Investigation of the Impact of Having a Child with Special Needs on Parents and the Awareness of Parents About Their Health

Year 2024, Volume: 12 Issue: 2, 71 - 80, 07.05.2024

Duygu Mine Alataş , Mustafa Cemali , Elif Cimilli , Başak Çağla Arslan , Çiğdem Öksüz , Aynur Ayşe Karaduman

https://doi.org/10.30720/ered.1381472

Abstract

Objective: The aim of this study was to examine the relationship between the effect of children with special needs on their parents and parents' sleep quality, mental health, quality of life and to determine their level of knowledge about their health. Materials and Methods: Sociodemographic information of the parents who agreed to participate in the study was obtained. Impact on parents of children with special needs was evaluated using IPFAM. Parents’ of sleep quality, mental health and quality of life was evaluated with PSQI, DASS-21, NSP. The relationship between the relevant parameters was examined. Parents' level of knowledge about their health was determined with a questionnaire prepared by the researchers. Results: A positive correlation was found between the effect on parents of children with special needs and parents' sleep quality, depression, anxiety, stress level and quality of life. It was observed that parents had little knowledge about their health. Discussion: Studies that will address the impact of children with special needs on parents may consider parents' sleep quality, mental health, and quality of life. In addition, parents need to learn strategies that will enable them to protect their own health during the caregiving process.

Keywords

family, mental health, quality of life, caregivers, sleep

Özel Gereksinimli Çocuğa Sahip Olmanın Ebeveyn Üzerindeki Etkisinin ve Ebeveynlerin Sağlıkları Hakkındaki Farkındalıklarının İncelenmesi

Abstract

Amaç: Bu çalışmanın birincil amacı özel gereksinimli çocukların ebeveynleri üzerindeki etkisi ile ebeveynlerin uyku kalitesi, ruh sağlığı, yaşam kalitesi arasındaki ilişkiyi incelemekti. Çalışmanın ikincil amacı ise ebeveynlerin sağlıkları hakkındaki bilgi düzeylerini belirlemekti. Gereç ve Yöntem: Çalışmaya 30-55 yaş arasında 40 kadın, 6 erkek ebeveyn katıldı. Çalışmaya katılmayı kabul eden ebeveynlerin sosyodemografik bilgileri alındı. Özel gereksinimli çocukların ebeveynleri üzerindeki etkisi; Aileye Etki Ölçeği kullanılarak değerlendirildi. Ebeveynlerin sırasıyla uyku kalitesi, ruh sağlığı ve yaşam kalitesi; Pittsburgh Uyku Kalitesi İndeksi, Depresyon Anksiyete Stres Skalası, Nottingham Sağlık Profili ile değerlendirildi. İlgili parametreler arasındaki ilişki incelendi. Ebeveynlerin sağlıkları hakkındaki bilgi düzeyleri, araştırmacılar tarafından hazırlanan anket ile belirlendi. Sonuçlar: Özel gereksinimli çocukların ebeveynleri üzerindeki etkisi ile ebeveynlerin uyku kalitesi (r=0,558, p=0,001), depresyon (r=0,435, p=0,003), anksiyete (r=0,381, p=0,009), stres (r=0,455, p=0,001) düzeyi ve yaşam kalitesi (r=0,467, p=0,001) arasında pozitif yönde ilişki bulundu. Ebeveynlerin sağlıkları hakkında az bilgi düzeyine sahip oldukları görüldü. Tartışma: Özel gereksinimli çocukların ebeveynleri üzerindeki etkisini ele alacak çalışmalar ebeveynlerin uyku kalitelerini, ruh sağlıklarını ve yaşam kalitelerini göz önünde bulundurabilir. Ayrıca ebeveynlerin bakım verme sürecinde kendi sağlıklarını korumalarını sağlayacak stratejileri öğrenmeye ihtiyaçları vardır.

Keywords

aile, ruh sağlığı, yaşam kalitesi, bakıcılar, uyku

Ethical Statement

Bu çalışma için Lokman Hekim Üniversitesi Bilimsel Araştırmalar Etik Kurulundan 20.09.2023 tarihli, 2023/159 karar numarası 2023148 kod numarasıyla onay alınmıştır.

Supporting Institution

Yoktur

Thanks

Yoktur

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