Bakım Veren Yükü
ölçeğinin alt boyutlarının değişkenlerden en az biri tarafından yordandığı
bulunmuştur
. Bakım veren aile
üyelerine yönelik geliştirilecek psikolojik destek programlarında bu
faktörlerin göz önüne alınması önerilmektedir.

References

  • Bağcı, S.C (2016). Does everyone benefit equally from self- efficacy Beliefs? The moderating role of perceived social support on motivation. Journal of Early Adolescence, 38(2), 204–219 doi:10.1177/0272431616665213
  • Bandura, A. (1977). Toward a Unifying theory of behavioral change. Psychological Review, 84, 191-215 doi:10.1037/0033-295X.84.2.191
  • Bandura, A. (1982), Self-efficacy mechanism in human agency. American Psychologists, 37(2), 122-147 doi:10.1037/0003-066X.37.2.122
  • Basım, H. N. ve Çetin, F. (2011). Yetişkinler için Psikolojik Dayanıklılık Ölçeğinin güvenilirlik ve geçerlik çalışması. Türk Psikiyatri Dergisi, 22(2), 104-114.
  • Bekhet, A. K. (2013), Effects of positive cognitions and resourcefulness on caregiver burden among caregivers of persons with dementia. International Journal of Mental Health Nursing, 22(4), 340–346 doi:10.1111/j.1447-0349.2012.00877
  • Borhaninejad, V., Shati, M., Bhalla, D., Iranpour, A., & Fadayevatan, R. (2017). A population-based survey to determine association of perceived social support and self- efficacy with self-Care among elderly with Diabetes Mellitus (Kerman City, Iran). The International Journal of Aging and Human Development, 85(4), 504–517 doi:10.1177/0091415016689474
  • Chun, M., Knight, B.G., & Youn, G. (2007). Differences in stress and coping models of emotianal distress among Korean, Korean-American and White American caregivers. Aging and Mental Health, 11(1), 20-29 doi:10.1080/13607860600736232
  • Compas, B. E. (1987). Coping with stress during childhood stress and adolescence. Psychological Bulletin, 101(3), 393-403
  • Connell, C. M., Janevic, M. J., & Gallant, M. P. (2001). The costs of caring: impact of dementia on family caregivers. Journal of Geriatric Psychiatry and Neurology, 14, 179-187 doi:10.1177/089198870101400403
  • Cummings, J. L. (2007). Dementia and social work practice: Research and intervention. NewYork: Springer Publishing
  • Davison, C. D., & Neale, J. M (2004). Anormal Psikolojisi (7. Basım) (İ. Dağ, Çev. Ed.). Ankara: Türk Psikologlar Derneği Yayınları
  • Deeken, J. F., Taylor, K. L., Mangan, P., Yabroff, K. R., & Ingham, J. M. (2003). Care for the caregivers: A review of self-report instruments developed to measure the burden, needs, and quality of life of informal caregivers. Journal of Pain and Symptom Management, 26(4), 922-953 doi:10.1016/S0885-3924(03)00327-0
  • Dias, R., Santos, R. L., Barroso, de Sousa M. F., Lima Nogueira, M. M, Torres, B., Belfort T., & Nascimento Dourado, M. C. (2015). Resilience of caregivers of people with dementia: A sistematic review of biolagical and psychosocial determinanats. Trends Psychiatry Psychother, 37(1), 12-19. doi:10.1590/2237-6089-2014-0032
  • Erci B. (2006), Genelleştirilmiş algılanan öz yeterlik ölçeğinin Türkçe versiyonu. Atatürk Üniversitesi Hemşirelik Yüksekokulu Dergisi, 9(2), 57-62
  • Etters, L., Goodall D., & Harrison, B. (2008), Caregiver burden among dementia patient caregivers: a rewiev of the literatüre. Journal of The American Association of Nurse Practitioners, 20(8), 423-428. doi:10.1111/j.1745-7599.2008.00342.x.
  • Friborg, O., Barlaug, D., Martinussen, M., Rosenvinge, J. H., & Odin, H. (2005). Resilience in relation to persononality and intellengence. International Journal of Methods Psychiatri Research, 14(1), 29-42
  • Gallagher, D., Mhaloin, A. N, Crosby L:, Ryan, D., Lacey, L., Coen, R.F., Walsh, C., Coakley, D., Walsh, J. B., Cunningham, C., & Lawlor A. B. (2011). Self-efficacy for managing dementia may protect against burden and depression in Alzheimer's caregivers. Aging & Mental Health, 15(6), 663-670. doi:10.1080/13607863.2011.562179
  • Gallant, M. P., & Connell, C. M. (1997). Predictors of decreased self-care among spouse caregivers of older adults with dementing illness. Journal of Aging Health, 9(3), 373-395. doi:10.1177/089826439700900306
  • Geiger, J. R., Wilks, S. E., Lovelace, L. L., & Spivey, C. A. (2015). Burden among male Alzheimer’s caregivers: effects of distinct coping strategies. American Journal of Alzheimer’s Disease and Other Dementias, 30(3), 238-246 doi:10.1177/1533317514552666
  • Gonyea, J. G., O’Connor, M., Carruth, A., & Boyle, P. A. (2005). Subjective appraisal of Alzheimer’s disease caregiving: the role of self-efficacy and depressive symptoms in the experience of burden. American Journal of Alzheimer’s Disease and Other Dementias, 20(5), 273-280 doi:10.1177/153331750502000505
  • Grotberg, E. (1995). A Guide to Promoting Resilience in Children: Strengthening the Human Spirit. Early Childhood Development: Practice and Reflections, v. 8. The Hague-NO: Bernard Van Leer Foundation.
  • Haines, J., & Williams, C. L. (1997). Coping and Problem solving of self- mutilators. Journal of Clinical psychology, 53(2), 177-186 doi:10.1002/(SICI)1097-4679(199702)53:2<177:AID-JCLP11>3.0.CO;2-H
  • Hernandez, S. H. A., Morgan, B. J., & Parshall, M. B. (2006). Resilience, stress, stigma, and barriers to mental healthcare in U.S. Air Force nursing personnel. Nursing Research, 65(6), 481–486 doi:10.1097/NNR.0000000000000182
  • Ho B., Friedland J., Rappolt S., & Noh S (2003). Caregiving for relatives with Alzheimer disease: Feelings of Chinese-Canadian Women. Journal of Aging Studies, 17, 301-321 doi:10.1016/S0890-4065(03)00028-8
  • Hohenfeld, C., Nellessen, N., Dogan, I., Kuhn, H., Müller, C., Papa, F., Ketteler, S., Goebel, R., & Heinecke, A. (2017). Cognitive improvement and brain changes after real-time functional MRI neurofeedback training in healthy elderly and prodromal Alzheimer’s Disease. Frontiers in Neurology, 1-15. doi:10.3389/fneur.2017.00384
  • Huang, M.F., Huang, W. H., Su, Y. C., Hou, S. Y., Chen, H. M., Yeh, Y. C., & Chen, C. S. (2013). Coping strategy and caregiver burden among caregivers of patients with dementia. American Journal of Alzheimer’s Disease and Other Dementias, 30(7), 694-698. doi:10.1177/1533317513494446
  • Hullman, G. E, Planisek, A., McNally, J. S., & Rubin, R. B. (2010). Competence, Personality, and Self-Efficacy: Relationships in an Undergraduate Interpersonal Course. Atlantic Journal of Communication, 18, 36–49 doi:10.1080/15456870903340506
  • Jeffries, E. R., McLeish, A. C., Kraemer, K. M., Avallone, K. M., & Fleming, J. B. (2016). The role of distress tolerance in the use of specific emotion regulation strategies. Behavior Modification, 40(3), 439– 451 doi:10.1177/0145445515619596.
  • Jerusalem, M., & Schwarzer, R. (1992). Self-efficacy as a resource factor in stress appraisal processes. In R. Schwarzer (Ed.), Self-efficacy: Thought control of action. (pp. 195-213). Washington, DC: Hemisphere
  • Kıral, K. (2011). Demans hasta yakınlarında depresyon ve yaşam doyumu: bilişsel duygu ayarlama, sosyal destek ve adil dünya inancı ilişkisi. (Yayımlanmamış yüksek lisans tezi) Mersin Üniversitesi Sosyal Bilimler Enstitüsü, Mersin.
  • Küçükgüçlü, Ö., Esen, A., & Yener, G. (2009). The reliability and validity of The Caregiver Burden Inventory in Turkey. Journal of Neurological Sciences, 26(1), 60-73.
  • Landmark, B. T., Aasgaard, H. S., & Fagerström, L. (2013). To be stuck in It—I can’t just leave: A qualitative study of relatives’ experiences of dementia suffers living at home and need for support. Home Health Care Management & Practice 25(5), 217–223 doi:10.1177/1084822313487984
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There are 59 citations in total.

Details

Primary Language Turkish
Subjects Other Fields of Education
Journal Section Articles
Authors

Tuğba Atak This is me 0000-0001-7282-5691

Mustafa Özekes 0000-0002-2509-2277

Publication Date July 31, 2019
Published in Issue Year 2019 Volume: 20 Issue: 1

Cite

APA Atak, T., & Özekes, M. (2019). Demanslı Hastalarla İlgilenen Aile Üyelerinin Bakım Veren Yükünün İncelenmesi. Ege Eğitim Dergisi, 20(1), 145-161. https://doi.org/10.12984/egeefd.561901