Nadir Görülen Hastalıklarda Telerehabilitasyon Destekli Ergoterapi Müdahalesinin Katılım ve Okupasyonel Performans Üzerine Etkisi

Year 2025, Volume: 5 Issue: 2, 303 - 311, 29.08.2025

İbrahim Erarslan , Fatmanur Ata , Elif Özçelik , Devrim Tarakcı

https://doi.org/10.56061/fbujohs.1666184

Abstract

Bu olgu çalışmasının amacı nadir hastalıklara sahip bireylerde ergoterapi ve telerehabilitasyon destekli ergoterapi müdahalesinin katılım ve okupasyonel performans üzerine etkisini incelemektir. Çalışmaya Cri du Chat sendromu, Rett sendromu ve Tüberozskleroz tanılı 8-11 yaş arası 6 olgu dahil edilmiştir. Olgular ergoterapi müdahale grubu (n=3) ve telerahabilitasyon destekli ergoterapi müdahale grubu (n=3) olacak şekilde iki gruba ayrılmıştır. Kontrol grubuna ergoterapi müdahalesi, telerehabilitasyon grubuna ise 3 ay boyunca 40 dakikalık telerehabilitasyon seanslarıyla ergoterapi müdahalesi uygulanmıştır. Olguların müdahale öncesi ve sonrasında aktivite performansları Kanada Aktivite Performans Ölçümü (KAPÖ) ile, fonksiyonel bağımsızlıkları Çocuklar İçin Fonksiyonel Bağımsızlık Ölçümü (WeeFIM) ile fonksiyonel yeteneklerini ve performansları ise Pediatrik Özürlülük Değerlendirme Envanteri (PÖDE) ile bakım verenlerine uygulanmıştır. Çalışmada telerehabilitasyon destekli ergoterapi müdahalesinin bireylerin öz bakım ve iletişim alanlarında katılım ve okupasyonel performanslarının artış gösterdiği bulgusuna ulaşılmıştır. Çalışmada kontrol grubuna oranla telerehebilitasyon grubunda, ergoterapi müdahalesinin telerehabilitasyonla desteklenmesi müdahalenin daha etkili ve verimli gerçekleşmesini sağlamıştır.

Keywords

Ergoterapi , Katılım , Nadir Hastalıklar , Okupasyonel Performans , Telerehabilitasyon

Project Number

1919B012334466

The Effect of Telerehabilitation Supported Occupational Therapy Intervention on Participation and Occupational Performance in Rare Diseases

Abstract

The aim of this case study was to investigate the effects of occupational therapy and telerehabilitation supported occupational therapy intervention on participation and occupational performance in individuals with rare diseases. The study included 6 cases aged between 8-11 years with Cri du Chat syndrome, Rett syndrome and Tuberous Sclerosis. The cases were divided into two groups as occupational therapy intervention group (n=3) and telerehabilitation supported occupational therapy intervention group (n=3). Occupational therapy intervention was applied to the control group, and occupational therapy intervention with 40-minute telerehabilitation sessions was applied to the telerehabilitation group for 3 months. Before and after the intervention, activity performances of the cases were measured with the Canadian Activity Performance Measure (COPM), functional independence was measured with the Children's Functional Independence Measure (WeeFIM), and functional abilities and performances were measured with the Pediatric Evaluation of Disability Inventory (PEDI) and were applied to their caregivers. The study found that occupational therapy intervention supported by telerehabilitation increased the participation and occupational performance of individuals in the areas of self-care and communication. In the study, in the telerehabilitation group, supporting occupational therapy intervention with telerehabilitation made the intervention more effective and efficient compared to the control group.

Keywords

Occupational Performance , Occupational Therapy , Participation , Rare Diseases , Telerehabilitation.

Ethical Statement

İstanbul Medipol Üniversitesi Girişimsel Olmayan Klinik Araştırmalar Etik Kurulu’ndan 25.12.2023 tarihinde E-108400-772.02-7992 sayı numarası ile Etik Kurul Onayı alındı.

Supporting Institution

TÜBİTAK

Project Number

1919B012334466

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